STEAM ROOM FOR ANGER
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PS. Is anyone cold almost all the time (except when your having a hot flash). And I just want to say I admire those that exercise, eat well etc. I continue to smoke and drink 4-6 beers a night. Pretty much don't exercise but do stretch. LOL. Just can't seem to care. It's like this dx is no big deal (yes I know it is) My dearest SIL has lymphoma and leukemia -- having tx and is doing well. I just think I'm better off than some.
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KID1919 - Your post made me smile. I am so hot most of the time I keep wondering when I will get to be like the "Golden Girls" on TV. They lived in Miami and always wore a sweater. My cousin lives in upstate NY and has to take her son a few times a year to a doctor in Buffalo and said its always cold in Buffalo. LOL
I think its ok to feel like you do about your cancer. It was a big deal - any disease that can have lasting effects on your body is, but its ok to know its something you went through and it did not change your life. Cancer or not, you should still try to have healthy habits, it will help you feel better. (Says the fat lady getting through the day at work sucking down coffee all day)
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KIDI919 - when I jogged in the morning ( a lifetime ago) I found I didn't need to dress as warmly outside the whole winter. Now I find I am cold on my way to my exercise class, but walking home afterwards, all toasty. So I do think exercise helps train your body to feel warmth. During the day, when inside I find myself putting on and taking off a sweater all day long. In the winter, I can tell when the furnace is about to kick on, I am cold and in the summer? I break out in a sweat just before the ac kicks in. I sleep with a fan trained on my body, circulating air is a godsend. I am well past menopause so I think it just permanently screwed up my internal temperature control.
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kid1919 don't shame yourself for needing a break for a bit. Sometimes dealing with this you just want to try to get "get back to normal" but of course with COVID no one is normal anyway so oh well. Does not matter anyway! LOL!!! My grandma used to say if it is not one thing it is 6. Ain't it the truth?
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Thank you all for your posts. Of course needing to change your habits and or addictions takes an effort which apparently I have not hit rock bottom . My SIL and I laugh when the guys bug us. We say leave us alone "we have cancer"! Not really funny but to us it is. She is such a blessing to me. I'm so afraid of losing her. I told her don't fucking die on me bitch. She is the best SIL anyone could ask for. She took my Mom in her home for 3 yrs before she passed. I couldn't ask for a better friend.
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Laughter is sometimes the best medicine I think. If you do not laugh you will cry. Sometimes I think the docs think we are nuts because of how we react to stuff now because we are not freaked out and will try to laugh through it. Makes pain less too.
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NoPink...
IMO just take what is helpful to you and blow off the rest.
I think most people just don’t have either understanding or empathy enough to help. But hey, Prayers are Prayers right? I think HE still hears them,
But just don’t respond if they piss you off. If they are good friends they already know some days are just hard to do. And venting is just fine even if they don’t understand it, you got a chance to put it in words so it helped you. And that matters. No one is truly going to understand what you go through. They have no frame of reference I think.
Hope you are in a better place today. Hope the sun is shining in your world
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I'm not angry but sad. A friend just dx with ovarian cancer. Well I guess I am a little angry---why can't all these great doctors, researchers come up with a cause, a cure for cancers? It's been studied for years,,, you would think with all the money spent we would be farther ahead.
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Ovarian probably gets less money spent on it than breast cancer does and a lot of times people are Stage IV when diagnosed with it because they do not know the signs to go to the doctor or are embarrassed because of it. Somehow breast cancer is less embarrassing. Stinks. Know someone who is Stage IV with it and fighting now too with ovarian.
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I came here to vent and blow off steam, but KIDI919 your post from last week made my day. There's a song by Thomas Benjamin Wild that pretty much sums up how I feel about life, cancer, doctors/medical people in general, unsupportive family, you name it. I am struggling with severe depression, anger, physical pain, scars that can't be fixed, sadness, and I just wish I lived closer to you so we could smoke and drink together!
Hang in there everybody. This f-ing sucks and it makes me want to cry and scream and throw things and smash a window. Mainly because literally no-one in my life understands or even wants to pretend they do.
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Other than you guys, I've come to realize the only people who get me are my daughter and my sister. It's hard to leave a bunch of stuff out when talking to other friends and family members.
For those of you who may remember my husband was helping a lady/family who owns a spot of land on the Chesapeake that was inherited. It was once a little resort back in the 50's, but over the years was not kept up, so now this family has been trying to do so. It's about 80 old little cottages, some still livable, some remodeled, and some are tear downs, and re-dos. My husband tore down 2 and put 2 up, one of which we can stay in for free this season. I really need to finish this for him. I could walk away too, but nah. It's only an hour from home, and it's right on the water. My son and I were down there yesterday. Have a ways to go yet. No water or electric. Soon...............................at least they've let us (and a few others) in to work on them now.
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Does anyone else see the irony in sitting on hold for twenty minutes with your hospital listening to a recording about how great your hospital is?
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DH is in hospice. I’ve tried 3 times to cancel his MO appointment for Thursday. Each time “let me put you on hold for just a second “. 10 minute later I hang up. So I’ll go to the appointment myself, see his MO, and get the copy of his last scan. Don’t care if MO isn’t happy
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Spookiesmom.....I am thinking of you and your DH. Hugs....
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spookie- I am so sorry. This week is 9 months for me losing my husband to the beast. Be there. Talk to him. You don’t have to get it right. You don’t have to fully understand. Just be with him. I had hubs in the shower the morning of his mo appointment which we thought was going to be “the conversation “. They called the ambulance.
Use hospice. Mo who knows? You keep going til the end. Home, hospital, or other. This is not easy but you can do it. He deserves it. You are a rock star.
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Spookiesmom, you don't need to make anybody happy except yourself and your dh right now so that MOs office will have to get over it. They should be calling you & supporting you & making sure you have what you need - not wasting your time.
You do what you need to do. Thinking of you.0 -
Spookiesmom, I'm so sorry... Just wishing you both peace and comfort right now.
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@Spookiesmom - thinking of you and sending hugs.
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Spookiesmom I am so sorry. Hugs and prayers for you and your family.
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Spookiesmom, thinking of you and willing you the strength you need to get through this and be there for your DH. As for the MO and his office, as moth said, they should be supporting you, not making it more difficult for you.
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Oh, Spookiesmom, I'm so sorry that office isn't more sensitive - and sensible. IF you feel up to it and need to vent, see if there's an office manager listed and let that person know how you've been treated.
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Spookiesmom, I'm so sorry you had to go through that. IF you feel like venting and have time, see if there's an office manager you can tell how you've been treated. And put a bad review on the doctor's website.
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I see a different MO in that practice, I go for a port flush Thursday. Im going to unload on someone.
Thanks for the good vibes.
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Spookiesmom - Just so very sorry that you are going through all of this. Those offices can be so insensitive and cold! Sending good wishes.
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Spookiesmom, sending special thoughts for you for Thursday, hang in there and get it off your chest!!!
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Spooki - sorry you are going through this. Do what you need to do to keep DH comfortable and yourself sane.
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Spookiesmom: hoping all goes well on Thursday. I would request to talk to the office manager. Sometimes the people on the desk feel they are entitled to make decisions beyond their authority and need to be told they are not the ones to do so: desk dragons!
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Joining everyone, Spookiesmom, sending you love.
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I think whoever works in that clinic, first must have a degree in telling lies to patients. I haven’t seen my MO in person since November, her nurse said because of Covid situations the clinic hours is not as normal as before and the MO does not offer in person visit, so I was set for zoom appointment which was a lie. next visit, this week, her nurse with a big favor scheduled me for in person visit, I asked her to schedule a week earlier, respond was Covid situation clinic is not working every week, again another lie. guess what! again she called to change my appointment because my MO has a new patient at my slot!!!!! Oh am I invisible or what? I hate being treated like that why these people keep doing this. I am stressed enough not being examined longer than 5 months.
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@Snow-drop. I'm sorry you aren't getting the care you need from the MO. I wish I had a solution for you. I've had 3 appointments scheduled with my MO. First one was rescheduled once. Third appointment was rescheduled 3x. I cancelled the appointment when they called to reschedule the 3rd time as it indicates to me that she doesnt have time to see me. I now have a tele-health visit scheduled in 2 weeks. I'm not even sure the doctor is aware of the scheduling issues.
Given my early stage diagnosis, I see no purpose to see her more than once a year. I did talk to the practice manager and she seemed surprised that I was upset with the multiple reschedules.
I hope you can get the care you need.
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