STEAM ROOM FOR ANGER

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Comments

  • sas-schatzi
    sas-schatzi Member Posts: 15,894

    Cb Hmm on the lawyer.............Look up Demand letter. You likely could put it together yourself. Aske for a letter in return stating the steps they have taken to clean that from your record i.e every note has to be looked at nurse and docs, History, treatment plan. Maybe someone else can think og anything else.

    Meow, it worked :)

  • sas-schatzi
    sas-schatzi Member Posts: 15,894

    Cb what happened. I went to post to you and all your posts were there. Now they are all gone? What up girlfriend?

  • JustJean
    JustJean Member Posts: 170

    Aw, thanks April!


    I am not in Canada NE Ohio here.


    My old PCP always had appointment slots open each day for sick patients. She's left the Cleveland Clinic and moved and I miss her SO much.


    I have an appointment with the newer PCP next week. Be assured that this WILL be a topic of conversation. I consider this as totally unacceptable! Because of this, I have been subjected to an antibiotic treatment that I am allergic to and it's been a tough few days.


    JJ



  • april485
    april485 Member Posts: 1,983

    Holy, cow, I need new glasses...LOL. I read OH as Ontario I think...LOL Either way, you should definitely speak to the clinic about this issue. Let us know how it goes.

  • Janel15
    Janel15 Member Posts: 1

    I am sick and tired of hearing that I should be rejoicing now that chemo and surgeries are over and I am cancer free. I have pretend boobs! I am moody and damn it! I don't care. I don't feel thankful. I feel robbed. I feel that a year of my life is gone and not coming back.

    I wish I could be grateful that I am alive and well again but I don't. I miss feeling strong and whole. Any ideas on how to move on?

  • pajim
    pajim Member Posts: 930

    Janel, you are in a tough spot. Your feelings are entirely valid. You are also not alone.

    Many women feel worse after the treatment ends because up until now you've been concentrating on the treatments. Now that those are over life starts anew. It's almost like after the funeral. Everyone goes home and now you have to figure out what you want your life to be.

    My cancer center runs support groups for women who are just finished treatment. Does yours have one? There might be some good advice on the main bc.org site, or other sites. You should reach out for support.

  • metoo14
    metoo14 Member Posts: 165

    Janel15 you have every right to feel that way. You are not alone in this. Up until recently I too was consumed with those feelings and I was depressed too. There is a thread call "why was I stronger during treatment". I found it very helpful. Everyone there is going through or has gone through what you experiencing. Take care.

  • ShetlandPony
    ShetlandPony Member Posts: 3,063

    Oh my gosh, pajim. "After the funeral" is such an insightful way of describing it.

  • jenwith4kids
    jenwith4kids Member Posts: 216

    I will chime in here too - I just "celebrated" (not really) two years from my surgery. It took me a hell of a long time (and some rx drugs) to get where I am today. It takes a good 18-24 months after treatment is over to feel better - physically (that happens a little sooner) and mentally (seems like it took forever). When I was told that it sounded like an eternity. And you know what, it WAS an eternity. And now that I'm finally really feeling better it seems like my year of cancer was ages ago. It gets better. really, it does. BUT it sucks while you are in it.


    Hugs all around.


    Jen

  • jjontario
    jjontario Member Posts: 157

    The time after treatment has been the roughest by far for me....(throw in 2 additional biopsies, a move, issues with my job most likely disappearing, and now a total hysterectomy booked for April which they scared me by questioning ovarian cancer, -but appears to be just a really big fibroid.) it's been the toughest on my marriage...it's just tough all the way around. Thank God for all of you that give me hope that it does get better

  • metoo14
    metoo14 Member Posts: 165

    Hugs to you JJ! 🌈

  • april485
    april485 Member Posts: 1,983

    If one more "blame the victim" study is cited in front of my eyes this week, I am going to scream! BMI is a correlation to lymphedema? How does that make any sense at all? It has really gotten to me at this point. I have to separate myself from all of this crap about my BC and my future risk for BC is my fault for eating a steak once a while?

    Eat lettuce, stay thin and less BC risk? Umm, ok. explain all of the lovely young thin vegan women walking around without their breasts or who are losing their lives to this disease. They ate well, exercised, had their baby at the right age, breast fed, no GMO food and on and on. Yet, there they are, fighting this rotten disease. Ok off my soap box. Today it really got to me!

    BTW, the person who cited the study is a wonderful person who means very well with posting it. Just cannot look at another blame the victim study that has no really big correlation over many years with reproducible results over thousands of women/men. Small studies make me NUTS!

    Edited to add one study about this: http://www.massgeneral.org/cancer/assets/pdfs/ObesityLymphedema%20.pdf Please note the number of patients was 16! Sixteen!!

    Here is yet another that cites "however, small sample size...yada yada.." http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3971794/

  • tangandchris
    tangandchris Member Posts: 934

    I'm exhausted....I'm angry and I don't know which ends is up. Is this post hysterectomy or Femara or am I just finally snapping after all of this hell?? It's like 1 step forward and 3 back, I'm going along things are good and bam I'm back to emotional bleakness.

    Tired of the struggle.

  • metoo14
    metoo14 Member Posts: 165

    This isn't cancer related but I need to vent. Yesterday I asked for a raise. I haven't had one in 5 years and the truth is I really need to make more money. I am a very hard worker and worked the entire time I was in treatment and no one tried to help me out. I do feel like I am taken advantage of, but to be fair, I'm sure a lot of people would say that about their employer. I do know that I do many things that are not in my job description. I think I deserve a raise. My employer who can afford to up my pay, has told me that they don't believe I deserve one. They have been very generous with bonuses to their credit, and I am very grateful for that. I just feel hurt. I was made to feel like I was in the wrong for asking in the raise because of those bonuses. Am I in the wrong? Am I being selfish?

  • april485
    april485 Member Posts: 1,983

    I think you must work for the same employer I do

    Winking

    Hugs and maybe it is time for a change. Or, maybe if you clearly document all the ways in which you deserve more money and can show them in black and white why you feel you are underpaid, it might work? At least ask if you can be reviewed again in 3 months if they say no.

  • BayouBabe
    BayouBabe Member Posts: 1,467

    Do they clone evil bosses somewhere and send us all the same one?Shocked

  • sas-schatzi
    sas-schatzi Member Posts: 15,894

    I think so,

  • 7of9
    7of9 Member Posts: 474

    jj...I had that scare too.I had a breeze of a laparoscopic full hysterectomy. I had a damn er positive recurrence in the axilla. But hey, now there is no estrogen, the AIs work better. I Will take my calcium and exercise and now I don't ever have to worry about cervical cancer, ovarian cancer or uterine cancer.

  • meow13
    meow13 Member Posts: 1,363

    Blaming cancer victims on non healthy habits enrages me to no end. What a bunch of health crap.

    How do they explain all the "healthy" people that got cancer. Pinktober people should get real, we need a cure prevention/awareness is no guarantee.

  • april485
    april485 Member Posts: 1,983

    ThumbsUp

    Right on Meow!

  • 7of9
    7of9 Member Posts: 474

    Radiation easy my ass. I have completely and totally hit the wall. I'm a working mom with 5 rads this week, a surgical follow up, six year old had two midweek basketball games and now I gave a fever and a cold. F--- this.

  • 7of9
    7of9 Member Posts: 474

    Good news was the express clinic saw me and said lungs were clear... Got a script for hydomet and told to stay in Tylenol next two days. Probably a virus. Now more crap...the software for the radiation machine is acting frizzy so I will be sitting here another hour, will have to come back later or maybe just go for it and see if it gives me spiderman super powers

  • sas-schatzi
    sas-schatzi Member Posts: 15,894

    Meow. The healthy crap started accelerating in the last couple of years. There are a few things that absolutely are connected to cancer like asbestos, smoke, polycyclic aromatic hydrocarbons other chemicals to numerous to mention. BUT the healthy chit hasn't been proven. On the obesity issue all the studies say "may" "possible". What different organizations have done is just grab the info and are promulgating it.. May all there crotches be infested with thousands fleas and ticks.

  • april485
    april485 Member Posts: 1,983

    Sassy girl, <3 you! " May all there crotches be infested with thousands fleas and ticks." Hahahahahahahaha! Love it! xo

  • sas-schatzi
    sas-schatzi Member Posts: 15,894

    April :)

  • Italychick
    Italychick Member Posts: 527

    love it! Add in resistant head lice too!

    My mother has eaten like crap, never exercised and is about 100 pounds overweight. Breast cancer? Nope, nada. Me, exercise, try to eat mostly organic? Yep, I'm on the cancer express. Correlation does not equal causation, everybody who says being overweight, etc. causes cancer can go screw themselves.

    Either our cells grow bad and cause stuff, or they don't. I don't really buy into the blame game.

    Now running behind the mosquito spray trucks when I was a kid, there's a bad thought!

  • meow13
    meow13 Member Posts: 1,363

    my mom and aunt used to run behind the mosquito trucks neither has breast cancer or any other kind of cancer.

    They are pushing 80, I hope I will make it to 70.

  • Italychick
    Italychick Member Posts: 527

    Meow13, good to know, I can let go of that blame game thought too. I wonder how many of us did the running behind the mosquito truck lol

  • sas-schatzi
    sas-schatzi Member Posts: 15,894

    Well now I have 25(26)/53 blood relatives on the paternal side with cancer traced to farm living with pesticides, from first exposure in the early 1900's . Only one cancer on the maternal side. Hmmm the point was............oh yeah, same side heavy on alzeihmers.

  • 7of9
    7of9 Member Posts: 474

    Sasschatzi... Holy crap. So much for healthy country living! We here in northern Ohio get a similar schtick with all the runoff and Steele mill crap pollution in Lake Erie (our drinking water). Corporate irresponsibility even when finally regulated is a killer as those chemicals don't just float out to sea, they stay stuck in the muck at the bottom of the lakes.