CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.

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  • Jackbirdie
    Jackbirdie Member Posts: 1,617
    edited February 2016

    JAN- I love the quilt! I'm a sucker for little dots and checks. Just striking! My mom was the queen of seasonal decorating. She would have loved this too!

    thanks everyone for the support.

    (((Ducky)))

  • Lucy55
    Lucy55 Member Posts: 2,703
    edited February 2016

    ((( Ducky )))

    Katy.. Sorry about those enzymes.. Sounds like you have a great doctor though. I hope those lemons do the trick.!!

    Jan.. Your quilt probably does look even better in person, but I think it looks wonderful in the photo as well.! :-)

    Cubbie.. Sorry you have a headache... Hope you're better soon.!

    Sula.. Thinking of you.!

    Hi to everyone xx



  • Molly50
    Molly50 Member Posts: 3,008
    edited February 2016

    (((Ducky))) not sure why you are broken hearted but it pains to know you hurt. Katy, so sorry about the liver enzymes. Is there a point where you stop being paranoid crazy with worry about the c word?

  • Jackbirdie
    Jackbirdie Member Posts: 1,617
    edited February 2016

    Molly- I have been told there is such a point. A place where you don't wake up every day thinking about it. But I haven't been there yet. Thank goodness for Crazytown.

    Our poor Ducky, I believe, spent the weekend demolishing the last of one of her life's most cherished things. Packing up her shore house. Turning her dreams over to strangers after being chiseled in the transaction. A depressing, distressing, heartbreaking task. And during the dead of ugly winter too.

    Ducky, if you are reading, close your eyes a minute and feel our arms around you. We know you are tired and heartsick. And that there's nothing we can do or say to make it better. But know you are well-loved here. 💞💞💞

  • m0mmyof3
    m0mmyof3 Member Posts: 9,772
    edited February 2016

    Hugs to all who need them!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!


  • Lucy55
    Lucy55 Member Posts: 2,703
    edited February 2016

    Molly...I read on hear women saying they don't think of it every day.. It hasn't happened to me yet.. Its in the back of my mind always.. and all I need is an ache or pain, an itchy bite, a cough ,a sore throat... anything really.. and I head straight to Crazy Town :-(

    Mommy.. Thanks for the hugs.. I think we all need one. !!

    Off to the hospital for the day tomorrow.. DH has to have a pre -cancer lasered of his bottom lip..


  • duckyb1
    duckyb1 Member Posts: 9,646
    edited February 2016

    Thanks Katy.....so hard, so unbearably hard......and the hugs do help......just someone understanding helps.......

  • rainnyc
    rainnyc Member Posts: 801
    edited February 2016

    Ducky, another hug from me. Sorry. You have given us a lovely picture of your house and what it has meant to you and your family, and I hope we can help you by keeping your memories close in our own hearts.

    Butterfly, welcome! The initial time after diagnosis is dreadful. Once there's a plan in place, it becomes easier, I promise.

    Jan, your MO what???? That really is crazy, and not in a good, Crazytown way. I hope your PCP can help you find another one. On another topic, I love your quilt. A couple of years ago, there was a quilt show in Manhattan: one woman's collection of historic quilts, all in red and white. Apparently those were two widely available colors and many women made quilts exclusively from them. They were astonishing, literally hundreds on display in dozens of styles.

    Cubbie, sorry about the headache. Feel better.

    Katy, sending you a lemon tart through the tubes. Proven to bring down enzymes. Actually, come to think, maybe I'll squeeze myself through the tubes to help you eat it.

    Mommyof2, good job on the outline!

    Welcome back, Sula. Good luck with deportation tomorrow.

    Waving, waving to all, including those who are quietly resting. Hoping everyone has a pain-free, productive, reasonably happy, diverting, and delicious day....

  • octogirl
    octogirl Member Posts: 2,434
    edited February 2016

    (((((ducky)))))

  • proudtospin
    proudtospin Member Posts: 4,671
    edited February 2016

    love that one of us needs help on a writing thing, bingo but two folks found links with help

    Off to day 2 of pt round, gads but my legs are weak

  • JerseyGirl22
    JerseyGirl22 Member Posts: 186
    edited February 2016

    Katy, I was in your pocket, just quietly hugging you... glad to hear you had a good conversation with your doc.... I'm dreading the conversation about Tamoxifen or AI... whenever I bring up the possibility that I may not be able to do it, since my body has reacted badly to all meds, she kind of bullies a bit, and I'm going to put a stop to it... Hoping the 22nd goes well with her. Meanwhile, getting through rads...

  • Molly50
    Molly50 Member Posts: 3,008
    edited February 2016

    Jersey, there are a lot of choices so maybe one of them will work for you with limited SE's so says the women who is miserable on anastrozole. (((Ducky))) I am so sorry. What a terrible heartache and to have it not go well either! Jan, sorry about your MO. That is just crazy! Thanks, Lucy. I am only months into this and have at least, at least, one more surgery ahead of me. Plus I keep replaying my BS telling me I am one of her "high risk" patients so she will take care of me. Ugh, I like her a lot and I trust her but ugh.

  • Jackbirdie
    Jackbirdie Member Posts: 1,617
    edited February 2016

    to all- I got a nice text from Shorfi....waving hello. She is making progress with the pain. The injection does seem to be working. She misses everybody here. Wanted me to distribute hugs on her behalf.

    💞💞💞🙋🙋🙋🙋

  • Molly50
    Molly50 Member Posts: 3,008
    edited February 2016

    Hugs to Shorfi!

  • proudtospin
    proudtospin Member Posts: 4,671
    edited February 2016

    katy, thanks for letting us all know about shorfi and her pain shots, i so think about her often

    We'll back from my buddy the pt cutie. I complained about my leg weakness so he and his team worked up some new torture

    I will surely be sore tommorrow but having real faith that he knows what is best, he said the pool is fine tomorrow

    Ducky, sorry for you and the end of your shore house. Hope you keep all the good memories

  • SlowDeepBreaths
    SlowDeepBreaths Member Posts: 6,702
    edited February 2016

    Good Morning Crazies!!


    Sula, Don't feel terrible. We know you've been crazy busy. We will all be in your pocket on Wednesday!! Perhaps a port removal party is in order????

    Italy, I hear ya about the wind. It was windy here as well. A couple of times I thought my patio table was going to take flight.

    Robin, I printed out the link and will be taking it with me to my PCP. Thanks again for posting it!! The hot tubs looks really cool. We most definitely need one of those for CT. Sims live version of CT would be so awesome!! It's almost worth learning to program just so we can have one.

    M0mmy, Hope all went well yesterday. You're brave for going back to school. I have no doubts that you will do great!! Please keep us updated on how your speech turns out. Hugs back to you this morning!!

    QV, I think I'm going to change your name to QM (QueenMayor). hehe Did I ever thank you for everything???

    Katy, We are all going to pool our collective good thoughts and will your body to lower your liver enzymes. I'm going to dedicate 10 minutes each night sending subliminal messages to your liver!!! You may think I'm kidding, but I'm NOT!

    Octo, I found this very informative link about transferring fruit from one state to another. The things you can learn from the internet is amazing.

    https://www.cdfa.ca.gov/plant/factsheets/BringingF...


    JAN, I LOVE that quilt!! It's is beautiful. The picture of the quilt you made for me doesn't do it justice at all. It's so much prettier in person. I wish I had the patience and dexterity to learn quilting. I'm always in awe of people that can create beautiful things.

    Ducky, I can't imagine how difficult it is to pack up 30 years of memories in a short amount of time. There is a grieving process you have to go through. I have a very difficult time throwing away things that mean something to me. Therefore, I tend to be a bit of a pack rat. Sending you extra hugs again this morning. I wish I could take away your heartbreak. Extra love coming your way.

    Cubbie, Sending healing hugs!! I hope your headache is feeling better today.

    Molly, Believe it or not, I don't worry about cancer as much anymore. This thread actually helped me with that. Once I was able to express my crazy, I didn't focus on it as much. Scans still make me nervous, and occasionally when I feel a pain I haven't felt before, I wonder, but I don't obsess like I did with the mirror, flashlight and magnifying glass. haha

    Lucy, Sending best wishes to you and your DH. Hope all goes well for him today!!

    Rainy, I think it would be such fun to go to a quilt show. My sister is the queen of crafts. My DD also likes to craft. She must get that from my sister because I don't have a creative bone in my body.

    Shorfi, Waving right back at you!! Thank you, Katy, for giving us an update. I think about her daily and I'm so happy to hear the shots are starting to work.

    Iris, I'm so glad you're back with the cutie!! I know how much he helped you last year. I hope you're not too sore tomorrow.

    I've got tons of paperwork to catch up on today. I'm taking a short break from doctors this week and will be back to my PCP next week. Also waiting for an appointment with my RA doctor in the OC. I see my MO on Feb. 8th. Can't wait to hear what he has to say.

    Hope you all have a pain free, fun day today. Love to all...quiet crazies too!! Hugs to all I didn't mention by name!!

  • JerseyGirl22
    JerseyGirl22 Member Posts: 186
    edited February 2016

    (((Ducky))) Hugging you with a great big "down the shore" hug! I do know your heartbreak in this instance! Packed up a shore house in Sea Isle several years ago, and it was one of the most gut wrenching things I've had to do. I wish I could've taken a drive down and helped you... Praying for some peace and time to breathe over all of this.

    Molly50, thanks for the encouraging thoughts on options.. I have a few, but I've gotta tell you, I'm not wanting to take any of them! I'm so tired of medication, doctors, nurses, techs, etc.. Just want to have a period of time where I feel healthy and normal and don't have to take a pill to achieve it...

    Waving to all of my crazies and sending you prayers and hugs.

  • Lucy55
    Lucy55 Member Posts: 2,703
    edited February 2016

    Slow.. Thanks.. Dreading the day.. We have to be at the hospital before midday and they said we should beable to leave by 6.30 pm.. Don't know how I'll fill the day.. Hopefully their pile of ( no doubt out of date) magazines are interesting !!!! I'm just a whinger 😱 Enjoy your break from the doctors!

    Ducky.. Sending hugs and love. How is your daughter going?

    Shorfi.. so glad to hear you are getting relief from the pain.

    ((JerseyGirl))

    Molly.. Sorry your BS said that to you.. She probably actually thought she was being comforting saying it.. They just don't realize we hang on their every word and replay in out minds over and over what they said later. Ugh..

    PTS.. Hope your PT cutie ( 😃) can help you with your leg pain.

    Hi to everyone !






  • JerseyGirl22
    JerseyGirl22 Member Posts: 186
    edited February 2016

    Crazies... wanted to give you an update on my friend, Glynn... His surgery was scheduled for 12:45p, they didn't get started until 4pm... I just got word that they stopped the surgery. The cancer has spread to the fatty tissue around his stomach and so they are going to need to do chemo and radiation before trying any surgery again, and he has a brain tumor, they feel is benign! My heart is breaking.... I hate this stinking disease!!!!!!!!

    I'm heading to the edge of CT to sit under a tree and stare at the stars. I adore you all! Thanks for being out here!

    Alana

  • m0mmyof3
    m0mmyof3 Member Posts: 9,772
    edited February 2016

    Evening all!

    Well I finally could no longer stand the pain in right side of my face. I have an ear infection!  Woo hoo! So I am on antibiotics and ear drops. Hope I will finally be able to get a respite from the pain and finally get a good night's sleep.


  • JerseyGirl22
    JerseyGirl22 Member Posts: 186
    edited February 2016
    M0mmyof2

    so glad you found out what it was! praying you get some relief and a good night's sleep...

  • Jackbirdie
    Jackbirdie Member Posts: 1,617
    edited February 2016

    Alana- that is devastating news about your friend. I'll join you under the stars, ok? We can send some powerful prayer and mojo to him and sll those around him who need it. 🙏🏻🙏🏻

    Mommy- so glad to get definitive answers to solvable problems! Imagine! Being grateful for an ear infection!

    I took a big nap this afternoon. I just can't seem to get enough sleep right now. But I didn't feel quite as depressed today. Put off taking my new pill (Arimidex) till tomorrow.

  • Molly50
    Molly50 Member Posts: 3,008
    edited February 2016

    Jersey, I have been praying for Glynn. I will join you guys under the stars praying for him. M0mmy, sorry about your ear. Katy, it took me a month before I finally took my first pill.

  • octogirl
    octogirl Member Posts: 2,434
    edited February 2016

    Mommy...so glad you got answers..you should be feeling better very soon!

    Alana, so sorry about your friend. It does stink. Sending you hugs.

    Katy, thanks for the report from shorfi and I think you deserve the break of putting off the pill one more day...I will say that my sleep on Arimidex has settled back to normal in terms of amounts (no insomnia, which was really only a problem for a short time, yay)...I am having strange dreams. Not bad dreams necessarily, just strange...lots of bright colors, weird animals, weird people...

    Hugs!

    Octogirl


  • duckyb1
    duckyb1 Member Posts: 9,646
    edited February 2016

    Octo........that is part of the SE's of the AI's................it happened to me too..........

  • cubbie2015
    cubbie2015 Member Posts: 773
    edited February 2016

    The ibuprofen must have finally worked overnight, because the headache was gone when I woke up this morning, thank goodness.

    Lucy, let us know how things go for your hubby tomorrow.

    Sula, we will be ready with a deportation celebration tomorrow!

    Katy, I'm glad to hear Shorfi is starting to feel better.

    Ducky, I will probably need to sell my own house soon and move to an apartment - all this treatment is so expensive, even with insurance. I can sort of imagine what you must be going through. I've been here ten years and had planned to stay many more. I'm starting to give things away. Everything I worked so hard for will be gone. Sometimes I wonder if there's any point to what's left of my shattered life.

    Iris, I hope the PT is working for you, and I'm sure the scenery at your appointments is good for your morale. 😊

    Mommyof2, I sure miss the days when we went to the doctor, got a simple diagnosis and some antibiotics, and got fixed right up.

    Jerseygirl, I will join you and Katy under the stars with prayers for Glynn.

    Tomorrow I have an recheck with my doctor's nurse practitioner. That lymph node I had under my jaw several weeks ago went away completely on its own, but she wanted to see me back again. We'll talk about my anxiety levels and probably my back issue. Then Friday I get blood drawn again for the MO. Not sure what they are checking, but its a fasting blood test this time.

    Hugs to all the Crazies.

  • m0mmyof3
    m0mmyof3 Member Posts: 9,772
    edited February 2016

    So am I. Did manage to get some sleep last nightSmile  Hubby forced me to go find out what was wrong. He knows I'm not one to run to the doctors unless I really need to.

  • Chevyboy
    Chevyboy Member Posts: 10,258
    edited February 2016

    Morning gals.... I love reading what you all have to say..... And Ducky, what can I say.....? I'm so sorry you have to go through this.... Just know that we all are thinking about you....

    Remembering me and my Brother.... trying to clear out our folks house.... Soooooo hard! We had lost them both within a year, and we had to get rid of everything.... all of our memories, their special "things"....... so we could put their home up for sale....

    Don't know how we ever got through it.... and driving to the airport across the SFOAB at 2 in the morning..... and then "security" going through my bags, trying to even up the weight.... and all my Dad's stuff laying on the floor, and I started crying... I finally told him my Dad just died, and I'm trying to take his stuff home....He said.... I'm sorry, just put it all back together and go on....

    So try and not let all this get you down.... You KNOW we ain't that young any more.... especially you.... Winking So we can't have all that "stuff" weighing our hearts down..... Thinking of you miss Ducky.......xoxo

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited February 2016
    Thanks Chevy......you always know how to make someone feel better....and like you with your Dad's things .....it was part of him............


    Cubbie.......I am so sorry, and ;yes until you go through it, or do the picking up of the pieces for yourself or someone you love, you will never know the heartache.................I hope something wonderful happens for you Cubbie, and you can stay in the home you love..............

    For me this was a 2nd home but it was that special place that I went to after the cold lonely Pa winter, ...........I could always feel myself getting happier as the New :Year came in and I would count the days from Jan 1st, going from holiday to holiday and finally Memorial Day, which meant being with the ones I loved so much......saying Goodnight each night, and Good Morning to someone as they walked into the kitchen.....we would sit and have our coffee, and talk of many things dear to our hearts...........it was the company, knowing that for the next 4 months there would be someone to say "Good Morning" to when we were "down the shore"......and the lonliness for that time was gone.........and it was what got me through the next winter knowing "this will happen again next season"...........but now it's gone.....................
  • Chevyboy
    Chevyboy Member Posts: 10,258
    edited February 2016

    You have so many beautiful memories! That's what you will always have...! That just reminded me.... I have some video cassettes that I had made from Super 8 film! I have ones my folks took, and then when our oldest was born, and then visiting my folks in Oakland! Watching them growing up ..... I haven't watched them in YEARS! Have to bring them downstairs....

    Janie comes over and we watch Shirley Temple movies.... Have to put one of these OLD ones on.... So take care....

    Yes, you spent a life-time making memories.... and you still have them! It's just life.... we have to go through this.... but we still have tomorrow.