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Starting chemo August 2014

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  • purrrrana99
    purrrrana99 Member Posts: 27
    edited November 2014

    Bippy- Did your DR prescribe EMLA cream for the port? I put it on and hour or so before and I feel nothing.

    I just booked my last Chemo for Dec.1st. Going to #5 on Thursday. I thought I would never get here. I saw my MO last Thursday and told him I have had 4 rounds of chemo, and I have told my family that I am quitting chemo each round. He laughed. It takes every ounce of my being to get me in that chair each time. The fatigue is definitly there and has not lessened. My MO described round 5 as being a mile 20 in a marathon. It's where most people hit the wall. I hope everyone is feeling better and getting through it. I can't wait to taste food again, and be able to take the stairs without needing brakes. Oh, and hair, I can't wait for hair.

  • Catie57
    Catie57 Member Posts: 259
    edited November 2014

    Hope - congratulations on your daughters wedding. Hope you were able to enjoy it and had energy. After I posted the picture showed up. Your daughters are just beautiful.

    My legs are still very weak. I didn't have energy until later this afternoon to even move. I know if I walked my legs would feel better. Maybe tmrw! Definitely going into work either way. 

    Purrana - definitely hitting a wall after #5, feels more like 50 miles. I also quit last 2 times and told my family that's it. They keep saying, one more left.

    Wishing everyone minimal SEs

  • Kellya
    Kellya Member Posts: 159
    edited November 2014

    Hope, your daughters are gorgeous!

  • ladyb1234
    ladyb1234 Member Posts: 1,239
    edited November 2014

    Hope I agree with everyone ---- DON'T GO ANYWHERE (ok caps gone big smile).  Do not feel guilty, be proud of how far you have come in your treatment and we are happy and cheering that you are moving to the next phase of treatment.  We want to continue to hear from everyone.  So Hope please stay with us and others.

    Bippy agree with you the women on this board are my peeps..  This is my home and we have built a bond.  We started this together and we have shared so much about our journey, milestones with our families (the nutcracker, birthdays, visiting daughter from college, becoming virtual/honoray aunties) and most of all we have just been there for each other.  I will be here through chemo, radiation and even during the "healing" process.  Some groups plan getaways, etc.  may be we will get there some day.

    Glad to read the experience on the IVs. tomorrow will be my 3rd tx via IV.  So far so good in terms of finding veins but the "track" marks :-).

    I go in for #2 Taxol tomorrow.  My mom accompanies me to each of my chemo treatments and I love her for it and her company.  She then spends the day with me and often comes back up on the weekend during those down days.  Even at my age I am a momma's girl :-).  

    Round #1 impact:   I slept a lot. I was able to work but when I get home I force myself to eat and then slept.  Yesterday, I went to sleep @ 6:30pm, woke up at 9:00pm and was back in bed by 10:30pm and didn't wake up until this morning around 6:00am.  For me Taxol fatigue seems to make me sleep more instead of just feeling tired.  The good thing I don't have chemo brain so I can at least think and no nausea.  I still have a lot of achiness which I take Tylenol for.  Bad news the Taxol is interfering with my Wafarin dosage, which they need to find a new dosage that works  Today my INR was high where they need to take me off for 3 days to drive the # down into the therapeutic range of 2-3. It is now 5.3  Nothing has changed in my diet or medicine so they are pointing to the chemo as the culpurit.  With Taxol I still can't taste, but the really odd thing I am forgetting to eat like I am just not hunger.  Anyone else have this experience. 

    Nurseshark:  thinking of you as you near your induction date.  We can't wait to see pictures and step into our honorary auntie roles.

    Hope all are doing well or managing.

    Hugs Always,

    Angie

  • ladyb1234
    ladyb1234 Member Posts: 1,239
    edited November 2014

    Hope your daughters are gorgeous.  Congratulations on the wedding and glad you had energy to enjoy it.

    I have insominia and up at 2:00am, must be due to the long naps 

  • Bippy625
    Bippy625 Member Posts: 602
    edited November 2014

    yes eileen, he still needs you!  My own mother abandoned me when I was very young...so I respond very well to all the loving care the nurses are giving me.  Very well to mothering in any way really!  It is so precious to have a good one.  I cry all the time too now, which I never did before. 

    I was reading another board, I think rads, and someone articulated very well the emotional sequence we are now experiencing. In the beginning we had no time to process, we operate on adrenaline and guts, appointments and schedules consume us, and we fumble on. Now, with an end to chemo in sight and scary surgery ahead, our emotional needs come screaming to the surface. It happens in each sequence and will really hit when we are "done" with tx entirely. It made me feel better and understand that it is okay!  On the really good side, rads sound like a breeze compared to this!  For most. 

    So up early and doing much better so far. Yesterday I had to lay prone nearly entirely lest I feel the nausea. i made an appt with a oncology massuese for Friday to quell my body and mind pain.  She is also a certified lymphoma therapist, so since I will have some nodes removed, I hope to work with her in preventing lymphadema. Will let you know everything i learn.

    Today I need to get things done, and hope to be productive and ship out ebay stuff and clean my cluttered house. DH is working all day again, good for us both. I actually feel hunger this morning, another good sign.  

    I am so grateful that you are all here.....you all are also surrogate moms to me even though I am older than some of you!  It is a huge part of my recovery, this group.  Hugs to everyone, how are you feeling today?

  • SandyLovesLucy
    SandyLovesLucy Member Posts: 154
    edited November 2014

    Hope, it is always wonderful to hear from you so don't go anywhere!  Your daughters are gorgeous. So glad the weddings brought you happiness despite what you are going through. My daughter's wedding day was one of the happiest days of my life. She was beaming happiness the whole day,

    Ladyb, I have never slept so much in my life (including infancy I bet!) than since I started Taxol. The last two days are the first days when I have worked and did not have to get right into bed when I got home.  I am one week past final Taxol. I never got a metallic taste but things were definitely off. And I had quite a few days when I realized that I had forgotten to eat anything until almost mid day. 

    Bippy, that is an excellent description of the emotional ups and downs throughout the treatment process. I find I can get through a crisis with strength and afterwards -BAM! - the emotions hit. Tears are cleansing though so I have stopped fighting them in an attempt to be super strong and positive for everyone else. 

    Had my first Herceptin only infusion yesterday and it was so nice to spend so much less time in the chair - infusion ran for 30 minutes.  Rads to start later this month.  We will all be able to check off each phase of treatment.  Many good thoughts and hugs to all of you with more chemo to get through. 

    Sandy

  • CassieCat
    CassieCat Member Posts: 863
    edited November 2014

    Hope50, your daughters are radiant and gorgeous! Thank you for sharing your happiness, and theirs, with us! I'm so glad you were there to enjoy it all.

    purrrrana, congrats on getting your last one on the books! It does feel a little like a marathon.  I was thinking this morning that I have two weeks and a day till #5 and then 3 weeks and a few days until #6.  It's finally feeling closer to the end. I definitely can't wait for hair.  I still haven't lost all of mine.  It's extremely thin, but what I have is actually growing just a little, so I can't bear to shave it.  And i have four distinct hairs that have really grown, which is just weird.  But I keep them.  Maybe something only chemo people would understand.

    Catie57, I notice more pain and fatigue in my legs, my thighs especially, with each round.  I am going to try and walk today and see if that helps.  I really think it will, as long as we don't push too hard.

    kellya, {wave} - nice to see you!

    Angie, my mom comes each cycle too.  We try to time it so she gets here around my worst day,and she helps with driving DD around and making dinner. It's nice to have the company too.

    NurseShark, 5 more days, right? Thinking of you!

    Bippy, I think we're all doing a good job of mothering each other here, because we all get it and have such deep compassion for what each other is going through. The emotional process you described fits to a T.  I'm just now ready to read my pathology report.  I'm embarrassed that I have been afraid to see any details from it yet, but I couldn't.  It was more like, go, go, go and trust that the team knew what was best for me. I hope your continues to be a good one. An oncology masseuse?   That sounds perfect.  A friend of mine shared with me a woman she likes who does house calls, but I haven't called her yet. Another friend gets LE massage weekly, so I could ask her for her referral. I just need it for the stress and to maybe ease some of the aches and pains.

    Sandy, congrats on going to your first Heceptin-only!  Another milestone.  :) I'm so happy to read that.

    I don't go to any real-life support groups and I feel like I have that here with all of you. It's healthy to have a place to share real emotions and listen to others. It's good that we come here and process some of what we are feeling and going through. It is part of our healing! I think about you all every day. I probably post here too much!  But it helps me to have this community to connect with.  There are lots of others on our starting list who we don't hear from as much; I hope everyone is doing OK and managing day to day.  

  • eileenpg
    eileenpg Member Posts: 431
    edited November 2014

    Purranna= Our last treatments are the same day. I have number 5 on Monday. Then number 6 on Dec1.    Counting down. I actually do not know if I will make number 6. Number 4 really took me down.

    For the people getting IV's are you getting them in the elbow. Anticubical area I have never had a problem Can't even tell I ever had a IV or blood drawn there.

    Hope= You daughter's are so beautiful Oh My What a beautiful picture. You should be so proud.!!!

    Thanks for all the postive info on my son needing me. I think he does. I know I need him!!!!

    Last night I ate fish. Minimal taste but did not taste like poisen. My boyfriend was in heaven that we were eating a REAL meal together. He is a huge cook and this has really been hard for him not to plan meals and food shop.

    I feel like I may be the last one on the board. Everyone will be finished sooner than me. I hope everyone comesback and gives us updates. I enjoy hearing about everyone.

  • CassieCat
    CassieCat Member Posts: 863
    edited November 2014

    Eileen I think I'm right there with you.  My last one isn't until mid-December, maybe the 15th.  There will be crickets chirping if you all leave!!!

    I get my IVs in my right forearm, closer to my wrist than my elbow.  We'll see where they go next time.  My hand and my elbow would be options, but it's nice in the forearm because I maintain use of my hand more easily throughout the infusion.  The Herceptin part of my infusion on Monday did not sting, while the Benadryl and Perjeta did this time (heck, even the cold saline was irritating) so I'm hopeful for my H-only infusions down the road.

  • ladyb1234
    ladyb1234 Member Posts: 1,239
    edited November 2014

    Dropping by before I leave for my treatment:

    Kellya, Hey how are you doing!  

    Bippy,  love your description of the emotional process.  I need to get an oncology masseuse. I got a referral from a lady during one of my chemo tx  for a masseuse and acupuncture and need to call and just get a message to relax and combat the Taxol aches and pains.

    Sandy, congrats on  the milestone!

    Cassie, never to much posting. I agree this is my outlet and support. I tried a real-life support group but with everything going on it was just not feasible to keep up and and try to work also. It is good to come here and process our experience,emotions and just support each other. As you say it is part of our healing. I too think of the group every day.   I open up this list and during my prayer time read each name and pray for each person specifically and even those that we don't hear from much or that have not posted in a while.. For those that post I prayer for your specific experiences, joys, sadiness, and SEs and just rejoice that we are all moving towards the finish line.

    Eileen, I will be here for a while and posting during the healing process.  My chemo doesn't end until mid-January and rads late February. I see older chemo groups from a year ago or so still active and supporting and helping each other through the post final chemo healing process. so I am not going anywhere soon.  Just hope I won't be posting to myself :-). 

    I get my IVs in the forearm towards the middle.

  • ladyb1234
    ladyb1234 Member Posts: 1,239
    edited November 2014

    Terri1975, how are you doing?  We haven't heard from you in quite some time. If you are still perusing the thread drop a hello and update.  Loved reading your post and updates.  How is work going?

  • Gatomal
    Gatomal Member Posts: 418
    edited November 2014

    hope...love the pictures of the twins. Made me cry this morning, hoping I'll still be around to see my girls that age. If I will be, it will make chemo, surgery and rads worth it. I'll be on this board through February, although I also made the weekly taxol group one of my favorites. Trying to get tips in advance, as I start next Friday. I'm officially in my third trimester and feeling more tired, but every time the girls are screaming and playing, the babies kick like crazy! It's like they want to get out and play.

    I do not have a port, and have getting my AC in either arm, sometimes hand, sometimes above my wrist. I think we'll just keep going without the port if things go okay. The nurses are great at putting in lines, I have less bruising than I have with some blood draws. 

    So I've finally fallen prey to the dreaded mouth sores. I go one a few days before round four, which went away, but now two weeks later, I have four on one side and underneath my tounge. Makes it hard to eat. Got magic mouthwash which helps a bit, and still swishing with salt, baking soda, and biotech all day. They are really awful. Hopefully, my immune system will bounce back this week and they will heal. Wonder if folks get them with taxol?

    Hugs and cheers, everyone!

  • Beatmon
    Beatmon Member Posts: 617
    edited November 2014

    I have been lucky and not had much nausea....but what I've had was controlled by zofran.  I feel so sorry for you ladies that are having sick stomachs. That is the worst.  Last night I was awake off and on all nite and got up and had the best strawberry ice cream. I'm going to be the one person that gains real weight on chemo. After week 1 post chemo, it's like I'm trying to make up for not eating the last week.

    There are a bunch of us getting ready for #5. Then I'm getting another CT scan. I'm happy to have my Port, the Emla works great.  Then the herceptin and perjeta.....forever.

  • purrrrana99
    purrrrana99 Member Posts: 27
    edited November 2014

    Yay Eileen, when I am sitting in the chair I will be thinking of you.

    Cassie- It is a chemo thing. I buzzed my head when the great hair exodus started, but I still have 10% of my hair. It started getting longer, but I haven't shaved it again. I don't know why, it's like my own little garden of hairs.

    Hope- Your daughters are beautiful, I can't imagine how proud you must be of them.

    I will be sticking around for a while (through rads and recovery). I love coming on here and seeing what everyone is going through. Usually I come on to ask a question and there are at least a few of you that had it happen or have a tip. Plus, I am doing delayed reconstruction, so my TE won't be placed for another 9-10 months. I will need more advice from you.

    Mouth Sores- It took a long time to get rid of mine, and I was on a liquid diet for a couple days because of the pain. My MO gave me Peridex to rinse with and it was the only thing that helped. I hear it doesn't taste great, but my taste buds are so off that I don't notice, I only taste mint. The first time I have been grateful for no taste buds. It cleared them up in a couple of days.

  • Catie57
    Catie57 Member Posts: 259
    edited November 2014

    Bipsy - the way you expressed our emotional roller coaster makes total sense. I am still muscling my way thru, but it's getting tougher. Haven't had an actually feel sorry for myself breakdown to speak of yet.  Discouragement, oh yes! Enough is enough feeling, fore sure. I guess when this is all done I will look back and realize what I did.

    I actually drove myself over to the infusion room today. I have been so weak and knew something wasn't right. They hooked me up right then and there to IV. Feeling better now, just tired. Fortunately, taste buds are decent and have an appetite. Smells are still a little off. I spoke to my MO about final treatment and how aweful this one was for me. He prescribed extra steroids for several days after chemo to get me thru toughest days. With option for IV infusion if needed. Also said SE from steroids may be more fatigue. I just need to know there is a plan to avoid being so weak and sick.

    I also get my IVs in arm near elbow. So far not a problem.

    I feel very fortunate and always look forward to checking this groups posts. It a sisterhood that I appreciate and cherish. 

    Wishing everyone minimal and manageable SEs and luck with upcoming treatments.

  • Kellya
    Kellya Member Posts: 159
    edited November 2014

    hi all.  I won't finish chemo now til jan. 12th since I couldn't have it this week, then rad will start I guess 3 weeks later. So, I will be here a while!

    Finally starting to feel a bit better this afternoon. I was still light headed, feeling like I was going to black out this morning. Catie I know what you mean about the heavy legs and exhausted feeling! Not sure if it is due to the low WBC or if it's a dehydration or a blood pressure thing. I have blood work done tomorrow so I am hoping that looks good finally. We hope to drive to see my daughter a SIL and their 10 month old twins tomorrow, if that all looks good.

  • justamy
    justamy Member Posts: 296
    edited November 2014

    Wow lots of posts this morning!

    Hope: your daughters are beautiful. I'm so glad you shared your joy with us!

    LadyB: Thank you for praying for me. Without prayer, I would be a mess.

    The emotions of this thing are crazy. I am positive that I will get through this but I cry at the drop of a hat. I don't want to go anywhere because I never feel really good enough to go. So tired and tired of being sick and tired. In my mind I'm thankful for chemo and that my cancer was caught early...my feelings and my mind don't always agree.

    I need you guys and care about each of you. My last tx isn't till Dec 26th, and I plan on staying after. Hope you all have a great day with minimal SE's.

  • thinkpink4ever
    thinkpink4ever Member Posts: 83
    edited November 2014

    Hey y'all, I'm behind on reading and posting, but skimming through, I noticed that some of you have been having leg pain and fatigue.  Well, that jumped out at me because that's definitely one of my issues.  Tomorrow makes 2 weeks PFC for me, and I'm surprised that my legs hurt so much when I walk.  And walking doesn't seem to help.  It only makes them hurt more. 

    I'm continuing to pray for everyone, and sending everyone a big hug!

    One love,

    tp4ever

  • StrongEnough13
    StrongEnough13 Member Posts: 96
    edited November 2014

    Hello, all!  Hope everyone is doing well, keep plugging away!

    Hope50, I'm sticking around, so don't feel guilty & you stick around too!  And your daughters are beautiful!  What a lovely photo, I love wedding pics!

    Chemo update: I had my 3-week follow up with MO yesterday. He said my labs looked good & I came through chemo in one piece, but I still have some lingering SE and some questions...I'm still pretty tired, still getting heartburn & indigestion from odd things (like biscuits & gravy, how much blander can you get?), and my hands get numb & tingly when I sleep at night.  He said some side effects (like neuropathy) can take months to go away, and any cognitive effects (chemo brain) can take a year to return to normal.  That's the scariest one for me, so scary I have never mentioned it here before now.  There were several days or a week or so each round when I felt foggy, confused, unable to focus.  My job as a data analyst depends on my being able to think clearly, solve problems, and focus.  I feel better now, but still not completely back to normal, pre-chemo level.  I guess I'm lucky to work from home, so it's easier to hide it when I'm having a stupid day.  I've been lucky that nobody needed anything complicated on those days, or my coutnerpart was available to cover for me.  On those days, I spent a lot of time doing mindless tasks or on-line training, but I still feel guilty about not being able to do my job some days.  Thank goodness for FMLA, at least they can't fire me for it until after April. I have a co-worker who is on oral chemo drugs for a kidney condition, and she said the same thing happens to her, so at least I am not alone.  Also, for the heartburn, I have to see a gastroenterologist to make sure I don't have an ulcer from the decadron.  My next follow-up with MO will be after rads are over, and I will get blood work done to check if I'm actually in menopause (last period was in January), so he can determine which hormone therapy drug to give me.  So far, the plan is tamoxifen for 5 years.

    Rads update: So, I am in week 2 of rads now.  First week was a breeze.  Only thing was my breast & armpit seemed a bit swollen & sore by the end of the week, but recovered over the weekend.  Also, a bit of redness around my surgery scar where my nipple would be, but RO recommended calendula ointment, so started that on day 3, slathering it on in the evening after treatment & putting on a clean cotton t-shirt or cami.  After 2 treatments so far this week, it's already swollen and sore again.  :(  I also saw the RO yesterday & she said it looks great & poked around on it a little, but said I can take tylenol or whatever I want for pain, and also can take any vitamins or supplements I want or was taking before.  I had heard antioxidants were a no-no during radiation, b/c you are creating free radicals with the radiation, so antioxidants would defeat the purpose.  But she said any effect of antioxidant supplements would be so small in the face of the radiation dose, it would make no difference to the treatments.  The little bit of redness does not hurt at all (maybe b/c I'm still numb there from surgery), but RO said to expect the redness to eventually increase to the whole breast and beyond.  Oh, joy...  She also recommended wearing a bra as little as possible.  So stock up on cotton t-shirts and camis, ladies.  I bought a couple of no-wire bras, but even those are uncomfortable now.  The weather here has finally started to cool off, so I think I will start going bra-less to rad tx and just wear a big sweatshirt over my big t-shirt.  I feel like such a slob, but they told me if I wear an oversize t-shirt for treatments, I don't have to change into a gown.  I just stop in the bathroom & whip off my bra through my shirt sleeves & I'm ready to be zapped.

    I'm a little bummed about all this, along with the fact that I am gaining weight, I guess due to lack of activity due to being so tired all the time... Food tastes pretty much back to normal, but the unpredictable heartburn & indegestion makes eating unappealing, so I don't think I'm over-eating.  I was really hoping I would feel much better by now and sail through radiation, but it looks like that might be another uphill battle, although not as steep uphill as chemo, thank goodness!

    When I think that just over 2 years ago, right after I moved here, I hiked 50 miles in a week through the mountains on the Arizona Trail with the scout troop, I am amazed. Now, I can't even think about the easy, flat, 5 miles along the San Pedro river they are doing this afternoon.  What a bummer.

  • wizard50
    wizard50 Member Posts: 89
    edited November 2014

    I know I'm being repetitive but damn...infusion # 5 is still kicking my butt.  I'm 7 days post chemo and still feeling extreme fatigue and muscle fatigue/weakness/pain in my legs.  I tried to run a few errands today but my legs feel like they weigh a ton.  Between all the fatigue, nausea and shortness of breath I was barely able to make it home before collapsing into bed.  I had been having neuropathy pain in my left foot for awhile now but since this last infusion I now have neuropathy pain in my right foot and it hurts worse than my left.  And don't forget to add the Big D to the mix!  I just keep telling myself...only one more infusion....only one more infusion...

    I plan on sticking around too.   I'll continue to get Herceptin-only infusions until next summer so I'm not going anywhere.

    Hope50 - your daughters are gorgeous!

    Lots of hugs going out to everyone.  Hoping we all start feeling better soon :)

  • Kellya
    Kellya Member Posts: 159
    edited November 2014

    wizard, wonder if you need fluids or a neupogen shot for low blood count?

  • zjrosenthal
    zjrosenthal Member Posts: 1,541
    edited November 2014

    Anyone here who is Her2 positive,  please ask your doctor if you can get perjeta along with herceptin.  It is a fairly new drug that lowers the risk of a relapse.  They are calling it a miracle drug.  Love, Jean 

  • CassieCat
    CassieCat Member Posts: 863
    edited November 2014

    Jean, I am getting Perjeta along with Herceptin in my 6 chemo doses.  And yes, for me the combo has really worked.  My tumors were not detectable via ultrasound a few weeks ago.

    Wizard and others - I have very sore legs too - mostly in my thighs, actually, and I'm 6 days out from #4.  It surprises me, but I'm hoping as each day goes by I can do more and work it out a little bit.  I thought I'd go for a walk today, but I ended up resting. Just doing a couple of flights of stairs felt like plenty!

    StrongEnough, thanks for sharing your updates.  It helps to hear about what comes next!

    Justamy, I feel the same way.  I want to get back to my life! But then I try and remind myself to do what I can and not feel like I'm being held hostage by this treatment or by cancer.

    Kellya, sorry to hear about the delay!  We will all be here, it sounds like. I think I was dehydrated which led to low BP for me.  I hope you get some good feedback tomorrow.

    Catie57, good for you for taking care of yourself.  Sometimes it's hard to know how bad we feel until afterward, if that makes sense.  We don't want to "bother" anyone. I wrestle with that, anyway.

    I'm so glad no one told me to stop posting all the time! ;) Being home on disability and away from my two volunteer gigs leaves me feeling a bit isolated, and I am so glad to have this group to share with.

    I have to go back for another CBC on Friday.  My neutrophils are still in the normal range (yay!), but my overall WBC is low, even with the Neulasta shot last Friday (they did go up but are down again).  They want to check again and possibly give me an antibiotic prophylactically, depending on what my counts look like. My platelets were in the 70s, so we're keeping an eye on them too, though they'd have to get much lower before we talked about a transfusion.  I think they said down to 20 or so.

    I started thinking today about an end of chemo party (not counting the year of Herceptin, just the harder 6 rounds) and then an end of everything party (after last rads) and then a really nice trip with my family. Maybe we'll do all three!  I want to celebrate when the time comes. :)

  • wizard50
    wizard50 Member Posts: 89
    edited November 2014

    Kellya - I get the Neulasta shot the day after chemo so it's probably fluids that I need. I admit I'm not the best at drinking the amount of fluids that I should.  

  • eileenpg
    eileenpg Member Posts: 431
    edited November 2014

    Cassie cat= My boyfriend has planned a super nice trip for us in May. He has all reservations made.I keep looking forward to it. I should have taste buds and be back to my old self. He did this to give me something to look forward too.  Oh. Hopefully hair by then!!!!

    I finally could eat tonight. 2 and 1/2 weeks  post round 4. I ate a piece of chocolate. I could not believe how good it tasted!!!!

    Off work tomorrow. So. hopefully will do some thing fun. Sick of lying in my bed. My feet look like pigs feet today. I am more bloated then when I was pregnant. Maybe I am pregnant. This journey is as long as a pregnancy. Oldest woman on record pregnant.

    I love the posting from everyone. Don't leave .We need each other. 

    At the RO office yseterday the nurse or receptionist not sure which she was told me how her friend's breast cancer came back after one year because she had a lumpectomy. Not a mastectomy.(I had a lumpectomy) It was in her lymph nodes now. Me like an idiot asked what type of BC she had. She did not know. Asked if she has chemo. She was not sure.Why do people feel the need to share this crap!!!  

  • Hope50
    Hope50 Member Posts: 76
    edited November 2014

    I had my first radiation today.  It went fine. Took about 10 minutes.  Last week I got 4 tattoos.  I gave 35 rounds. Will finish up they right after christmas.  Try said I shouldn't really notice much until about the 10th treatment.  I will keep you all posted for those of you who will be having it next. I see my MO for follow up from chemo next week.  We are suppose to discuss the hormone pill.  Ugh. I'm really dreading that for some reason.

    Strongenough glad to hear how rads are going for you.  I need to go get me some cami's.  I'll be watching for ant tips you might continue to have. They think I have an ulcer also.  Do you have to be on a hormone pill?

    I will stick around to follow each of you.  It's like we're family! We understand each other and can encourage like no one else can.

    I care about each one of you and am excited to be one an honorary aunt!!

    Have a great evening ladies and may you all have a very peaceful sleep,

  • Catie57
    Catie57 Member Posts: 259
    edited November 2014

    Ellenpg - I love that ur boyfriend is so supportive and made vacation plans. I keep telling my DH we should go away end of Feb. just to have something to look forward to and celebrate the end. Hasn't happened yet, but not giving up. Stupid receptionist, everyone's story is different, so don't compare yours to the woman w lumpectomy, especially since we only got half the story. I had lumpectomy w lymph-node removal. Both surgeon and MO are confident that we are killing any possible cancer cells that might be floating around with this treatment. 

    I found the IV fluids did help some with my leg fatigue. So if you are really hurting, you may want to talk to MO about that. 

    Hope and Strongenough - appreciate updates on rads. That is the next step for me.

    Hang in there! End in sight! We are kicking cancers butt......

  • Bippy625
    Bippy625 Member Posts: 602
    edited November 2014

    strongenough, glad to read your post and all about rads. I will be behind you soon so it is very good insight. Your job sounds so interesting.  I was sort of a data analyst too, pre BC. I analyzed how foolish people get during a divorce case!  Nowadays I analyze Judge Mathis......

    Hi Jean!  Glad you found us here. Yup, on the Perjeta too!  It is like magic.

    Eileen, yes, I too feel pregnant with an ill mannered, demon infested tumor baby. It is getting a chemo exorcism though!  Also, your boyfriend is a keeper, the nurse is an asshole. Here's how my DH stops that....right when they begin with, "my friend had BC...." Hold up you hand, directly in front if their mouth. Go, "bbbbbbbbbuh", and say, "before you say anything, does this story have a happy ending, or involve only positive information? We are not interested in anything else. Otherwise, stop speaking please"  It has stopped more than one fool from ruining my day!  Yes, maybe it is rude but they started it. 

    Wizard, it is so rough. Just keep drinkin and resting, and yes!  one more is all!  My onco nurse promises that Herceptin alone is a breeze for most. You and I girl, will be doing it together all year long. Gonna ask for my port to be removed during bmx, so i can just get it in a vein.

    Amy, me too, I fear going any place for 5-7 days post chemo as the big D is unpredictible.  So I am a shut in mostly during that time. You have had so many complications it must feel like you only go to med things. I hope you are able to get out soon because you will feel so much better when you do. Hang in there!  

    cassie, never too much posting. I always am interested in reading everyone's posts and for me this is therapy so at times I post alot too. Like you I am not working now so the days can be long and lonely....I am glad BTW that you are stalling a few days on next infusion for DD's Nutcracker. You will be so glad you did, and will feel your best for it. A very special moment for your family...enjoy!

    So my next AND LAST tx is the Friday before Thanksgiving.  Who else is doing one then?!  We are bringin a cake to my surrogate moms at chemo!  Will miss them but also never wish to see them again.

    Off to blood draw today, then home as range is fetting repaired. Hope you all have a good day!

  • Catie57
    Catie57 Member Posts: 259
    edited November 2014

    Bipsy  - Last infusion Friday, Nov 21 just like you.