How are people with liver mets doing?
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sorry to hear of your high count of mets. My first scan at dx was too numerous to count so on taxol we went. Past count was 6 so there is hope
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Hi, Becky. I've been told that SIR-spheres are good for a bunch of little liver mets. You'd have to see an interventional radiologist to discuss it. A lot of people have had success with it. Also, you can get more info on www.beatlivertumors.org.
:-) Penny
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Another fever. Headed to ER. Please pray.
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Praying for you Penny!
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Prayers worked! Heading home. Thanks be to God
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PTL! I am so happy to hear that you are going home! Take care Penny....God is good! Get some rest now.....so much easier to do at home than in the hospital.
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`bestock,
sorry for the tumor marker increase, but if it is your first ixempra if could be a reaction and then they will drop. actually it is your MO 's job to check if this is working for you or not. i believe 100 tumors are a lot on the liver so he should assess the risk , and decide if this is the right medicine for you. talk to him and try to understand his plans. so he can put your mind at ease. i hope it is only a medicine increase and nothing else. god be with you.
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Bestock...I just read Ixempra can be a bugger. I can't imagine your counts going up that drastically unless it is the meds. Hopefully. As Woody says, they'll drop just as quickly. Sounds like a big mass of little tumor clusters...100! Maybe Penny's info would be good to discuss w/your onc. Good luck...praying for your txt to work...without so many ses!
Penny..hope you're feeling stronger today!
Woody...French fries...if my stomach is a little wobbly...nothing like French fries...or compazine :-)
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Thanks ladies for imput. ...I did discuss my treatment with the Oncologist he is very good and I trust him.I am having a scan on the 24 before I get any more chemo. Maybe have to change drugs.. Have any of you heard of tumor overload or dumping where when you get a new chemo the counts go up because the treated cells dump out in the blood??? I have a stage 4 friend that said it happened to her . thanks for prayers too. becky
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Praying for you dear Penny , may God be with you all the way. Get well soon.
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yes `becky sometimes this happens when tumor cells dies and go in the blood. i read here but i do not remember to whom it has happened.
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heheheh Ronnie i do not mind french fries either and without comazine
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Hi everyone. I've not posted on this thread before but have been taking in quite a lot of the advice and support given by everyone. I am two and a half years in from stage iv bc diagnosis. Lungs, liver and bones(a lot of mets in bones). I've just had a 4month break from chemo and have been on Aromasin. Latest scan shows progression in lungs and liver. Just started Eribulin. Ist shot on Wednesday and I have had severe vomiting for two days.Feeling really weak, Has anyone else been on this chemo and if so what side effects and what results did you have.?
So scared at the moment.
XHelen
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XHelen,
I am so sorry you joined us on this board in the first place. You have not mentioned if you are IDC or ILC and you hormonal status but i presume you are at least ER+ and HER2 - . The fact that you have intensive bone mets is not as worrisome as having the liver and the lungs . They are most important because they are vital organs. I was on Aromasin last summer and it failed me too. After you had taken other anti hormonal Aromasin alone does not do much. Eribulin is halaven. I have not taken it personally even though it has been suggested to me. But i know few who had taken it on this board. To some it worked while to others it didn't. But in the studies it has shown to increase the progression freebperiod by a median of 4.5 months. As for the side effects well it is a chemo and to some extent they all have the same SEs nausea, vomiting, and low blood cell count etc...but i suggest if you feel this is not working for you and if you still are highly ER+ to ask your doctors about Aromasin +affinitor as they seem to be working together even with in some cases a lot of undesired SEs but they are working. Affinitor works well with Aromasin by stimulating and doubling the effect of aromasin for people who have been before on anti hormone . People are getting stable or shrinking of tumors for quite sometime.
Do not be scared, i know it is easier said than done , everyone is scared every time there is a progression because one wonders if this is the end or not. No one can tell not even your doctors as they are wrong also sometimes. Some people they are told you have 6 months or so much time and they go on living for years. Just trust your guts and fill your self with faith that you will do what is supposed to be done to feel better. It is very important that you do not lose hope. I am sure a combination would be the right one for you. Talk to your treating doctor about your fears and worries and let him explain. As for here you can come anytime you like to vent, talk , and say anything you feel like saying. As you will find out soon , there are some amazing women on this thread and this board. They are full of hope , life and energy to last a life time, as wellas compassion, care and giving hearts. My prayers are with you .
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Been a while again since posting...so tired that most nights after work, I'm asleep on the couch right after dinner. I thank God that I can continue to work, so not complaining.
Woodylb - Thanks for you weill wishes and glad to hear that you are on new meds and doing well. The 10 hour nap sounds like a blessing! lol
Penny - Thank you also for your blessings. Glad you are home from the hospital and hope you are feeling much better.
Ronnie Kay - Thanks to you also and CONGRATS!!!!!! on your wonderful scan results. I'm so happy for you. :0) :0)
I've had a bout with food poisoning (just what I needed on top of fun chemo se's!), but finally feeling better. Will complete my second round of 3 weekly navelbine's tomorrow and have scans scheduled for the 26th. Trusting in God that all will be well. My best wishes to you all and keep up the good fight...you all are my heroes and my inspiration!
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Chichi , please be careful of food specially when you eat outside. Be safe and rest whenever you can nevalbine is strong and i hope it kills as much as it tires.wishing you well .
My session of paclitaxel was cancelled due to low blood everything red, white , platelet and a viral infection. So i will get two neupogen injection forntwondays than check blood wednesday if good we go trough the session if not it will he till sunday.
Happy youbare out dear Penny . my prayers are with you all. (( HUGS)).
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Oh crumb, Woody...sorry your counts were low. I imagine you weren't feeling very energetic. Hope the neupigen kickstarts rebuilding all the good parts!
Chichi...I can't imagine working through Navelbine...but I know how resilient we are! Through chemo the first round & this round, I've babysat grandkids...but naps are part of the job! I will be praying for good scans for you on the 26th. My onc waited 5 months to scan me after starting navel/herc/perj. My liver was full of tumors...and at that point they'd shrunk 80%. I was on weekly nav for 6 mos & then went to 2 wks on, 1 off. It really saved my bacon, having the week off. Food poisoning...ugh! I got it right after starting navel after eating at Whole Foods salad bar. I guess just because it's a natural food store doesn't mean it's w/out bugs! My onc said Never eat salad bars! We'll await good news!
Muther....looking at your bio, I get nervous. We've somewhat done the same routine, with a few changes. Now that I've been taken off Navelbine after 22 months and am on femara, herc/perj, I'm concerned about seeing so many have progression. I wish you the best healing on your new regimen...and I pray for ses to subside. Glad you've come to chat...we're in this together. XOXO
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Thanks Ronnie, the funny thing instead of being tired i was restless and unable to sleep, this was making me too tired as i went today for blood tests , i was full of energy but then when i got the call about the results i went down and slept the whole afternoon. The insurance gave me problems today nothing was approved , so hubby called and got it fixed , but we are in a renewal period and it is making me nervous as each treatment is exactly 2 semester of college for my son. DO NOT EAT ANY VEGGIES OR SALAD BARS outside your home, bio or not. This is the first thing my onc warned me about. Wash well at home and eat what you like hehehe . Kisses.
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Oh Woody...we've had little snafus with insurance that took my breath away, but were always just snafus. They always got resolved. When you put it into the 2 semester perspective...ugh...both are ridiculously expensive!!!! Yep..I'm a "eat my fresh veggies at home" gal!
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Hi Ronnie. Thank you for your encouragement and advice. I have always been a positive person and since my bc Dx I have researched and tried all I can to help the meds do their stuff. For some reason I am experiencing a really low period. I follow theRainbow diet pretty much although I do indulge in chocolate now.and again. My port insertion was cancelled last Friday but rescheduled for this Friday 21st. Nurses are on standby with anti sickness jabs. Second shot of Halaven tomorrow. My bloods are fine so it can go ahead.
I did Navelbine last year and had short success but had to quit because of se's.
Wishing you and all the ladies here a good and pain free day.
X Helen
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Oh, Woody, so sorry for cancelled chemo. Eat well and rest as much as you can. Neupogen will do its job and next time everything will be fine.Today I have an appointment for liver ultrasound. I'm very nervous. As my TM didn't drop much last time ( after the first infusion they dropped with 24 points, and after the second only with 6 points) I'm very scared of today's ultrasound. I hope and pray for a good results.
Hugs,
Christina
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Chrisitine sweetheart, do not worry so much and do not be nervous, it is better to have a slow drop then a fast one. Fast drops are known to come back fast . So i pray yours go down slowly and surely then fast with no real effect on your cancer. I see it as a good omen. Big hugs to you and good luck . Keep us posted.
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Wow, Woody. Your warning about eating veggies and salads outside the home rings with me. Right before I contracted the Hep E I was eating a lot of salads from McDonalds. Hmmmm.
:-) Penny
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Ohhhhh!!! Penny nooooo in normal times i never ever ever ate any salads at Mcdonalds or burger king or any fast food restaurant . We are very and extremely vulnerable to plant bacterias. If i wash my veggies at home or touch any flowers , meat , chicken or fish i wear gloves . These are the first rules of safety i was told at my first Dx. I never had an infection during any treatment thank God. Please be very careful with this specially stage IV we are always under treatments therfore our immune system really suffers and sucks .
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Helen...I'm hoping all goes well today for your Halaven...and it's without a sick stomach. Good thoughts & prayers for a smooth port on Friday...it just makes everything so much easier!
Christine...thinking of you w/ultrasound and hoping it's good results. I'm the worst at wanting to see magic happen in #s...I worried when my cea went from .7 to .8. My onc said a normal person's would be 3. My nurse said I catastrophized...to which I'd say, "I'm scared!"
Talking MUGA...my ins only paid for mine after my year on herceptin. Since then (2more yrs on herc), my onc says the ultrasounds are fine, which is good cause that's all ins pays for.
So Penny...instead of salads at McD...it's chicken nuggets or burgers! After nav/her/perj, a McD burger helped my queasiness. My son said that's why they're open 24hrs, to help the party guys cure hangovers...some grease helps coat the tummy.
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What chemo next? Just taken off Xeloda due to complications from the drug and wondering what are my options. First diagnosis, i was treated with AC until I developed Cardiomyopathy from it, then taxol for six rounds ( developed neuropathy in fingers and toes). Radiation and then six rounds of CMF. Arimidex for seven years.
Metastasis discovered in spring of 2013. Started on Aromasin, after two months developed allergic reaction ( hives and face swelling.) On to Letrazole until it failed after four months. Faslodex added and remained on the combination for six months until that quit working. Next came Afinitor. After two days on it, I developed what was described as mouth craters. Sent to see breast cancer specialist, who said that since the side effect developed so early, I wouldn't tolerate a dose reduction. Xeloda was next and it was working, reducing liver tumors but the rash that started with first dose was biopsied and was a lupus type reaction that rarely turns into full blown Lupus but koncologist, dermatologist and rheumatologist advised it be stopped. I feel like I am crossing options off the list quickly.
I have been scanning all your posts for treatment and it seems so many of you have Herceptin as part of your protocol but I an not Hr2 positive. I am searching the web for a list of drugs so that I have some idea of what is left and can make informed choices. MO is suggesting Gemzar next but I don't find many posts about it.
It would be very helpful if some of the you with liver mets would post your drug progression. Just need more info in order to prepare for what's ahead. I also have bone and lymph node involvement.
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If you go into my biography, you'll see my drug progression. I feel like I've been on a lot of chemos. I've also had a couple of ablations.
:-) Penny
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Crone, hang in there, I've been in a similar position. Had a severe toxic reaction to doxil after 2nd infusion in October. My skin is still coming off on the hands/feet - its awful. Adriamycin has been recommended next & I know how tough that can be. Have not been without any tx for this long since 2010, so I'm scared to death wondering what's happening inside.
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Oops, not sure how that message got away from me. What I was about to say is there are many more chemos, including trials.
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Syrmom,
I am sorry about your reaction to doxil i did 't know. I hope you are feeling better and ready for what is coming next. My prayers are with you.
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