Starting chemo August 2014
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wished I could car ride but it gives me the worst motion sickness. Never had that before, good times! really cannot eat anything either...hungry a little but mostly sickened. Would love some chinese takeout...maybe...I think. Maybe if I drive instead of ride, I will not get car sick? they are open all night so I may make it there yet. Then again, maybe not. Puke, or eat? Think about food, and dry heave?? Don't eat, and suffer endless nausea and stomach pains anyway? Hmmmmnnnn....choices!
I guess then I shant be angry that my induction range is on the fritz and needs service. We had to turn off that breaker as it kept beeping incessantly, for no reason, today. So nice for one's nerves. At least I do not need it to COOK anything. I suppose the timing of my latest food aversions is a silver lining of sorts. My appliance is very considerate, yes?
Well, i am hopeful all are doing well this evening, not alot of posts so I am worried about you all tonight! Number 5 aint a charm, and I just dunno if I can even do #6. I am just guzzling ginger ale tonight and plan to make it through the whole 32 oz bottle. White knuckling it and praying tomorrow is better.
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I'm home after a longer day than I expected. My BP was pretty low, and my platelets have already started to drop (of course) so they had to talk about things some more before getting me started. Ultimately, they gave me some extra fluids over an hour before the perjeta and herceptin. I feel better and my BP was better when I left. Now to see if I can keep this headache at bay! I've never split up my chemo treatments before, so I don't know what to expect now.
A big shout out to the very nice nurses who take care of me. They are so kind and compassionate, and funny too. They make it so much better.
Thinking of you all and hoping that our SEs pass quickly. Please so your best to hydrate and nourish yourselves as best you can. {{hugs}}
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Bippy - I hear ya, # 5 ain't no fun! I'm dreading # 6 but keep telling myself it's the last one. So sorry to hear about your nausea as well. I'm going through the same thing right now and thankfully I haven't puked. Finding something appealing to eat is nearly impossible as everything tastes absolutely horrible. The fatigue has been off the charts as well this time. I tried to do some laundry today and that didn't go over so well. I ended up back in bed! Lol I really hope you start feeling better in the next day or so. Stay strong
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Hi guys,
14 days post #4 chemo. Stiil food taste horrible.
My daily meal. Cottage cheese with 2 spiced peaches
Protein bar for lunch
Scrambles eggs with cheese for dinner.
Thats about it Tried a smoothie today. Drank 1/4 and thought I was going to puke at the table.
Still really puffy. My shoes are tight and my clothes are a little tight. Have not weighed myself in one week. I should be losing weight but, I think I am gaining. Water weight I hope .Can't be from food.
Walked this am and started to go to gym. My boyfriend stopped me at the door. Told me I looked pale,tired,and overall did not look good. I took those as a compliment since I felt like crap. Instead took a 2 1/2 hour nap. Will attempt tomorrow when he is not at home.
Meet my RO tomorrow for consult. Hope to start radiation in December. DREADING CHEMO #5 on Monday!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Don't know if I will make 6. I tell myself I am going to do it. My finger nails now hurt. Yuck.
Wish everyone good days!!!! They are just around the corner. I am planning a post cancer trip. So, looking forward to being back to normal.
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wizard, you inspire me and I'm sorry that you feel so bad but frankly I'm glad not to be alone too! I can't believe how awful this round is been for me so far....tried to be productive today again but that is a joke! I basically laid around all day.
Cassie, what's funny is I used to get migraines all the time. When this happened I was put on an antidepressant, and that has stop any migraine from coming on. So….I guess it's a trade off? I'm sorry that you're getting them now I know how very miserable they can be. It's just insulting for you to have to endure them at this point!
Eileen, i'm also sorry that you're feeling so poorly and the diet sucks also for you. It is so hard to try to describe it to anyone not going through it. I hope tomorrow's a better day for me and us all! I need to go grocery shopping and I hope it's not one of those trips where I dry heave in the aisles. But last time that happened it was pretty clear to me what to buy – – anything that did not make me want to hurl!
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Eileen, I thought of you as I had a scrambled egg with cheese about an hour ago.
Sometimes the savory protein is all that sounds remotely good.0 -
Ironically, eggs is one of the things I usually cannot stomach. I generally can eat most anything (except for a few days after tx) and I can taste it BUT if I eat wrong at all the big D will come for sure...That's not good because sometimes my taste for something wins over common sense and then I'm sick for a few days....I hope all of you with food issues feel better soon and can taste your food. We will do this!
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Bippy if I lived closer I would bring you some Chinese. Hope you get to feeling better.
I start radiation tomorrow. I'm 2 weeks out from my last chemo and food is still yuck and I'm having some really down days. Didn't work today. Just feel wiped out. Feel guilty for posting now since I'm done and many of you still have a ways to go. I don't have anywhere else to turn right now.
Wizard, you can do it! Almost done, but I know it's hard and it seems so many SE's build up. My last one was the worst on some things.
Cassie, hope you have minimal SE's.
Eileen maybe I will go try some scrambled eggs.
Hang in there ladies! Stay strong!! Believe!!
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Thanks for the positive words Hope50. Please continue to post as we all want to hear how you are doing.
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Here is how I went trick or treating with the kids during my immune system nadir after AC. Notice mask, gloves, and huge pregnant belly. Also unhappy French bulldog in dinosaur outfit. Starting to feel better, officially made it to my third trimester today too.
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Hope please keep posting! It's awesome reading about people moving forward. You give us hope!
Gatomal I love your picture! Thank you for sharing it
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Way to be creative and safe at the same time! Congratulations on your third trimester!
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Gatomal= I LOVE YOUR DOG!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
You look fantastic. Great costume.
Hope everyone enjoyed their scrambled eggs. I eat mine with a super strong cheese. Blue cheese or stilton. 4 eggs scrambled. I can stomach it and has lots of protein.
Justamy=If I eat the wrong thing. Any junk food. I will pay for it. Ate a piece of plain pizza last night and thought I was going to die one hour later. I LOVE potato chips. Ate a small bag 2 months ago. OH MY!!! Did I pay for that. Try spiced peaches. I found in applesauce section of the food store. Really tart. My treat now.
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hope, stay! Do not feel guilty, be proud of how far you have come. I will stay here too after chemo mostly. We will catch up to you soon.
Gatomal, brilliant costume. Love your doggie!
Never went out last night for chinese, managed to eat some potatoes (what else). At least I am losin weight. I slept decent for a change, so will attempt the grocery this morning. I can drink coffee, always a good sign, so maybe today will be better. I look forward to buying my LAST PACKAGE of Immodium today. BTW, I have not taken Claritin and feel okay with no bone pain. Not going to take it unless I must, for my poor little liver.
Thanks for all the support, I was so down yesterday. I went on youtube and watched inspirational videos of ladies after bmx, etc., and cried and cried! It was cathartic.....lots of good ones there by wonderful people. I am not as scared now at least. All of them are so much younger than me too, sad.
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Well I guess I pushed the envelope too much last night. I wanted queso dip and chips, so I ate some. Well it didn't stay down long and today my stomach is sore from dry heaving...I think I'll try more bland stuff today. Everyone have a good day with few SE's!
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Good morning everyone,
I am hoping to have turned a corner overnight. I was still kind of nauseous whenI went to bed, but this morning coffee sounds OK so I'm nursing a cup slowly. I also slept better, which helps immensely. And mentally, I am finally past #4 and truly have only 2 chemos left. Heal up for #5, then heal up for #6. After that, it's healing for surgery and hopefully feeling like I'm really on the downhill side of things. I can't wait to be able to really heal my body and make up to it for all of the toxicity, however necessary, it's been forced to endure.
I hope you all keep posting! Some of you have been through surgery already, and I know it would be a comfort to me to have your experiences to tap into. And some of you will get rads, which others will too. Don't feel guilty!!! You are survivors. I want to hear about the babies being born and all of the other great things coming our way. I want to share about Nutcracker and my daughter and have you all in her virtual audience when she dances Sugar Plum. I suspect I will branch out to other surgery and rads boards when the time is right, and I read the triple positive board, but like ducklings imprinting, you are my people here.
Sometimes I want to make up a little map and put each of your usernames and cities up, to remind me of where we all come from.Feeling emotional, and grateful, this morning.
On a business note - is anyone else getting IVs each time as opposed to a port? After 4 complete rounds I definitely have an irritated vein now in my right arm, but I know it's not the only vein they can use, and I only have two more big chemos before switching to just Herceptin. But I'm also curious (worried?) about permanently damaging a vein. I'm going to ask on Wednesday when I go in.
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Cassiecat. I only get IV's. Have not had any problems so far. Can't even tell which arm I get it in.
Like you I have number 5 on Monday. This is my last week to work during the week. Then I go back to weekends only. Thank god. It is really tough pulling it together to work during the week when I feel so tired. I try and stay super upbeat at work. I don't want to draw any attention on how I feel.
No further surgery for me. I'm of off to radiation. No hormone replacements for me. However, I will keep up with the board. Went to triple negative board but,for some reason did not stay or engage there.
I know I keep asking this. Is anyone else besides me having increased fluid retention? It may go down for one or two days then it is back. I have to wear flip flops as my shoes are too tight. Some of my dresses are tight.
Hope everyone has a great day or as great as it can be
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Eileen, I haven't had any edema. I think the steroids they give around Taxotere are supposed to help with that. What does your MO say about it? I remember how swollen I got after DD was born. It was miserable. I could only wear my DH's slippers home from the hospital! It seems there ought to be something they can do to help you with that.
I wish my arm still looked good. After round 3 I could see the vein getting slightly discolored, but nothing major. Yesterday the Benadryl stung as it was going in and I had a mild reaction to it (a couple of res spots near the injection site). The Perjeta and the cold of the saline stung just a little bit too. The Herceptin seemed ok and I cat napped a bit during that last infusion. Last night I was a little bit bruised and tender on that arm, and it is obvious when I hold my arms side by side which arm is getting treatments, and which vein in particular. It does feel somewhat better this morning, though.
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cassie and eileen, i have a port, but would prefer it be out after chemo, and use a vein for the herceptin for the next year. The port sticks freakinhurt!!! Even when they freeze it. I figure, no more weekly blood draws so it should be fine, 1x 3 weeks. Gonna ask about that. I never let them draw blood from the port, to protect against infection. I personally hate my port, but i know it has made things go easier for me.
Yes, you guys are my peeps! i am on the hermit board, but no others steady. The hermits are awesome too, but this is my home...and we are all goin through this in real time together. I just took eileens spiced peach advice and they are stayin down okay. Had to force them though....better today but have a slight headache, darn it. Waiting till later to shop.
Amy, boy, i did the same thing as you, as i love mexican food. It was a gross error in judgment! But it was all i wanted....and my body rejected it. That was a rough day. Today i plan to get single serve frozen veggies, a few stouffers entrees, and other ready made goodies. Including some excellent fried chicken! I have to toss out the lovely salad i made a few days ago, for some reason seeing it makes me feel sick. Well, i tried!
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I have "Fall Rads" in my favorites now that I will be taking the next step in Dec. Still have 1 more chemo treatment Nov 21st.
Didn't make it in to work today. Usually put in a half day Tuesday after treatment, but too weak to go. I figured I deserve to just rest up. Going to try to get out to Vote, other then that just hang at home.
I had surgery already, it was a lumpectomy w lymphnode removal. I just told the anestegiologist to put me out, I didn't want to remember anything. Lol It really wasn't that bad. I'd rather do the surgery then this dam chemo. Getting close to end now, as we all are. We all started this journey together in a August, and we are almost finished.
Hang in there!
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catie i cannot work at all, so i admire your going at all!
Made it to the store. Bought garbage like frozen dinners, ice cream, muffins. And some other stuff that DH can make himself. Was eating chicken wings in car like an animal driving home, a real fine moment for me! Sort of like the zombies on the living dead....i guess I was hungry after all.
Goin to nap, hope everyone gets through the day strong!
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one last thing|
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love the look of that....last chemo!
Had to have my neighbor come and take e so I could get my s cond neupogen shot. I am just wiped out! I hope this one kicks in soon! They said I should start to feel better. Having a little bone pain so I guess it is! Ugh!
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Yeah, bippy! Great photo! I can't wait to get there. My goal is right around Dec. 15th or 16th. Assuming all goes well, I'm due for #6 on Dec. 11th, but it would completely wipe me out for Nutcracker that weekend, so I'm going to ask to move it back a few days. Figure that way I should be at my peak physically and will be able to best enjoy the performances.
Who else is coming up on their last chemo? I know some have finished, some have moved into weekly Taxols and some are still looking at a couple more (woe is me! ha ha!).
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Cassie cat 2 more rounds of chemo for me. Met my new RO today. Boy, did I like him. He does low dose for 7 weeks, 5 days a week. I start Dec 10. Last chemo Dec 1. He went to college in my hometown and his parents lived there for 15 years. We talked about my beloved RAVENS. So,I was really happy. He also told me I looked great and felt due to my tumor being so small and all nodes and margins clean he doubted it would come back. From his lips to God ears.
By their scale I gained 9 lbs. After I had a heart attack on the scale. They informed it was water weight. I asked when the scale was professional calibrated. I can only wear flip flops. Lucky I live in Florida.
I am still working 3 days a week. After this week I go weekends only. I have not had any trouble working. Everyone is super nice and I sit in a cubicle and answers phones. Not too taxing except on my brain.
Tonight I am going to try and eat real food. Fish and carrots. Pray they taste good. I am sick of eggs.
I will check out rad boards. My next round is Monday. My son is coming to visit me for Thanksgiving. He has not seen me bald and I really want energy to enjoy his company. I hope I don't cry too much when I see him. I cry really easily. Especially after this DX. Everything is more precious to me. Saw him last in August. He is 28 and does not need his Mom much.
Good luck to my best buds!!!!! Minimal SE to all.
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eileenpg : I'm 32 .trust me he needs his mom xoxox! I cry very easily nowadays too. I
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NurseShark;I love you!!
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Shoot I'm 43 and my mom's here now to help! You always need your mom. xo (And I cry at the drop of a hat these days. I blame it on chemo and stress.)
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I had all my infusions through the veins in my left arm. It looks pretty beat up. About 10 days after each infusion it starts getting really red and ends up like a burn. I started in august and you can tell where each of my infusions were. Crazy ugly but oh well. Only a few areas hurt. I also got fluids a couple of times.
Food is beginning to taste a little better. Still very tired but so e of that is from my daughters wedding.
Hope everyone is doing good! Think about each of you often.
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Here is a picture of my twins from their bridal pics. They got married 3 months apart. First wedding was right after my surgery and week before my chemo began. This crazy cancer didn't stop my joy. Sure made me more tired though but still so grateful.. I am so glad they did pics together. Brought me lots of joy! Thanks for letting me share.
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