CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Molly........Bob'by is my little love......I can't believe he will be a year old on March 7th.....the time flew......
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here's Jack, getting some lovin' from the kids at the school K9 Ambassador program. K-2nd grade gets a flip chart talk about how to be safe around strange dogs, how to be a responsible dig owner, and even how to pick up poop with a bag. It's the funniest thing. There are very lifelike dog turds we use. Then, everybody's favorite part, the hands on portion.
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Awww so sweet! Good for you and Jack!
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Bobby, Jack, and that little hand straight up in the air! So many kinds of adorable!
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I love Yosemite! I spent many vacations there with my family.
Love the babies and kids! Mine are getting bigger and stinkier.... gotta love the teenage years.
Tomboy, LOL The only reason I was awake that late is because my DH was snoring like a bear with a stuffed sinuses. How a skinny guy like mine can snore so loud is baffling. I'm so glad you were able to go with Beppy to her appointment. I've only gone to one appointment with her (ultrasound). We were like Lucy and Ethel! We followed the directions given to us at the check in desk, and got lost in the building. I tried to read the ultrasound techs face for her! I kept her distracted and was there in case anyone needed to be slapped around! Like you, I really like the people I've met here. After all of the treatment crap we've all been through, I think we should do whatever we want to do....even if that is just stay home where it is quiet and safe.
Regarding telling your friends: Sometimes it's easier to tell your friends a simple, concrete way to help support you and your family. I told my friends that delivering meals would be extremely helpful (and it was). I also had friends pick my kids up from school. Then I could save my energy to spend time with my kids.
Katy, I have fallen in love with your furry little boy.
Hope everyone is having a peaceful Leap Day!
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love all the kiddie picks and Jack looks mighty happy to have the little ones petting and fussing over him
Well think I am gonna do some work on my little prius, a pal rode with me over the weekend and said it was sort of rough. Took it in,yesterday and it seems I have never changed the shocks, it is at 155000 so after consulting with pals, gonna spend some bucks and maybe the ride will be better for my dumb back
Fun huh
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I love all of the pictures of the kids! I miss those days.
Happy March 1st
Well, it turns out that I'm not as crazy as I thought. I do have B-cell chronic lymphocytic leukemia (CLL) .Really? Wow. What will be next? I hope nothing! I'm not sure that I can handle all of this as it is. The good news is that is really not treated, they just watch it closely. Or, as my GP said, the good kind of leukemia. The Good Kind Of Leukemia? I might have appreciated that bit if it weren't for the fact that I have two large cancerous area in my breast that are multifocal and they think that it has gone to my nodes. The good kind of "Oh my God, what new? I can't much more of this"?
I love Ativan.
I hope that your days are going much better than mine.
Maggi
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(((Maggi))) What a shock for you! I am very sorry about yet another diagnosis but hooray for the "good " kind. (is there a "good" cancer?) My BIL has a very slow growing form of lymphoma that has become chronic rather than worrisome. He goes twice per year for bloodwork and check ups.
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Thanks Molly. I'm not really worried about it now. But it is beyond belief that I would be diagnosed with yet another cancer. It's all going to be ok, though. I just know it!
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Maggi- I can't imagine the additional burden this must add. You have so much going on right now. I wish I had good words for you. I can manage a good hug and keep sending you good thoughts in the coming days.
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Maggs: What Katy and Molly said. Sending hugs and good thoughts. I am glad you feel it is going to be fine, but please feel free to come here and hang out with a ativan latte when you need to. xoxoxox
Octogirl
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Maggie. So sorry you have to go through this now as well. iIs not fair..not fair at all.. Sending love and hugs.
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So sorry Maggi. That is such a "bummer". Sending positive thoughts. Hugs.
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bummers maggs, you deserve some of the special cocktails from ct
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Mags- I want to say I am sorry about this additional burden. Did they say if it was caused by previous tx? I understand the Ativan. When I was first diagnosed last year, I cried constantly for 3 months. It was the only thing that stopped it. I am so done with these 2 drains sticking out under my arm. My skin is raw. Two weeks postop tomorrow. Anyways Mags- when you get to the end of your rope, tie a knot and hang on! That's all we can do.
Patty
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Mags, I am so sorry to hear that. What are the odds? I think there is someone else on the boards who was diagnosed with an inactive form of lymphoma during her breast cancer treatment, but that's about it. I think my sister's father-in-law had the type of leukemia you have. I remember it was something they managed as a chronic condition, and lived to be like 80 despite it. It never seemed to slow him down much, I remember him out riding his bike and such.
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iammags so sorry to hear your news. I don't have any words, other than fuck cancer, and I hope for the best for you
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Mags, the good kind? You're meeting this fresh news with such grace. All kinds of hugs and supportive thoughts your way....
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Maggi, So sorry to learn of your new dx. My DH was dx with CLL at about the same time I was dx with BC, about 5 years ago. He is doing fine, in fact you'd never know he was "sick." He just turned 80 and just keeps on ticking. Your doctor is right, it is the good kind of cancer, if you had to have cancer. Keeping you close in my heart.
Rain, The book about the Red and White Quilt Show came in to the library today. The quilts are eye-popping. Thanks for telling me about it.
Katy, How fun to see you and Jack at work.
Octo, Good pictures of Yosemite. I am mourning the name changes that took place today.
Beppy, Thinking of you and holding you close to my heart.
The flu from hell just won't let go of me. 12 days, so far. Jan
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Oh Jan, I am sending you hot tea with lemon, honey and whisky to cure your flu. Hugs!!
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JAN- that flu is really hanging on! I'm so sorry and hope that Molly's restorative tea does the trick! Thinking of you
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Hi Crazies!!
I'm so far behind I don't know where to start.
Ducky, It's so good to see you posting pictures. I loved looking at them all and I hope you post some more!! I wish I could squeeze that sweet boy of yours (Bobby). I hope when you're up to it, you'll tell us some fun stories about the great times you had at the shore. I bet you've got many funny stories!! I've said it often.....your family sure has the good looking gene. The shore memories will always be with you through pictures and stories. Great big hugs to you!!
JAN, Good grief!! I can't believe you still have that flu. I'm sending more chicken soup through the tube!! I wish we were closer.....I really would make you some soup. It has healing powers!! Gentle hugs to you!! Here are some get well flowers for you.
Lucy, My twinnie!! Thank you so much for all your good wishes!! I love logging on to my computer when I have an email from you!! Love you!!
Mags, I just don't know what to say. It's not fair that you have to go through this on top of everything else. Sending you love and hugs through the tubes!! Hang in there sweet sister. You've got the wonderful women here to help get you through it all. (((((Mags)))))
Patty, I hope those drains come out soon!! Think of how good it will feel to finally get them out! The cat vomit description gave me a good laugh!!
Iris, That is a lot of miles!! One good thing about Toyota's.....they last forever. I hope the ride gets nice and smooth once you change the shocks.
Poppy, My DH snores so loud too. Sometimes I feel like he is going to suck his pillow down his throat!! He even stops breathing once in awhile. I just poke him a few times and he starts breathing again. We did have great fun when we did my ultrasound!! It was so wonderful to see you again for our lunch!! I would love to reciprocate some time when you have an appointment!!
Katy, I just love those pictures and I'm so glad you posted them here in Crazy Town. I enjoy seeing pictures of Jack and he is so good with kids!! The kid pictures are adorable!! A BIG thank you for keeping everyone updated on my appointment. I'm not sure what we would all do without you taking care of us all!!! Thank you for being such a wonderful friend to me. I really enjoyed the music link you posted!!
Tomboy, Your poem was so beautiful. Very touching!! You should publish all your poems in a book!! Thank you so much for coming with me to my appointment!! It was so nice to have you with me. I am grateful to have such a wonderful friend in you. I LOVED having lunch with you and Poppy!! We must do it more often. Chi had a letter in the NYT??? How impressive!!! Do you still have the link?? I'd love to read it.
Shorfi, Did I see you pop your head in??? Thank you so much for the good wishes!! Hugs right back at you sister!!!
Jerseygirl, Aren't you getting close to being done with rads??? Please let us know so we can throw you a party!!!
Robin, Thank you for the prayers!! How are you doing???
GMA, Thank you for sharing that beautiful sunset. As you know, I'm partial to your neck of the woods. I always enjoy all of your pictures on your thread.I agree about the best buddies....that is the very best thing to come out of all this cancer nonsense. I'm very glad you've joined us here!! I've missed you!!
Molly, Your grandson is a cutie pie!! Such a beautiful boy. Thank you for sharing his picture with us!! Those dimples!!! Better keep an eye on that boy as he gets older. I see a few broken hearts in his future!! I hope all is well with Wyatt this week.
Octo, BEAUTIFUL pictures. I really want to visit Yosemite someday. Thank you for posting the pictures!! I'm glad you had such a good time on your birthday vacation. You deserve the very best!!! I can't wait to meet you in person. I'm getting very excited!!
Rainy, You're as beautiful as I knew you'd be. Such a pretty smile you have!! I love your hair. A few years from now you'll have your hair back!! Once that Herceptin is finished, it will grow like crazy. Your son is a very handsome boy. I'm guessing he is pretty big after 8 years!! Thank you for posting the picture. How did the genetics counseling go?? I bookmarked the piece in the New Yorker. I know my DH will love to read it. Also, that poetry article was wonderful. It made my eyes leak just a bit (as QM would say).
Cubbie, "My family photos are more likely to feature people holding six packs, not sporting them." hahahahahahahaha.....that cracked me up!! Same with my family. We ARE Italian after all. Thanks for that well needed laugh. BTW....I saw duckies too!!!
Italy, How are you and your children doing?? Thinking of you all. (((((Italy)))))
Queen, How are you doing??? Are you making the trip out to CA this month????
Pennsygal, Thank you for your good wishes! I'm sorry to hear about your SE's. I'm hoping the two week break makes a big difference for you. If you haven't already left, have a wonderful, safe vacation!! I'm hoping when you start the Arimidex again, it will be better.
Brightsky, That is awesome news!! I just LOVE hearing good news. I hope you stick around and share some laughs with us all.
I'm doing the happy dance for you!!
Gaia, Thinking of you, as always. Please remember the crazies are always with you!!
Sula, I hope it's getting a bit easier for you!! Sending get well vibes your way.
Littleblue, It sounded like you were facing some challenges in your last post. Please know we are all right by your side!!
Sending a special wave to all the quiet crazies!!!
You are all thought of even when you don't post often.
Today I had my lung function test and did very well!! My pet scan is scheduled for March 18th. I've been trying to stay really busy so I don't think too much. Thinking always gets me into trouble!!
Thank you so much for all the good wishes. You all make me feel so strong.....like I can face anything that is thrown my way!!
Much love and kindness to you all!!! I ADORE all the crazies!!!
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Mags this is for you! Extra hugs coming your way.
I'm reading more than typing these days. My rotator tendonitis is now bursitis and possible tear. PT said it would "Just" take longer to heal.. ONLY 12 weeks + - And no lifting heavy crockpots to wash them anymore. Been lucky that my lymphedema hasn't flared. Other than that, after my 3 reconstruction/revision surgeries this past year, the nerve pain I was suffering with for 4 years, is gone.. I feel like I'm in a long line of domino's though - get one thing fixed and another one comes along
. Oh and with the shoulder issue - I feel more like this Hang in there picture LOL :
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Jan, take care of yourself! So glad you got the quilt book. Picturing you on the sofa, tucked up with a quilt of your own, browsing through that incredible book, a cup of tea at your side.
I realized last night that (no matter whom one supports) the next 8 months of election news coverage is clearly going to help keep me in Crazytown. SO tired of it but fascinated nonetheless. Eesh.
Finished a big work project yesterday. It will come back to me soon but reveling in being done for now. So what am I doing with my fun free time (besides laundry, always laundry)? 1. Getting the lymphedema sleeve/glove I ordered back in Jan, which was held up by insurance until I was kind of a mean person on the phone the other day 2. finally getting fitted for a proper MX bra and prostheses. 3. this great but too involving volunteer project--honoring the current obligation while not taking on more 4. Soup! Beautiful soup! I have fresh chicken stock. What should I do with it?
Here's another question for you all: What do you regard as the anniversary of your cancer? The diagnosis? The day you found it? The first day of treatment? Just curious. I realize I'm a little baffled when I hear people talking about it on BCO or elsewhere.
A happy, lovely, productive day to all crazies, east coast, west coast, in the heartland, and down under!
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Slowdeepbreaths- thank you for taking the time to acknowledge everyone. I am going quite mad with these drains. I know I will get 1 out tomorrow. The other one will stay. My PS said they have to be bone dry. DOES anyone have any advice on the drain Pain, itchy, sore drain site. It's not infected but the DRAIN is a PAIN!
Patty
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well car is in the shop and I am car less for the day
Laundry and sure I will find stuff to do
Rainny, ooh any veggies in good chicken stock will be Devine to me
Mei sort of count then end of rads as my celebration but sort of think that is not normal
Yikes, news for the next few months is not gonna be fun to listen to
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Hope its okay to pop in here, its' been awhile for me but the train is blowing thru crazy town for me today.
I have this raised/swollen/sore area on my chest, sort of at the bottom of my sternum...possibly around the Xiphoid Process. The only reason I know that term is because of the extensive googling I've been doing about this. *sigh*
I finally put a call into my BS and they asked me to take a pic and send it, well you cant really see it on a pic so now I'm going in on Monday for her to look. This whole process makes me feel crazy, like I'm either totally overreacting and the doctor thinks I'm nuts or holy shit this is BAD.
The area is sore when I touch it, if I press harder it feels like I'm not able to breath as well.
idk....so I'm in crazy town..just needed to put it out there. Thanks
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Hi Crazytown! Just had to share that I had a dream that I had cancer again, a different kind, and not treatable. I was devastated and yet strangely relieved to know the fight was over. I woke up fretting about whether I would have enough time to wrap up all the things I needed to get done before I go. It was so REAL, I couldn't believe it was just a dream for a while after I woke up. My heart goes out to folks who have had a recurrence. I don't want to sound ungrateful or a whiner, it was just a dream, I can't help that.
Here's a cool piece of news, did you hear?
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DING! DING! DING! Done rads yesterday!!!!!!! Danced, sang, jumped around and made a spectacle of myself to ring that bell!!! Whew! One more big treatment chunk done! Of course, the day was great until my MO called and she doesn't want me to take the AI until she's thoroughly checked my hormone levels to see where I am, in meno or not... so had the blood draw today and am waiting. Which I'm glad a in about in one respect, I wanted them checked... She also mentioned redoing my PET scan at the end of treatment. Says she doesn't normally, but I had the 5 positive nodes at BMX, and there was a spot on my rib that showed up on my PET, but didn't light up... She wasn't worried about it, thinks its an old injury (which I asked my mom about and she actually confirmed), now she wants to look at it after big treatment is done... What the WHAT!!!!???
Can't we have a good day!?! Of course, now that's in my head!! Have Herceptin again on the 14th... So gearing up for the new normal...
I love you crazies!!! Thanks for being out here!!!!
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tangandchris, I hope it turns out to be nothing concerning. In your pocket for Monday. Slow, I hope you find a way to occupy your mind until the 18th. Prayers and pocket dancing for you!!! Wyatt is borderline right now, thank you for asking. He finished his second antibiotic yesterday and is still not his happy self. I started the process of conservatorship yesterday since he is turning 18!! the end of June. Crazy that I have to request a court to grant me the right to speak for my own son. Today is my mom's bday. I went over to visit her today. Took flowers and a card on the slight chance she understands what is going on even though she can't speak. Damn Alzheimers! Eggroll, what a horrible dream. Here is your link live http://www.independent.co.uk/news/science/british-woman-becomes-one-of-the-first-cancer-patients-to-be-injected-with-new-tumour-destroying-a6905506.html
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