CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Molly ..good to hear that the therapist can help you ..gosh it's been going on for so long now ..you must be well and truly sick of it all ! It would of been a hard day for you spreading your Mum's ashes ..(Hugs )
Sandy ..How frustrating..my hubby has been going through his own frustrations with our phone and internet provider ...HaHa .hes spoken to three different people trying to explain his problem and is about to start pulling what little hair he's got out ..!
Octo ..oh that's lovely that Gabe got to go to Yosemite National Park with you ..I can see by the look on his face that he's so happy to be there 😃
Iris ..Yay for good friends ..so nice to have someone to go with .
Mommy ..thinking of you ..
It's 3.30 am here ..ugh ..can't sleep ..sick of insomnia 🙁 ..
It's my son's birthday and we are staying at their place tonight as there will be a group of us going out to dinner to help him celebrate ..Should be fun ! .He's my eldest , and is 35 ..Where have the years gone ..?
Hugs to all !
Edited for spelling
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Argh....went to bed all happy after the stress reduction of Yosemite, woke up to news that the wine country, where my father, step mom and others relative list, is on fire. Stepmom and her cats have evacuated and are fine but we don't know about her home yet; my father's group/assisted living home was evacuated but we haven't been able to get through via cell to find out where they took the patients (Stepmom tried to get up to his place but roads were closed)....and Suladog: thinking of you; if you are reading quietly along please let us know you are ok.....
Please send me light and prayers, Crazies! I need your good thoughts!
Octogirl
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Octo .oh no ..what an awful worry for you ..and so stressful for your dad to have to be moved ..! Glad your step- mum and cats are safe ..but what a worry about her home !..Sending turbo prayers for everyone involved ..
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Octogirl - we have family up there with a horse rescue.. So we are in the same boat.
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Wow, what fast moving fires! So scary. Prayers for all.
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pray everyone is safe from the fires, so frightening
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Iris, turns out the problem was a short in one of the phone cables in the house, and it was easily solved. What I didn't know is that my landline is actually VOIP (voice-over-internet protocol), which RCN hadn't mentioned when I ditched AT&T's landline and had RCN bundle my services; and that in order for my cordless phone/answering machine combo system to function properly and fully-digitally, its base station needs to be plugged into the cable modem.
But having another problem--en route to a concert last night, while sitting in the seat behind the driver of my Uber and wearing the shoulder belt across my neck, I suddenly felt an odd pain in and around my L ear and lower jaw, dull but intense & fleeting, radiating down into my neck. It went away immediately and didn't recur while eating or at the concert itself. But when I got back into a different Uber to go home and sat in the same place, the pain happened again. It hurts when I swallow my own saliva but not beverages, when I move my head but not when I chew. And when I lay down to go to bed (and turned over) it hurt. Still have it, and if anything it's worsening. Called my PCP's office--his PA says it's not osteonecrosis of the jaw (in May when I told the dentist about feeling grit in my mouth, he too said it's not ONJ, but rather porcelain chipping off an ancient, circa 1973, crown and the underlying gold is fully intact).
It's not a tooth abscess, since I didn't even have any cavities on X-rays back in May, there's no pain when I touch my gum, and I'm not getting any weird "pus"-ish taste in my mouth). No fever, vertigo or hearing disturbance, no visible or palpable swelling. The PA says it sounds like a salivary-gland problem, TMJ, or sinus congestion and prescribed Aleve, Sudafed and to keep using Nasacort; also to try heat or ice. Trouble is, I can't precisely describe the pain nor reliably reproduce it, and I never know when it'll strike and what'll set it off. I do notice that when I tap on my neck just below the jaw, on the R side I hear it (via bone conduction) as a dull thud but on the L side as more resident, almost like a tom-tom.
Have my next routine (3x/yr) dental appt. coming up this month, and will ask my dentist what's up (assuming it hasn't gone away). Will be sort of stressful for a different reason: after having his offices in my neighborhood, w/in walking distance, in a historical 1898 "arcade" building, he will be moving all operations to his other office in the Loop, across from Millennium Park because said arcade building was bought by a developer and will be demolished for yet another 6-story condo building. Bummer to have to take the CTA train (including walk up & back), cab/Uber, or pay through the nose to park in the municipal garage. Bob won't be able to schedule his cleanings on work days, unless he drives down there (and he detests driving in the Loop).
But at least the concert I attended was fantastic: Little Steven & the Disciples of Soul, at the House of Blues. ("Little Steven" being Van Zandt, from the E Street Band, The Sopranos, Lillyhammer, and Underground Garage on Sirius/XM). Had to stand up for the whole 2+ hours, but no problem. And yes, I wore musicians' earplugs.
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well, glad you were able to resolve the crazies, makes me nuts completely when my stuff goes out
Just got my peopod delivery, it aint cheap but sure is easier than hauling my butt to store specially in todays pouring, rain
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Hi Ladies......update Makayla has her appt with the GYN tomorrow at 1:30 EST......they are really moving fast with this because they are afraid it might twist again, and that would be emergency surgery ..... always better when it is elective, and not an emergency.......so we will probably have a good idea tomorrow when they will operate........I will be going with my daughter to the hospital......Not sure yet if they will be doing it at CHOP or University of Penn.....both are the best.......it will be up to the surgeon....whatever she decides....
So here's my little girls latest school picture.....she got it today.
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Wanted to say...that is her own hair.....;no curling iron, no straightener.....just my 5ft. 9 inch beauty with naturally curly hair.....hard to believe she is only 16.....thanks everyone for your love and prayers.....will keep you in the loop.
Hope all you ladies are doing well, and praying for all who are in distress right now....hugs
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Hi ladies,
I was copied on a email from my MO to the director of the infusion pharmacy to prepare two prescriptions for a patient (me) , he replied he was working on three scripts. My name, Kathy was added at the end of the message and MO asked what drug coverage I had to help with the cost.. Since I was traveling in an area with very limited cell service in northern Ontario, I sent a message saying I would be back on Monday and would talk to the speciality pharmacy for an approximate cost of the drugs.
So this afternoon I called customer service , you have to begin there, well she had never heard of the medications, I assured her they existed and could I talk with speciality pharmacy. She then switched me a tier pharmacist who said I needed to talk with a speciality pharmacist, transferred again and now I relate drug info again. I get the prices,
One is approximately $12,500 and the other is $11,000 plus, my share would be over $8,000 for the first month. I gulp, visions of no trips ever again or letting nature take its course. I then called another team member, since I knew my MO was away and perhaps she would know of some assistance for these drugs. She had actually pulled my file yesterday so I asked her if MO had sent her a message, no, but she would look into it.
So, I decided to call the infusion director since I was puzzled by the mention of a third script, luckily, he had left a number to reach him and I called. Well, it turns out I was the wrong Kathy, he was not preparing any treatment plan for me, and to say the least, I was immensely relieved, I could relax and laugh, feeling free of instant poverty. How can these drugs cost so much?? Whoever these scripts are meant for, I hope there is assistance to help with he costs.
Tomorrow, another Ct scan, hope springs eternal that I'm still stable.
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Now that is a CT story!! Glad it wasn't you. Duckyb, she's absolutely lovely. Sandy, ouch wow I hope you figure it out.
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Kathy, that was a close shave for sure! (Until I got to the end of your post I was going to suggest you should have stayed in Ontario and claimed "medical asylum." I think a Stage IV dx should be grounds for legal immigration to Canada from the US, until we too get single-payer health care).
Right now we've got it narrowed down to sinus issues (started getting some above-the-eye pain on the R side and Bob felt a small swollen node under my jaw) or salivary gland stones. It occurred to me that if the gritty sensation was just fracturing porcelain from a crown, and I was experiencing this for nearly a year, the entire crown would have been down to the bare gold by now. And since I had gallstones until my g.b. got yanked in 1994. it's logical I might form stones elsewhere. I've had rarer, sharper & more fleeting pains in the area when drinking alcohol or fruit juice after not having had any food for hours since my 20s--and so has my sister. My dad had the same thing. I bet that "grit" might be little fragments of stones. When I get the pains, it feels like something is trying to get past a blob or lump.
Hope I can sing tomorrow night--long Bar Show choral rehearsal (and then the first rehearsal for a scene I'm in--tricky song with some rapping), followed by an open mic across town (benefit for Puerto Rico relief) where I'd promised to sing a song I'd originally written after Katrina. Will call my dentist tomorrow, and ask if he recommends an ENT consult and perhaps an MRI or PET-CT scan to see what if anything is in there.
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I have a lot of empathy for my American sisters. This shouldn't be a financial fight. And it is for you ladies.
Walking cast today (praying that's what happens). A happy hospital visit for a change.
Be good,
Sara.
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Hello, everyone! I've been following along, but haven't been posting. I've been at wits end with blood pressure medications. I think we may have finally hit on a combination that is working, and yet doesn't leave me so tired I can't move. We need to give it a bit more to see for sure.
Prayers for those in the wildfire areas, and for Ducky's girl, and of course all you wonderful ladies.
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So far everything is going okay. My mom tried to drive me crazy again over the weekend but hubby stepped in and shut her down before I got uber stressed out!
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Hi Ladies....update........saw the surgeon today.....she said the cyst is very large...has to come out..since it will continue to grow...she could actually feel it without even seeing the MRI.....
Surgery has been scheduled for Friday at 10am....pre-admission testing was done today so she is ready to go.....being done at University of Pennsylvania Medical Center......unless it twists again and then she goes to the ER immediately at U of P...
Ugh..something else to worry about.....she also has PCOS.......
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sorry ducky, but she is at one of the best hospitals and hope she will come out fine
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Ducky ..sending prayers for your beautiful grand-daughter ..!!
Cubbie ..sorry to hear you've been still dealing with the blood pressure issues ..sounds good that your news meds are working !
Iris ..what you up to today ?
Mommy ..sorry about your mum..it's good you have your hubby to deal with her .
Hugs to all x
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hi lucy, just came back from visit to the gym, that always makes me feel better
Forgot that i have a visit to my primary tomorrow, good thing they call me with reminder. Dandy as primary visit tomourrow, chemo on friday and dentist on monday, dang my life is exciting
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ducky, poor girl. PCOS too? Cubbie, so good to see you. Glad to hear the meds are finally working. M0mmy, hooray for your DH! How are you feeling? Iris, lol yes all those appointments must be the highlight of your week.
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Pretty good.
Had a brief stop in CT to start off the week. Monday morning I did a water change on my fish tank after my shower and I noticed the tub was draining slowly. So I texted hubby about it when he was at work. That night there was still water in the tub and so we thought we had a clogged drain somewhere. Bought some Draino and thought it would clear up overnight. Didn't happen, bought more Draino last night, woke up this morning to water still in the tub. So I got desperate and grabbed the plunger thinking it would clear the clog. Worked at it for about five minutes before I discovered the the lever for preventing the water from draining out while someone is taking a tub bath was in the up position. Flipped it down to see if the tub would drain like it does normally and it did. Let hubby know that I found the problem and it was fixed. Have no clue how the lever got in the up position.
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T'hanks ladies.....prayers are greatly appreciated......all surgeries are scary.....all I want is for this to all go well.....she is not even scared, concerned, or worried...at least not so far.....I guess she is leaving that to us.........Oh Youth!!!!!!!!.......
Again thanks so much.....will be going with her and my daughter on Friday.....I invited myself and told my daughter..don't you dare say no to me...she is a good one when I say "do you want company"....she says 'no I'm fine Mom, but thanks"........told her this time I am telling you......"I don't care how fine you are...I am going, like ;it or not".........so far no backlash.....LO
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Mommy ..one of life's mysteries I guess !!!!
Ducky ..yes ..I'd want to be at the hospital too ..nothing worse than just sitting at home , waiting for news , and not knowing what's going on ..I'm sure your daughter will be pleased to have you with her ..
Iris ..sorry about those appointments you have lined up ...!
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Octo ..I meant to ask how your Dad is ? Also what about your step - mum's home ? I saw on the news last night that a 100 year old man and his 98 year old wife died in it ..Their son was being interviewed..how very sad 🙁
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Hello, everyone. Think about you all, read when I can, but I am just getting terrible at posting, is all. Ducky, hope everything (and I kinda feel it really will) turns out great for Mykala, she should heal quickly and well, being so young and having great genes! I will be thinking about you and her tomorrow morning for sure.
Has anyone heard from Suladog? I know she doesn't post here anymore, but I still think of her, and those fires just really do look like hell broke loose there. Seriously, as if it erupted from underground, and I don't even believe in Hell. All those homes, all those photographs- everything, and the loss of lives is so tragic. I hope she is okay.
Concept and execution, copyright by me. The Real Pink Ribbon.I was going to make these to sell before October 13th, MBC day, but had some bad news on the dental front that is depressing the hell i don't believe in, out of me. There has been a great deal of damage done to my few remaining lower arch teeth, and my dentist wants to pull them, put in only two implants, and I would have a lower denture. But, from my reading, it is better to have something done called 'all on four', which means they can use a titanium piece within the denture itself, two posts in the good bone near the front, and two more implant posts in the back, where the jaw bone has good bone. Because of my bad dental history, and it is a long and ugly story, I think what my dentist wants to do for $9000 is bound to fail, and I wound end up not wearing the denture anyway. Or going to the state of the art place, for 18000. Yeah. Neither of which I can afford, but am forced to do something NOW, while i have any bone left to do something with. I would have to sell a crap load of these ribbons to have enough to do anything but pull them. I don't know what to do. I was thinking about a crowd funding page, but I really don't do social media, just here and instagram for my art, and I really only have about 5 friends in real life, that I hardly ever get to see, so no one knows me at all but them, and you! Plus I would be afraid my shitty family would see it, and write horrible things about me.
I was planning on having my etsy store open before november, to sell things i've made for Xmas shoppers. My energy is up a little, and for that I am grateful, but i fear such extensive dental work would be a body blow I wouldn't recover from quickly either.
If any of you would like a ribbon, let me know....
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hi everyone, I had my bone scan last Friday, got through it without too much anxiety, thanks to all of you 😀 I should be receiving my results tomorrow, my MO said he would call me, just one little problem, my aunt passed away and I will be at her funeral tomorrow, hopefully he doesn't call me during the funeral or my stress level will go through the roof! Just trying to control the stress, cleaning and keeping busy lol!
Hugs! LAF
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Also, welcome Joyseeker and lafish! my computer wanted to call you 'jobseeker' and 'lavish'!!! Lafish, we have very similar profiles. With me, I was her2 equivocal, but they gave me herceptin anyway, and here I am still! I am not discounting any of your anxiety over scans, and hopefully you will be fine, it's that whenever i 'complained' of any pains, and I had/have many, they would scan test rinse repeat on me so many times it's a wonder I don't glow in the dark or have special powers as yet to be revealed. Eventually, a doctor told me that being estrogen positive, especially if you are diligent about taking the pills, chances are you will be fine for the first few years after chemo, anyway, when our fears of recurring are high. Glad you found your way here.
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I take it you're not taking an IV bisphosphonate or a monoclonal shot like Prolia, so you can get dental work that exposes the bone without fear of ONJ. I hope you can figure out a satisfactory solution that works and that you can afford.
Every time I get jaw pain my mind goes to that dark place. Turns out this time what I have is neither ONJ, abscess, nor salivary gland tumor: it's both TMJ and sinusitis. (The latter is causing the node next to my submandibular salivary gland to swell intermittently, and the former gives occasional dull spasms if I'd inadvertently been clenching my teeth or holding my mouth in a certain way).
I think we're all racking up frequent-guest points at CrazyTown.
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Tomboy, This is wild....... While driving home from UCLA today, I kept thinking about Sula. So I was going to ask if anyone had heard from her!. I kept reading. I, too, am having horrific dental issues and will have a tooth extracted on Wednesday and then I'll get one or two implants, if bone is strong enough. I go to dentist 3 times a year and he never noticed the bone is eroding deep into jaw. No estimate on costs, but I know it will be thousands and thousands. I have choice words (unspoken) for him.
Love you,Jan
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