CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Tomboy Being you like to see quilts - here is one I made for my granddaughter. She wanted one made for her and mommy to share - out of their favorite colors.. That was a challenge LOL.
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Like I said: Beautiful! Thanks for sharing, Gma. I don't know how you guys manage to do straight lines on them at all! I just know I wouldn't be able to do that! Pretty color combo, you did great!
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Gma what a work of art!
Tomboy- buccaneer..Macaroon...whatever! They look beautiful AND tasty!
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Here is an article I wrote on how to make my "cheater quilts"
http://magazine.gaiscioch.com/life/gmafoleys_cheater_quilts.html
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Gma, I love the colors. Waving hi to Tomboy. Thank you all for the good wishes for my Wyatt. One of these days my heart is going to break but he is worth it.
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Thank you my sweets!!! I'm exhausted from the Herceptin only infusion Monday, and I don't think I should feel this bad... It feels like week 2 of chemo. This is not cool! I don't know if it's the Herceptin and the Tamoxifen, since I started it, too, on Monday, or what. The doc is definitely giving me at least a 6 week to 2 month break from the Herceptin to see if the PN eases more. I'm thankful for that... She thinks I just need to rest after finishing rads two weeks ago, getting my Herceptin, and starting Tamoxifen... We'll see what the next few days bring.. I finished chemo, I don't want to feel like this, it's awful.. I literally picked up ordered groceries, came home and had to lay on the couch before I fell down, while my kids put the groceries away... Has anyone else every felt like this after Herceptin? Or starting Tamoxifen???
Katy, thanks for coming up and snuggling in the tree house! I'm putting away the laptop and laying down again...
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Gma- that article is a keeper! I will return to it over and over.
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Speaking of quilts. I have been working on something similar to the project we put together for our mayor Beppy.
It is almost finished and it's going to one of our Crazies here who needs a bit of extra crazy love right now.
Some of you mentioned that you would have liked to be involved if ever such an opportunity arose again. Nobody needs feel the least pressure to do so, but I want to invite, not exclude. Just pm me and I'll give you more details if you are interested. Thanks!
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I hear you on the importance of the aca. for cancer survivors, i remember at on point when I was still working but stressed, a pal said to me why not quit and start your own business
Since my health insurance was tied to the job and this was prior to the aca. It would have really been in deep do do, so glad for the relief
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Hi, Crazy Town Fitbitters. I got a Surge for my birthday back in January, and wore it 24/7 except to shower, charge its battery every 3-4 days, and for a formal dinner, to which I wore a dress watch instead. (I slept in it because it tracks sleep and calories burned). No problems at all. I always kept it clean and dry. Before that, I wore a wristwatch 24/7 except to swim or shower. This morning, I awoke in a heavy sweat (thanks, letrozole). I had showered before bedtime because I had an early morning mani today and knew I'd have no time to shower. Got to the nail spa, took off my jewelry, and saw a massive, blistered red rash on my inner wrist, exactly where the rubber strap and buckle met my skin.
I looked at the inside of the Fitbit and band, and saw massive amounts of what looks like crusted dry gunk, including dead skin, especially near the buckle and the part of the strap & buckle touching my inner wrist. I snapped some pix with my phone, Googled "Fitbit rash," and to my amazement, there popped up two pages of links, dating back to 2013, about people who got rashes from their Fitbits--Force, Charge, and Surge--including a couple about a lawsuit in CA that may become a class action. Fitbit claims that the rashes affected only a small proportion of users, and those who suffered one from the Force and Charge probably had allergic reactions to either the nickel in the surgical stainless steel or the adhesive used in the Force and Charge. They claimed to have reduced the use of surgical stainless, lowered the amount of nickel in their stainless, and eliminated the adhesives when making the Surge--and that anyone who got a rash from the Surge was either getting it wet & dirty, or wearing it too long or too tight. They suggested "taking a break," insisting that doing so would cause the rash to go away "in only a few hours to days;" wearing it looser, or wearing it over clothing (which would eliminate its ability to sense heartbeat and measure sleep and calories). I DO take daily breaks, don't get it wet (except when I sweat--and how do you not sweat when properly working out?) and every 3 days or so have to take it off for at least 2 hrs. to recharge it.
I don't think the problem was either the nickel in stainless steel (I have no problems with nickel) or adhesives: I think there is something in the rubber compound they're using that reacts with sweat and either turns the sweat caustic or forms a compound that is an allergen. I am taking it back to Macy's and demanding they refund my money--or apply it to the price of their newest watch that uses normal leather or metal watchbands. Meanwhile, I can't wear anything but a burn pad on my left wrist till it heals, and (like a millennial) have to consult my cellphone, TV or computer to find out what time it is. And thank heavens my left arm isn’t my LE arm!!!!
Anyone else here get a Fitbit rash?
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ChiSandy Ouch!!!!!! Fit Bit. I think you found the cure for skin mets.
Jersey Tamoxifen made me nauseated but I only took it for a few months. Herceptin didn't bother me. Arimadex, no nausea,just made me feel like my brain flat lined, but I wasn't sure if it was from the Lupron. It took getting use to.
Hang tough. Tell yourself the symptoms let you know it's working.
Radiation frightened me more than anything. I don't know why. I almost hopped off the table. I was so pissed my first porn pics and tattoos where for this crap. They made me cry. You get through it.
Oops almost forgot the vag shots in child birth. Oh well. I forgot I'm old hat at the porn lol.
Love the quilt. Colors awesome!
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Hi Ladies......so nice to be thought about......I am ok.......so much going on I just decided rather then bore everyone with my stories I would just remain a lurker.................when everyone got concerned I figured it wasn't fair to not respond..........some asked about my son Michael....he is doing well and recovered from his gall bladder surgery without incident....at least not yet........he is so involved with his daughter (diabetes) insurance companies, co-Pays, deductibles etc he can't think about himself......I did go out to dinner with my son on Friday night, and to his house all day Sunday for breakfast and dinner.....got a chance to spend some time with Lila......and tomorrow will be watching Bob'by for a little while while his mother attends a board meeting for work.........I will be taking care of my sons dog while he goes on a cruise Saturday to Thursday of next week......so I am trying to keep busy....hugs everyone
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I am thinking about all of you...........saying prayers for everyone who is hurting, and celebrating with all who have good things happening.......looking at the gorgeous quilts (which I would love to own, but can't sew a stitch and the ones you buy are really not true quilts......and for all the cookes that looks so amazing.........
Being at my sons was nice......he makes me breakfast.....it's always a onion, pepper, and cheese omelet, with has Browns, and rye toast with a side of pork roll.......fresh coffee, and I always bring the Danish and donuts..............then we have a great snack in the afternoon, and then a delicious dinner, and I always go home with goodies from the Farmer's Market that my daughter in law buys when she goes on Fridays........all fresh, and delish............
He just had illumination put around his home, and it looks so pretty........he is always doing something for me and takes good care of me even though I don't need it......he came the other day and said "here Mom"......it was a $500. gift card for the Shop Rite Supermarket I go to...........I just wish he would not do it.....I can take care of myself, and as much as I appreciate it, I don't like people my way..............but I am always thankful.............
So that is my story and I am sticking with it.........I wi ll try to be less absent, but the love around this place is amazing......thanks for thinking of me, and caring so much...........love you all.....hugs.0 -
Thought you might like to see my sons house since he had it done.......
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OOOOh,Ducky! Is that Lila? She is adorbs! What a face! I don't know, I haven't seen such happy babies for a long time! That is the face you get when you are well-loved. Thanks for popping in Ducky, glad you've got such sweet things keeping you busy!
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Molly, I hope Wyatt is doing a bit better today. Sending hugs.
Poppyk, I have totally been there, actually am there right now. I think the stress is going to make my brain explode.
Katy, I have had the problem with nightmares, too. Ugh. I was up half the night last night.
Sandy, I've heard mention of a Fitbit rash, but haven't known any who's had it happen before. I hope it clears up quickly.
Tomboy, Ducky, good to see you guys again! Ducky, I'm glad to hear Michael is healing up OK. I'm sure he's overwhelmed with insurance stuff.
Beppy, still thinking of you.
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Wow, his house looks nice! Its a mansion!
Jeez,Chi! That does look like a chemical burn! Yeah, I had heard of fitbit rashes, but never saw a pic, thats pretty bad. I hope you get the watch for your trouble! I wonder if that 'liquid glove' stuff under it, would work?
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Wonderful little people!
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Hi Jersey, How many months have you been on Herceptin? Last summer I was on vacation and then had a family emergency. I went 6 weeks without Herceptin. I noticed I started feeling better by that time and then I had to go back to every 3 weeks until December. Sure hoping you have no SE from your Tamoxifen!! Hugs to you !
I had my final drain out after 4 weeks. The area is very tender but I am so relieved to get this out.
I guess this is it? I'm finally done after 14 months of HELL. 5 surgerys and chemo. I will deal with the bottle of Armidex when I get home. I'm leaving for a warm and relaxing vacation in Maui. My new boob pretty much matches the other one. Should be okay in a swimsuit. Some swelling under the arm from all the pocket work but who cares. I really don't. I just want to be out of pain.
Hugs to all!!
Patty
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HI,
Quick hello to all!
Jersey Girl- just wanted to say that a few weeks after I finished radiation I was completely wiped out. I think my body just was reacting to a cumulative of effect of all the treatment. I had started tamoxifen the month earlier and was on Herceptin (and possibly Perjeta (trial)) as well. I kind of had to let myself just be tired. This acute exhaustion maybe lasted 3 weeks, or a month- I don't really remember. You've been through a lot and you will get your energy back. If you possibly can, give yourself a break. Rest, binge-watch TV, lie down when you can-- you have showed up and made it through the hardest part of treatment, so relax, and if possible, let yourself be where you are now. Again, you will get your energy back.
Love to all the Crazies--I'm feeling after 3 years getting my life momentum back where it was before BC hit- I still have Crazy Town back aches etc but I am also excited by life's creativity. I saw the new Tina Fey movie- Whiskey tango... at the end a soldier who lost his legs said, "You embrace the suck, and then move on." Well, we in CT know it's hard to move on completely, but I do feel I'm more able to move on now than before. And moving on means different things than when I first started this crazy path. Still can't believe it happened to me- yet here I am 3.5 year out.
Hugs to all-
Stephanie
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Yes this is my little Lila.........she is so cute....and is now crawling............
Bobby turned 1 last Monday........and what a sweetheart he is.......I am so lucky
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Sula, the colonoscopy appointment was so fun..ick. But it's worth it. Can you send some cookies my way? hahahaaa Are you opening a restaurant here in CA? I'd buy those cookies..yum!
ChiSandy- I'm with you on the ACA. I could go on for hours.....
And speaking of fixing things. First my oven conked out on me. I really wanted to bake things to make myself feel better..boo. Then my dishwasher broke. Seriously? I'll have to wait until the 26th for both to be fixed.
And on the 26th you all will be having an amazingly fun get together! How fun!
I'm waiting on gene testing and Oncotype results. Always waiting....
Good vibes to everyone
My family is coming to visit. Why do I want to hide? oh dear
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duckyb, glad you are well taken care of by your son. Accept that he is repaying you for being the mother you are. I love doing things for my kids and it is hard to let them do things for me but I do. Your Lila adorable and Bobby, well that smile makes me feel really good. You are blessed. Wyatt's doing better today. He's still very sick but stable thank God.
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Good news Molly! Including Wyatt in my prayers.
Ducky!!!! Love those beautiful babies!!!!! Your son's house is beautiful! I live in a perpetual fixer upper!
One of my chemotherapy sisters died last week. She was in her 50s, with 2 sons and a DH. She was such a kind, caring person. She devoted her life to helping others. She helped me with the depression and mental health issues my oldest son was experiencing. FU Cancer!
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Ducky, what a wonderful son you have....he is that way because you are a wonderful mom.
Molly, continued prayers for Wyatt.
Mags, I think our theme song (for all of us bc sisters) is “The Waiting is the Hardest Part." (Personally, I'm getting kinda sick of the sound of Tom Petty....it gets old....)
All of you beginning to be able to put your lives back together--you give the rest of us hope. And I will join you in giving "half a peace sign” to cancer.
I went to Macy's today and showed the sales clerk at the Fitbit counter my wrist and then the watch. She gasped and replied, “Oh, my, it's not supposed to do that," and exchanged it for the newer Blaze, no questions asked. (And since the Blaze is cheaper, she credited Bob's account for the difference and gave me a $30 gift card). They didn't have the leather accessory band for it (it came in black rubber, which I'm going to swap out ASAP) but I did see it on Nordstrom's site. Nordy's didn't have it in the store, and the tan and gray leather bands were backordered, so I had them order me the black leather, which will probably arrive about the time my rash (a 2nd degree burn, really) heals. Then I had to go to Best Buy for some printer cartridges....and lo & behold, they had the tan leather band! I bought the watch in L (it comes in S, L, and XL), since that's the default size of Fitbit large-face watches for adult women. I have since read that since the leather band is more delicate-looking it might run large, but better too loose than too tight (I can always punch an extra hole). I realize what had happened wasn't just that I sweated, but that before I put my Fitbit back on last night I lotioned my arms (with CeraVe, which is supposed to be as mild and neutral as lotions get) as I always do. But the intensity of the sweat probably melted some of the remaining lotion and reacted with it and the rubber. Shouldn't happen with the leather, but we'll see. I will probably put on some BurnJel (aloe + lidocaine) and then a moist burn pad for awhile; hopefully as the burned area recedes I can replace the burn pad with a band-aid and wear the Blaze over it. Bummer is I can’t wear my Pandora bracelet for a while.
The Blaze looks and operates more like an Apple Watch, in that it has a color analog watch face display, controls my iTunes playlist wirelessly, and pretty much tracks everything the Surge did.
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Poppy- I am so very sorry about your friend. That hits so close to home. My chemo sisters (March 2015) are so close. I can't even imagine..... 🙏🏼
Ducky- so great to see you. And so happy you get to watch Bobby thus week!
Sandy- hoping you've gotten to the bottom of the Fitbit rash. It's just not fair to be injured when trying to do the good work!
I can't sleep. 😖😢😖😢😖
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Katy, I''m awake, too. I've been breaking out in summer several times at night and even during the day. These are not flashes I remember from 20 years ago, these episodes last for an hour or more. Looked it up. Could be the uti or cancer. I see a the doctor on Friday.
I got your PM, but my dd came up for dinner and a nice visit. I will get back to you tomorrow ( actually today). I'm finishing up a small wall hanging for her. I'll try to remember to take picture before I give it to her. I want to make a carrot table runner with strips of various orange scraps. Maybe 20 inches long, shaped. Also want to make a batch of potholders for a certain event next weekend.
Hope you've been able to nod off. I'm going to give it a try again. Jan
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Jan- oh how miserable. I hope there is a simple answer for this and soon!
You know I want to see the pics. The carrot sounds adorable!
Let's both try to get some sleep.
💗💗💗
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Hi Molly.....praying for Wyatt............
Poppy, my house to say it like it is was a virtual dump........it's a long story why I moved from where I was to this house 5 years a ago, but I had to........anyway.....my son gutted the entire inside of the house down to the rafters, and redid the entire thing.............so I know what. "fixer upper" is...........there is nothing in the house that isn't new....from the floor to the ceiling, and wall to wall.....including wiring, heat, a/c floors, walls, literally everything.................the only time I owned a home that I had custom built was the shore house......and that is gone...........so I am quite familiar with fixer uppers......when I saw it in the beginning I said to my son........";your kidding, and he said "trust me", your gonna love it.........and I do.......I guess I just didn't have the vision he had at the time........LOL0 -
Got more good news this week. The hospital called to schedule the port removal yesterday. In less than two weeks I will no longer have it!!!!!!!!!!!!!!!
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