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CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.

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Comments

  • Lucy55
    Lucy55 Member Posts: 2,703
    edited July 2016

    Twinnie... In your pocket for your scan.. Sending love, hugs and prayers. X


  • rainnyc
    rainnyc Member Posts: 801
    edited July 2016

    Iris, fantastic news about the mammo! Enjoy the ice cream; I think you need some for breakfast, too!

    Beppy, jumping in the pocket with Lucy!

    Temperature heading up to the 90s this afternoon, extremely humid. Not my favorite weather. Stay cool, everyone!

  • Molly50
    Molly50 Member Posts: 3,008
    edited July 2016

    I am jumping in your pocket too, Beppy

  • shorfi
    shorfi Member Posts: 437
    edited July 2016

    Iris...so very happy that you received such wonderful news Winking

  • proudtospin
    proudtospin Member Posts: 4,671
    edited July 2016

    thanks for the good wishes re my mamo, been so focused on back junk that the mamo was in the back of mind

    Just spoke to scheduler for a nuerosurgeon, just insurance confirm. Waiting on a call from other nuerosurgeon who was referred to me by a pal

    Getting ducks lined up as my leg weakness is scarey

    Way hot around here and air quality is dreadful


  • duckyb1
    duckyb1 Member Posts: 9,646
    edited July 2016

    Proud I was suppose to make a Neuro appt last Oct after my global amnesia episode.......did make one and went to the wrong office......so annoyed have not made another one........."like who am I punishing for that error, other then me".............

    Just another thing I have to do......plus Derm, pulmonary Dr.........etc........one of these days right.......

    Really hot here in Margate......and this is a shore point........city I heard is really bad back home........the beach yesterday was really hot........little air......not going today..........can't sit there all day.........drives me nuts.........when I was young.................absolutely.......not anymore.........this old body and skin can't handle it......LOL.......

  • pennsygal
    pennsygal Member Posts: 264
    edited July 2016

    Iris - congrats on the mammo!!

    Slow - make some more room in your pocket!!!

  • gmafoley
    gmafoley Member Posts: 5,978
    edited July 2016

    I'm in everbody's pocket! I love pocket parties they are so fun.. All the bad things we can imagine to eat.. But in real life everything stays crazy and worrisome it seems.. Sending all of you hugs and putting 2 pictures of the trail I got to walk on my granddaughter even though I am still recovering from the 2.5 miles trek.. Just breathe and enjoy.

    image

    image

  • octogirl
    octogirl Member Posts: 2,434
    edited July 2016

    Slow, pocket party in process!

    So, I had two instances this week that really reminded me that I am in Crazy Town, even though I try to deny it. After all, while I am not a scientist, I spend most of my working day with scientists, and thus I like to think of myself as a logical, methodical person who isn't prone to emotional ups and downs...hahahaha! Who am I kidding?

    Instance/issue number one: went clothes shopping the other day. I am not big on shopping and don't do it often, partly because I live fairly far from any good stores,...but hubby and I happened to be near a nice Macy's and Nordstrom, and I needed something new for an event I was going to...so shop we did. And as I was trying on outfits, I realized to my amazement that I have dropped a pants size!

    Now, one would think a drop in pants size would be cause for a party, right? Not for this crazy gal....you see, I haven't lost weight at all. So immediately: my thoughts went to Crazy Town: how could this be if I am not losing weight? could there be a hidden, heavy tumor somewhere? Is my body trying to tell me something? What is going on; something must be wrong?....But then I mentioned it to one of my sisters, who shops more than I do, and she reminded me that women's clothes tend to be getting larger...and maybe I just hadn't noticed that because I never shop...ok, not as nice as thinking maybe I did somehow magically lose inches without losing pounds....but better than hidden tumor weight weighing me down...So you see: when one is in crazy town even nice little events can be turned into something that makes one crazy.

    Instance/issue number two: and this one perhaps more of you can relate to: had my one year post dx mammogram today. A diagnostic one, 3-D, per MO's orders. Didn't mention here because I wanted to pretend it was no big deal...but then I got into the place (same place as my original biopsy etc.) and the bad memories came flooding back...they told me when they checked me in that I would get results from radiologist before I left...ack wasn't expecting that! So I decided I needed extra luck, and picked the locker with the key wristband in my favorite color...(purple)....did deep breathing...then while I was waiting looked down at my wrist band and realized somehow I had picked one that was dark grey not purple (poor vision, does me in every time)....and burst into tears: was it a sign of bad luck to come that I couldn't even get my good luck charm right? and then after the test, of course I had to sit and wait FOREVER while they 'had the radiologist look to see if any more pictures or anything else is needed'....that was the craziest fifteen minutes that seemed like fifteen hours in a long, long time. I felt really silly that I was so crazed over a test I knew was likely to be fine...and actually, when I think of some of the tests and scans some of you are facing, I felt a bit weak that I couldn't be stronger....I kept imagining you all in my pockets and wishing I had asked you to be...

    anyway, I am happy to report that despite my lesson in humility, the mammogram came back ALL CLEAR!!! WOOHOO!!!

    See MO on Monday to discuss the femara and what to do about it. Onward...

    Sending Love to all the Crazies.

    Octogirl


  • JAN69
    JAN69 Member Posts: 731
    edited July 2016

    Octo, Loose-pant cancer? Interesting. Mammo worries are so upsetting. Happy Dance for all clear. I lost my all time favorite navy blue chino pants on my trip. Hotel says they don't have them, but I swear I wore them into hotel. I've spent hours on internet today looking for a replacement. No luck.

    GMA, That is one beautiful place to walk! especially with a grandchild.

    Ducky, Sorry the shore is so hot, but I'm sure you are having a good time with family.

    Iris, Happy Dance party for you, too.

    ChiSandy, A skybox. Now that must have been a fun time!

    So glad Beppy had a good pocket party today.

    Hello and hugs to all, Jan

  • queenmomcat
    queenmomcat Member Posts: 2,020
    edited July 2016

    Octogirl: totally with you on the firestorm of tears after realizing you didn't get your good luck charm color. We're all in CrazyTown here. As for going down a pants size, I'd guess one of two possibilities, possibly both: 1) the difference in sizing between different department stores and/or 2) you're getting more exercise now?

  • Molly50
    Molly50 Member Posts: 3,008
    edited July 2016

    Octogirl, that's how I felt during my mammogram and everything was fine. Glad you are through with this phase!

  • chisandy
    chisandy Member Posts: 11,414
    edited July 2016

    Octo, mazel tov on the mammo. As to women’s clothes sizing, I can definitely confirm that the standards have changed (some marketing genius must have realized that if a woman tries something on that fits but the tag says it’s a size smaller than she’d been wearing, she’s likelier to feel great about it and buy it). When I was in college, we had a designer-cut-out store (Joyce Leslie) at the “Junction” near campus. Current-season clothing from regular dep’t stores (Macy’s, Gimbel’s, A&S, Orbach’s, etc.) at deep discounts, but with the labels snipped out. Nonetheless, it was easy to tell from certain details what brand some of the clothes were. I had just gone on Weight Watchers because I felt fat at 134 lbs. (I’d kill to weigh that now). I had bought a couple of what were obviously Izod polo-knit dresses....and they were size 14! Today, that would probably be a size 2 or 4. I watch a lot of Amy Schumer on TV, and find it refreshing that she is proudly zaftig (my guess is that she’s at least 150, for which I’d also kill). Then, I read an interview in which she said she is a size 6! I went through my closets & racks, and found stuff from size 2 all the way up to 18. (Two years ago, I gave away all my 20s, 22s and 3Xs--and most of my 2Xs; now I’m getting nervous again, thanks to letrozole. But everything smaller than 14 is going to Goodwill too--even if I could fit into them, most of them are no longer age-appropriate or fashionable).

  • Molly50
    Molly50 Member Posts: 3,008
    edited July 2016

    My pants are suddenly loose and I still weigh the same. I think the AI's change how the fat is distributed because my waist is pretty solid now and my legs and hips smaller.

  • chisandy
    chisandy Member Posts: 11,414
    edited July 2016

    Ture, Molly. I’d always been pear-shaped till about 5 years ago; I can’t get rid of this belly but now my twerk don’t work. I wear a size bigger in blouses & jackets than I do in pants, the exact opposite of 10 years ago.

    But there is still some “down-labeling” going on. At my thinnest after postpartum-depression-induced anorexia, I was 112 lbs., and wore a size 6. I recall my first trip to L.A. then included the Universal tour; when the tram rode through Wardrobe, the tourguide mentioned that on TV shows shot there, actresses had to be size 6, because that was the size in which every women’s clothing item was stocked. 10 yrs. later, I took the Warner Bros. tour.....and the size was 4. Now it’s size 2 or even 0. (Not Chico’s numbers, either).

  • pennsygal
    pennsygal Member Posts: 264
    edited July 2016

    I agree about the sizing for women's clothes. I think there is a lot of vanity sizing going on - maybe it follows the wedding dress trend. I have clothes in my closet that are a size 4, and a 14, and they fit. It seems particularly f*cked up when it comes to stores that market to young girls, teens and young women. Do they really need the distinction between 00 and 000? My friend's daughter was distraught when she could no longer fit into 000, and she is a healthy, active girl.

    Octo, congrats on the clean mammo. I, too, would have freaked over the gray vs. purple. Mine is coming up in August, and I'm already dreading it, mostly because I think it is going to hurt on the bc side. When the NP did my breast exam on Wednesday, I was practically jumping off the table. I guess the bright spot is not having to go home and wait - diagnostic is a godsend.

  • rainnyc
    rainnyc Member Posts: 801
    edited July 2016

    Octo, woo-hoo on the clear mammo! I think for those of us who are survivors of BC-related PTSD (and who among us are not, really?), these triggers are just to be expected. You never know when something will catch you and bring it all back.

    As for sizing, it's a mix, I suspect. I take a smaller size at Old Navy--marketed to a younger audience--than at JJill--marketed to women of, erm, more of a certain age. But when you posted, I immediately thought that you've been fairly active, with a diving vacation and lots of walking, and wondered if you were just in better shape than you'd thought, which doesn't necessarily mean weight loss.

    GmaFoley, what beautiful pictures of your walk!

    Sposed to be in the 90s today. Forecast: lots of complaining about the weather. Brutal.

  • octogirl
    octogirl Member Posts: 2,434
    edited July 2016

    Hi again all:

    Thanks for the encouragement that I am not totally crazy, or at least among friends if I am...and while I appreciate the vote of confidence that perhaps I am in better shape than I realize (since it is true that muscle can weigh more than fat), alas, no, despite the relatively recent dive vacation: that ()%*)(#*$)($* burn on the bottom of my foot had me not walking for a month, and not swimming either due to infection concern. Just healed the last week or two. Going to start swimming again next week, yay! But Molly, you could be on to something with change in where the body fat was located....that thought had occurred to me. Though it could indeed be marketing: and yes, of course I bought the pants that were a 'size too small': they were nice, they were on sale and they were a 'size' less than my normal. Who could resist?

    Pennsy, I was worried about the mammo hurting on the bc side. Took two advil 1.5 hours before the apt., which is a tip I read on these boards somewhere. Don't know if that helped but it wasn't bad at all: a little uncomfortable on both sides, but not really painful. I did notice that the bc side had shooting pains for about an hour afterwards, however. All good today, though.

    Hope all have a good day. TGIF!

    Octogirl

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited July 2016
    I just found this out this morning..........Our beloved Blondie has passed away, and is now one of our "Angels"............we loved her so much and she was our inspiration.....she fought the good fight for many, many, years, long before so many of us...............

    My heart and I know yours goes out to her family......she was a special woman, and will always be remembered, and never forgotten.......Rest well my dear friend.........
  • duckyb1
    duckyb1 Member Posts: 9,646
    edited July 2016

    I have sent her family a message on behalf of all you wonderful ladies who knew her no loved her........

  • Molly50
    Molly50 Member Posts: 3,008
    edited July 2016

    Oh no, I am so sad about Blondie. I am grateful our Beppy got to visit with her. Thanks so much for letting us know, ducky.

  • proudtospin
    proudtospin Member Posts: 4,671
    edited July 2016

    I remember Blondie although I did not know her much

    Stinks

    Scared today about what will be seen with nuerosurgeon, called the old droc to get some copies of reports, geez they tried to say it would take 15 days but did finally agree to having them for me on monday

    Dr Google has put some nasty ideas about stuff it could be




  • wam
    wam Member Posts: 98
    edited July 2016

    I followed Blondie through alot of threads. I am so sorry she passed. I hope she was with her family like she wanted. She has a certain optimism and grace that won't be forgotten.

  • gmafoley
    gmafoley Member Posts: 5,978
    edited July 2016

    Oh no, how did I miss that! Sad I made Blondie a few chemo scarves for her. She was a wonderful person..

  • gmafoley
    gmafoley Member Posts: 5,978
    edited July 2016

    Thought we might need a cheer up picture - if you find it unfitting let me know and I will delete it..

    image

  • PoppyK
    PoppyK Member Posts: 1,275
    edited July 2016

    Octogirl, it's amazing how cancer can send a strong, educated, capable woman into a spiral! I went into my first post treatment mammogram knowing that I would be OK. Then I didn't pass my mammogram! I kept it together until I walked out of the building then I ugly cried all the way to my car. I'm thankful the subsequent ultrasound only had benign findings. I am so glad you received good results… Even though the process is difficult.

    Iris, ((hugs)) Google is not our friend while we are waiting for appointments and /or results. 🙃

    Ducky, thank you for including us in the message to Blondie's family. She was such a blessing to me.😭

  • proudtospin
    proudtospin Member Posts: 4,671
    edited July 2016

    I know to not focus on dr Internet shit now but I keep looking up info on docs to figure if i am on the right track, hey, got the appt on tuesday

  • gmafoley
    gmafoley Member Posts: 5,978
    edited July 2016

    Iris I'm praying all goes well.

  • PoppyK
    PoppyK Member Posts: 1,275
    edited July 2016

    Iris, I know you know the power to Google! 😊 Too bad it doesn't have a special filter to get rid of all the pseudoscience, and let through only the information that will help us be informed patients. I hope you don't think I was being critical. That was not my intention.

  • proudtospin
    proudtospin Member Posts: 4,671
    edited July 2016

    not a bit poppy, you were just being a pal

    I just hate surgery and think there is no other solution