Life does not end with a stage IV diagnosis (really!)
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Hard to believe that Miles and Harper are already 15 and 12 mos. Time is flying by, but that's a good thing, too. I'm late chiming in about Butchart Gardens, but it's been 23 years since my DH and I were there and we absolutely loved it! We're planning a trip this fall to that area and hope to go to the gardens again this time with our DD who wasn't around back then. Thanks for sharing the photo Sadie; just how I remember it.
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Boy Lita, It's crazy how essential movies become when you don't feel well. I am a HUGE classic movie fan. Especially late 40's through the 50"s. Nostalgia I guess but also the great stories they tell. I keep a nice collection on hand for when TV stinks and I can't read. Bette Davis and Olivia De Havilland are two of my faves!
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Lita57 Always adding to my must watch list for those days when I just don't want to move Thank you
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Hi All,
I'm at the tail end of a two week trip to the East Coast. Staying with my 89 year old father whose health ,physical and cognitive, has deteriorated tremendously since I was here last summer. My brother and I are wrestling with some tough issues. I am so sad to see this downhill slide.
On a happy note, I spent a few days in the Bronx with my dearest and oldest (since high school) friend. We are planning on taking a class at Oxford next summer. All part of the normal life, both the good and the bad. I am glad to be alive and well enough to embrace it all.0 -
Oh Caryn, So sorry to hear about your Dad. If it's any comfort at least you are able to take the trip and be with him....
On your happy note, it's so wonderful to have old friends who know us so well, to spend time with!
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ebx~ god bless your family and your father. I am sorry to hear he's not doing as well as last time you saw him.I will say some prayers. Hang in here. ~M~
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My two girls, two-legged biological daughter and four-legged adopted daughter, out for errands with my DH.
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Caryn, I am sorry that your dad's health is declining. I am sure that he feels comfort from your presence. It is difficult to watch our loved ones get older or sick. I hope you and your brother have been able to make some decisions about your father's future care.
Taking a course at Oxford sounds like an amazing opportunity and experience.
Lynne
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So beautifully said, then and now!
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Lita57,
Do you still get de from Zometa, Just had my second infusion and am tired and lots of sore bones, do you know is these are commiom
Paula.
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LOL! Cute picture Lita! Your DD looks all grown up.
Lynne, you have such an eloquent way with words......
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Thank you all for your sympathetic posts. I can honestly say that seeing what dementia has done to my father is truly heartbreaking. I am saddened, overwhelmed and exhausted by my time there. Honestly, this has upset me much, much more than my own dx. I found myself having to treat my father like a petulant child in order to get even the simplest things done and I felt truly awful about it. I am back in CA now and feel guilty that I'm so far away. My brother and SIL live about an hour away from my dad and are wonderful but part of my guilt, of course, is that so much falls on their shoulders. All part of life I realize and I must accept it but it is not easy
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Wiego/Paula,
The bone mets thread is a good place to ask about Zometa, since many with bone mets are on it or similar drugs.
https://community.breastcancer.org/forum/8/topics/...
There is also a recent thread titled Zometa and Angry (or something close to that).
I try not to police this thread, but I would like to keep it as on topic as possible!
Take care,
Caryn
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I had my bi-annual PET scan this morning. I wish I could say it gets easier, but I struggle more and more each time. Six years of NED has been a gift for which I am eternally grateful, but it feels like my number may be up soon. I have no reason to believe this rationally, but it feels like the longer I go on, the smaller my chances of remaining NED become. This is based purely on emotion. Sigh, will just have to wait for the results.
On a happier note, had a great beach day with younger DD and Miles yesterday. He loved it, but may have gotten a record amount of sand in his diaper!
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Adorable pics.
Why is it that chubby little feet are so cute on a baby, not so cute when mine swell.
I'll keep everything crossed that you continue to dance with NED
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Freya, I hate it too when I get "Fred Flintstone" feet
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Thanks, Freya! All chubby parts are adorable on babies. On me? Not so much 😜.
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LOL! Sand in the diapers can be quite the challenge. Gosh he's adorable. Caryn, you my just be NED forever! Believe!
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Caryn. Miles is sooooo cute! I am so looking forward to the birth of our grandson in December! I'm hoping that you stay NED forever!!!!
Babs
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Caryn - That little guy is so cute! I bet you just light up when you see him! My two!
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Love the little people pics My kids 23 and 19 are too young for grandchildren - but I can't wait!!
Nel
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This thread has been quiet of late. What are you all doing to bring joy to your lives and give MBC the finger?
I am about a week and a half in to the school year and am falling in love with 23 new students. Eclipse viewing was a blast and it was good to share it through a child's eyes. Yes, I am wiped out when I get home but the pleasure and purpose I get from work are well worth it.
Two bits of very good news. First, my PET scan, earlier in August, shows NED. Second, I am expecting another grandchild in early March! Take that MBC 😝.
Hope everyone is doing as well as possible. Have a good weekend
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WOOHOO and congratulations, Caryn. Those are both fantastic bits of news. I love it when people report that they are NED. It gives me hope that I will be there someday, too. I recall that you said you were a little nervous about your scans this time. I am glad the news was so good. Of course, having a new grandchild on the way is also wonderful to hear. I hope you are celebrating big time for the good news
I don't have anything that big to report. My DH and I have had a busy summer traveling throughout New England and also to SC to watch our grandchildren play in baseball and soccer tournaments. I feel better and stronger than I have in years. I hope that's a good sign. Hmm, even if it isn't a sign of anything, in the spirit of giving MBC the finger, I will say, "I feel great, and I am enjoying life, so take that MBC!" Next up, a trip to Hawaii in November.
Lynne
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Congrats exbrnxgrl on both NED and the new grand baby!
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Caryn. NED is the best news you could share with us followed by the new grand baby!!!!!
Babs
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exbrngrl - Hooray for NED and hooray for the New grandbaby! You have given us a shot of hope. Thanks! We can't wait to see lots of pics of the new grandbaby!
Lynne - Great way to give MBC the finger! Sounds like a great way to spend summer!
Babe - We know you are giving it the finger , enjoying family time in Israel!
We have been keeping busy with all our new construction going on. Next month we are going to Texas to see family and in October, we are going to Tennessee camping and horseback riding. The next couple of months will keep me busy getting the horses ready!
Hugs and prayers
Claudia
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Thank you all for the congrats, on both bits of happy news.
Lynne, my anxiety grows with each PET scan. With 6 years on this path and NED since initial tx, which I chalk up to luck, I feel like this lucky streak will have to come to an end. So each scan brings me closer er and closer to progression. This not necessarily logical, but simply the emotional contortions that come with MBC. Sigh...
I bought some yarn for a newborn size sweater in a neutral color. When they find out the baby's gender, I'll buy buttons for it in either boy or girl traditional colors. Can't wait to cast on! BTW, it's hard to imagine Miles being a big brother, as he's not quite 17 months old yet. He does like to kiss my dd's tummy and say "bay-be", though I'm sure he has no idea what that means!
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On a funny note, my granddaughter started kindergarten . I asked her about her teacher. She told me she had curly hair and glasses. Jokingly, I said that I had curly hair and glasses and maybe I was her teacher. She put her hands on her hips and said, with great seriousness, " No, her name is Ms. D., YOUR name is Mimi, so you are not my teacher!"
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Congratulations on all your good news, enjoy these great moments. Kids come out with the cutest things.
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Our new fire pit. We had our DD's graduation party and DH's 60th b'day combined this afternoon. A great distraction 4 me since I'm facing an MRI for brain mets next week. My head pain and eye issues cooperated today, thankfully, and of course a glass or two of wine didn't hurt either
Eff u, Mr Cancer!
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