CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Octogirl, that is perfect!
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Boy have I missed the crazies!!
I started reading this evening trying to catch up on all of you. You've all been very busy posters and I can see this will take me awhile.
I'd like to share something very special with you all. I hope I don't embarrass one of our quiet crazies (JAN) but I really must show all of you the beautiful quilt she made for me.
Our Katy contributed some of the fabric that went into the quilt, and Jan created this wonderful masterpiece. The picture doesn't come close to doing it justice.
I am totally in awe and was overcome with emotion when I opened the box today. Katy was on the phone with me during the unveiling. The amount of work that must have gone into the quilt is mind boggling to me.
JAN, WOW!! It is stunning!! I just don't have the words to express how much your generous spirit means to me. What BEAUTIFUL work you do. I can see how much LOVE and CARE you put into your work, and the special message on the back made my eyes leak (as Queenvice would say). I spent a considerable amount of time tonight looking at each square and admiring every inch. How did you know I have red accents in my family room?? How did you know that green is my favorite color??? It is PERFECT. The butterflies...the fish...the beautiful colors....just amazing!! I will treasure this ALWAYS!! A mere "thank you" just doesn't seem adequate.
The quilt is such a wonderful reminder of all the great women in Crazy Town...especially the QUIET crazies.
I wish I had the skills you possess, because I know how this has made me feel receiving it, and it would be so amazing to be able to give that gift to someone else. I wish I was able to pay it forward.Katy, Thank you so much for your contribution!! You've been so very good to me from the moment you came to our Crazy Town. You're a very special lady. Again, I have no adequate words to express my gratitude. I love looking at the "Katy pieces".
I love and appreciate all of you so much. You ALL brighten my day. I will never be able to give back all you give to me on a daily basis. Thank you to all of the crazies for making this a special place.
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I didn't want to spoil that last post with medical news, so I will give an update in this post. I got an email from my Neuro doc today. I'm not quite sure how to interpret the email, but I know the GOOD news is NO ALS. Here is what he wrote.
The MRI of the brain came back completely normal. I am not sure of the cause of your symptoms, but I have no definite suspicion for a concerning neurologic cause (i.e. amyotrophic lateral sclerosis). As your symptoms have been improving, I recommend continuing to monitor them. Let me know if your symptoms worsen.
While I'm ecstatic about the GOOD news (no ALS), I don't feel I got an answer as to why my left side went numb for a day, and why I now have a slight slur and weakness on the left side of my body. I also have intermittent numbness on the left side of my face since the initial incident.
Because I'm a little "slow" I'm not sure if no definite suspicion for a concerning neurologic cause includes the elimination of a stroke. I sent a follow up email asking that question. He did diagnose me with chemo induced peripheral neuropathy when I was in his office, so I also asked if that would cause all of the symptoms I've experienced.
Now I'm hanging out on the corner of Crazy Town Way and Confusion Avenue while I wait for a return email. Hopefully I will get more answers soon.
I've got a lot of reading to do to catch up on the crazies. Life has been a bit lonely without all of you.
Love to all....quiet crazies too.
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(((slow))) I know you don't know me but I have been praying for you. I am glad you got good news even though it doesn't clear up your mind about why you have these symptoms. I will continue to pray for answers for you. In the meantime enjoy that gorgeous quilt.
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Thank you Molly!!
I just noticed you're in LA!!
I will let you know the next time we all get together if you're interested. It has been so great meeting so many of the women here on BCO.
If I haven't welcomed you yet.....WELCOME!!!
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Slow!!!!!! So great to see you here! Even better is to know that whatever is/was going on medically, it's not the worst news that you were so concerned about. As for Confusion Avenue, I've noticed that it's broad and deep in Crazytown! So congratulations, and we are all in your (linty, worn-out, stretched-out pocket--that would be the one flecked with chocolate crumbs and wine stains).
Jan, that is a spectacular quilt. Absolutely beautiful. And, apparently, done in a very short time? I really admire what you have done there, not least of which was figuring out what would work in Beppy's living room! I remember seeing Katy's contributions--the fabric, not the brilliant human touch--posted here a while ago, and it's nice to see them incorporated.
A lovely Thursday to all, and especially to our lovely mayoress, quilter-in-chief, and the Katy in everyone's pocket!
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Slow, thank you for the welcome and yes I would love to meet up with others!!
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Slow!!!! We've missed you SOOO much!!! So glad you are back and so glad for good news even if it is confusing. I hope you continue to get clarity of a good type. We will stay in your pocket as long as it takes to figure it all out.
Jan, the quilt is stunningly beautiful. Thank you so much for this wonderful gift for our mayor! You managed to put all of our hearts in it, along with your own. i lack the patience to be a quilter, but I love quilts...and isn't that a crazy-quilt pattern? It's perfect. And thank you Katy, both for the contributions to the quilt, and also for making all of us feel special in a good way, not just 'special' because we are here in Crazytown. Have I mentioned lately how glad I am to have found this place?
SoCal girls, don't forget that I am only a four or so hour drive away when you plan a get together. Would love to meet up. It will happen...and I hope sooner rather than later.
I have a friend who claims that Thursdays are magical. Hope that is true for all of you.
Hugs;
Octogirl
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Slow, so glad you are back! Having gone through brain MRIs with two parents, one just this week, the doctors have told us they are pretty definitive for seeing any stroke damage, so if they didn't see anything on the MRI, you are probably in the clear there. Can you remember anything you might have done, slept weird, turned in a wrong way,'lifted something heavy, or something? I'm trying to think of things that could have caused the numbness that are of the "oh I forgot I did that activity" thing. As an example, I fell on my right side on my bike. A few days later, my left arm, the surgery one, felt funky. My miind immediately went to lymphedema, and hubby said you probably have muscle strain from the impact. And he was right, it went away.
I hate cancer and all the fear it puts in us, and all my fingers and toes and eyes are crossed hoping that whatever is going on with you will subside. Big hugs, you are so important to me!
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A stroke would show on an MRI..............a mini-stroke does not....just went through it...........a mini-stroke is quick, and you can have one and not even know it...................that is why they said mine was not a TMI, but called Transient Global Amnesia...............in Slow's case her symptoms are continuing which would rule out a TMI (mini-stroke)......and they already said negative for Major stroke.............now if they can only find the "real cause".........
Slow what about the Peripherial Neuropathy...........that can cause numbness anywhere in the body depending on what type it is..............numbness, tingling, etc................
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SLOW!!!! Welcome back. Glad that the doctors were able to rule out ALS, and stroke to some extent....but "We don't know what caused that." is a ticket straight to a rush-hour traffic jam in downtown CrazyTown that would make LA and Chicago look easy.
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My daughter was just diagnosed with Polymalgia rheumatica...............in terrible pain.......and they are not even sure if it is that..........process of elimination........blood tests etc...........put her on Prednisone.............she already has Hashimoto's disease from her Thyroid........ugh........0
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Oh, Ducky. Very sorry to hear about your daughter. I have no wisdom, just {{{{{HUGS}}}}}.
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ducky, I am sorry about your daughter. It sounds like she already has enough going on.
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Ducky - sorry to hear about your daughter.
Slow - welcome back. I have an odd question. Do you have migraines? With aura? I had something similar happen in '99. It was pretty scary. Providing a link here to some info. Migraine link here
Jan - that quilt is so cheery. I love it! What a sweet gift.
To all my other crazies, I hope your day is filled with laughter. Sunshine for the soul
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(( Slow))
Jan.. The quilt is just beautiful.!! :-)
Ducky. Sorry to hear about your daughter. Is the predisone starting to work?
Hi to everyone!
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Lucy.........they started her on 20mg......seemed to help some........then reduce to 10mg after I think a few days.........pain got worse...............she was in work today and I sent her a message saying "how is the pain today".......her answer........I feel like someone hit me in my neck and knees with a baseball bat................
She is the Director of Gobal Marketing with a Major Pharm company in Pa..............so she really needs to be at her job.......just got back from the U.K after being there for a week...........I told her screw the job...........of course she isn't going to listen......
If the Prednisone doesn't help at least to lessen the pain within 3 weeks they will look further.
The ruled out Lupus, MS, and Fibromyalgia .............not sure how they ruled out MS without an MRI.......another daughter that they thought had MS and did a MRI, and nothing showed........who knows......it's always something.
Got a call from the Realtor today.......at my expense they are turning my "electric heat" on for 10 days before settlement to make sure it's ok.........plus turning the water back on too..............I have to pay the electric bill.........and trust me even 10 days is brutal..........electric heat sucks and is expensive to run............this f/n shit never ends with this house.
So sad, a house I once loved I absolutely hate now.........can't wait till it's over...I never heard of anyone doing such a thing.........plus I told them......my sectional is plum up against the electric baseboard heater........reason being we never used it after my husband died cause we didn't go down in the winter.....you don't move that entire sectional away from the heater you will have a fire...............I can just see some smart ass little dude going in from the Realtor just shoving the thermostat to 55, and walking out, not bothering to look to see if anything is close to the heater..........assholes all of them.
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Octo, It would just be such a blast to all get together. We would have to find a way to get Lucy here and all the east coast and middle coast ladies. I had high hopes I'd win the Power Ball and then I could buy BCO getaways all throughout the U.S. My DH was planning his animal shelter and I was scoping out real estate for the crazies. hahaha Can you imagine us all on a road trip??? I just hate when life gets in the way of our grand ideas. How is the hair???? Will we get to see pictures soon??? Did you ditch the wig yet???
Tomboy, I don't think I properly thanked you for the very special email. It really did help to calm my nerves the day of my MRI. I'm such a neurotic nut sometimes. That bigger dose of Ativan really made a huge difference. I'm such a lightweight that I was pretty knocked out the whole next day. Thank you for always being there for me!! We sure have been through a lot together. I picture us on the front porch of the nursing home someday. Rocking in our chairs and complaining about the staff. hahahaha...LOVED the picture you posted!! You DO look like Bowie!! I can't believe I didn't see that.
Lucy!! Hi!! Any plans this week with the grands??? I hope you come to the U.S. someday!!! I'll have that spare room all ready for you!! I would really love to see Australia sometime in my lifetime. I would most definitely end up in a straight jacket if I took a flight that long. A cruise would be fun!! Hey, we should all take a cruise to Australia!!!
Poppy, Your band pictures bring back so many good memories for me. What a great opportunity to spend that special time with your son in Paris. My son spent so much time doing band activities, I had to go to all of his competitions just to see him. hahaha LOVE the pictures!!
Ducky, What in the world is Polymalgia rheumatica?? I'm going to have to Google that one. I'm guessing it's another autoimmune disease?? There must be something in the water because so many young women are being diagnosed with these diseases. It's awful. I hope the prednisone works well for her. Please keep us updated on how she is doing.
Katy, I feel like I've stayed pretty up to date on you with our texting!! haha I forgot to ask when they will test your liver enzymes again??
Gaia, I miss seeing that pretty smile!! You are in my thoughts daily. Wishing you pain free days. Just know the crazies are always with you!!
Rain, I've been reading back a bit and I've got to say some of your comments have just cracked me up. I love how you just throw them in at the end of a thought. hahahaha Oh my gosh....I've gone days speaking with a British accent!! hahaha
JAN, Waving to you and the other quiet crazies!! Do you think it would be over the top if I start bringing the quilt everywhere I go? A security blanket. I could take pictures of the traveling blanket!! My DH made me realize I really need to get out more.
QueenVice, Oh my goodness. You also made me laugh. I'm thinking you should stay mayor for awhile because let's face it, you are AWESOME!!! Thank you for all you do for all of us!!
Italy, Thank you!! That gives me comfort. The only thing out of the ordinary I did around that time was wrap Christmas presents . So I did think of that originally. The slight slur is throwing me for a loop and the facial numbness which continues on and off. The very odd thing is my brother noticed me slurring on Christmas day. The was BEFORE the incident I experienced of total left sided numbness. I couldn't even lift my left arm when it happened. I really thought maybe I had pinched a nerve somewhere or it was my RA inflammation wreaking havoc. When I went to the PCP, she really thought it was a stroke.
Sula, I need food porn!!!!! hahahahaha Did you take a break from cooking and baking??? Got something with extra chocolate for the tube?? Hope all is well with you!! I miss your rodent pictures!!
Shorfi, I see that you've been struggling. I'm sorry you haven't gotten good relief from your injections. I've found when everything around you is overwhelming, it is good to take a bit of a break to regroup. Becoming a quiet crazy can help you do that. I hope you don't go too far in the basement because that is a time when we will all have to come down and get you out!! So if I notice you've been away too long......the crazies will be there with our magical rope. Gentle hugs to you!!
Cubbie, Monkey butt armpit??? hahahahahahahahahahahahahahahahahaha We must incorporate that term into our Crazy Town dictionary!! Happy to hear your x-ray looked good!!
Iris, Nothing gets my temper flaring more than dealing with insurance issues. When my mom was sick, I handled all of her claims and did all of her paperwork. I could feel my blood pressure rise just hearing the word insurance. Hearing the words "accepting assignment" was a quick trip to a bottle of wine. I'm glad it's a new year and you can return to your PT.
JerseyGirl, Keeping your friend Glynn in my thoughts and prayers. That is awful that he is dealing with so much. I hope they are able to give him some relief with his surgery.
Pennsygal, I didn't know you had lupus. I almost typed LUMPUS because lumps are always on my mind! haha Did you have a big flare after chemo?? While you were on chemo, did it put your lupus into remission?? I'm just curious how treatment affected everything. My RA went into remission while I was on chemo. I haven't been able to get it under control since completing treatment. I hope the Arimidex is kind to you!!
Chi, Any new trips on the horizon???
Molly, Your grandson is absolutely adorable!! What a great picture. Thank you for sharing it with us! I love seeing pictures of grandbabies. I CAN'T wait to be a grandma some day.
Eggroll, So sorry you're having a difficult time after rads. I hope the itching gets better soon. My condolences on the loss of your relative. Watch out for those waves!! We'd like to keep you around for a good long time!! Thanks for sharing your picture. I loved seeing your pretty, smiling face!!
Robin, hahahahahaha.......Why do we always forget about our lady parts down south??? That cracked me up!!!
Notagain, I was sad to read about Emma. I lost my sweet boy Baylee last year and it was so difficult. I added a new rescue when Baylee was still alive. There we were in PetSmart at the adoption event and this little dog was calling my name. He has turned out to be quite a handful, but he has quickly settled in and now he thinks he owns the place. I hope you're still doing well after your surgery!!
Blondie, Did I see you peek your head in awhile back???? GREAT to see you here!!
Gingerbrew, Welcome to this thread!!I know I've seen your name around BCO. So glad you found us!! We will be in your pocket for your brain MRI on Friday. Be prepared though because this is a rowdy group. Your pockets will never be the same again!!
M0mmy, How is our official hugger???? This hugee is sending a BIG hug to the hugger!!
7, Sorry to hear about the nodes. My goodness you've just been through enough already. I know you can do this though. Please draw on the strength of the group. We are all in your pocket and with you every step of the way. Gentle hugs to you!!
Swanseagirl, You live in one of my favorite places on earth - Washington State!! I love Oregon too!! I'm glad you're here to share your crazy with us!!
Marijen, After hearing about the difference in your sisters, I'm glad I just have one!! Well, one that I grew up with - sort of. She is 13 years older than me. We are very close and she has always been like a second mom. My other two sisters, I didn't know about until I was an adult. I met the younger of the two when I was in my teens and the older sister, I didn't meet until about five or so years ago!! They are both awesome!! In the old days they liked to keep a lot of secrets about EVERYTHING!
Lolis, Welcome to our thread!! I hope your inflammation turned out to be just that. Please let us know how it turned out when you can. The lumps, bumps and inflammation is a short trip to Crazy Town!!
Mama-bear, Welcome to our thread!! I also cried when I heard about Holley. It was heartbreaking thinking about her family and boys. She had so much of an impact on many of us. A beautiful lady inside and out. She really put a spotlight on MBC. She will not be forgotten.
Readytorock, Happy dance for you on the all clear! That is awesome news!!
Momwriter, Great news on the chest MRI!! All clear is music to my ears!!
Blondedoris, Welcome to our thread!! I'm very happy to hear the Paclitaxel is working!! That is great news!! I hope the re-ordered chest scan goes well. Please let us know when you can.
Marie, You can stick around Crazy Town for as long as you like!! We can't guarantee that you won't get just a bit crazier hanging out with this bunch though!! haha
I'm reading more recent stuff and working my way back. I think I'll just move forward from here and read at my leisure!! You've all been so busy. If I've missed any newbies.....WELCOME!! If I didn't get a chance to mention everyone, it's more than likely you haven't posted recently. So many women have posted to this thread it's difficult for my chemo brain to keep up!!!
Good grief...I wrote another book. Love to all...quiet crazies too!!
P.S. Still NO return email from the Neuro doc.
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Ducky: sorry to hear about your daughter! (rushed off to the Mayo clinic to look it up. Ugh.
SlowDeep: I'll do what I can, but only if I'm allowed to add impossibly cute baby animals to the welcome basket as appropriate. (And still say CrazyTown's a group dynamic/project. I couldn't possibly claim even a fraction of the glory.)
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hahahahahaha QV!! You can add anything your little heart desires. Yes....I very much agree about the group dynamic. Maybe it should be a revolving position?? Don't they do that in real life???
Rose just popped into my mind. I noticed she hasn't posted in awhile. Rose??? Have you been de-trolled? Is that even a word?? <Getting out the CT dictionary> Thinking of you!!
I know we talked about the CT paper long ago. I think miss Katy should have her own column called ASK KATY. Maybe it's due to all she has been through in her life, but I've just found she really gives us all such excellent advice. We all got so busy we forgot about the paper!!
Iris should do the insurance advice column!! haha
I can't even remember who was doing what??? Must be the stroke cancer.
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I think Sula was going to do a food column??
But I will be happy to contribute the occasional bread recipe.
Here's today's very small crazy. It is the kind of thing that leaves one thinking one is somehow missing a couple of personal synapses: One of the upstairs neighbors did a sweet favor, and I baked a loaf of applesauce bread to thank them and left it outside their door. Got a very nice email thanking me for the banana bread. I said glad you like it, and it was applesauce bread. Just got another sweet note, handwritten this time, asking me for the recipe for the banana bread.
So I typed up a recipe for the applesauce bread and also a separate one for banana bread. If you can't beat 'em...
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Oh man! You should have given them the recipe to the applesauce bread and wrote a note saying here's the pumpkin bread recipe you requested!!!
Sula would do a very nice food column - no doubt!!
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Contemplating a rotating "mayor" of CrazyTown.....er, that is, the position is passed from one person to the next at designated intervals.
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CT had trapped me off and on again. Been busy this week with the start of my class. So far I'm feeling comfortable and I already have a speech to prepare for late Feb. Teeth on the right side are being hyper-sensitive tonight and I took something for the pain, but it hasn't kicked in yet. Hope it does so I can sleep. They do this from time to time and I take good care of my teeth. Worried that this is a side effect from the chemo.
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(((Slow))). (((Ducky))) (((Mommy)))
Special hugs to each of you!
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Slow, so glad to see you back, and to hear the MRI looked good. Could your symptoms be from your RA instead?
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Glad to see Slow is back, that is so frustrating that docs can't figure stuff out sometimes and we're just left with no answers. I remember seeing a viral video of a journalist who started talking jibberish in the middle of her report, and it turned out to be a migraine coming on. There is a lot of mystery when it comes to our brains. I hope you keep getting better and better and when you feel perfect, stay that way.
All the years I lived in Santa Cruz, I never went to see the Elephant Seals. On the way back to Washington, we decided to stop in San Simeon and finally get us to a rookery. Of course, 3 miles before we got there, we stopped at Hearst Castle where I realized I was dizzy because I was dehydrated. So I drank two bottles of water. Fast forward: Just a few minutes after encountering a thousand blubbery bodies throwing sand on each other, I had to GO. And guess what . . . hundreds of people all viewing Elephant Seals and NO bathroom. Not even a port-a-potty. So we had to LEAVE. That was a bummer. I guess the good news is that I didn't wet my pants.
Tomorrow: the drive through tree!
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Morning all! Hugs to all who needs them!
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M0mmy, sorry about your teeth. I have had that and it's not fun. Egg roll, I love the drive through tree. That is ridiculous that there were no restrooms. I went to bed at 9:00 last night. I just couldn't function. Anastrozole kicks my butt every day. Feeling bad every day is enough to make me permanently crazy.
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