CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
Comments
-
Sula, Some things to look out for:
1. scratching your crotch
2. leaving the toilet seat upThat's when I would start to worry.
0 -
Tic Tock Tic Tock
I'd like to be funny right now and first want to say I SO appreciate everyone's stories and humor here. Feels like it can be my home for a bit. I thank everyone who acknowledged me here and please bear with me as I get my footing to say Hi to all!
But my head right now is swimming and there are a thousand butterflies in my gut and throat, as I wait for the MO to call with the scan results.All my years of practice; yoga and meditation, seem to have flown out the window. Yes the real deal does show up when the s#@%^ hits the fan. And I am not doing so well on that test right now.
Basically just freaked out that this wild mutation may have/ has the possibility of taking up residence elsewhere and how that impacts the whole " play' ugh, sorry I am definitely in the Crazy town Quarter of 'SCARED SHITLESS" today
Thanks for listening
0 -
Ducky.. Gosh.. What a hairy time away you've had.. HaHa.. So funny reading your version off it.. ( you really should write a book.. your stories never fail to make me laugh 😊..)...but I don't enjoy flying either.... so I can imagine how stressful it was at the time for you!!
Slow.. Safe travel to the airport and back.. wow.. It's a long trip there for you!
We are in the car.. driving to spend the day with our daughter and her family. We have made a huge shushi platter and brownies to bring with us for lunch...so hopefully they enjoy it. 😃
0 -
Gala. Hugs.. Thinking you.. We all know how you feel, and are right there with you in your pocket..(Hugs) x
0 -
Slow... BaHaHa.. Hmm..Sounds like blokes EVERYWHERE must get up each morning and scratch their crotch, like its part of their daily ritual :-)
0 -
Good Morning
So I spoke with MO yesterday and my PET/CT did not turn out so great.
I am breathing and just in the very early place of digesting what is next.
Sula I guess my sciatic C actually is C UGH
I meet with him (MO) in person Friday and we will discuss a plan. The 'good ' news is I haven't had ANY treatment so my body will get everything 'fresh'
That probably sounds weird, but that's where my head is.
So I guess I will have more fuel for Crazy Town....
For today I will do research/ breathe/ practice qi gong/ weep/ scream/ breathe/ and have a glass of wine later....
OY
and as always thanks for 'listening'
0 -
Thank you all for the warm welcome! Tomorrow I meet with my surgeon, and Monday (8/24) my boyfriend goes in for surgery. We got the all clear this a.m. (EARLY) that his clotting tests were fine. I'm still holding onto hope that this is not cancer for him. That this is a bad dream. I hope I have answers for me tomorrow. No family should have to go thru this at once. Also, his mom is terminal (leukemia, then lung, now liver...) she's 81 and lived a great life, but... he's trying to be there for his mom, but naturally he's worried about himself and me. We do have a huge "SHIT STORM" ahead of us
Vegas, did someone say Vegas? I think it's time for a trip! Woot Woot!
Trying to stay positive, and I will be going to my fam dr to see if I can get some xanax... this anxiety is bad. I'll either be 100 lbs, or 200 lbs... not sure which way this is going to swing LOL
Angie
0 -
Huron, you surely have one bad dream in work, I would be really surprised if your family doc did not give you something for the anxiety. Trip time, keep thinking about the after shit party
0 -
gaia and Huron....thinking of both of you today with lots of hugs....please keep us posted!
0 -
Hi Octogirl
I posted above..... not great news
breathing
will post more later as I am sure I will want/need chat distractions
x
0 -
Gaia- thinking of you. I hope meeting your MO Fridayand getting a treatment plan going will help. I like the way you think in the meantime.
Huronite- yes indeed a shitstorm. It's hard to know what to say except welcome to CRAZYTOWN....and we are here.
0 -
Good Morning Crazies!
gaia, that sucks....plain and simple. I'm sorry you didn't get better news. Please keep us updated on how it goes with your appointment on Friday. In the meantime, I will have that glass of wine with you.
Huro, sending good thoughts for you and your boyfriend!! You're getting hit from many different directions....so sorry. Please keep us all posted.
Great to see you back Ducky!! Sounds like you had some harrowing experiences!! Never a dull moment, huh??? I'm glad you made it back safely. Your travel story cracked me up. Happy to hear you had some good times too!! I'm glad you're safely home.
Back to reality for me. I have an appointment today to check out my thyroid nodule. How much do you want to bet they will want to stick a needle in the darn thing??? Friday, I see my BS for the lump/thickening under my arm. No Crazy Town for me just yet. I'm sticking with my new mantra of.....WHATEVER!!
Hope you're all having a pain free day.
Much love.
0 -
Beppy- ugh. In your pocket today.
Katy
0 -
Thanks Katy!!
Lucy, missed your post about the sushi platter and brownies!! How could I possibly miss a FOOD post?? haha
I hope you have a great day with your daughter and her family!!0 -
Thanks Jackie
Slow I know sucks and the thing is it is ALL so contra to everything I champion. Luckily the MO I found is open to a lot of things, but this news will make some of my choices harder for sure.
I am also sure I am not the only one to say this, but the truth is, that other than my hip I feel great. Especially since I had the surgery and the monster ( and unfortunately the breast) was removed. So I'm like how is it that those crazy mutants are setting up home elsewhere! Squatters! let the eviction process begin!
0 -
gala, eviction orders on the way....hang on
0 -
Gala... Oh.. I'm so sorry the tests didn't go as we hoped. That really sucks... :-( We are all here for you.. (HUGS)
Huro... Gosh.. You do have a lot on you plate.. Thinking of ypu..
Slow.. . I hope those doctors don't want to stick a needle in ANYTHING! ! I'm going to be right there in your pocket today.. except for the short period of time I have to duck off to go and give blood.. Ugh.. I wish my doctor hadn't added the tumor marker tests .!!.....
Oh well...WHATEVER...!!!!!!
.
0 -
Slow in your pocket today, been there with the thyroid nodule, won't tell you if they did or not on me, lol.
I may have to slip out of pocket ever so often, doing the colonoscopy prep today, promise not to mess in your pocket.
dsgirl
0 -
Gosh Ladies I really want to apologize..... this is all SO new for me: Dx and surgery 6/2015 and now with scan on 8/18 went straight to the head of the class to stage IV, that I have been totally remiss in extending my best wishes and highest healing thoughts for everyone else- please forgive; a big learning curve
So Slow- hope things 'went easy' today; needle poking was never my thing
Huro- that is an amazing lot all at once; one of my teachers offers that you can just carry one tray at a time- digest each piece at as slow a pace as you can.
Jackie thank you for your thoughts
PS Slow- it's wine o'clock at my place
lastly just want to share that I am so sad and ANGRY to be here, but so thankful to find this spot
0 -
Gaia- one of the unwritten rules of bco in general is you never have to apologize. Ever.(except I think the WW biatches owe PTS one). I'm sure Slow (Beppy) will agree with me that if it's possible for it to be more true, here in Crazytown, then it is.
You have been dealt a cruel, but not fatal blow. You hear?
You just showed how gracious you are by thinking of us at a time like this. We are truly, truly, here together. Through the waiting, the agonizing drooling over Sula's food sex, and the laughs at ourselves about how crazy makes you better. I'm so glad you found us, and thank you so much for the mojo.
Katy0 -
Gala.. You certainly have no reason at all to apologise to anyone for anything.. It must be such an awful shock to you.. and it takes time to adjust to the news.. Hopefully you will feel so much better when you find out your new plan.. We have so many beautiful stage 4 ladies here on BCO that have been living long, happy. normal lives, for many, many years.
..
.
0 -
Gala, I think all on here absolutely refuse to have you worry about anything other than kicking the crap out of the dang stupid stuff that has been thrown at you!
so there, now I need a glass of wine~~
may I pour one for you? one glass of wine will not affect your crap but maybe easier for the night
0 -
Bring out the box and glasses all around.
Huron and Gala, Hugs and Prayers. The news sucks.
0 -
dsgirl.. Thinking of you doing your colonoscopy prep.. Yuk.. I did mine last February..
So much crap going on here in Crazy Town (no pun intended dsgirl ! ) that I think we definitely all need a group hug..
0 -
Gaia,
That is 6 kinds of. F***ed up. Sorry you now have to deal with this too. I see that you are also HER2+ so I assume you'll be joining the herceptin club. It's a really great med for us HER2 people and it really goes to town on this disease. One of my seat buddies at herceptin was one of the first people to get herceptin when she was diagnosed stage IV nearly 10 yrs ago, and she's still kicking ass and taking names. We've all got your back here, and never apologize for any crazy stuff that's why we're all here in Crazy Town.
0 -
gaia, There is just no rhyme or reason with the beast. What really sucks to me is no one can say.....don't do this one thing, and you won't get BC - or it won't recur, or it won't progress. It's all just a crazy crap shoot. Which is why Crazy Town is so helpful to us all. We can get rid of all the crazy stuff here. We can also laugh about it in a way our families or friends would never understand. Katy said it very well...no apologies are ever needed on this thread for speaking what's in your heart or mind. When starting Crazy Town it was my hope that everyone would always feel loved, appreciated and supported - no matter what stage they are at. I was going to give you a few links, but I see you've found a few of the stage 4 threads. The ladies there are awesome, and can help with the feelings that come with a stage 4 diagnosis. I imagine being HER2, you will have Perjeta and Herceptin in your arsenal. Both have been so effective at keeping the beast in its cage. I hope you're able to get out all the anger, and nastiness here in Crazy Town. We will all be right by your side, and we will open up a new bottle of wine whenever you need one. Gentle hugs to you!!
dsgirl, I cancelled my appointment for today and rescheduled for the 31st. I am a bit under the weather, and I just didn't feel like being poked and prodded. I'm guessing by not telling me, they did stick a needle in your thyroid - haha. I'm not really worried about the pain, I just have an aversion to needles, due to traumas from past medical procedures. I hope your prep wasn't too bad today. Sending best wishes to you on your procedure tomorrow. We will all be in your pocket!! BYONP = bring your own nose plugs!!
Lucy, I agree....a group hug is definitely in order!! We are all so lucky to have you here with us!! Love you my friend.
Sula, Being a HER2 gal myself, I always love hearing about your friend that is 10 years out. It goes to show that no one can say how long a person will be here on this earth. I'm always encouraged that some new awesome treatment is just right around the corner, or better yet - A CURE. We need a freakin' CURE.
Tomboy, hope you're enjoying the heck out of the sand and surf!! The beach is so relaxing.
Sleep well my sisters. Love you all.0 -
I sometimes question myself as to why, after three years, I still feel the need to visit here on a daily basis at times, and then I read the love and care that is shown to each other and I stop questioning.
My thoughts are with everyone still doing it tough yet getting out of bed every day. You are an inspiration to those who follow, however unwillingly,in your footsteps.
0 -
slow,
We had a double date with my friend and her husband a couple of weeks ago...when she was diagnosed she was stage IV and in the early days of herceptin and her MO said she had 2 yrs at most (he hadn't had a herceptin patient before)...he told her to get her stuff in order , he didn't think she'd be around too long they have 2 girls who are now in college but we're young then. Anyway, she said the herceptin started shrinking and disappearing the tumors in the various places and after 4 yrs her MO said...well, I don't think you're going anywhere. There have been flare ups and putting out the flare ups, right now she's on perjeta and herceptin and she was saying her MO told her looking toward the future.... You are here using what we have now.....then he stretched out his hands and said and all the rest of the stuff we have but haven't even tried for you yet is waaaaaay down here... She felt really great about that and so did I since as you say no one knows what's up with this crap shoot for any of us. It's nice to know there are options out there.
Take care all of you, I think I'll wander the streets of Crazy Town for a while and see what else is happening
0 -
Good Morning All
Wow to be really honest when I first found this site in May I kind of just trolled for info and used it to make my 'what if mind' extra crazy. In fact my partner used to leave the house and say take it easy with that today or I'm gonna block you from searching anything with the words breast or cancer- it was actually funny. Of course I was searching for all the worst while hoping it would never be me and that I would NEVER have to post here.
Well here I am. And so thankful and honestly couldn't wait to wake up and check out what is going on with everyone. And to receive all your warm responses.
Weirdly I am calmer now that I have the scan behind me and know ( to some extent) what I'm dealing with. When I am in a good place of mind I actually marvel at the creative vigor these little buggers have- some believe these cells are actually the youngest 'healthiest' cells in our body..... when I take that to the nth degree I think "wow we have this all wrong, we aren't supposed to fight it, let's work with it' . ( note to all I had a crazy town brain even before this thing).
Yes Sula I am Her2+. What the MO is suggesting is Herceptin and femara as he knows I am choosing to hold off on chemo- yes that is my choice. I am also going to be employing mistletoe therapy. I realize that many may think that I am certifiable for holding off on chemo, but I hope I don't get kicked out of town..... It is simply my deepest heartfelt choice. At the very least I can share another perspective on this adventure
Anyway, thank you sula, slow, octo, suzy, lucy, jackie, proud, rose.
More later and slow I think regarding a blog I am going to pick up the thread of an old blog of mine called fckjuice- I think this new adventure will fit in with what I started there in some odd twisted way. I'll keep you posted.
0 -
Gala, you are sounding better this morning, I had some little tiny ants in my house and just last night placed those silly little black ant traps, dang they work good and the ants are now just corpses
Think of what is ahead as traps for the dang stuff ~~
0
