Any Michigan Ladies?
Comments
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Anniekay - I'm in Hartland but have a Fenton mailing. So not too far from you.
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Hi there ladies. I live in Ann Arbor, was diagnosed in December, and am now recovering from unilateral Mx. I am being treated at UM. Currently trying to decide about rads due to a close Mx margin, and getting thoroughly exhausted trying to make ridiculously difficult medical decisions. I really like my treatment team so far (BS and RO) haven't met my MO yet.
I'm 46 and I have two kids, age 10 and 13. I'm not planning recon. Maybe a cool tattoo at some point, but for now really embracing this badass scar
Nice to connect with other nearby people.
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Has anyone had Dr Lisa Newman as their surgeon? Looks like she was one of the Drs from U of M going to head up the new international cancer center at Henry Ford. May go to her for a 3rd opinion since she has an interest in Triple Negative BC.
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Hi BlueHero , I saw Dr Lori Pierce at UM when I was considering rads. She was wonderful
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mmtagirl, Dr. Lori Pierce is my RO also. And I agree, she's phenomenal.
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I also saw Lori Pierce when deciding rads and I can't say enough good things about her! She's the breast cancer rads expert!
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When my 80 year old mom was diagnosed with Stage 1 cancer, we had a consult with Dr. Lori Pierce. She was so helpful to us and helped make my mom's decision not to proceed with any radiation. Dr. Jagsi also at UM, is also amazing. My sister just completed rads 2 weeks ago. I was in on that consult as well as all three of us are patients at U of M.
A friend of my sister's was recently referred to Dr. Lori Pierce by her MO at Ohio State. They told her Dr. Pierce was considered to be one of the Top 10 ROs in the world and he wanted his Ohio State patient to go up to U of M to see her.
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I'm from Michigan and newly diagnoised. How are you doing?
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Has anyone gone to a Cancer Centers of America?
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Denise - I have a good friend who's the head nurse of breast onc at Memorial Sloan Kettering. Dr. Pierce came highly recommended by the oncs at MSK and they all said the same. She one of the top experts in her field!
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Welcome Nesa!
We're sorry to hear of your diagnosis, but really glad you found us. This is a wonderful space for support, knowledge, advice and even some laughs as you navigate treatment.
To help others identify with you, you may want to fill out your Profile with the diagnostic information you know so far. Don't forget to update as more is learned and also to add your treatments as you go. This information will help connect you to others with a similar diagnosis!
We hope this helps and look forward to hearing more from you!
--The Mods
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OK, so my amazing RO Dr. Pierce is recommending I get a second opinion just to get another set of eyes on my case as I decide about rads.
She suggested Dr. Inga Grills or Dr. Peter Chen at Beaumont, or Dr. Eleanor walker at Henry ford. Does anyone have experience with any of these people, or have someone else in the area they love?
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Allydo - thanks for the info - plus she is such a personable and humble doctor!!
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Does anyone have recommendation for a UM oncologist? I'm thinking about getting a different MO.
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treelilac, I haven't met my MO yet but I will let you know
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Thank you! (I'm in Canton. My 2 kids are 11 and 15.)
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Hello all you strong ladies!
I want to share my happy experience this week.
I went to a PS here in FL where I have moved to see if there is any touch up, more fat graft or something I should consider before tattoos. I am very happy with my DIEP just don't want to have tats then wish I'd waited. So chose a PS who does DIEP, although I don't know how much experience he has with it. In any case he said it was really excellent job, really nothing more to do unless want to be Uber picky & get a tiny lift on one side (which I don't think would be worth risk of surgery). Made me very happy.
So I thought I would share that for anyone considering DIEP recon. I was so pleased with my whole experience with Dr Jeff Kozlow at UofM. And now have even more validation that it is a terrific outcome
Off to the tatts! (I am going to explore Renee Mashinot here in Fl. Who was trained by Vinnie Myers.)
Be well!
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My MO is Dr. Schott and her NP Joan Armstromg at U of M. I really love them both.
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My Onc at U of M, Dr. Hayes, is not taking new patients. However, he told me he would send his wife to
any of the Oncs at U of M if she needed treatment. I've heard nothing but good things about all of them.
And their Nurse Practitioners are the best!
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Treelilac,
Have your kids ever attended Camp Kesem? Mine are going in August thru U of M. They are younger than yours but they also have counselors in training as they get older. It's free which is even better!
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Thank you for the info!
It looks like a good resource for kids. The camp seems far though. Do campers arrive on weekend?0 -
My kids went to MSU Camp Kesem at Camp Pinewood last year. They loved it. That one is a quite a drive from Metro Detroit. Unfortunately, the U of M ones are waitlisted now. My kids are going to the Notre Dame one near Jackson instead. It is like a traditional sleep away camp- they have color wars, camp names, arts and crafts, sports, swimming etc. Most are embedded in a YMCA camp location.
MSU's is near Grand Rapids
U of M's is in Fenton
Notre Dame's is in Jackson
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Hi All!
I've been on this site for a while, but just found this board. I'm in Lansing, being treated at McLaren (finished everything but rads, which started today, and Tamoxifen, which I'll start taking in March), and wanted to say hi. Hi!
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Hello....
....I was diagnosed in December, and I'm 3 weeks post surgery. Just met with the MO and RO, and will be starting rads in a few weeks. I'm being treated at Beaumont.
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Bella_16, who is your RO at Beaumont
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I'm seeing Dr Laura Nadeau for MO, and Dr Joshua Dilworth for rads. I met with both of them the past 2 days. I had a small microinvasion, and my ER is only 10% which is weakly positive.. That has me a bit concerned, but so far no chemo. They are sending me to genetics next week, and will proceed with rads after the simulation next week. So far Ive been pleased with both.
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thanks Bella. I'm scheduled for a second opinion (recommended by my RO at UM) with Peter Chen at Beaumont in royal oak.
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Dr Chen is very good from what I hear. What kind of second opinion could you get about radiation? I thought it was pretty standard and routine as to what is recommended...
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Oh bella_16, how I wish that was true!!!
I had a mastectomy. Margins were clear for the invasive part of my disease, but <1 mm in one area of DCIS. The close margin was superior/skin. Research is clear that close margin for invasive disease requires rads. Close margin for low grade DCIS after mastectomy still has very low recurrence rate. But my low grade DCIS was associated with invasive tumor, so in my case what to do is just not clear, because nobody can tell me what my current risk of recurrence is.
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KateB79
Which McLaren site? The main hospital in Flint? I live literally 2 minutes from there. But I was treated at Beaumont Troy for surgery. Don't need anything else but follow up with plastic surgeon in Birmingham then TE exchange when the time comes.
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