CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Molly ..Thinking of you ..Right there in your pocket ...
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Hugs to all!!!
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Lucy.....the liver is a totally new cancer.......they found no BC cells when they did the liver biopsy........just feel so bad for her...now she is thinking maybe no chemo......big decision.....
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Ducky, WOW! So sorry to hear about your friends. One with liver cancer and one with BC after going through so much with multiple myeloma?! My prayers are going out to both of them as well as everyone on BCO!
Italy, do you know if the hair loss possibly being permanent with Taxotere is the same with Abraxane?
Iris, enjoying oneself is a very good thing! I remember how horrible my nightly glass of wine tasted! My tastebuds still balk at spicy foods.
Hoping everyone is having a wonderful Sunday
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Ducky - I had Abraxane instead of Taxol due to an allergic reaction. It was not as bad as AC chemo - much easier to tolerate and fewer side effects for me. Sorry to hear about your friend. PM me if you have any questions.
Xo
Barb
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WenchLori I don't know about the permanent hair loss statistics. I was lucky and my hair came back very thick.
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Iris, I'm so glad to hear the nightly glass of wine is tasting good. And a Lazy-boy sounds divine.
Molly, in your pocket!
Ducky, terrible news about your friend. Sending good thoughts, and of course she's so lucky to have you as a friend.
I'm in NJ with my mother, who has, according to the emergency room folks, a prolapsed bladder. Hoping to get a urology appointment tomorrow. A catheterized 85-year-old is NOT a happy person. And who can blame her? Baked her a chicken pot pie.
My PET scan was clear, woo-hoo! But MO felt an enlarged lymph node and wants me to come back in a few weeks so she can feel it again. She stressed that it doesn't feel like cancer, and nothing was on the scan. So....ok, then!
DS starting to hear from colleges, some yes, some no. Waiting on the financial aid packages and a few schools left to come. Fingers crossed.
Waving at Lucy, Pennsygal, Octogirl, Tomboy, Poppy, Molly, and the rest of you crazies, noisy and quiet.
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Italychick, I'm glad to hear your hair came back! Mine is just starting to grow back. I was hoping for all gray but I'm salt and pepper but it's very soft. DH wasn't happy when I told him no matter what color it came back I'm not dying it anymore.
Rainnyc, prayers on their way for you and your Mom. Awesome news on you PET scan! Keeping my fingers crossed for your lymph node being ok.
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Rainy.......Pennsygal has given me some good info in a PM.......I gave it to my daughter......it is her mother-in-law, but we became good friends after the kids married...........I just hope she tries the chemo.....and hope it is kind to her......thanks for love.........hugs to you
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Ducky, so sorry about what your friend is going through.
Our neighbor just came home from the hospital where she had a hemicolectomy for stage 1 colon cancer. No ostomy, rads or chemo, we hope.
I am getting quite paranoid. Back last August, at my MO’s insistence, I had a Zometa infusion because I was osteopenic even before starting letrozole. I was not about to go through that again, but I can’t take oral bisphosphonates because I have GERD. So I finally got auth. from my Part B supplement to get a Prolia shot. A week before that, I had a full dental checkup, with X-rays, and my dentist told me I was good to go with the Prolia—as long as I didn’t do anything that would require oral surgery. So I went ahead and had the shot a couple of weeks ago.
Thursday I began to have this weird feeling in my sinuses & teeth, like the not-quite-headache you get just before you start to run a fever. But my temp has been normal. Friday I was sitting in front of the TV and I idly brushed my left lower jaw—and felt a tender spot, right near my salivary gland & lymph node. Immediately did the same thing on the right…normal. Yesterday my left eye began to tear intermittently, and a couple of times a day now I get a dull toothache & earache. I am worried I might have an abscess, but if I do I can’t get a tooth pulled for at least 3 months and then have to wait another 3 months before I get another Prolia shot. Or might I already have the beginnings of ONJ? Prolia stays in your system for 6 months, and unless you get another shot, your bones are as weak as they were before your first shot. But Zometa (and other bisphosphonates) stays in your bones permanently.
If all this is is a sinus infection (which is also likely, as Prolia suppresses the immune system), and I get through it okay, I am seriously considering saying no thanks to any future bone treatments. I have had a history of gum problems—they’re okay now—and I understand that can make you between 16-33 times likelier to develop ONJ after bone treatments. I’m wondering if I should just take my chances about possible future fractures. Yes, I know my friend who has osteoporosis and broke her hip after falling will be using a walker & wheelchair the rest of her life—but the thought of possibly losing my lower jaw and not only being disfigured but never speaking, singing, eating or drinking again scares the crap out of me. And because of the treatments I’ve already had, I am at risk of sudden “paradoxical” atypical horizontal thighbone fractures.
Geez, I didn’t have chemo or mastectomy or the six-week full-breast rads protocol, so I shouldn’t feel sorry for myself. But cording, lymphedema, AI side effects (weight gain & possibly osteoporosis) and now possibly osteonecrosis of the jaw? Would I have been better off just having had the lumpectomy & radiation?
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Chi, they still would have probably wanted you to do femara and prolia anyway. Yikes! But for sure I would be running to my dentist! And or an ear nose and throat person. Maybe it is just a sinus infection. I did three of the prolia, every six months, and did stop doing it because it seems my gums got really bad. They were fine before chemo, but somehow, I have managed to live almost 5 years beyond dx and treatment!?!? How did that happen?!?? But pretty soon, I will have to deal with the gum issues. i didn't know that about the 16 to 33 times more likely to have problems stemming from that. Sorry to hear about your friend who broke her hip. A friend of mine who had stage 4 lung cancer and who had a teensy spot on her hip radiated, about 10 years later broke her hip at 62 years of age, but was determined to walk again, and she did. with a cane, and with pain pills. She had a dog she loved, and lived in the city, where she pretty much had to walk her dog. I hope it is nothing.
Pms coming shortly, I have had a lot to do since I've been home, and I think I've got to go back right away, mom is not really as stable and certainly not improving, as I was lead to believe. I think part of the problem is that she is being over medicated, and since my brother is the main one who is supposed to be receiving all med info, but he is not really looking anything up, or doesn't seem to be even very concerned, and only goes to see her about once a week. I don't know. He's not really letting us know much of anything, really, but she has already fallen once there, now she has an alarm pad on her bed... sucks. All of it, so I think I will be moving in with my niece for a while. Last night, apparently, they wanted her to go back into the hospital, but she refused!!! She told me it was because they gave her 3 norcos, right in a row,and yes she might just be confused, but I don't know that. They told my niece that they ARE doubling her dose, because she is still complaining of pain, and that they x rayed her chest. From that fall. When I was there, she said she was ok, but now they see a fractured rib. But she had fallen at home twice, hospital x rays said ribs are fine, but both sides congestive heart failure, maybe it was fluid back in her lungs. Jeesh.
Thinking of all of you, too. My good gals. I loved the pic of happy Beppy.
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Tomboy.....thinking about you.....
Chi...I was offered Prolia....after reading the possible complications of taking it I said "no thanks"....I have ostopenia, and have broken 2 vertebrae but that was before BC.....so I can't blame Femara for that......the first time I tripped on a dog blanket I was taking to the washer...stepped on it on my hardwood floor and did a "skate" across the floor and twisted my back as I fell.....I had that repaired.....2nd time I tried to move a heavy UPS delivery, and did it again.........waited to long that time to have it checked out and by the time I did the fracture had healed.......my bad.
The lease amount of medicine I have to take, the better off I am....for me.....I take ;something to help something, and then I need a another pill to help what the first pill caused.......etc, etc......its all bullshit..considering I went from someone who never took an aspirin unless I had to.....to someone who takes medicine and hates it.........went off Femara a year ago.....had enough of that shit too.....aches, pains, neuropathy, thinning hair, worsening arthritis, ostopenia, dizzy all the time, bad knees, can't walk straight..........did I forget anything............so............I was not adding Prolia to the rest of the shit..........
- I was also told in place of the Femara (SE"s), I could go on Faslodex........no problems I was told with that drug.........wll then someone better tell the manufacturer that the "package insert is lying"..........cause that is not what it says.......so told my Onc......thanks but no thanks......am I wrong...........time will tell......I felt fantastic after my surgery and Rads.......Femara took away my life that I had........and stopping did not take away all the SEs it caused...........Oh and did I mention Lymphedema...........Cancer the gift that keeps on giving!!!!!!!!!!!!!
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Good morning everyone. You are all the best. Tomboy, I am really sorry about your mom. Your brother sounds like mine. The beginning of the end for my dad was a trip and fall hitting his head. The ER didn't bother to ask dad if he was on blood thinning meds and didn't do a CT of his head. Brother picked him up from the ER dropped him at home and never bothered to let me and my sister know. Later that week dad was having headaches and I gave him ibuprofen not realizing he had a brain bleed. This set in motion a series of events that ended my dad's life three years later. I have so many regrets. Do what you must for your mom while you.
Rainny, your mom can either try being fitted with a pessary to hold up her bladder or she can have a colpoclessis surgery which basically sews up the vagina. At her age repairs are out of the question.
Sandy, I don't blame you. I would skip further treatment. Duckyb, I am in agreement with you. Quality over quantity at this point.
PoppyK, good for you!!! Enjoy those books.
I had a miserable last few days. First yeast infection. 3 day TX took care of it but that led to a UTI and ended with the mother of all. Migraines yesterday and I can't take excedrin because of surgery. My friend came over late afternoon and brought me her expensive migraine meds and stayed with me until I felt better. All the stuff I was going to do left undone.
Love you all.
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Oh Tomboy, I am so sorry that your Mom isn't doing better. I've been through that with my Dad, so stressful. He also was over medicated at one point so do check that out. I am glad your niece is so supportive and able to give you a place to stay if you have to back up there. I think of you every day and hope things go as well as possible. And congrats on five years!
My knee issues and bone pain from letrozole seem to be getting worse. In addition to talking with MO I am going to go to ortho soon. It is hard to get out of bed in the morning my legs are so stiff, and I've got some serious travel ahead of me I want to do. I will be like your friend with the cane, Tomboy.
But Sandy, I feel your pain on the choices. I've never been offered any thing like Prolia even though they say I have osteopenia. Maybe just as well? Need to have that talk with MO too, perhaps. You should have it checked out, maybe it is a sinus infection.
Heading out for a short two day work trip....at least I don't have to fly for this one (just a two hour drive to a sister campus). Hope all have a good week. I am counting down the days until retirement but have lots of work before then!
Love and hugs and waving to everyone! Octogirl
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Molly just saw your post...all of that just before surgery sucks!!! Glad you feel better and hope the surgery goes well! and please do remind us when your upcoming birthday is, so we can enjoy some virtual cake!
Octogirl
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Octo......I know what you mean about the knees/legs etc.....I said to my kids.....the cure could kill you.......did what I had to do.....not sure they agreed, but its my life, my pain, and I needed to do what is best for me.......I always say I might regret it.....who knows..........
I would drive up and back to Pittsburgh to watch my grandson play football.....at 63 I went to the Waterpark at the shore with my grandkids.....and my kids.....cliimbed the steps.....got the crap beat out of me coming down those slides, hitting the water, and bounching all over the place even losing my bathing suit top and almost drowned telling the life guard "NO I CAN DO THIS MYSELF WHILE PULLING MY BATHING SUIT TOP UP FROM AROUND MY WAIST......LOL.......I climbed the stands at the stadium even after having knee surgery.......took care of my 2 grandchildren while my daughter worked.....One was 2, the other newborn.......from 6:30 till 5pm 3/4 days a week.....and they were both almost 12 lbs at birth........one on one arm.....one in the other...........so I know what quality of life is............Letrozole/Femara took it all away............Cancer didn't take my life away............the f/n drugs I had to take did...........ok, I'm done ranting....sorry ladies.........
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Hugs to all here!
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oh dear sandy. I am the queen of sinus infections. Hate em but couple years ago my enfoxsat discovered i had sinus polyps which were actually the cause of all my infections. Successful surgery to remove the polyps and hoping they do not decidento grow back
Gee i took fosamax for osteopenia years ago but recomendations say only for 5 years so ended them before my bc arrived. Have checked my bone density a couple times but it seems ok so not asking for more dumb pills
I switched my new med to evening from morning, do believe not as tired but am getting lo grade headaches mostly if i cough, dang it all
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Molly ..Sorry about all the health issues going on at once for you ..But yay for your friend coming to the rescue ..Girlfriends are the best !!
Tomboy ..Sorry about your mum. .I hope you can sort things out for her when you get back there ..does your niece live close to her ? It will be much nicer being able to stay with her .
Ducky ...BaHaHa ..Sorry ..Can't help laughing about you coming down the water slide and loosing your swimming top !! 😵😁😘 I thought things like that only happened to ME !!
Rainny ..Sorry about your mum ..I agree with Molly ..The repair surgery would be too much for her at her age ( I had it done last October ) ..and they will probably use a pessary .
Sandy and Iris ..I get sinus infections too ..and it's NOT fun ..I have crazy hayfever going on at the moment ..Driving me insane !
Octo ..Glad you don't have to go so far afield for work this time ..Sorry about your leg pain .Hope its feeling better for our beach walks soon ..I'm SO excited. !!
Hubby and I joined a table tennis competition last night ..We've been playing it here at home ..and thought it would be fun ..It went from 6 -9.30 pm ..and I was totally exhausted ...and I am hobbling around today !!! It was so much more full on than I expected !!!!..But I think it's going to be lots of fun .
Love to all x
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Well, it turned out to be a garden-variety sinus infection, most likely viral. The fullness and soreness eased after a massive thunderstorm ended early this a.m. The usual postnasal drip, head buzzing and that stinging feeling like I’d gone swimming in a chlorinated pool without nose clips. Hello, springtime. But everyone else in my house has colds, so I can’t complain. Will revisit the question of whether to continue every-6-month bone treatment after my next density scan (which I will try to get moved up to Aug. so if I’m still only osteopenic I can skip the next shot).
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duckyb, I was loving your waterslide story too. Trying to picture you yelling and holding your top at the same time!!!
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Lucy and Molly, you're brilliant. Took Mom to the urologist twice today (he wanted to measure urine buildup over several hours). Yep, he recommended a trip to a GYN for a pessary. So off we go.
Molly, good luck with everything.
ChiSandy: glad the pain is easing.
Ducky, the picture of you on the water slide made me laugh!
Shorfi, SO glad to see you here.
Taking Mom to the primary care doc tomorrow so he can look at her painful elbow. Then back to the city, where DS is supposed to be receiving results from three colleges, one of them a favorite, on Wednesday night. Soon, this will all be over!
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..story actually is I had a 2 piece Tankini type top with the skirt bottom......well when you come down the slide and hit the water full speed.....so it completely gets under the bra part of your top and either putsit over your head, or drives it down to your waist........then I went on another slide that drops you about 10 feet off the end into about 10 feel of water and you hit with such a force.....your top come up above your boobs........your. bathing suit bottom goes up the crack in your ass, and you come up looking like you have a thong on.......for a 63 year old ass...not pretty...........so trying to tread water, while pulling the top down, and pulling the bathing suit out of my ass, I did almost drown....but damn I had so much fun...........and I did this from 10am to 7pm .......LOL.....0
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Molly, in your pocket for your TE exchange tomorrow! 💜🙏👍
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Ducky, remind me to stay out of water parks and stick to AquaFit classes instead.
Molly, may your TE exchange go smoothly and may your implants be all you’ve hoped they’d be.
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Thank you ladies. Duckyb thanks for that mental picture lol
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ducky, all i can say is you have enjoyed life!,
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Ducky, that is hilarious.
Yesterday while talking with my mom's urologist, I actually said: "Well, I was consulting with your colleague Dr. Google, who says...." He took a deep breath, and then he looked amused.
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Molly, in your pocket today
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Thinking of you today Molly.
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