new and future flat sister, with questions
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I love that wig too. I'd wear that.
Good luck with the style shopping Wrenn, have you seen the site where you can upload your picture and try on hair? I can't recall the name, but Bec showed it to me.
Hey daisylover, glad I could help, sounds like you know me already! hahaha I just received a parcel today from Metromedical, I love that place.
You're right about these girls, they are fabulous, every one of them. Who'd have thought, on a site this size that a group who are so like minded could find each other and form a friendship like this. I am going all sooky la, la, now!
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Idesim, thanks for the post - that wig is lovely. I will look into Amore.
Spookiesmom, I do like to wear caps to cover my bald spots. I can only wear cotton caps - allergic to wool.
I have alopecia areata, which usually only causes small bald spots for me, which grow back quickly. The cancer treatments have magnified this issue. I thought that I was just having intensified alopecia until the nurse for the drug trial informed me that "everyone" was losing their hair with this drug. It hasn't been growing back and keeps falling out - in irregular patterns unlike my typical alopecia. The trial is for 2 years. So, I am looking for a wig to wear when I need/want to look "normal".
Wren, wishing you success in finding your style!
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Hey all ,
Just wanted to tell you that I got a face book message from Stacey (JSJ) She is getting ready to have her last chemo TODAY !!! In the bag !!!!! Wish her well !!!
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In the bag for JSJ! Last one!!!0 -
In the bag, JSJ! Last one, last one! You are a warrior princess.
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Bobo! The kids are so cute!! W looks like he has a big T for trouble on his face. I see that look on my grands
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Spooks, thank goddess you see through to W boy's true nature, he snows everyone! I am bathed in relief.
I reply to myself from the other thread. M! I am very concerned about your ham hands. And want to give you a scolding. There was absolutely no need for you to vacuum the grass, or polish the rocks, or whatever you were doing out there, just because the gardeners were occupied for the time you needed them, and now LOOK! They were able to come anyway! As if our Bec would give a rat's ass if there were leaves on porch or sand in the grout! OMG! You must have everything your way or it is the highway! John Wayne had better join in the chorus here, instead of shaking that handsome head of his and smiling with his handsome fucking crinkly adorable man crow's feet. Oh my bloody god and fuck, angels, cherubim and seraphim! Here I am doing my level best to 'get down and stay down,' and then look at yourself! Stop putting those press-on nails on your poor hands! I swear you are not too grown for a throttling!
Am still feeling effects of residual anger from Z's fake Christmas nut story. Am spending residual effects for the good, where they can do good, in an attempt to modify M's behavior. Will it work? M, you had better order in lunch, I am not kidding.
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I reply to myself. Our Bec should move apts and I know just the person to find the new place and interview the neighbors to see if they are crazy.
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In the bag for JSJ! Woo hoo! She so wanted to be done by Christmas.
Daisylover, Check out fleece caps. I can't wear wool either and am the queen of fleece. Hats, jackets, tops, pj's, you name it. My friend and I were buying a fleece hat for someone getting chemo. When the woman found out, she gave it to us, saying she always gives one free if it's for chemo. The recipient loved it. Soft and warm.
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Ooooh Bobo, that was a really thorough spanking! I nearly choked on my, Green Vibrance, Mango and Banana, Vegan smart with Coconut milk, shake. I am crying from laughing out loud. bahaha I can't wait to tell Bec about that one! I had to read it to Colin and his carer!
Ham Hock hands, are much better today! Lots of massage with my analgesic oils, last night, even though I was up till after 1am, they make me sleep really well and take the swelling down.
The stick on nails were a total failure, I have really long nail beds and the stupid stick ons were shorter than my own nails, even though I filed them, really short, before starting. Bec may have a play with those nails when she is here, she has very different nails to me.
You're so right, Bobo, Bec couldn't give a rat's ass, if the paving is spotless and the grass mowed, but she loves getting a photo sent when it is done with a caption like "Look, Bec, that lounge has your name on it!" or "Spa is ready at 30c!" "Can't wait till you're here!" besides it is good exercise for me! lol
Bec has been considering moving, because of the hoarding that has been going on, but the reason she spoke with the agent was because she had decided she really doesn't want to leave, where she is, she loves her place, but wanted to approach this neighbor the right way, or have the agent do it, since it is there responsibility to keep the common ground safe.. Well, it didn't turn out too good.
I found that apartment for her 8 years ago and it is so perfect and quirky. It is very retro 70's, the style she loves and it is right on the beach, she just has to cross the road and she is on the sand or the bike/walking track. The pier, is a short stroll away, as are the cafes and supermarket and the train station. I have been keeping an eye out for anything similar, for a while now, since this hoarding nonsense started to escalate, but there just isn't anything that comes close to this little place, with the sensational position and view. I did try to talk her into looking in the city, so she would have everything right at her doorstep, including her work which is in the heart of the Business District, but she doesn't like that idea. Not sure what she will do, but I am guessing there will be plenty of talk about it this week. You make a good point about checking out the neighbors, but you never know what you're going to get, do you, or if the good ones move and you get a nutter next door.
Thanks for that update, Fia, JSJ, I have everything crossed that it's going well for you and it will be done and dusted!
Now, DP, what's happening there?
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Thanks everyone for being in the bag today. It was an awesome day! I am glad to be done and look forward to an amazing year of health, love and laughter. Sailman got my parents and JB up there and he had a single rose for me ( our thing) and my mom had a bouquet of beautiful flowers. We danced in the bubbles and daddy took us to lunch. Then I came home and crashed, just woke up from benadryl fog and just happy. It was bittersweet, my cousin Becca died 4years ago today from her chemo for stage iv anal cancer. She was 28... We have just found out her sister has the family gene and I am getting ready to walk the journey with her of surgeries in the next few months. I am so thankful for y'all. Each of you have impacted mynlife in a way you can never know. The Christmas and holliday cards came at the perfect time, giving me that last little umph to get up this final hill.
Much love my angels,
JSJ
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JSJ we are so glad you are done!! Hugs to you and Sailman! Happy that you got done before Christmas.Sad that your cousin has inherited the family gene. She will be in our thoughts.
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So thrilled for you Jsj! Have a super Christmas with all your loved ones. So sorry to hear there is another that has the gene, she's so lucky to have you! M x
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Yay JSJ! You did it!!! So sad about both of your cousins.. 28 is so damn young. We're here to walk the walk with you.
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yes JS, I posted on your CB site as well, so happy for you, have a Merry Christmas! Sad about your cousin , 28 is so young. Good night!
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Woohoo. Congrats JSJ!! It is late...I hope you are sleeping and dreaming of sugar plums with sailman by your side. Merry Christmas!
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PRB. We need to stop meeting like this. Hope you brought the cookies. I'm all out. Be nice to look at the lights with a warm cup of tea and a cookie! Do your best shopping at 3am?
Yea JSJ! We knew you could do it. You'll be a great inspiration to your cousin. Let the boys pamper you for a little longer.
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Fantastic jsj! Hope you enjoy Christmas. Xx
Zills and PRB, are you girls shopping at 3 am? Xx
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Just lost my whole post. So frustrating. Anyways...as I was saying, I don't know what I was doing up at 2 am!! I am a night owl..always have been, and so while on vacation... I am up late. Now it's noon and I am not out of bed. See how that goes? lol
Z - no cookies here. Well, I lie. I bought some weird biscuit cookies at IKEA thinking they were going to be like shortbread. Instead, they are tasteless graham crackers in the shape of letters and they pretty much suck. Of course that has not stopped me from eating them with my coffee. If you were here visiting, I would not offer them to you or your children because BG would probably wrinkle her nose and express great displeasure, and I would be embarrassed. Maybe your dog would like them.
No shopping for me. I am done. Well... very close to done. DD's Christmas list has been pretty much non-existant. It's pretty much Christmas all year round for her, right? I just buy stuff as needed. Anyhow, she had a request yesterday and I cut her off at the pass... too late for requests...but it was only for a good pair of tweezers. Tweezers? I guess I can manage that. She seems to be hair obsessed lately...wanted a razor to shave her legs with. Um..no.. I bought her a nice electric razor I would have loved to have had my whole fricken entire life. She does not understand how many scars and/or blood loss cuts I am saving her from. Oh that bone on your ankle.. oh, how many times in my lifetime did I scrape that thing to the bone. I ouch just thinking about it. Maybe the newer razors don't cut you anymore. I dunno.
Hitting submit before I lose this again.
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PRB, I am curling my toes up at that thought, ouch!
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Haha, PRb I have a permanent scar on my ankle bone from a lifetime of rushed leg shaving. I have never waxed my legs and I have pretty much every new fandangled hair removing and shaving implement, but I go back to the safety razor every time.
Bec was never one to have a big list either, I used to buy as she needed things, but she never asked for much, still doesn't. I have a fold up bike for her, for Christmas as well as stuff I have found during the year that I thought she might like, so I have it all in a big sack for her to rummage through. Her Birthday is 12 January, so not sure what she may want for that, but I will take her shopping at the sales later this week for something nice.
Shopping at 3am? What's wrong with that? haha
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Fold up bike! That sounds amazing, M!
Z, what are you doing up at 3 a.m.? Wrapping? PRB, peeing about your Ikea biscuits story. They also have these 'husks' that look like a roll cut in half, but then they are dried until you could knock them against the table. I love those!
Hooray JSJ! You are a rock star!
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I reply to myself (on both threads). Vagina update! Those of you who are shy and retiring, suck it back! To be clear, I am speaking figuratively here.
My poor, patchy, nearly hairless (and btw abandoned) vagina is also the proud wearer of a GIANT, SPIDER-SHAPED BRUISE from this most recent sx. The PS (everyone's favorite) cut holes in the creases of my legs near the vagina, then put a cannula down to get fat... out of where? Out of my vagina? Oh my god.
So I went to the post-op today. PS was not there, thank the goddess. I don't want to deal with him at the moment. Asked the (brainless, probably gave me the infection last year, EDITED TO ADD: pregnant) PA to call up the sx reports and tell me what FFF? happened to my vagina?
He did do that. He took fat from the front of my leg, in front of the quad (M, NOT inner thigh!). And he accessed that through my vagina.
Meanwhile... 'Oh, I am Andrea's vagina, Andrea has a cold but I am still in mint condition, I do not have to wrap presents. Andrea is bringing me on a trip to Canada. She says if she lived closer to Bobo they would be like family, but I must say I would look right past Bobo and her mangled mixed-breed of a vagina as if I hadn't heard Bobo say anything. I wouldn't hurt anyone's feelings overtly, though, because pretty is as pretty does.'
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Also wanted to announce that I have purchased coffee beer for DLLP and I as a treat on Christmas day! Beer made out of espresso!
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Bobo, shuddering at your post, really?
Beer and coffee, what?
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Dawney. Love that card
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OMG, Bobo,,, I am shuddering at that. Your poor vagina. She needs a really nice Christmas present. Why the holy hell did he do the front of the quad and not the inner thigh? **sounds insane**
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It is. Read my vagina and weep, my friend.
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I reply to myself. Dawny! It is (vegan) beer made with espresso! It is 'espresso stout.' Stairway to heaven!
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Dear Ones:
This young sister needs help.
Topic: Please tell me this gets easier
Your Post has been added to the end of this Topic.
Forum: Help Me Get Through Treatment — Medications and other treatments, medical benefits, and managing side effects.
Remove from My Favorite Topics
Posted on: 9 hours agoReport this Post
Joined: Dec 2014Posts: 5
shelleym1 wrote:
Can someone please tell me this gets better? I was diagnosed on 12/1/14 at 35 yrs old. My lumpectomy is 1/12/14. I do not know if I need chemo or not yet until surgery. I am terrified everyday when I wake up of what's next to come. The Xanax helps me sleep, but I wake up around 5-6 AM and cannot go back to sleep. The morning anxiety is horrible. I am so emotionally drained. I can't get past the fact that this thing is in my body for the next few weeks. I have read so much stuff online that I should not have read. It seems like every story out there is a bad one and few are positive. I can't believe I went from thinking I was going to live to be an old lady, to being excited at hearing stories of people that live 10 years after diagnosis. I think wow, if I can make it 10 years! Every ache and pain I have I wonder, has it spread? I need someone to tell me that yes I have a shot of living a long life after this because right now I cannot see past the doom and gloom. I try to do something "normal" and my mind goes - you have cancer, you can't be normal. How do live my life with this uncertainty.
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