CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Happy birthday, Octo! I meant to post earlier today, but it has been crazy here. (imagine that, in Crazytown!)
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Slow, I'm thinking about you today and I'm glad that you have so many great friends around you.
Thanks for the invite to the SoCal get together in March. I was just in beautiful downtown Burbank (hahaha) last week. It was so hot! Where will you all meet? After all of this crappy news a getaway always sounds good
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(( Slow))
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some food porn to brighten the night. I went out with co-workers which is really unusual for me to go anywhere but work or home. We went to The Edison in DTLA. Very cool place. Here's one of our appetizers platters. The purple cheese is raspberry.
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Wow, Molly! That looks wonderful!
Happy Birthday Octo!
Katy, Thanks tor the update!
I'm sure Beppy felt better knowing we were all in her pocket. She's one of the kindest, most thoughtful people I've ever met.
Tomboy, I'm so glad Beppy had you with her today! Support and an extra set of ears, too. You are so insightful and such a blessing.
Cancer sucks, but because of it I've met the best women in the world!0 -
Iammags, I am unofficial get together organizer...we'd love to have you join us! and I admit, I am behind on choosing a location. It will be somewhere south of LA proper, probably in Orange County, but possibly western Riverside County. Brunch will be involved; March 26th. And Southwest just announced another sale if you don't want to drive.
Actually, I have it down to a few locations and want the crazies to choose via another of my famous e-polls, so if you want to participate, send me a private message with your email. that goes for any crazy reading this, and any crazy who has a brilliant suggestion for a Saturday brunch location that is central to much of SoCal (Ha!) and isn't too expensive...Poll is going out via email sometime today!
Hugs to all;
Octogirl
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Thanks again to all who sent birthday wishes: much appreciated! I especially love all the images to make me smile! Cubbie: you nailed it with a purple octopus, and Slow, with balloons and all! and chocolate cake, Tomboy. Thanks to all Crazies! :-)
I took the day off work, puttered around the house, and went for a nice long swim followed by a soak in the hot tub, at my gym. So great to swim in the middle of the day when I had the pool practically to myself. I was reminded that I have a way to go to get back to pre-bc shape....but it felt great. I am working on building up my upper body strength as we are heading to Mexico for 2.5 weeks in late April/early May, and scuba diving will be involved. I am not nervous about getting in the water, but I am a little worried about putting on the gear topside and lugging tanks around...fortunately the resort staff are always happy to help...I just hope I don't need my own personal scuba sherpa!
Hubby took me out to dinner. Quiet, very nice celebration, I reflected on the past year. It pretty much sucked, other than the connections I've made here. Here's to a better year for all of us!
And of course, the celebration isn't over yet: off to Yosemite for three days in the morning....weather is almost too good. For the sake of our mountains, think snow!
Hugs to all
Octogirl
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{{{{{{{{Slow}}}}}}}}}I'm praying for you and in your pocket
Katy...Hello my dear friend
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Mags- any news yet?
Octo- good for you for swimming!! I love swimming and hot tubs. Since I have various holes and 2 drains still. Only showers for now. Saw PS yesterday. Keeping drains 1 more week for sure. Until they are bone dry. Have so much fun on your trips. So nice to leave BC at home and get away.
Much love to Beppy! Hang in there. We are in your pocket.
I don't like to do much with drains. So I will bake sonething again. My daughter and husband ate all the cookies.
Yesterday the PS told me what a mess my TE was before the exchange. The Alloderm never adhered and was just floating around. The TE had moved 10 cm around and under my arm. What a freak show. He sewed and sutured like there is no tomorrow on my new implant with new Alloderm. I am blessed to have my PS. He is so compassionate and good at his job..
Hugs to all!
Patty
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Katy! Thanks for the update. Tomboy, thanks for being there for our sweet Mayor! Beppy! In your pocket continually! Praying for you and all of us crazies out here!I'll write what I put on my Facebook page yesterday after having a long conversation with my teenagers about this whole journey...
"Courage...it's a complicated thing... just sayin'"
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Thinking of you all. I wanted to post something I read this morning and liked very much. We've had a couple of conversations lately about our docs, compassion, lack thereof, and sometimes the force of will they must need to summon up to do a very hard job. Here's an article about docs who write poetry as a way of dealing with some of the stresses, in this case, mostly dealing with very ill children. Which of course makes me think about William Carlos Williams, whose poem (This is just to say....) Katy posted here a week or so ago, and who was a family physician....
http://www.statnews.com/2016/02/26/doctors-writing...
Have a good day, crazies!
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Rainny- great link. Made me snivel a bit though. WCW was certainly amazing as he did practice medicine continuously through his writing life. Or vice versa. Of course he is remembered only for his poetry, except in the rarefied air of some lovely "crazy" but devoted fans.
I hope everyone has a (mostly) calm and pain-free day. Hugs to all Crazies
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Rain, thank you. I also liked the article very much....and ok, this is weird but I was particular struck by this sentence: "a bar in Bozeman, Mont., hosts a baseball-themed poetry reading named after his late brother." A baseball themed poetry reading! Wow! That just went on my list...and it even has a FB page:
https://www.facebook.com/Bozeman-Baseball-Poetry-C...
We need more poetry in this world.
PMR, swimming and hot tubs are two of my favorite things (along with poetry and baseball :-)) I am just getting back into swimming after a hiatus since my surgery: BS, MO and RO all concurred with no swimming or soaking during active treatment, especially since I am not fortunate enough to have my own pool (the main worry was the germs when immune-compromised and then with broken skin post rads).When I finally got the 'all clear' it was cause for celebration! Hope you can get back into the water soon as well!
Octogirl
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PMR- Thanks for asking about me. I do have news, just not that great, I think. My BS called yesterday and told me that she has to take out so much breast tissue that she is going to do a reduction instead. I'm going to have the other one reduced at the same time. That means drains, both arms out of commission for awhile. And, more importantly, I really didn't realize that the cancerous area is so big. If the BS can't get it all she'll do a mx. Maybe that would even be better? I'm not sure.
And the radiologist thinks that it might have spread to the nodes. We'll find out on the 2nd.
But, on the flip side, I'm getting a new pair of perky boobs!. I haven't had those in at least 15 years.
Anyhoo..Octo- I wish that I could get away in March to meet all of you amazing ladies but I can't. I still have 2 crazy, hormonal. teenagers at home that I have to take of. Not really complaing, they are great. And I'll probably be starting treatment. Can I have a rain check?
Have a great weekend everyone!
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This is for all poetry lovers, I wrote it when I was about 35, and put it away. I have a bunch of them like that. Someday I was hoping to do something about all like 42 poems I have made... this one I did dedicate to my oldest brother, William Wallace, when he died at 50 ten years ago.. here goes
Sometimes I wonder what Heaven is~
A realization of all our sweetest dreams?
An understanding of others about what we really meant?
Everybody sayin 'oh. This is what God feels like on His good days,
When he is really pleased.
No harps for me, please I'd like to hear
Thunder and lightning
Birdwings and heartbeats.
I don't want to see angels standing on clouds,
So much as I'd like to see just clouds.
Every sunrise and sunset that ever was, from everywhere~
From every angle, all at the very same time.
I'd like to see the ocean the same way; foaming waves
Crashing and caressing sand,
And people's faces
The wingless angels I have always known.
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This is for all poetry lovers, I wrote it when I was about 35, and put it away. I have a bunch of them like that. Someday I was hoping to do something about all like 42 poems I have made... this one I did dedicate to my oldest brother, William Wallace, when he died at 50 ten years ago.. here goes
Sometimes I wonder what Heaven is~
A realization of all our sweetest dreams?
An understanding of others about what we really meant?
Everybody sayin 'oh. This is what God feels like on His good days,
When he is really pleased.
No harps for me, please I'd like to hear
Thunder and lightning
Birdwings and heartbeats.
I don't want to see angels standing on clouds,
So much as I'd like to see just clouds.
Every sunrise and sunset that ever was, from everywhere~
From every angle, all at the very same time.
I'd like to see the ocean the same way; foaming waves
Crashing and caressing sand,
And people's faces
The wingless angels I have always known.
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Tomboy! I'm breathless, that is beautiful....sublime...
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Here is a sunset for you Tomboy:
This is what keeps me going everyday...
I've had a long hall these past 5 years.. 7 breast surgeries, radiation, bilateral lymphedema and nerve pain. Through it all - I am now "nerve pain" free. I am still having joint issues. I have arthritis in the left knee and atm dealing with Rotator Cuff tendonitis with impingement. PT is literally a real pain, but I will get through this too. I had to fight for my treatments and go into debt, but it was well worth it. When God leaves me a sign in the morning and evening, I know there is awesomeness waiting for me. And Besides - if I didn't go through this horrible disease, I wouldn't have met my best buddies here. Thank you all for being here for me.
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Thanks for all of your well wishes! The second U/S of the lump under my arm did not reveal anything that required additional F/U. I'm gonna put this one to bed and worry about something else for awhile ;-) xo
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Iammags, sorry you have to go through this. There are a few of us here who get to have BC with teenage children in the house. They are a distraction, let's say.
Tomboy, you amaze me so consistently. What a beautiful piece of writing! I love "no harps for me."
And I like your sunset, GF!
Octogirl, I didn't know you liked baseball! That being the case, here is my belated birthday present for you. Apologies if you already have it. I heard it read aloud once a kazillion* years ago at the Selected Shorts program, which I think has been broadcast on and off on NPR. Anyway, here it is:
http://www.newyorker.com/magazine/1960/10/22/hub-f...
Waving at Shorfi, Jersey, Katy, Patty, Poppy, Cubbie, Molly, Beppy (always), and every single one of ya....
*kazillion: certified unit of measure meaning before marriage, procreation, breast cancer, or any previous presidential administration you'd care to name
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Katy, thank you for the update. Slow, thinking of you in the days and weeks to come.
I'm on a two week break from Arimidex - the SEs were really tough. Of course, this has sent me into a tailspin, although I'm going to Florida for a week with my daughter - to visit my parents, so it's well timed.
Iammags - thinking of you as well, and sending positive thoughts.
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So the other day I wrote a post kind of jokingly saying that I thought that I have leukemia because I have swollen nodes and high WBC. Crazy town, right? Guess what? The doc thinks that I really might have it😞 I just took a blood test and now I'm waiting at the pharmacy for an Ativan latte! Seriously. Diabetes, BC, AND leukemia? What are the fucking chances? Sorry I'm having a poor me moment
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mags - more good thoughts coming your way.
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Oh {{{{Mags.}}}} Keep us posted, ok?
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Mags: alas, sending us to CrazyTown isn't necessarily an automatic baseless fear. Keep us posted?
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mags, I am so sorry to hear that. I hope the blood tests come out with no fucking leukemia. That's not fair, its just not right
*edited to say I am having a poor YOU moment, so go right ahead, and take you ativan, and come back and let us know. Those lumps in your pocket are all of us crossing our fingers for you.
And thank you for your wonderful sky Gma!
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Okay, is this sight acting weird to you guys, or is it just my computer? It is randomly picking a page, and says were up to page 219, but the last post is Mollys meat platter, weird, since I just posted, I think?
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(((maggs))) Stupid fucking bc and stupid fucking leukemia, drink that ativan latte and keep us posted. In your pocket.
Octogir
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mags- sending hugs. I don't know how it's possible to have so much shit in one's plate at once. Thinking good thoughts for you.
Brightsky- thanks for sharing your good news.
Tomboy- also speechless over your beautiful poem. Thanks for the gift of sharing it here.
Pennsy- I hope you feel a break from the SEs. Sometimes the body resets itself and adjusts after a break I hope this is the case with you. It is very crazy making to know you need to be compliant on a med, but it being almost humanly impossible to do so. QOL issues are real. I think for the longest time "QOL" was s catch phrase that didn't really mean that much to me.
Boy has that changed
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yeah... I just skipped the latte and went for the sprinkles.... Straight up.
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