Any Texas Hill Country BC Warriors?
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I'm game for buttermilk - 10 is good for RR meet up for ride sharing. At sprouts? Where is that?
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Vickie, Sprouts is off of the SB IH 35 access rd and 620 in a small shopping center. See you there at 10 tomorrow.
So, we'll meet at Buttermilk about 11:15-11:30, I guess? By the time we go by to get Zelda...?
I'll let Sherryc and Sandra know. Sandra said she is going to try but not sure...same with Sherryc.
Holli, I hope you can make it!
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I'll be there!!
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V- what color is your Escape? probably best to park towards the McDonald's, as there are usually less cars there (and less shopping carts)
see you tomorrow!
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It's green/blue...more toward green.
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brunch ladies. I am here between McDonald's and starbucks wearing white Capri and lime green top
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Hey ladies- since we didn't have any definite yeses from anyone in SA, we are heading to Magnolia on south congress here in Austin.
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not going to get to make it this time. These radiation burns are killing me. Sorry to miss y'all again. :0(. Maybe next time.
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Had a great time with Jen, Teri, and Zelda at Magnolia this morning. Adding a pic, sorry for the quality!
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great pic!! Sorry I missed y'all. Hopefully I can make it next time.
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Thanks for posting the picture Vicki
Had a great time. Always good to see you all!
Nice meeting you, Zelda!
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On a roll updating my blog about "stuff". Here's the link if you're interested:
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Hi y'all!
Great pics
thank you Vicki! And welcome Zelda...y'all are beaming 
Can't wait for the next meet up!
Jeni - hope LE is calming down
Holli - rads done? Speedy healing and comfort. Ugh, you have had a rough go:(
Hope to head home soon. MRI was clear:) but AI kicked my b###. Infusion of Zometa Friday and fly out late??? Praying no adverse SEs. For those on AI, make sure your MO is on top of your bone scan and blood work...I pushed for a 6 mo check and settled for a 1 yr check. Everyone's different, but I was surprised at bone loss & cholesterol jump...so heads up. FitBit says time to move...
Happy 4th and God Bless America...and Texas!
(((Hugs)))
Cindy
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Happy 4th of July!
Hope everyone is staying cool and hydrated. Remember to bring your pets in before fireworks start tonight.
V- thanks for the photos- I had a great time gabbing with all of you.
Cindy- yay for clear MRI! and hope you get to come home soon without any SEs
let's plan another meetup for August?
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Cindy, good news with your MRI!! Sorry to hear about Als...I hope things get better for you!
I have been lucky so far, with no apparent SE's of Tamoxifen, except an occasional night sweat.
August or September sound good for a meet-up. I guess we should check with Zelda since she will be having her big appt at the end of this month. Maybe we can see some of the Southern Belles this time!:)
Stay safe this week-end, ladies!
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Finally I found you all here. I am so happy Zelda
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Thanks to Vicky that has so genrously doanted her time to me since I was diagnosed - I was able to meet you all0 -
hi Zelda! welcome to the room!
- jeni
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Thanks
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Hi Zelda, glad you found us!!!
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Just an idea for another get-together....is anyone interested in going to the Gospel Brunch at Gruene Hall sometime? Tickets are sold in advance and go quickly. I think they have it once/month...not sure of the next show.
My nails have almost grown to the end of my chemo, finally! They are breaking off but not yellow and ridges are growing out! YAY!
Cindy, have you made it back to Texas yet?
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I had my first round of AC... Shan vs The Red Devil! So far just a bit nauseous and feel kind of spacey but not really tired, its really a weird feeling! But I know they said side effects prob wouldnt show up bad until tomorrow or the next day... its okay though I have my super hero bands on!! (PSI motion sickness bands)
Have to go back in the morning for neulasta shot and so they can show hubby how to do it after treatment... i hate needles and just dont think i could give it to myself!
Hope you are all doing well, maybe now that im going to have to slow down a bit ill be in more to chat. Have a nice night ladies.
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Hi y'all
Zelda - Welcome! Glad V has come along side
a comfort and blessing. ChaosRains - Congrats! Ooo who 1 down...sorry that you will have a though couple of days...we are in your pocket...and hubby gets the gold! He's a hero
JWoo -
like the new pic!Teri - sounds like a fun outing...
Zometa is schedule for Friday at 11...I love that MO said I would feel like crap:((( seriously for 3-5 days...but I've got to do something about the bone loss...decided not to look at SEs. Back at the beach for a few days than return for infusion...will try to come home Monday...crap or not.
(((Hugs)))
Cindy
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Hi all!
Glad you found the room, Zelda! See you for our weekly walk.
Cindy - we need to chat when you get back re: bone loss. I am already osteopenia, so the bone loss scares me a lot. My endo doc took me off of my meds after she found out about the breast cancer...and my bone scans were improving! So taking mega doses of Vitamin D and my calcium...when I remember, which should be nightly
Off to take my Vitamin D and Calcium while I remember....back in a bit
Back....
Terri - great news that things are getting back to normal! I like your Gruene idea for our next get together
Chaos - glad you are starting treatment. I can't say that I have experienced what you're going through, because I haven't yet (nothing personal, hope I never have to). But know that we're in your corner every step of the way, rooting you on. And there are ladies here who have been there if you need advice or a place to vent.
Jen - we need to chat about little red dots. I have some...strange.
News Flash! I don't think I am going to do any fat grafting. Thelma and Louise are amazing. Fat grafting will provide a more natural slope instead of ...flat, flat, boobs... but I don't like the two week recovery time, one month in a compression girdle, and only 60-80% of the fat takes. There would be a good chance that we have to do it a second time. I really don't want or need to be out of commission that long. I can always change my mind later, but right now....I don't want to risk it. Plus, it could have an impact on my monthly self exams....the new fat can develop cysts, scar tissue, etc. so I would freak out about nothing.
My PS gave me another other as well, but that has its own risks:
Both breasts would get "opened up" again, risking infection
My body could reject the Alloderm (hasn't rejected anything yet, but still).
More stitches, more possible scarring.
Two week recovery time.
I like my new girls. I would hate to risk them to try to make them look even better. I will settle for AMAZING.
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Hey everyone! How are y'all doing?
I must admit that I woke up this morning and feel like I got hit by a train last night... My whole body aches - Neulasta I'm assuming... Either way I'm not sure if I want to stay in bed or push myself to get up and do something...
In the meantime I have been messing around on WordPress and made a blog
https://shanschubert.WordPress.com
Right now it is all about cancer.
but I'm not going tonletbthat become the main theme in my life so I will probably add poems I've written etc to the blog as time and energy permits0 -
Cindy, I hope you do okay on the Zometa. Is MO saying no to Tamoxifen?
chaosrains, I had Neulasta shots day after infusion and I took 24 hr Claritin for a day or two before and a few days after. I am not sure how much it helped; I still had some minor aches, but maybe it's worth trying. I took long hot showers to help with neck and back pain...maybe you could use a heating pad also.
Vicki, hard decisions and so many things to consider. Follow your intuition:).
I have osteoporosis and osteopenia, so no Aromatase inhibitors for me, right now. MO said she will do another bone density test in two yrs and see if my Vit D and calcium have helped. If so, she said she may switch me from Tamoxifen at that time...My level was 17. It should be between 30-50...YIKES! I have been walking also, so I am optimistic! I hope the Tamoxifen is effective while I wait! MO also said that sometimes just being on Tamoxifen can help improve bone loss...
Have a great week-end ladies. I'm off to a continuing education class...fun, fun!
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Hi y'all
Flew home late yesterday...RN said I would be ok to travel...so ran out of chemo room, booked a tickets, threw clothes in suit case, taxi arrived within the hour and off to the airport...at airport within hour. Long flight...delays in PHX arrived home at midnight. A bit achy with fever, but my bed felt so good:)
Thanks for being in my pocket.
Tamoxifen is not an option because of family history...right now I will try...but would like to switch so another firm discussion in December...right now a 1 month break off Aromasin. I had wanted to do tamoxifen first and then switch but did not get a buy in...We will see.
Nap time and Tylenol time.
(((Hugs)))
Cindy
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Cindy, glad you made it home! I hope you're doing okay. My MO never mentioned family history as being a factor. I guess my bone density trumps that...
Wouldn't it be nice if we could take something that doesn't cause another problem?
chaosrains, I hope you're feeling better, too!
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Hi Y'all! TGIF
Check out Pillars4Life. Livestrong is offering a video conference on skills for thriving after cancer!
I think someone here went to the Livestrong Navigation Center in Austin for yoga or other services, but this is provided beyond our great state...so check it out.
Need to register by 7/23
I just signed up ...9 week coping skill training Wednesday noon to 1:15
Thanks Terri. I'm doing much better. Really only 12 hours that were really crap. Yes, it would be nice if the cures and prevention were not so hard on our bodies and spirit. Trying to up my Vit D and Ca but caused the big C so stopped and will gradually build up to level desired...regularity rah! Family History strokes both sides and uterine cancer...Aromasin was suppose to be easy...But tiny frame bmi below 22.5 increases risk to bones...so it's always a toss up...bet $10 on the old gray mare:) she's on her way
ChaosRains - hope you are feeling better:)
Vicki - luv Thelma & Lousie...follow your heart:)
(((Hugs)))
Cindy
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Ladies -
I am osteopenia myself. I was taking Actinel until March of this year. My endocrinologist took me off after she found out about my breast cancer diagnosis. My bone density scan in March showed improvement from the scan a year ago...but now I am flying solo. No meds to improve bone density, so I have to rely on calcium and Vitamin D....and exercise and diet. Scares me. What worries me even more is the amount of bone loss possible with AI. With Cindy reporting 7% in one year....that's a huge number for me. I am not sure it's worth it. My odds for recurrence are only improved by 2% by taking the AI. Is 2% decrease in recurrence worth 7% bone loss? I'm not sure.
Anyway, this has been weighing on my mind a lot lately. I see my endocrinologist and oncologist again in September. I will definitely be talking to both of them about my concerns about bone loss and see what they say. I will not make any decisions until I meet with both doctors, but right now I am leaning to giving up on the meds and moving to a more holistic approach (diet, supplements, etc). Thoughts?
Meanwhile, I hope everyone is doing okay.
Terri - love the new pic and hair!
Cindy - glad you're back in town!
Chaos - how's the chemo going? I checked out your blog and will continue to stop by from time to time.
Jen - how ya' doin'? Haven't seen much from you lately but I haven't actually been around much myself.
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