CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Alyson- you're not the only one with bladder control laughing on this thread. But I think mine is early stage bladder cancer anyway.
Went for a lovely walk this morning. I have been in my new house 2 weeks today. I was told of a nice woody trail walkable up the street from my house. Here's what we found. Feeling very lucky and grateful today.
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Happy Saturday Crazies!!
gaia, I was talking about the fc blog. Although, I also like the food blog too. I did a year of Herceptin, seven months of that time was just Herceptin. We stopped mine a month early due to really bad bone pain. My MO thought it may have been caused by the Herceptin, but stopping it early didn't help. I didn't get the runny nose some talk about, and once I was done with Carboplatin and Taxotere, my taste came back. I also didn't have a port, so had to get stuck every three weeks. My veins held up pretty well.
Alyson, so good to see you here!! I am very glad you beat those odds!! I know they have those calculators that give you statistics, but I don't really want to know any of the odds. For me, that would be a bullet train to Crazy Town for sure. What I don't know can't hurt me. I've also had problems with bladder leakage. Maybe we can design some Crazy Town corks??? haha
dsgirl, My goodness girl!! How awful you had to spend the night in the ER. I'm grateful you had someone to take you. That must have been pretty scary. I hope you're feeling better today. I love the license plate - it's perfect!!
kathy, cancer in the car!! Do you think we expel some cancer fog that follows us wherever we go??? haha
Octo, I also remember E tickets. I was just having a little fun with Katy. haha Remember the old super 8 video recorders with no sound? I think that's what you called them. They had to be shown on a projector or on your white wall. I actually have one from my younger years at Disneyland. I really must transfer those to CD sometime soon.
Katy, Wow....I'm sure glad you didn't choke!! Do you think I should put a disclaimer in the introduction?? CHOCKING HAZARD!!! What a beautiful area you live in!! Thanks for sharing the pic. I love pictures!!
ErenTo, Welcome to our crazy thread!!! Pull up a chair and sit a spell. haha....I always wanted to say that. Denial helps keep me sane. I practice it often!!! We will be in your pocket on Thursday. I hope you have minimal SE's with radiation.
Sula, You're torturing me with all that good looking food!! Thank goodness we don't have smell-a-screen or I'd be knocking down your door!! You make some wonderful looking dishes!! Very impressed.
PTS, HAHAHAHAHA. Can that happen?? I've never heard of cancer transfer before.
Rain, that is an old picture from 2013. My hair is well on its way back from the dreaded Taxotere. I can actually put my hair in a pony now!!
Tomboy, I hope you're enjoying that beach. I must admit, I'm jealous!!
Ducky, thinking of you today!! Gentle hugs to you my friend.
Lucy, Hi!!!!!!!
Poppy, I hope you're enjoying your vacation. We miss you!!
rleepac, Still thinking about you. You've been quiet.
ItalyChick, Tang, Susan, sewingnut, M0mmy, Beatmom, queen, 2TA, JAN, AmyQ, Nancy, pennsygal, littleblueflowers, Booklady, Suzy, Rose, Huro, clarrn - Thinking of all of you wonderful women. Hope you all have a great Saturday free from pain. Sure hope I didn't miss anyone!! If so, please let me know.
Love to All!! Lurkers too!!
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I don't have a blog but have two nurses
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Nice nurses, Katy!! I want some of those! Nice trail, too. The very best kind of medicine, and the next best kind is food! That lovely food is making me so hungry, Sula. I am wishing I was more talented in the kitchen, alas, my special talent seems to be just generalized puttering. Of all sorts.
Beppy, I am back from the beach, and have piles of stuff to putter through, and laundry. And watering all the plants, but it's ok, we are using bath water. Plants are seeming to thrive, they have gotten more water since the drought than before, when i only watered with the hose a few times a year.
That license plate was a good one, my new license plate has the letters LVU in it, ok, that could be love you, but since I have a brain afflicted with too much knowledge of disease, I saw it as ' Lympho Vascular Uneasiness, since I had a lot of lymph weirdness, and it still makes me uneasy when I think of it, so I guess my imagination has cancer. Cancerous imagination: imagine that. Don't get any on ya.
This thread is amazing beyond belief, what a good thing you did, Bep! And everyone keeps coming back for more! I love it!
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Gaia, Slow, Rainn, jacki, et al:
My tastebuds totally went away during Taxol, along with all my body hair except on my head but since have come back. I've just been asked by my friend Anne Stockwell do do a weekly food piece for her new Go Fund Me Site for cancer survivors (aren't we all?). Anne is an old friend and a 15 yr survivor of stage IV ovarian cancer so far she's done 3 matches with cancer and keeps kicking it in the nuts and Well Again
is her new venture..and of course I said yes to the cooking column (no money involved but this is a passion project) she's going to tell me what this involves..short of writing something once a week but it sounds super exciting.
Jacki,
oooooooh love the pets/nurses.!
Gaia,
my sis in law is a BC patient at Sloan Kettering which is just down the street from her house...whereas I have to drive miles to my treatment...anyway her husband was also treated there for lung cancer years ago and is doing great. I have a clay pot full of goat in my stove right now so I am going back downstairs to keep an eye on things..lest I burn thehouse down. Later gators.
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Katy, I love your animals. And as you already know, your dog reminds me so much of when mine was a wee one. Your cat is beautiful too!! They bring so much pleasure to our lives. My new dog is my first lap dog. He loves being in the house, unlike my other two. He has really been good therapy for me. It's amazing how quickly they wiggle into your heart. We got him micro chipped and licensed today. I guess he is now officially ours.
Tomboy, you silly goose. You know darn well that you're the reason I started CT. hahaha Very gracious of you to give me the credit though. Plus, there wouldn't be a CT without all of these crazy woman!! Isn't it nice to know we aren't alone in our madness??? It gives me great comfort!!
EFMUB = Edited for mixed up brain.
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I hope this doesn't offend anyone, but this was just too awesome not to post!
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Awesome, Beppy! Needs to go on the front page of the Crazytown Times!!
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it can go on and kiss all our alls asses!
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hahaha Katy. Good idea!!
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I want a butt like the woman with the letters AN on it. Mine should look so good.....
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There is a party on the Middle Aged Women thread!! Eli has over 1,000 pages and 30,000 posts!! That's incredible. We should crash the party!!! hahaha
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Italy, Having lost a partial butt cheek, I would take any full butt!!! haha
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That photo is absolutely hilarious!
And Katy, your photos win the adorable of the day prize. I never knew a cat could actually take a selfie. And that mountain path is beautiful!
Sula, my tastebuds have come and gone but that SE was worst during the first month of chemo. The strangest part was that even after they came back, there were several weeks where I could not stand garlic. I am happy to report that after a supper of fresh pesto/pasta, tomato salad, and mussels, I'm absolutely fine with garlic.
Random observation of the day: has anyone ever noticed how autocorrect keeps trying to make mincemeat of all the special BC related terms we use? It's always changing medical terminology, acronyms, and so forth around. I wonder how many completely incoherent posts I've put up because it changes something around of its own accord and I didn't notice.
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Morning All
I write at this hour, not because I've been awake for morning meditation, but because I've been up most of the night with the 'monkey on my back'.
Sula, that's exciting to be engaged in a regular column. Who do you do all this daily cooking for BTW? I have to admit the potential for the loss of sense of taste freaks me out.
Rain I'm in Greenpoint- the onc I hooked in to is in Woodbury NY, I know seems crazy, but people travel from LI to go to MSK. I'm just doing a reverse commute for now. I'll get the herceptin there for 4 weeks in a row then move out to once every 3 weeks. It's a manageable commute. At some point I may look /interview people closer to home, especially if I ever feel I need to be more closely associated with a hospital, but I hope all of that will, if need be FAR down the line. In any case ONE STEP AND DAY AT A TIME.
Katy I had anuplifting and grounding lunch with Amy B and I think some of the (gentle)reality check about being IV definitely churned the monkey mind.
Slow I love that picture- great butts and no 'thigh gaps'.
I think the picture spurred the thought that perhaps the BC and the community of women it creates is a not so subtle message that we really need to reclaim the red tent; women are meant to be in community with each other! In our modern society we took so much of that away and maybe 'created' another way to get us back there. Perhaps we should all just go get a big tent and sit there for a month and see if something changes- maybe I'd at least get some sleep there.
Ok trying for an early morning nap now.
Hugs to all
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Good morning lovely ladies.............It is finished......today I am the owner of a "House for Sale".........sign will go up on Monday or Tuesday........only good thing in all this is...the realtor said she thinks she should put iit up for $285,000,,,,,,,,,I think she is way too high, but then she's the one selling it.............that was the only good thing out of it all........I would have asked much less..............Shows how much I know............when it goes up on Trulia, and realtor.com I will let you all know................All I want is a fast sale......I want to be done with it all..........wish me luck............hugs......I have a couple pictures.....
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What beautiful, beautiful photos, Ducky. So much light and open space! You can tell how much this house has been loved. I'm sorry that you have to sell it, but I hope that it will sell quickly for your peace of mind!
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Thaks Rain..........
It was so loved, especially by my husband, but sad he did not live to enjoy it for very long......we had it built, and made settlement in March 1986....we put the pool in in April 1987, and he died in on Labor Day 1991........only 57 years old...........however......
Most of the furniture you see was my mother's....she passed away in Oct. 1984, and I eventually sold her home......it was full of what you see in the pictures....most would not put that kind of furniture in a shore home, but I had no choice...her tthings back then were beautiful, and I could not sell them, so I put each room to use at the shore house..........
My daughter who just bought a 6 bedroom 5 bath shore house will be taking anything her siblings do not want......the dining room set you see is 100 years old....the rest of the furniture is over 30 years old.....,but all in excellet conditon......
And so it goes.......it should be interesting to see how it ends.........0 -
Ducky, that dining room set is beautiful! And yes, lots of open space...fingers crossed for a quick sale!
Hugs
Octogirl
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Gaia/Christine- I am really glad you got to have that lunch with Amy. anyway, as wonderful as bco has been for me, and it really has saved me, there is no substitute for a living, breathing, human being sitting in front of you. Who gets you. Who sees you. I hope maybe she can become a bit of a mentor for you. But you still have us. I liked your comments about women, and the red tent. I for some reason, have never really felt myself a feminist. But bc has brought out new and strange, and sometimes almost violently protective feelings out for my sistas. Scares me sometimes. I never had cubs of my own but I feel like a mother lion sometimes over a wrong or even a slight to one of you.
Anyway, I'm sorry you had trouble sleeping. I bet you would sleep better in the Red Tent. I would stand guard at the opening to keep the monkeys fucking OUT.
I think you are still in a phase of deep shock, have no way of knowing what's going to happen to you during treatment, by nature curious and wanting to know. You will feel better once you get started and you know. Then you can deal with specific side effects, life events, friends and family who will say very stupid things. In the meantime, please just close your eyes, visualize all your Crazies standing around you, holding your hands. We will cry for a minute, but then Beppy or Tomboy will say something funny and we will all bust out laughing. Because as they say in Crazytown, life is what's happening now.
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Katy
I have tears in my eyes reading your reply! I would take any of you ladies standing guard at the Tent. And will do so in turn for you.
I don't think in terms of feminist at all- it's in the tradition/path of the wise woman that I am apprenticing/becoming/practicing.
yes LIFE IS WHAT"S HAPPENING NOW- so at least for a bit I'm going to set this aside, play some music REALLY LOUD and dance around and maybe SCREAM a bit.
On a side note saw Straight Out of Compton yesterday afternoon. What an inspirational and larger than life movie. really moving.
more later I am sure
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Ladies......hope the pictures d;dn't bore you or were a little over the top.... I wanted to share with you a little part of my life........at one time this was a "happy place", bustling with the laughter of many grandchildren playing in the pool....at times as big as it was we still got in each others way.....I could show you pictures of my kids and grandchildren, plus my husband spending hours in the pool after coming home from the beach and the ocean........the realtor called it "Your private oasis"..........and she was so right..........night swinming, kids out there at 8am swallowing breakfast so they could see who was the first one in the pool..........playing pool games, races with their parents, and so proud when the first could go in the pool with their "vests" off knowing learning how to swim gave them that right...........even the pets joined in when the kids would "splash"........pets always thinking "oh my I guess I have to jump in and save someone"......LOL.......
After my husband passed away something changed......Poppie was no longer there yelling....."come on you can jump off the diving board.....I'm right here to catch you"................those loving arms no longer were towering out of the water......they were gone...............we did go on, and son-in-laws took over the job and we needed a new "Pool Master" as we called my husband..........and they stepped up.......but now...........
as one of my friends so kindly said "The Bloom is Off the Rose".........it is time.....time to let go of the home, but keep the memories..............she said "go to your daughter's new home.....enjoy that she thought of a bedroon for you with its own bath, so you could continue to enjoy the years you have left..........make new memories.......relax, let everyone wait on you now.........you have earned it........
I will try..........God knows I will try.........will it be easy......no, I will always here that "echo" of my grandchildren saying "Your gonna catch me, right Poppie"...............and we all knew he would.............I just hope he is looking down now and saying to me "yes its true Duck, The Bloom is off the rose......you have been a loving servant to those I left behind.................move on and make new memories.........................
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Ducky, you have so many fond memories and they will never leave you
hope your new stage of life has just as many good times
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Many wonderful memories, Ducky. They will never leave you. Thinking of you during this hard time.
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I love this post about the melted chocolate chip cookie! I have done this before and I had a good laugh! Thank you Tomboy for telling me about this forum…..
Colleen
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