CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Jumping into your very crowded pocket, Beppy!
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Well, I don't post often, but try to keep up. Mostly a quiet crazy, but crazy none-the-less. Tomboy, I love your dolphin analogy. I'm amazed at the love and caring in this group. Next time you So-Cal crazies meet, I want to come. I'm just a couple hours away. I want to add my good thoughts and prayers for the mayor. And my concern for Katy, has anyone heard from her?
ChiSandy, just got back from 3 weeks in Illinois and Wisconsin spending quality time with the grands. Daughters live in Elgin and South Elgin. Took the train into the city one day to The Field Museum, caught the terra cotta warrior exhibit - pretty awesome.
Sending love to all crazies, especially our mayor, and friends of Blondie.
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Saw the terra cotta warriors when I was in Xi’an 22 years ago--breathtaking. An entire underground village of them.
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Twinnie.. (( Hugs.))
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Welcome Esmeralda! I agree! This is a fantastic group!
My understanding is that Katy is taking a little time away from the board. I know she's keeping in touch with our mayor, Beppy.
I just got a text from Beppy. She's home and resting comfortably
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Hooray!! Thank you for the update, Poppy!! Welcome Esmeralda!
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Welcome......can I call you Essy............Hi Essy......your gonna love it here.............
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going to nuerosurgeon today, yesterday picked up copies of tests from spine doc who ordered all the mriri and told me it was vital for me to see a nuerosurgeon
Questioning him as he told me I had nueropathy in my feet after I went to a podiatrist who confirmed it, guess what, his written report says no sign of nueropathy! Having a lack of confidence i the jerk, gonna see what happens today and do have a second opinion lined up
Oh well, onward
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Good luck with the neurosurgeon today, Iris! Keep us posted. Ducky, I like that. You can call me Essy! ChiSandy, I would love to go to China to see that army. Tomboy, can you tell me thr name of that book. Sounds like a good one. Glad our mayor is home resting comfortably. WE miss you Katy, come back when you can. Love and hugs to all crazies!
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Essy...welcome to CT. The women here are marvelous and very encouraging.
Iris...hope everything goes well with your appointment today. Don't you just hate the discrepancies on reports???
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Beppy, I hope you are comfortable today! Crazies, we have been reading a crazy book--as my grandmother would have said, crazy like a fox--and enjoying it very much. It's the autobiography of the actor/comedian Marty Feldman, titled eYe Marty. It's an unedited, unfiltered account of someone who had many challenges en route to his success, lived life to the fullest before he died in his 40s of a heart attack. And it's a love story, about a marriage that sounds real and true and durable. So, take that for what it's worth!
We were very lucky and got to go to China 10 years ago when my DH had some work there. Terracotta warriors for your enjoyment below. We traveled during the height of Harry Potter bestsellerdom. To our western ears, the native Mandarin-speaking tour guides sounded as if they were saying "Harry Potter warriors." It is an extraordinary sight, if you ever get to go!
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Essy.. Welcome.!!
Twinnie.. Thinking of you, and hope you're feeling O.K.!!
Rainny.. We spent nearly 4 weeks in China about 5 years ago, and loved it !! The Terracotta Warriors were amazing.!! We did the Yangtze River Cruise as part of our tour which we really enjoyed..
PTS...Ugh !!! Unbelievable !! He definitely needs a vote of no confidence !!
It's 4.20 am here.. Had a terrible nights sleep.. and my mind has been heading me towards Crazy Town :-( Am waiting for the sun to come up so I can head to the beach.. it always makes me feel better!
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Iris, Shesh... that discrepancy makes me so angry! Hope the appointment goes well and the doc turns out to be great.
I wish could travel more than I do. My son is taking an art history/appreciation class this summer. I think I've spent more time reading his textbook than he has! He has a quarter project on a pre 1400 piece of art. He's considering something from Asia and the first thing that popped into his mind was the terra cotta warriors.
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well , back from new doc, i like him but they do not have answer to the weakness in my legs
On to more testing and adding another doc to my list
Least he agreed with the comments by the nuero guy, the one who scampered off to cali
But feel better as i think I may have a team
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Oh, Iris... more tests. Hope you get some answers soon.
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((((((((((((Iris))))))))))) Glad you found a doc you like. I love those Harry Potter soldiers, lol!! That is awesome. Next Friday is coming much too quickly and yet not soon enough. I want this surgery, dread this surgery and work is sooooooooo darn busy. I do NOT look forward to dealing with yet another TE. I am trying to look beyond this stage to my exchange surgery instead.
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Molly... Oh.. I know that want /dread feeling so well !! It really messes with the mind.!!! .. (( Hugs ))
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((((Molly))))
I had a MO apt yesterday; talked about the Femara. Also going to see ortho person, but bottom line: being on break from Femara has helped some, but as much as I would like. So, I am going to go back on the Femara. MO's next option to consider was Tamoxifen, and I really didn't want that (can't really explain why, just how I feel, so there), but I just don't feel that there is enough relief from the pain and stiffness to make the risk of giving up AIs worth it, at least for now.
So I started back on the Femara today. already feeling shooting pains in thumbs and knees and hip. So, texting is hard, but so far walking isn't any harder. Starting to think that arthritis may be made worse by AIs but is really the biggest problem. I hate the stiffness more than the pain. New knee in my future? Starting to get the want/dread thing you are talking about Molly....
Iris, sorry you don't have more answers but glad you feel more like you have a team! You deserve some answers! hang in there!
Lucy, sorry you are in CrazyTown but glad you have the beach nearby. I wish I had one near me, but will think of yours when I need one!
Hugs to all!
Octogirl
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To all who loved Blondie, you have my heartfelt sympathies.
Echelon is a perfect analogy! Thank you Tomboy! Beautiful as you all are.
Slow/Beppy always in my heart. Love to you Sweet Mayor.
My next step: Cognitive Behavioral Therapy
My intake appointment was this morning I start next week I am hopeful that it will make my self-talker a bit kinder.
Weight: starting PiYo and a clean eating program with Shakeology. My LE therapist is my coach and one of my former oncology nurses is a coach also The program is through BeachBody. My closet is a lot like Sandy's. Size 6 - 18.... My anorexia, had been in check for over 20 years, but is back with a vengeance. The difference is I am fighting myself this time and holding out hope for this program. The only other way I know how to efficiently lose weight cannot be an option. The CBT I will be attending is also useful for anorexia, addiction, PTSD etc...
Hopeful at the moment Quietly!
Love you all!
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Robin, it is always good to hear from you,and that sounds like a good program. I will have to check it out. I have been on an ice cream diet, it's so hot. I eat an ice cream bar after i've been up for a few hours, and then i don't really eat anything till late dinner, around eight. The pounds are melting off. I also haven't taken tamoxifen since summer solstice, and I finally feel mentally like myself. The pain has only backed off a little, but I know when I stopped it before, it was like five months before I felt better, pain wise. Added to that, I did something to my back. Something pretty bad,like dislodging a rib. When I told my pain doc what I did, he said it sounds like "slipping rib syndrome". When I looked it up, everything fell into place. It really does seem like that might be what it is, or something closely related to it, called Teitze syndrome, or psoriatic arthritis. I do have a resistant rash on my left fore arm and hand that just really won't go away, with different kinds of prescription ointments. I don't know.
I will get the name and author of the book for you, I don't know it, because I did something I rarely do: Amazon's 'recommended for you', when I finished my other one late at night. Kindle makes it just too easy now.
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Robin, so nice to hear from you. That sounds like very healthy change you are making but I must admit I really like Tomboy's diet (except I am lactose intolerant). Tomboy that sounds really painful! Octogirl, I know what you mean. I'm on a break from exemestane until after surgery and I am starting to not hurt as much. It's going to be hard but necessary to start again.
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Molly - the mix of anticipatory emotions you describe is awful and crazy-making. Thinking of you and hoping you find some peace.
The addition of Fosamax to Femara is a real challenge. Yesterday my big toe joint kept feeling like it would break if I stepped on it too hard. Ugh!!
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AIs suck, and that is all I will say about that........been there done that, and even though I'm 81 I feel like 100........so tired of all the shit.......I am tired of being tired......all I want is my life back.......is it too much to ask for just wanting to be able to have even a small QOL day even a couple times a week.
Went to a Painting with a Twist session last night and had so much fun with my female family members......but.......I am short so I had to stand to paint a lot of the things on the canvas......stood, and then the (neuropathy feet) started to hurt bad.....by the time we were close to the end of the painting my (trigger fingers) began to lock up........and I kept dropping the brush........well after completing 99% of the painting the brush slipped out of my hand, and the brush hit the painting, and I got a dark brown dot on my blue sky of the beach scene.............are you f/n kidding me........the instructor fixed it for me.......then we had to write on the "sign posts" of the beach........well I tried, and got them done even though they looked like shit...............when my daughters/grandaughters came to look at it after finishing theirs.............I had spelled one of the shore points that I have gone to for 45 years "wrong"..........it was suppose to say ....N. Wildwood.............I put N. Wilwood..........and the printing looked like a 2 year old did it.....LOL......repainted the "sign posts", and came home with the painting not finished..............when I do finally get it done I will show it to you........LOL.........(like that is going to happen)..........
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QOL, I agree it would be nice not to walk like someone who is 90 at age 55 when I get up from a chair. I can move after about 5 minutes but I am still much slower. This after a two week break on exemestane.
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Molly...I can so identify with that want/dread feeling. But you are in my prayers for a successful procedure.
Tomboy...Waving at you.
Ducky...Sounds like a great time you had with the girls. I love your spirit. Yiou keep up with them all despite the aches and pains. I want to be like you when I grow up
Iris...Thinking about you all the time with the back issue and the weak legs. I can so relate. But there are other health issues I'm dealing with right now, so I will have to put the spinal stenosis on the back burner for a while. This stuff never seems to end...smh.
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Speak about keeping up........I went with my youngest daughter, and her daughter (my grandaughter Makayla age 15)......there were 4 other grandaughters with us too...........but they drove and I went with Nikki my daughter, and Makayla..........
When we left we were walking to the car.....as usual they all were way faster then I was......walked down the street behind them (heaven forbid anyone of them would thing to wait for me).........well they rounded the corner toward the parking lot, and when I finally rounded the corner they were almost at their cars........all I heard when one looked back was "yea she's coming"..............WTF.............so I finally catch up and my daughter from across the street (where we were parked), I hear say "are you ok Mom"........
I felt like yelling F all of you and a thoght went through my head..............who the F held everyone of your f/n hands when you could not walk, make it down a curb alone, or could not walk as fast as I could back then when your ass was still in diapers............
Just don't know what the hell goes through their heads...............or doesn't go through their heads....take your pick..........
Ok, I'm done.........LOL............
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Ducky, I am sorry. Been there. In fact, I went for a walk with hubby this am, and I had to remind him: I can't walk as fast as you. Either slow down or let's not say we are walking together. He really had a hard time slowing down. I think I need a new walking buddy! :-(
Octogirl
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((((((((Ducky)))))))))
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Octogirl - I so know that - being shorter than anyone else in the family - Even when I was walking with my granddaughter - she ask me if it was ok if she could go faster and meet me at the fork on the trail.. At least she ask me if it was ok.... Of course, I was taking pictures so I was using that as an excuse. Didn't tell them I couldn't walk that fast. I'm so used to getting left behind it is almost more enjoyable to walk alone :-/
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ducky, sure can relate on the slow walking
Shorfi, think this entire weak leg junk well, it is time to see if someone can figure out the problem
Dang but went to gym this am after not for a week so now, just parked on the sofa, dang feet hurt
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