CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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(((Blinkie))) It's just one thing after another, isn't it? I know I feel that way sometimes.
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Octo ...Thanks ..
Molly .. surgery date is the 17 th ..it's coming too fast or maybe too slow ..I am googling too much about it ..and starting to get very stressed ..!!
Blinkie ..So sorry you are going through all these test ..we are all there for you ..
Sandy ..One of my favourite past times id indulgence eating ...and to make matters worse my Hubby loves to bake. 😵
Cubbie ..yep ..One thing after another ..thats how I feel too ..
Beppy ..sending love and hugs x
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GmaFoley: coming in a little late, but another vote for "Keep the 'nuttogram' comment." Relayed the comment to DH. He laughed/winced sympathetically.
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gma what is it with some doctors? After you posted, I called and asked my surgeon for an ultrasound and she wrote the order, no problem, said it's a good idea to do. I go back and forth between surgeon and oncologist, and one of them will write the order I want. And if all else fails, I go to my primary care doctor who is an old school doctor that believes in minimizing stress to his patients. So if I freak out about something, he says okay, let's do something else, we will get the same result without causing you stress.
I've heard of too many misses with mammograms, a New York friend just had mammo and ultrasound and mammo showed nothing but ultrasound showed an area of change, which is benign thankfully.
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((((hugs for Blinkie)))) waiting for answers sucks :'
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I feel like shit. I am getting migraines daily, which I have not had since my hysterectomy in '99. I feel like I have a fever, but I do not. I have NO energy, I get out of bed to head to the couch and from the couch back to bed at night. I am also about to burst out of my skin. I am agitated and angry for no reason. I think I am done with the medication train bullshit. I am just so tired of feeling like crap. I was feeling fantastic and more like myself after stopping the tamoxifen. Now playing with the AI's my blood sugar is back on the rise, no change in diet, still on 21 Day Fix. I cannot keep pasting on fake smiles and trying to fake it til I make it. This freakin sucks.
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Robyn, that sounds like what the AIs did to me.. I finally said no more and stopped them. I don't know if I would have stopped them if I was stage III. I was on the edge of stage 2. It does suck and I just don't have anything to say but to send you big hugs. This is a good place to vent, cry and let all that anger out. You will feel better afterward.. Thank goodness we have this safe place to vent.
I just got a call verifying my Ultrasound on weds.?!?!?!?! - I thought the radiologist refused to do it? No one has told me otherwise. Hmmm. She said she would call me back if they changed it. Just wish they would get their rear in gear and talk to each other.
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I need strength right now..... I am getting so many calls trying to figure out what my "Problem" is for not doing a mammogram. Office called to confirm the appt - now my doctor office called to see what's up and why they don't want to do ultrasound. Waiting for calls back ... to see what is really going to happen. This really sucks. Are they thinking I will give in???? Not bloody likely!!!
Ok vent over thank you for being here.
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gma, i feel for you, i remember you as working hard for your surgery, Mano I only did small lumpies and know that that area still gets pain at times
Dang, seems I am now Told I do not have Ms! I guess I need to find a big teaching Hospital who can figure this out, that is what the little nuero guy is advising
I have an appt on Monday at weil Cornell ms center and think I will keep it just to get into system at big joint
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Iris, sounds like a good idea to me. Plus you will have a second opinion that way.
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Robin, that's just not the way to live.
Gma, I hope you have its all worked out. Iris, praying you get answers. 0 -
So far it's not.... Another call today - Place in town doesn't do whole breast ultrasound. Only mammogram and ultrasound if there is a lump. Secondly, they won't let my primary order the whole breast ultrasound, My MO has to order it and he sent me to my PS who sent me to my primary.. Get the picture. I'm ready to just tell them all where to go and take my chances. This shouldn't be that hard to do..
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So sorry Gma, that is one of the many reasons I fired my team. No one wanted to take responsibility for any part of my care. Kept getting bounced around. Entirely frustrating.
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robin....I am sick of the medication train too. I was just telling dh that I want a break from Femara. ((Hugs))
I am hesitant to tell MO about my problems because I don't want to try a new one. I'm sick of these medications. I tried Tamoxifen already, now Femara.
Anyway just wanted to commiserate with you💖
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gma - instead of a whole breast ultrasound, why not ask for an MRI? Sorry if I missed a post about why you're going for the whole breast US but it seems like you don't trust the mammo (which I don't either) but an MRI might be a better option. Just a thought?
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Hello Crazies. Tomorrow I am having two tests to help determine why I keep being short of breath. I am in the Crazy Town Waiting Room because I am fearful that it is radiation damage or lung mets. I know it might be unrelated to cancer. It might be an allergy or a completely different illness. But I am anxious. & breathless! haha.
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GMA ..Hope you can get this sorted soon ..seems crazy your doctor isn't allowed to request a full breast ultrasound .
Blinkie ..in your pocket for your tests tomorrow ..
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in your pocket, Blinkie. Gma, I sure hope you can find a place to do your US.
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Blinkie, hope it’s a simple explanation like allergy, asthma or a treatable infection like bronchitis. (Nobody wants those, but they beat the pants off lung mets). Hope it’s something that can be solved with an inhaler, nebulizer leukotriene inhibitor (Singulair) and/or an antibiotic. I never leave home without a rescue inhaler, and we have two nebulizer compressors (one battery-op), My son uses a combination inhaler (Symbicort—which has a long-acting bronchodilator and a steroid). Asthma is no fun, but it’s livable and manageable.
Have you had a stress EKG or echo to rule out a cardiac cause (also quite treatable)?
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In your pocket, Blinkie and Gma. Hoping for the best possible results.
And ((((hugs)))) for tangandchri and Robin, I am also so very weary of all the meds and SEs and test after test after test
Extra ((((hugs)))) for everybody else here, this bc "adventure" drains every ounce of energy
During the past 7 days I've had appointments with 1 doctor, twice with the lymfatherapist, gotten another Herceptin injection, had a bone film of my lower leg (that didn't explain the night pains but didn't show cancer, so I'll take it), had more blood tests, one call from the doctor with the results of my 24-hr Holter, and yesterday had an extremely painful colonoscopy (that also showed nothing that could explain the Big D I've had since May, so it probably IS the Herceptin ---- again, no cancer there, so I'll take it). Instead of feeling better and better since my last chemo right after last Christmas, I've been feeling weaker and more exhausted, both physically and mentally. But looking at the calendar just now I realized I don't have anything bc-related until my last (hopefully) Herceptin injection Nov. 4 ---- a whole 3 1/2 weeks!!! --- so am trying to focus on that. Made a last-minute decision to visit some out-of-town friends for the weekend; hoping that will help
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rleepac - After reconstruction/reduction my breast are just too painful to squash. I talked to my MO who told me to talk to my PS. I talked to my PS he said ultrasound was the best option if not doing mammo because MRIs are hard to get covered. But then he told me to talk to my Primary to order it. Well got 2 more calls yesterday the primary passed this whole thing back into the MOs lap and he is back saying the UL wouldn't do any good I need a mammo per what the radiologist told him. Then said that I should talk to my PS again. I put a stop to it right there and said I am playing musical doctors and I'm not going there again. I then sent a msg to my primary saying, "Got a call from Dr. W... office and it has become the musical doctors again. I'm not going to pursue this right now. I still feel mammogram is off my list of things to do. Will do some research on other options and will discuss my general health in November when I see you at your new office."
I have been so angry I been crying for 2 days. I have a friend at one of the pharmacies in town. She has a good MO that will order a MRI. Not sure why the town doctors don't order them and they "never heard of a whole breast ultrasound" I think it is because they don't have a machine in town and they want my money. Just too much for me to handle.. I give up but not going to put myself into a pain cycle to do a mammo.
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Bad news. I'm in hospital now. Thought they were going to remove gallbladder in Monday. They cancelled the surgery. My ultrasound report show pancreatic adenocarcinoma. Such a long story but I promise to explain everything when I get settled down. Never did I think it would be anything like this. I'm beyond wirdsc
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Oh no Shorfi! I'm in your pocket!!!! Sending you cyberhugs.
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Oh my goodness, shorfi I never expected to see this from you!!! You are in my prayers my friend.
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shorfi, I HATE reading this...so sorry to hear!!! Sending hugs and prayers and in your pocket!!!
Lots of love;
Octogirl
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Shorfi I am sorry. Thank heavens you kept pushing for answers. When will the medical professionals learn that we know our bodies better than they think?
Tang thank you. I know you and I have been on similar paths since day one. Hugs back in your direction.
Gma plain and simple....that sucks. I am sorry there is so much frustration.
Tessu and Blinkie - in your pockets.
I can't decide if life feels more like a roller coaster or a yo-yo with this DX.
Love to all. ❤️
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I vote for roller coaster Robyn.. It jerks you around this way and then that way and you are not sure what's around the corner.
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((((((Shorfi))))))))
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Be strong, Gma. Don't let them bully you. I do hope your friend at the pharmacy 's is the right one for you.
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RobinLK, I like the yoyo analogy. My head is spinning, and hanging by a thread. A dirty , frayed string at that.
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