CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Hope it was a mighty good one!!!!
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May i join y'all? My crazy town story is that my lump has a name. He's Lenny the lump and he's a really bad houseguest. Makes a mess and spreads out everywhere. I'm getting chemo first so Lenny is going to be attacked by the chemo ninja's and driven back. Once he's in a small enough area, we'll kick his bum out.
I also workout, and when I have a sore shoulder and at 3AM when I wake up and feel the ache, I manage to convince myself that Lenny has spread and is now in my bones. Every single time.
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Happy Belated Birthday Molly!!!!! Glad we had a chance to celebrate with you!
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CJSharma welcome to the group--those three o'clock fears are common enough, alas!
Octo I've always called that "post-Christmas letdown", though it doesn't always have any connection to holidays or even anything good.
A couple of years ago, my doctor(s) started squawking about the possibility of ovarian cancer (ambiguous cysts on my ovary); tests, imaging, trips to a larger facility in another town, culminating with surgery.....and it was "only" endometriosis. In my case, completely asymptomatic other than the cysts--I had no idea whatsoever!--and likely to resolve completely when I hit menopause. And yet when I got home after staying over a couple of nights in a nice little bed and breakfast, I felt absolutely crestfallen, as if nothing exciting would ever happen again.
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CJSharma- Welcome to CRAZYTOWN. I'm sorry Lenny is so rude, overstaying his welcome and making a mess of things. We have a comfy overstuffed chair with a soft quilt over here by the fireplace. If you like, someone will bring you tea or hot chocolate. With "crazytown patented" Ativan sprinkles! Stay connected. Sending you a hug.
Octo- hoping your spirits have lifted a bit.
JAN- feeling any better?
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Thank you for the birthday wishes! I only posted to share my day with you not to get you to wish me a HPB but THANKS! You made a good day better. It is funny that in the past I probably would have been disappointed by no gift from DH or anyone else in my household but this year I am so darned happy to be alive that I am satisfied with cards and hugs (and a lovely dinner). My Wyatt's caregiver gave me a gift card to Shutterfly (I am obsessed with shutterfly) Anyway, new perspective thanks to BC
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Welcome CJSharma. I'm glad you found us. Put Lenny on the chemo diet, then cut him out of your life!
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Happy Belated Birthday, Molly!
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Well, surgery is done and WOWZA! This one hurts more than I anticipated. PS did some fat grafting from my tummy, flanks, and outer thighs so I'm hurting all those places. Then he told my DH that when he got in there he realized that my skin was too thin to hold the implants where they need to be so he stitched them into place. Eek...that hurts like hell too!
Follow up next Wed and will have a chest CT in that same day. Hopefully this cough is nothing but I will be much more reassured when I see a negative test result
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rleepac, Yikes! Use your pain meds to stay ahead of the pain. Thanks for the update. Don't try to do too much too soon. You definitely don't want those stitches to release. Hoping you have an uneventful recovery.
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Rleepac: My entire chest wall is cowering somewhere behind my ribs at the very idea. Cripes!
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Goodness Rleepac - that sounds painful! Hope the cough can be suppressed as my boob, stomach and everywhere else ache just thinking of adding a cough into that mix. Hugs. Sending positive vibes for the scan result.
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Rleepac, Yowza that sounds painful!
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goodness, never named my mess but sure do like the thought and surely hope that Lenny gets his act tied up
Pcd checkup this morn, she agrees with my approach to avoid the shots to my back and keep on with pt since I am improving
Crazy day, lost the thread for a few days so forgive
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CJSharma.. welcome aboard!! Let's all be very unfriendly to Lenny so he gets the hint and leaves for good.!!
Rleepac..(Hugs.) Hope you can get on top of the pain, ( like Poppy says) quickly !
Molly.. Sounds like you had a lovely birthday 😃
PTS .. Hi... Glad the shots are helping!
Queen.. I can relate to the Post - Christmas let down feeling...it can happen any time of the year.!!
.
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Hope you had a Crazy-Happy Birthday, Molly!
Welcome, CJ. Here's to obliterating Lenny so thoroughly they'll barely be able to find what's left of him to cut out.
Rleepac, here are some virtual icepacks and happy drugs to ease that pain.
Well, folks, never a dull moment here in Euro-CrazyTown (Alpine branch office). Turns out those on the 5:15 and 7:30 flights took off two hours late--when they landed, they found the coach they'd hired never arrived so they all had to take the train and taxis--and stumbled into the lobby around midnight (when my traveling companion & I were already fast asleep in our rooms). The breakfast buffet is sumptuous, and we've been told it's included in our room rate. (It will set back other guests fifty Swiss smackers a pop). Eggs any way we want them (I passed on the caviar because of the uncharge), fruits, breads & pastries, fresh juices, charcuterie, local cheeses, veal sausages, salads, etc. Even an entire leg of jamon Iberico, with a slicing knife for us to serve ourselves. (The stuff is $18 for 2 oz. back home....if you can find it). Yesterday's sessions at Phillip Morris Int'l didn't start till after 1 pm, so no need for lunch. They had all manner of pastries, fruits and (duh) chocolates for the coffee break--and two baristas cranking out all manner of espresso drinks. Last night I was still a bit too full for dinner, so I had a nibble from my candy & cookie stash and met my friends at the downstairs bar for drinks. (Their law firms picked up the tab--good thing, as two glasses of champagne cost nearly as much as two bottles back home).
Wrapped up the Diversity & Inclusion Conference today, and it was truly fascinating. Of all the Chi. Bar Assn. CLE trips I've taken thus far, this was by far the best in terms of content. We had representatives from all over Europe, the UK, the US and even the UN, and it was truly eye-opening how far we in the law-biz and business & society in general have yet to go in terms of diversity and inclusion. It's not just race, gender, ethnicity and LGBT--it's also age (especially elders) and disability. Met some delightful (yet frighteningly impressive) people and came away with a motivation to do more with my law license--pro bono activism. Anyway, they fed us coffee-and-nosh breaks, a huge lunch buffet (Middle Eastern mezze--including falafel and dolmades--mushroom tom yum soup, salads, roast beef, veggies, breads, and mini creme brûlées and fruit tarts) and a farewell dinner. The dinner was at another hotel about 3 km away--most of it uphill. (My Fitbit was happy, though my quads were screaming and my "personal summer," courtesy of Femara, was cranking into overdrive). Dinner was squash bisque topped with chestnut foam, northern sea bass with polenta, a deliciously moist Bresse chicken breast with root vegetables, tarte Tatin with maple ice cream, raspberry macarons, and chocolate "Rocher" lollipops with our espresso. (No photos, alas--I glanced around and nobody seemed to be taking any, so I guess it'd have been gauche).
Lausanne, on the Lake Geneva shoreline, is gorgeous. At these prices, it had better be. The hotel is beautiful, elegant and wildly overpriced for what you get--the only lagniappe is the free bottled still and sparkling water in the room (but in glass bottles so you can't really take it with you). For over $500 American, you'd think you'd at least get chocolates on the pillow, especially in Switzerland. No soap--well, I take that back. Bulgari tea-rose hand soap. (But only one bar for the entire stay). And that vaunted Jacuzzi, with the 42 jets? Never did get to use it: the tub was so deep & high I could barely get one leg over the side--only to find the floor of the tub was uncoated, with no rubber mat available. No grab bars except for the washcloth holder. The contoured glass shower-surround only extended halfway along the tub--and stopped at the deepest part, where the movable showerhead was located. Not just that, the gasket leaked and within 5 seconds the floor was soaked. So I had to lean over the tub to wash myself and my hair (and the only way to rinse myself off was to keep soaking a washcloth and dry off--leaving shower-gel residue (at least it, too, smells like tea roses). And--get this--only 2 each hand towels, bath towels, and washcloths. (Nice robe, but never used it because I never had to meet room service at the door). I hope I can intercept the AmEx bill before Bob does. I hate to knock stars off my upcoming TripAdvisor review, buuuuuut...... I think one of the reasons this town is so expensive is that after tourism, its main export is high-tech (especially medical equipment); as a result, most people who don't come here on holiday are either tech moguls or their companies.
And the hits just keep on coming. We are supposed to leave for Paris tomorrow noon on the TGV (bullet train). Guess what started all over France this afternoon and will last till 4 am Friday? Yup--a general strike: airlines, airports, air traffic control, baggage handlers. porters, the Metro, SNCF, museums and maybe even taxis. Uber? Paris outlawed it after cabbies protested, burned tires in the streets, and snarled traffic all over the area. We are told TGV service, since it has a different union, will be only "mildly delayed," but perhaps detoured.
At least the weather's perfect. Here's some of the scenery, yesterday into today:
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Hope you had a Crazy-Happy Birthday, Molly!
Welcome, CJ. Here's to obliterating Lenny so thoroughly they'll barely be able to find what's left of him to cut out.
Rleepac, here are some virtual icepacks and happy drugs to ease that pain.
Well, folks, never a dull moment here in Euro-CrazyTown (Alpine branch office). Turns out those on the 5:15 and 7:30 flights took off two hours late--when they landed, they found the coach they'd hired never arrived so they all had to take the train and taxis--and stumbled into the lobby around midnight (when my traveling companion & I were already fast asleep in our rooms). The breakfast buffet is sumptuous, and we've been told it's included in our room rate. (It will set back other guests fifty Swiss smackers a pop). Eggs any way we want them (I passed on the caviar because of the uncharge), fruits, breads & pastries, fresh juices, charcuterie, local cheeses, veal sausages, salads, etc. Even an entire leg of jamon Iberico, with a slicing knife for us to serve ourselves. (The stuff is $18 for 2 oz. back home....if you can find it). Yesterday's sessions at Phillip Morris Int'l didn't start till after 1 pm, so no need for lunch. They had all manner of pastries, fruits and (duh) chocolates for the coffee break--and two baristas cranking out all manner of espresso drinks. Last night I was still a bit too full for dinner, so I had a nibble from my candy & cookie stash and met my friends at the downstairs bar for drinks. (Their law firms picked up the tab--good thing, as two glasses of champagne cost nearly as much as two bottles back home).
Wrapped up the Diversity & Inclusion Conference today, and it was truly fascinating. Of all the Chi. Bar Assn. CLE trips I've taken thus far, this was by far the best in terms of content. We had representatives from all over Europe, the UK, the US and even the UN, and it was truly eye-opening how far we in the law-biz and business & society in general have yet to go in terms of diversity and inclusion. It's not just race, gender, ethnicity and LGBT--it's also age (especially elders) and disability. Met some delightful (yet frighteningly impressive) people and came away with a motivation to do more with my law license--pro bono activism. Anyway, they fed us coffee-and-nosh breaks, a huge lunch buffet (Middle Eastern mezze--including falafel and dolmades--mushroom tom yum soup, salads, roast beef, veggies, breads, and mini creme brûlées and fruit tarts) and a farewell dinner. The dinner was at another hotel about 3 km away--most of it uphill. (My Fitbit was happy, though my quads were screaming and my "personal summer," courtesy of Femara, was cranking into overdrive). Dinner was squash bisque topped with chestnut foam, northern sea bass with polenta, a deliciously moist Bresse chicken breast with root vegetables, tarte Tatin with maple ice cream, raspberry macarons, and chocolate "Rocher" lollipops with our espresso. (No photos, alas--I glanced around and nobody seemed to be taking any, so I guess it'd have been gauche).
Lausanne, on the Lake Geneva shoreline, is gorgeous. At these prices, it had better be. The hotel is beautiful, elegant and wildly overpriced for what you get--the only lagniappe is the free bottled still and sparkling water in the room (but in glass bottles so you can't really take it with you). For over $500 American, you'd think you'd at least get chocolates on the pillow, especially in Switzerland. No soap--well, I take that back. Bulgari tea-rose hand soap. (But only one bar for the entire stay). And that vaunted Jacuzzi, with the 42 jets? Never did get to use it: the tub was so deep & high I could barely get one leg over the side--only to find the floor of the tub was uncoated, with no rubber mat available. No grab bars except for the washcloth holder. The contoured glass shower-surround only extended halfway along the tub--and stopped at the deepest part, where the movable showerhead was located. Not just that, the gasket leaked and within 5 seconds the floor was soaked. So I had to lean over the tub to wash myself and my hair (and the only way to rinse myself off was to keep soaking a washcloth and dry off--leaving shower-gel residue (at least it, too, smells like tea roses). And--get this--only 2 each hand towels, bath towels, and washcloths. (Nice robe, but never used it because I never had to meet room service at the door). I hope I can intercept the AmEx bill before Bob does. I hate to knock stars off my upcoming TripAdvisor review, buuuuuut...... I think one of the reasons this town is so expensive is that after tourism, its main export is high-tech (especially medical equipment); as a result, most people who don't come here on holiday are either tech moguls or their companies.
And the hits just keep on coming. We are supposed to leave for Paris tomorrow noon on the TGV (bullet train). Guess what started all over France this afternoon and will last till 4 am Friday? Yup--a general strike: airlines, airports, air traffic control, baggage handlers. porters, the Metro, SNCF, museums and maybe even taxis. Uber? Paris outlawed it after cabbies protested, burned tires in the streets, and snarled traffic all over the area. We are told TGV service, since it has a different union, will be only "mildly delayed," but perhaps detoured.
At least the weather's perfect. Here's some of the scenery, yesterday into today:
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I've been off-line for too long to even try to catch up. I've been sick for 6 weeks and seen many doctors, tests, ambulance trip to big city, and more doctors and tests. Today I got a nice dx: orthostatic hypotension. Sounded spot on. Then we get home to find a phone message from the dr I had just visited saying he's thinking I might have blood clots in my lungs! Knocked my socks off!!!!! He says it's serious and wants me to check in with him on Friday. Crazy Town waiting now in full swing. Be back when I can collect my wits. Jan
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Jan (( Hugs)) .. So sorry you are going through this. In your pocket for your doctors visit Friday.
Sandy.. The scenery looks perfect as well as the weather !!
We have visitors coming tomorrow for the day.. Seeing they are "real visitors" ( versus family visitors..HaHa ) we are madly trying to clean, cook and tidy the garden. :-)
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Jan, how frightening. I hope the silver lining is real progress towards recovery at last. <<hugs>>
CJSharma, welcome to C-town, where all the best people--and their assorted lumps, bumps and etc.--hang out.
Rleepac, oh, yikes. Oh oh oh that sounds tough.
Sandy, never have I been so sure that the entire population of C-town is in a pocket. That chocolate was delicious!
Goodnight, crazies!
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As the Official CrazyTown Bouncer, I hereby officially BOUNCE Lenny!!! He is not permitted anywhere in the vicinity anytime ever!!!
Jan, oh no! Talk about crazy making! Sending hugs!!! We are in your pocket! You have my email, so email if you need anything. (((Jan)))).
Sandy, sorry about the tub. You deserved it! Having it so close and yet so inaccessible would have made me crazy...but at least there was chocolate. Thanks for the beautiful pics.
rleepac, hope you stop hurting soon!
Lucy: let's make a pact that we will be 'family' if we ever get to visit each other in person. I hate that rush to clean before guests...
Sending love and hugs to all!
I am feeling a bit better tonight. at least the crud seems to have passed by, though the blues want to hang on. Looking forward to a quiet weekend.
xoxox
Octogirl
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((hugs)) Jan. I hope they figure this out quickly. My younger(athletic) brother had clots in his lungs; his surgery was quickly (but not urgently) scheduled. He recovered quite well and they never returned.
Lucy, Oh my. That frenzy before guests arrive! I do the same thing. Since I can't do as much as I used to do.... my fixer upper house hasn't had much fixing up lately. There is stuff everywhere, but the house is clean. Well, cleanish!
Sandy, I love your description. I wish you the best on the Paris leg of your trip. The strike sounds like it will be quite disruptive.
Octo, I love the idea that we can all be family. I know I don't want people scurrying around cleaning before I arrive. My judgmental MiL has driven me to madly pick clutter up when I hear her driving up our driveway!
My DH commented that he wants to sell our house in about 3 years. For some crazy reason, I started tearing up and shaking. I got so upset, which led to a wonderful hot flash. The hot flash was so intense, that I went outside even though it was raining. I had a crazy reaction to this topic. The plan when we bought this house was to raise the kids here, then downsize once they are out of the house. Well, in 2 years we should have only one son still living here. About the only explanation I can come up with for my reaction is that selling the house would be clearly be a sign that the child rearing stage of our life is over. Lots of memories were made here.
Oh crap! Another hot flash. I'm so tired of them.
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Hi Crazies,
First of 5 treatments done..thank you for being in my pocket. .you sure helped a girl get through a long day. As I've read here and other threads that not much happens after the first treatment. .as far as SE goes. . that seems to be true with me as well...thankfully. I'm drinking as much water as I can and resting without guilt..kinda sorta.
My thoughts are with those who are having a tough week. Hang in there. ..we're here for you!
Hope everyone has a great day! The weekend is just around the corner. .Woohooo!
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Poppy - Hot Flash my bum! Those things are liking taking a trip to the sun to bake! I fortunately only get them at night, but holy crap!!
Lenny gets to meet the chemo ninja's for the first time today. I hope he takes the hint! I slept like crap, but on well. I figure I don't have to think too much.
Hope everyone has a moment of pure light and sunshine today. We all need one. Group HUG!
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CJ, welcome!! I will be in your Lenny kicking pocket today. Sandy, what a crazy trip you are having, lol and feel bad for you at the same time because you are such a great story teller. Octogirl, glad you are feeling better. PoppyK, I understand about the empty nest fear. Maybe you will be like me and then stay far into adulthood. I actually look forward to the day they all have their own lives even though I will miss the activity.
Okay this is my CT confession. I feel lousy. I never had chemo but I have chemo brain probably from the lack of estrogen but I am terrified it's actually the beginning of Alzheimers. I don't even say that out loud I am so scared. I decided last night after some scary and not fun symptoms that I am giving myself a anastrozole vacation. I will drop MO an email but he doesn't get a choice. I called DH on the way to work yesterday after pulling off the freeway because I was afraid that I was having a stroke or heart attack. I have dizziness, now random muscle pain in first my right arm and then the left. I have palpitations and this cough has been sticking around for 4 weeks now. Add the crappy feeling that follows me everywhere and the memory problems and I need to see if they resolve off the meds. Otherwise I will be parking my tush permanently in the rabbit hole under the CT tree. I also broke down and used 1/2 gram of Estrace a couple nights ago because I was desperate for relief from the dryness and pain. I don't usually curse but I fuckin hate breast cancer.
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Molly, you may have seen this on the AI board, but at MO's suggestion I am on a month long Arimidex vacation too: to help figure out if it is the Arimidex making my knees so much worse, or the arthritis. (If the former, MO will switch me to another AI to try; if the latter, knee replacement here I come!). I worry about taking a break but it has been helpful, although the relief for knee pain hasn't been as much as I'd like (so duh, the answer is: it is both the Arimidex and arthritis. For some reason that is harder to deal with).
So, I think a break to see if it helps is a good idea, though of course you should tell your doc about the other symptoms. but it all is crazy making....I am sorry that you are so scared......there is a chair and a latte with ativan sprinkles just waiting for you on the porch!
The crappy feeling won't leave me alone either. So, I know what you are feeling. and you have a lot of additional stresses in your life (as do we all, but you may have more than your share) .... that probably doesn't help. I am sorry. Sending ((((HUGS)))).
Off to work today for the first time in a few days. Definitely want to retire! I have the feeling I may have been one of those giving advice to Poppy about going back to work without realizing it....I don't hate my job, and sometimes I even love it, and it pays well with some nice perks (did I mention that I am going to Mexico City for work the end of next month?) but honestly there are so many days when I think: 'this is not what is important to me any more. It is a lot of well, WORK, and at my age and with the bc who knows how much time I have left. I want to PLAY. If I wasn't working I could head back to LA to spend more time with DGD and DGS, because what is more important than a day at the beach with the grands?' (And while I was there I could swing by and give Molly a hug because she probably could use one...). Post bc, my priorities are changing....
Hugs to all
Octogirl
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Fowlertee, here is my two cents. Drink smart water or some kind of water with added electrolytes. Chemo messes with them, and if you drink a lot of plain water, it can also flush them out, magnesium, potassium, etc. I have heard Gatorade or energy sports drink help too. Even with all I did, my potassium tanked and I had to take horse pills for a week, prescription strength. Stay on top of gut burning if you get it, take Pepcid ac or something similar. On our March 2015 chemo forum, we used coconut oil for everything, butt, rashes, mouth sores, everything. I used magnesium for pooping, it really helped. You definitely do not want to get constipated.mi have a whole list of tricks, if you want them pm me and I will send you a list.
Molly50, I have had lots of discussions with my husband about "chemo brain", and I think a percentage of it is the worry and distraction of the cancer diagnosis. I say this because even though you did not have chemo, you are going through one of the most stressful times in your life, and anxiety over it can affect you in all kinds of strange ways. Before my breast MRI, I started gasping for breath, I get this thing once in awhile called free floating anxiety, and I was convinced it was lung mets. Once I got my results, the gasping for breath stopped.
Big hugs.
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Molly - I did not have the severity of AI side effects you describe, but I did feel like I was not functioning, which in turn made me very anxious, depressed and despairing. I took a break from the Arimidex, and felt better. They switched me to Aromasin, which I'm tolerating much better. I still have some aches and pains, and stare into the void on the daily, but nothing like the Arimidex.
It seems like a break is what you need right now. Your MO will probably be more than okay with that. We are all here with you.
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I see many are struggling here today. I just want to extend a group hug to all.
I'm so glad we draw strength from each other on this thread. You are all amazing women.
I apologize for being behind. I'm watching my DD's dog while she goes to Japan. I must say, he is exhausting!!! I watched him on her last trip and I said, "Never again." hahahaha However, I couldn't stand the thought of a blind, needy dog being boarded with strangers. Hopefully I can maintain my sanity!!
Love you all...quiet crazies too!!
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hey all woke up with level 10 back pain like hard to stand to brush teeth
Did manage to crawl into gym, did little be and then 6 lengths in the pool, not much but back a bit better when combined with lots of steam
Ready to call about shots on monday if this does not improve
Need to talk to pt guy in the morning
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