CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Iris, Back to normal sounds so awesome!!! I'd like to go there with you.....Normalville!!! Whooo Hooooo!!!
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Crazies! All of you! Thanks for being in my pocket today... Had rads first, then went for my Herceptin... went fine... I just feel rotten... I actually feels like the effects I'd get from regular chemo, only not as severe, like week three going into another infusion, if that makes sense... extreme fatigue, flu-like symptoms, tingling in fingertips and toes... the tingling goes away in my fingertips during week 3 before my next infusion, stays a bit in balls of feet and toes... when I finished chemo on Nov. 10th, and didn't have anything, except BMX, until Dec 21st. The tingling in feet was nearly gone. They tell me it was the Taxotere, or the Carbo, then it was the Perjeta, but not the Herceptin... Hmmmmmm..... either it was all of them, some of them, or Herceptin is just increasing the side effects that were caused by all of them... or Herceptin could be the culprit all along....To quote a Jimmy Buffett song, "Indecision may, or may not, be [their] problem!"
I call the doc and the CPN says take claritin for the cold symptoms, Zquill to help you sleep, along with the Ativan for anxiety... I hate all of these drugs to counteract the effects of the one drug that's supposed to help me. Don't see doc again until Feb. 22nd, before next infusion. Left message with CPN that I wanted to talk to my doc, I'm not feeling confident I'll get a cal back... My onc is great, but she's a big deal (they call her El Grande Jefe, behind her back) at my cancer center, and sometimes a callback is not on the list... I get the CPN or APN... ugh... Sorry for venting like this... I'm just so stinking tired... I hate the thought of feeling like this for the next 6 months... 4 more weeks of rads and then it's just the Herceptin... I keep reminding myself of that... I'm NED right now, and this is all to help...
Thank you all for being out here! ((((hugs)))) I'm heading for the porch and a nap.
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Robin.. Love your pictures of The Cafe :-)
Slow.. Oh..tell your hubby he has excelled himself with those cookies 😃. and the soup in bread bowls looks fabulous.!! I can't wait until winter to steal the idea.!! We are in for a scorcher her today.. You know, one day I seriously am coming to visit you. Xx
Jersey.. Sending ( Hugs) Rest up, and take care.. I hope you get your return phone call.!!
Hi to all xx
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Maybe we can organise the occasional High Tea at The Cafe as well??
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oh yesss! If that means Devonshire/clotted cream and champers, I'm in!
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I was about to say that Slow was the food pornographer of the day in C-Town, but then I saw Lucy's post. I'm not even going to try! That high tea is a work of art! I am, actually, drinking tea at this moment, and I do have bread dough rising. The bread would have been yesterday but for a bit of non-breast-cancer related Crazy involving the oven, which led to the self-clean cycle, 4.5 hours of disconnected smoke alarms, wide-open windows, and shivering. Much better to be on the porch, where there is a gentle breeze a-wafting. And blackberry pie, apparently. Who knew?
Jersey, I'm so sorry you have those symptoms. For what it's worth, I've been on Herceptin for months without symptoms that I can tell. But I will say that everything for me was exacerbated during rads; I felt that the rads were such an overall stress that they brought out all kinds of crazy, mental and physical. When are you done with that?
Molly, I have never forgotten the time my darling son, as a relatively new user of the toilet, left something running in his grandparents' house. Which led to a flooded bathroom, a leak in the room below, a visit from the plumber, and much guilt on my part even today, though I imagine my mother has forgotten all about it. The guilt--it never stops! I hope things are under control.
DH and DS enjoyed The Revenant, but nothing they told me about it made me wish I'd gone with them. Raw animal flesh! Sleeping inside the thorax of a dead horse or something! Ugh!!
Livestreaming Downton tonight....
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I finally caught up on Downton last night. Watched the whole season so far in one go. Now I'm in "show hole" again.... Doh!!!
A bit crazy today. Going to the MO again today for further follow up on liver enzymes/AI issue.....need those Ativan sprinkles!
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In your pocket, Katy! (Rummaging around the lint for stray sprinkles, Ativan and plain old sugar....) Hope you get some kind of clarity from the MO.
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In your pocket here too Katy! (((((katy))))))
Octogirl
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Oh my Lucy. That looks so inviting!!
Rainy, You crack me up.
Pocket party for Katy!! Keeping my fingers crossed for good numbers!!
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hello everyone
stressing out here just found out i had breast cancer on the 27th, have to go through surgery feb 9th then chemo and radiation right after words
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Butterfly.. ((Hugs)) .. Welcome.. Come and chat with us.. We all understand how your feeling.. as everyone would of told you, the time just after diagnosis really is the worst.
(((Katy ))) Thinking of you.
Rainny.. I'm sure The Revenant wouldn't be my cup of tea either 😱
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In your pocket, Katy! Welcome Butterfly. Have a cup of tea. Rainny, okay that's funny and as a grandma I can guarantee that even if she didn't forget she definitely forgave. Everything is okay for the moment. Roto guy had a tough time. Roots at the city side of course but at least we can shower and do dishes again.
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molly, good for showers and dishes, good also for the chance to make food porn
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Hugs to all!
Been stuck in a traffic jam in CT. Really going bonkers here as I have to make an outline for my 1st speech for my class. Never had to do this before so I'm really lost! Instead of starting with how to make an outline with your Intro to your topic, the professor whizzed right by that and went right to the Body part of the speech! I'm the oldest student in the class!!!!! Help!!!!!!!!!!!!!!!!!!!!!!!!!!
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We have a butterfly to welcome to the newly opened tea house and coffee shop! As you can see, everyone is good at holding hands, holding pocket parties, and bending a sympathetic ear. Keep us informed as go thru treatment.
Katy, with you today. I must be the only female on earth who has not seen even one episode of Downton Abbey. DH has custody of remote most of the time. Someday...
Woke up to front page headlines that my MO is being sued for all sorts of ethical issues. Oh crap, maybe even double crap. That's my "deal of the day." I see my beloved PCP before my next MO appointment to get his input. Current MO is my 3rd. First was a very tired old lady, second was a sour pus, and now my third one is in court this week and on the front page of the regional newspaper.
We had an unexpected 3+inches of beautiful snow overnight. Not much prettier than new fallen snow with the sun shining on it.
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Jan-I've never watched "Downton Abbey".
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Welcome to BCO and our thread, Butterfly. I'm very sorry for the reason you have to be here. Like Lucy said, the beginning is very difficult. Here is a very good link for those recently diagnosed.
http://www.breastcancer.org/symptoms/diagnosis
It may help with everything that's coming at you all at once. You've picked a great place for support. BCO has so many caring people that will help you through this whole process. Sending you best wishes and gentle hugs!! You're always welcome in our Crazy Town.
M0mmy, I just hate traffic. Here is a Wiki link that can give you some info about speech outlines. Not sure if that will help or not.
http://www.wikihow.com/Write-a-Speech-Outline
You said, "Help!" This is all I could come up with quickly!!!!!
JAN, Oh no!!! That must be a bit scary for you. What is it with these MO's lately?? I love Downton Abbey. I've been recording all of this season and I haven't caught up yet. It's their last season, so I've been taking my time watching. You can also watch it online on the PBS wesbsite!! I went years without a TV subscription and watched so many shows online. Now we are back with DirectTV.
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Hello Dear Crazies,
I feel terrible that I have been so out of touch. I've been reading about what everyone is up to and getting familiar with the new faces in CT.
Rainn,
I love the idea of the CT Tea Room! All of you have made it seem so inviting.
I haven't much time to comment right now, I'm having surgery to remove the port on Wednesday so there are blood tests etc to get done before that...anyway I'll be back when this is done. Scared to get put out but glad to have that thing out of me.
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Lucy55, your high tea presentation looks like enough eclairs and sandwiches for me.
So what is everybody else having haha?
The wind in San Diego has been insane, last night I kid you not I saw a weather station close to my house that posted a 48.5 mph wind. And since nothing is insulated here, buildings are COLD! So that yummy tea and crumpets pic? I'm all about it!
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Welcome Butterfly. You will find that this gets a bit easier once you have a solid plan in place. It is a whirlwind for a bit, but it keeps you so busy there is less time to be anxious. When you know your plan, the best threads are the Surgery/Chemo monthly groups. Nothing more comforting than to know that what you may be feeling is normal, even when it does not feel that way.
Jersey - do they give you any Benadryl or steroids with your Herceptin? I had those stopped and truly received H only, over 60 minutes to start. They can slow it down to 90 minutes and it generally helps any SEs. I love my team, but my MO will never really admit that my SEs are related to his treatments. My RO is quick to blame the MO meds, but will quickly admit when it was "on him."
I thought about Chocolate Hot Tubs, but I don't think any of us are crazy enough to try one. However, I did find some beautiful tubs and will provide a link. I couldn't choose just one. Tub link well worth a peek!
I wish we could have a Sims Live Interaction version of CT. Any programmers here?
Lucy - thank you! The high tea looks wonderful. Should we wear our finery and jewels?
Jan - that truly sucks. Scary on many different levels. Sorry. Sending hugs your way!
Mommy - I hope this is a helpful tool. Speech Outline Template
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Thanks Gals! With your help I "spitballed" an outline for the Body portion of my speech. I'll let the professor tell me what I should keep in or cut.
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First things first. Butterfly! welcome to CrazyTown.
Yes. You. There is room, and a room, for you here. A safe place, A tranquil place. Sympathy. Understanding. Don't be daunted by the conversations going on already. What's upsetting you? What tests and surgeries and treatments are in the offing?
The initial diagnosis is awful. Treatment isn't exactly a walk in the park. Nor is diddling around waiting for the followup tests. But that period between initial (tentative) diagnosis and establishment of treatment plan/sequence is a nightmare
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Butterfly- a warm welcome and a big hug. You are in the right place! Pull up a chair and rant or vent or ask questions. It's all fair game here.
JAN- very scary indeed. I hope that gets sorted out soon. I'm glad you have your pcp you can float a trial balloon with.
My news is that the liver enzymes did not come down much. In fact, one went up again. He was very surprised after 60 days off the Tamoxifen with nothing else to point to. He has put me on Arimidex
He is following up again on the liver in 30 days. We had a long, all-encompassing chat about everything again, from dx, to Oncotype etc, and QOL vs % benefit in my case on HT. He obviously is very much in favor of me doing it, and for ten years. But he also totally got me about "what if I just cant". He was very encouraging but understanding and didn't make me think I was going to get fired as a patient if I can't do it. He also explained which AI he was starting me on and why, and where he would go next and why. His demeanor and the time he spent listening was very helpful. He wasn't just reciting a script.
So still a bit crazy. Bought some lemons. It's the only thing that has ever brought my elevated enzymes down. I doubted myself this time and didn't want the hassle or expense, but now I have to try.
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Jackie: oh bleep. I got nuttin' but "Keep us posted, We'll be here for you, if I have to do my R. Lee Ermy channeling....but I don't think I"ll have to go that far." Will I?
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Katy: darn! I hate to hear of enzyme levels not going down, and I hate to hear of anyone buying lemons when I still have dozens (maybe even close to 100?) on the tree in my back yard! Did anyone ever figure out if I can ship them out of state?
Sula, in your pocket for the port removal!
Jan, that just plains sucks. Talking it over with PCP seems like a good idea.
and welcome Butterfly.
Hugs to all,
Octogirl
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Still learning how to post photos....... I think the quilt looks better in person. You know, photos don't do it justice. Currently making potholders to try to use up small scraps of fabric.
Thanks for acknowledging my stress with my MO. What a nut case he must be!
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Thanks Slow..................broken hearted...........
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Aw, Katy, I thought those enzymes would come down after a couple of months. Do the lemon thing (can't be anymore expensive than some of the drugs we're prescribed, right?) and we'll cross our fingers things come down next month.
JAN, that is crazy about your MO. Is there yet another MO you can switch to in your area?
Welcome, butterfly. You will find lots of supportive ladies here to help you get through the crazy times of diagnosis and treatment.
(((Ducky)))
Just a short note tonight, I've got a headache. Waving to all the Crazies, including the quiet ones.
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