CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Gaia, Glad to see you! Congrats on finishing rads.
The car stories just crack me up! My DH just listed our red 75 Corvette for sale. My son Matthew is in deep mourning as he loves this car.
Funthing, Well, cr@p! So sorry about your results. F'ing cancer!!! It's not "self absorbed" to be focusing on yourself right now. Snuggle in here and know that this is a safe, friendly place to do whatever you need to do; rant, cuss, cry, lurk... anything goes!
Katy, I wish you lived nearby! So often, you are just what I need.
Beppy, Can you feel us all in your pocket? I'm the one that brought the ice cream. Sorry about the mess, but we are eating it as fast as we can!
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Funthing, so sorry to hear it has come back...again. Fuck cancer, fuck the horse it rides in on, fuck it all, fuckity fuck fuck fuck. I feel so bad for you. I agree with whoever posted above, push for Herceptin and Perjeta, and don't take no for an answer.
Are they going to run you through chemo? I'm in shock that this is your fourth time
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Oh, funthing, dammit, dammit, dammit!!!! It’s just not fair! I would also push for Herceptin & Perjeta!
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(((funthing))) praying for you, sweetie!!!! We're all here for you...
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Fun, Sending comforting hugs to help support you with this newest dx. So sorry you are once again staring down the evil monster.
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Funthing; the other members of CrazyTown have used the wholly unladylike language that was my first thought at your news. Instead, I will tuck you into bed in the room of your choice in the CrazyTown B&B, and bring you supper on a tray. Stay as long as you like--keep in mind that a) many of us have been through CrazyTown and started coming out the other side and b) despite that, we know that CrazyTown is but an exit away!
(In my case, it was the dentist saying something about my breast cancer treatment causing/connected to my parotitis. Not so fast there, Skippy: I had a bout of whatever-this-is before I was diagnosed with breast cancer. Also, none of the oncologists have said boo about lymphatic involvement, though I can't imagine any of that's helping. And yet that evening I dissolved into a helpless puddle of tears, weeping something incoherent about wanting this to to go away.)
I've always envisioned the CrazyTown Inn as being a combination of The Kalamazoo House in (surprise, surprise) Kalamazoo, Michigan and The East Wind Inn in Maine. Mostly I just love the idea of someone else making me breakfast, but the porch on the East Wind Inn is amazing, and the beds in the Kalamazoo House are heavenly comfortable.
ChiSandy: (wiping tears of laughter/sympathy away) None of my cars have been quite that dramatic, more the showing up at the garage to say "It's making this funny noise when I turn left...."
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Funthing- when you said something about "contributing Jack", my therapy dog Jack thought it was time for him to go to work and send you some love therapy and a touch o' the Irish luck! Jack is a community therapy dog and quite likes to be passed around for therapy purposes (and ear scratches).
L
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Funthing, I feel for you! Fuck it all. I don't know exactly how you are feeling but I do know that I've been pretty shell shocked for the last 6 months. Hello Crazy Town. I'm so sorry that you are going through this.
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((((((fun)))) It sucks. Fuck cancer from here too. And Katy, i thought of Jack too!
Sending hugs and light
Octogirl
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Just heard from a friend up in WI. His wife has had a 6-month adventure-in-DCIS-land that ended (after several excisional biopsies) with a bmx. Now the SNB biopsy has come back--a 2.5mm met to one node, no cells in the node's “tail" so no spread beyond that. But the post-surgical biopsies found only DCIS, no IDC in the breasts. Huh? How can DCIS metastasize if it's confined to the ducts? They're looking for a second opinion from a surgeon and/or oncologist. Problem is that their insurance is an HMO connected to the UW medical system, and would have to go out of pocket for the consults even though further treatment would still be at Carbone Cancer Ctr.
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ChiSandy- That is strange. Maybe the met is a secondary cancer of something else?
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A possible concern would be an "occult primary cancer". If an occult cancer, and if the cells in the node are malignant breast cells, then an occult invasive breast cancer (T0, where T0 indicates no evidence of primary tumor). One view might be that the immune system dealt with an invasive tumor, but not before some cells moved to a node. This is a relatively rare diagnosis, although there is a thread here.
It would be of value to obtain expert pathology review as well to confirm the assessment of the degree of lymph node involvement, cell type, and to ensure that a small area of invasion was not missed in the breast.
BarredOwl
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I agree that a second opinion on the pathology is called for. Gaia, I hope you are doing okay after radiation. You seem like a very brave woman. Slow, thinking of you. This morning I prayed for everyone on this thread. I was stressed and the best destressor is for me, prayer. Sandy, I just gave up my 2002 Taurus SEL wagon. I LOVED that car. I just couldn't spend any more money on it. I bought a 2013 Honda CRV. It's a fun car to drive. I still miss my Taurus though.
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That's what I have Occult Primary tumor, my Radiologist told me the same thing, Barred Owl. But how do I know some cancels didn't move on to parts unknown before the node was removed
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Hi Marijen:
One doesn't really know, which is the reason for systemic therapies like the Femara. Maybe no cells got past the nodes, or if a few did may Femara and your immune system deal with them roundly
BarredOwl
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Thanks guys originally her 2 neg. Then recurrence I was her 2 slightly so I had Herceptin with my TC. Then I was her 2 negative when it came back in my skin.Now her 2 positive.
Pet was clear except my nodes on the left,where I didn't have cancer. I asked if it was possible that there where enough cells left behind to become another breast Ca. I need to get my hands on the path report from the nodes.
They say anything is possible. But chances are that this traveled in my lymph system and landed in my armpit. Ha I say. Weird as crap.
I will ask in regards to the perjeta. They are talking Imbrace and some kind of mixture of hormone therapy .They say this should take care of it.
I'm so confused. THEY are not giving more chemo to get rid of the Mets to the nodes.
Worst I have to wait 2 more weeks to figure out what treatment plan is cooked up. I wish they could take the nodes. Give me more chemo and change my hormone therapy. Which obviously are not working. It's hard to tell what to do when your in panic mode.
Big hugs back at you. Hi Jack. Cute fellow. Dogs are so comforting. It's amazing how sensitive they are to your pain. I have a boxer. The other dogs where just fun pics.
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Just poking my head out of the rabbit hole long enough to say hi to everyone. I hope things have been quiet because everyone is having a good weekend.
Gaia, so good to see you.
Funthing, have you thought about getting a second opinion? I think it might be a good idea in your case.
Jack is the best dressed dog, as always.
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Hi Cubbie
I have insomnia. Yep you bet another opion. Sleep tight.
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Hi Crazies!! Long time, no post!!
Funthing, CRAP. That really does suck big time. Four times is just plain irritating. All the crazies will be right here with you. Vent away as needed. Sending you extra love and hugs. I was going to comment on your banana drain holders, but that's difficult to do after reading your news. Stinkin' cancer....extra Ativan sprinkles coming your way. Take a big breath and remember....baby steps. Waiting is so difficult and I'm sorry you have to do it all again.
Twinnie, Hope your weekend was a good one!! Thank you for your good wishes. I'm on my way to send you an email once I've finished here. The quilt your friend made is beautiful. Isn't it the best feeling when someone gives you something they've made with their own hands. Truly special!!
Molly, Thinking of you and Wyatt. I hope he has improved this weekend. How is your vertigo doing? Still spinning? Your grandson sounds like such a sweetheart!! I want one so badly!! I hope the party went well yesterday. Pictures??? Hint...hint.
Jersey, I see you're nice and cozy in the tree house. We must make sure you get plenty of snacks through the pneumatic tubes. Hope you're feeling better from the stressful few weeks you've had. Sending good thoughts for minimal SE's on your last Herceptin only infusion!! I hope the break helps you feel better. How is Glenn doing?
Katy, I think I'm going to send the good sleeping vibe your way again. I'm going to make the spaghetti Bolognese recipe you sent me next weekend. It looks so good!! I loved your display....looks so festive. I wish Jack could teach my Murphy some manners.
Robin, My sincere condolences on the loss of your friend to ALS. It is a horrible disease. I lost my mother to it in 1993. I'm so sorry for you and all that loved your friend.
Iris, I want to join you for that fried fish!! All the asparagus talk makes me want to make some. I think I will put that on my menu this week. Thanks for the reminder!! Remember....it's the cure for cancer!! OOOOps....wrong thread!! hahahahahaha
Octo, I read all about your bad couple of weeks at work. Do I sense retirement on the horizon??? Think of all the fun you could have visiting all the crazies!! We can have a nice retirement party for you here in Crazy Town. Any excuse for a party!! GOOBLYGOOK!!!I haven't heard that word in such a long time. So awful that a fall did that to your vision. That must have been so frustrating. I think we could all benefit from balance exercises. I hope the party went well on Saturday!!
Sandy, hahahahahahaha....What a great idea!! The furbaby diet. That one gave me a good laugh!! I hope your shin is feeling better. I think Octo and you are right about our center of gravity. I was walking from the parking lot into a store and I caught a glimpse of myself walking. Between the weight and the RA, I looked like a hunched over 100 year old. It made me wonder who that person was reflecting back at me!! I hope your rash is getting better. I haven't worn my Fitbit in so long. Thanks for the reminder. I haven't worn mine long enough to get a rash. hahahaha The car story gave me a good laugh!!
Rainy, So happy to hear you got your plumbing problem under control. I'm definitely trying that fake hollandaise sauce with my asparagus. Thanks for the tip!! My DH doesn't like fish too much either. I wish he liked it more. He is allergic to shell fish - throat swells shut....scary stuff. Hahahahahahahaha on the Mrs. Paul's. That gave me a good chuckle.
PMR, Yay!! You finally got that darn drain out!! Woooohooooooo!! Doing the happy dance and wishing you speedy healing.
GMA, The picture of Dozer sitting like Tiger and holding his toy made me smile. It feels like Tiger is giving Dozer a high five....very touching!! I swear that I often see my Baylee patrolling the perimeter of the house. One day out of the blue, Murphy started doing the same thing. Very weird indeed. Also, very comforting. Your quilt is beautiful. It looks very complicated with all those twists and turns!! I am always amazed at the work that goes into a quilt. Thank you for sharing it with us.
Thanks for posting that article for all of the talented quilters.Cubbie, I hope you're out of the rabbit hole and you're feeling better from your fall. Sending extra hugs to you!! Thank you for always thinking of me. I hope you had a good weekend.
M0mmy, Your hugs are awesome!! Here is a hug for the hugger!! ((((((M0mmy))))))) The root beer float talk made my mouth water. There's is nothing like a tasty A&W root beer float. Yay for a good MO report. I'm doing a happy dance for you!!
So happy to hear you'll be getting your port out!! We will be in your pocket for the removal.
Pennysgal, Sorry to hear about the cholesterol. Mine was high as well. Did they put you on meds??
QM, I'm really happy to hear you got a good report from your MO. Doing a happy dance for you!!
All this dancing is making me hungry. Ahhhhh....the dreaded lurking scar tissue. It fools us every time!! Thank you for the shout out. I hope your dental and sinus issues get better soon. Sorry to hear you're on the antibiotic roller coaster. We will all be in your pocket when you see the ENT doc.
Gaia, So wonderful to see you posting!! Take your time sweet lady. We will all be here when you're ready!!
In the meantime, know that you're thought of every day. Sending love and hugs your way!! I'm glad you finished rads and I hope it's given you relief from pain.Shorfi!! Waving back to you. Thinking of you!! I tried to knit a few times....no patience at all. It's SO good to see you. I hope you've been able to get a handle on that pain.
Sula, Wonderful to see you posting! I hope you're able to get that splint off soon. It's always a good time when I get to see Tomboy and Kathe. They are good people and they both make me laugh!! Sending good wishes for the opening of your new restaurant. I would say break a leg, but considering the circumstances that may not be a good thing to say!! I think it's only meant for performances, yes?? OMgosh!!! I missed your food porn so much. Those mellowmars look incredible - you know I'm partial to chocolate. Let us know when the restaurant opens. I will convince my DH to take a trip up north for sure!! <Wiping the drool off of on my chin>
JAN, YES!! I am focusing on the 26th. I'm so excited I can't contain myself!! I hope you've continued to heal from your illness. I've been sending all my best healing thoughts your way. Be careful with that UTI. I've heard it can cause all kinds of problems with hallucinations. Holding you close. We will all be in your pocket on Friday!! I'm just LOVING that St. Paddy's Day quilt!!!
Poppy, My condolences on the loss of your chemo sister.I think we are all in agreement....
I was wondering what that sticky stuff was in my pocket. I should have known it was ice cream. DUH. "I woke up one day last week KNOWING that cancer is killing me." Boy o boy do I know that feeling!! I guess that's why Crazy Town makes so much sense for us all. Can't wait to see you on Saturday!! Good idea putting that extra kid to work!! hahaha If they eat and sleep, they should work!! haha
Miss Tomboy, Thinking of you and I hope you're keeping busy with art and fun things!! As you know I wore your nifty wrist band on Friday. If that doesn't bring me good lucky, I don't know what will!! Thank you my friend.
Ducky!! So glad to see you posting!! We have missed you so much. Lila is a beauty and I'm so happy you're able to watch Bobby again!!! I just love baby pictures. They always make me smile. I hope all is going well with the dog sitting. I'll be watching my DD's dog starting next week. I will have him for two weeks. I'm a little worried because he whined the whole time she was gone last time. I was ready to strangle that dog the last time I watched him. I think you may remember. hahaha She said he likes to be held like a baby and likes to be wrapped up in a blanket. Sooooo.....I did that and he still whined!! I'm not looking forward to this at all. I hope the dog your watching is better for you. Your son sounds like a sweetheart....taking such good care of his mom. I'm not surprised though....you gave so much love and caring to your family, it's time for you to receive that all back. His house is absolutely gorgeous!! I could fit three of my houses in his!! hahahahahahahaha
Momwriter, So good to see you post!! I'm happy to hear you're getting your life back. It is certainly a challenging road to travel, but I'm always so inspired to hear of someone moving past TOTAL Crazy Town. "You embrace the suck, and then move on." What a great quote!!! I saw previews for that movie and I think I will have to break down and finally go see it. The last one I saw was the recent Star Wars movie. Yes, I'm a nerd.
Mags, Sorry to hear about your oven and dishwasher. Good grief....when it rains it pours, huh? That's a long time to wait for fixin'. I guess that's a good excuse to eat out!! Sending out good vibes for your Oncotype and gene testing. I hope all tests are in your favor!! Waiting is so difficult.
Sewingnut, I hope you'll post one of your quilts?? I enjoy seeing the handiwork.
BarredOwl, Welcome to our thread!
Please pull up and chair and make yourself comfy. I've very glad you found us. You'll love the women here. They are all fabulous.
Sorry for the book, AGAIN. I was way behind.
I had my PET scan on Friday. I had no idea they took your blood sugar before a PET scan. Does everyone get this test?? I see the Cardio doc tomorrow and I'm not sure what tests he/she will run. DH and I have been keeping busy, working on the backyard. Today he did some trimming and I supervised. haha We also went to Costco and bought a few backyard items...some azaleas and another pygmy palm to replace the one that passed away. They also had some really big barrel planters for $9.99. We couldn't pass up that deal. I did that whole shopping trip with NO wheel chair!! Wooooohoooooooo!
It's so nice to finally catch up. Thinking of all of you and hoping you all had a pain free, crazy free weekend. I see it's been quiet here. I hope that means you're all out having some fun. It was beautiful here this weekend and we took full advantage of the great weather.
To all the quilters - a little quilting humor......
here is one that is so true for me......
and another for all the rest of the Crazies.
Much love to all...quiet crazies too!!
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Coming out of lurkdome to say that I will be in your pocket tomorrow slow. I hope your scan results come back quickly and with good news. Wyatt's doing OK. Not great but better than before. Birthday boy had a great time and he had a sleep over with me. Thinking and praying for all of you. Too down to post much but soooo looking forward to the 26th!
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Thank you Molly!! Sending you extra big hugs. I'm glad Wyatt has improved some. Hoping we can pull you out of that rabbit hole!!
Hold on tight!!!
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Twinnie . Yes..Definately in your pocket.. and hope you get great news from the scan soon.. My quilting schedule is EXACTLY the same as yours :-) HaHa.. I totally agree, nothing more special than a home made gift.. Trouble is, I must of been standing behind the door when all the craft skills were handed out. 😱
Molly...Great news that Wyatt is improving !!
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Got my Easter shopping for the grand- babies done.. Now have to hope it doesn't melt... We are having a very long hot summer this year.!
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Good morning, dear crazies! This thread was so quiet over the weekend. Perhaps the spring weather had everyone outside (except you, Lucy. I hope things cool off soon.)!
Thanks for your lovely book you just wrote about all of us, Slow. I love the way you remember us and take the time to put these letters together. I'm sorry, that pocket just got too sticky and linty; I had to climb out and brush myself off, but my fingers are tightly crossed waiting for your results. I remember that I did get blood sugar measured before my PET scan last summer.
Ducky, isn't it about now that your grandson should have heard from all of his colleges? Has he made a decision yet?
Funthing, Molly, Gaia, thinking about you....
Octo, hope this work week goes better.
DH is working this evening; I have a committee meeting, and DS is participating in an open house for 8th graders who've been accepted to his high school. Since I have no idea when everyone's getting home, I have no-knead bread rising, and at some point I'll put together minestrone.
But now to get some work done.....
A delightful, pain-free, and stress-free day to all crazies!
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Rainy.....yes thanks for asking .......He chose the University of the Sciences in PHiladelphia.....he will be close to home.....but will have to board the 1st year....all freshmen do......my daughter liked the dorms a lot, and spend an entire day at the school......his major will be Pharmacy, and Pharm D....(whatever that means).....it is a 6 year program......eventually he will have his Doctorate which is what he wants........0 -
Welcome back, SlowDeep! Don't wanna know how long your list of notes was for that post. ENT for me in about an hour, antibiotics and lemon drops doing what they're supposed to be doing. In your pocket for the PET results (I'm sure others will be able to address how common it is better than I)
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Slow, in your pocket today!
just a mini update coming out of lurkdom for a minute... Last week, as you know was the Herceptin only infusion... However they added my beginning Tamoxifen... The whole week was a real horror. The Tamoxifen made me violently nauseous, gave me back the insane diarrhea that I had when I was on chemo, and fatigue that hit me so hard and fast I had to pull m car over one afternoon. I was good for nothing for about 6 hours... I mean, week 2 of a chemo cycle good for nothing. That said, called the onc fellow on call and she said take at night with Zofran and Ativan before to frontload for nausea and take immodium for the Big D. Saturday found me 2 hours after taking the med, on the floor of the bathroom throwing up, barely made it back to bed. Hubby got up Sunday morning and said, no more... this is not going to work for you. So, I'll be talking to my MO... going to try and get my estradiol # down naturally and see if then I can do an AI... I don't want surgery, not do I want more shots and drugs, etc. as clearly my body is not having it...
So that's where I am... heading back up into the tree house.
Glynn update... he's got 24 hour hiccups from the chemo for his stomach cancer, and the chemo pill. Otherwise he's doing ok... chemo train hit this week and he's weathering it pretty well...
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JerseyGirl, totally sucks. I don't take Tamoxifen, but I have seen women post that the manufacturer might matter because sometimes the additives in different pills are what can cause reactions.
Hugs to you
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Jersey, you seem to be the "if there is a side effect I get it" type. I feel so badly for you!! I agree with your DH to punt this back to your MO. This is not acceptable!
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Jersey- I'm so sorry you are suffering so....hugs coming your way. I hope they can figure something out for you. I'm glad your DH gets it.
Slow- waiting in your pocket with you and everyone else.
I was up past 4 am no sleep (nasty headache) so waving to all my beloved crazies before I hunker down with the sleep mask and try to catch a few more 💤💤💤💤💤 💗💗💗💗💗
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