CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Sula, thanks for the link to the camisole. It looks great.
Chloesmom, Gaia, Beppy and others, thanks for your thoughts.
Queen, I am mostly going to suggest that they put out some kind of booklet for new patients. A what to expect when... It is so confusing, and one is not at one's best, and it takes some patience to sort out who does what and when to call which care provider. If it seems interesting I will report back.
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Gaia, we also crossed! Aren't you at MSK? I think you can go to the seminar!
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Gaia,
It sure looks like you've gotten party ready!!! Hope you have a great gathering
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Rain I am renegade!
Surgery via laser, rx , for now with an MO I connected with in Woodbury. Taking it a step at a time with transitioning to an all in one place.
I tend to be slightly off grid in many things... and then again not at all
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Gaia......LMAO....before it sells I will have to check for the socks, etc.........lO
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Who knew the clocks in CT are warped. Thought my MO appt was at 10 am.. Nope not until 2pm. Went to run an errand then to late breakfast but the restaurant was closed.
So left MO appt with abx for sinus infection that is back. AI (esd) to start in 2 weeks. Scan for next Monday and appt with RO to be scheduled, that was totally not in the cards since I had MX, good margins and no nodes.
It is hard to process emotions post treatment. I call it being stuck in the middle. The analogy given that we are no longer in the village of the well nor the village of the sick but stuck wavering on the bridge between the two villages. It was worse for me 4 yes into T. last summer. I am glad to hear the NN, SW are giving help and providing resources.
The memories shared this past weekend provided views of the past through different filters for my brother and myself. Despite experiencing the same things together growing up our perception of the events are not the same. It only took me 53 years to realize this.
OK crazies, my counselor seems to be attaching more importance to my follicular status than I see necessary. It is one of those things that is not even on the radar right now. Send in the clowns.
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Sleep mask. Check. Goodnight crazies
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Sleep mask. Check.
Goodnight crazies
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Wow - when I checked in I was 5 pages behind. So hi to all & best wishes for those having surgery or starting treatment. Sula, I love your kitchen.
Back to the discussion about lost socks & things - Did anyone else read "The Borrowers" by Mary Norton? The first book won a Carnegie Medal in 1952, but I read them to my son in the 70s and read them again in the 90s. There are several books in the series about this fantastic family, part of a tiny race of people who live in the nooks & crannies behind the walls, under the floorboards, over the mantels, behind the grandfather clock - in other words behind the scenes. All their "rooms" are decorated with things they've "borrowed" (read - we've 'lost') - safety pins, buttons, spools of thread, a spoon, a sock, a broken watch, etc. The daughter's bed is a match box. The mother's soup pot is a thimble. Crazy wonderful books if you have grandchildren or enjoy reading kids books.
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minus,
Yes!!!! I loved those books read them in elementary school , that's who's got my stuff!!!!
Gaia,
What a great picture!! Nighty night
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Regarding missing socks: When the washing machine repair guy pulled the "tub" from my clothes washer, several missing socks fell to the floor. The socks had some how made their way up and out of the tub. Maybe this is what has happened to some of your missing clothes?
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poppy,
When I had my car washed ( hadn't done it in 6 mos because of the drought) I found an earring I'd lost before I started chemo!
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MinusTwo: Yes, I also read The Borrowers to/for myself, though they may also have been read to me. Now puzzled about what book they reminded me of, or which reminded me of them.
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We moved to our apartment when our DS was 8 months, and over the next several months, my DS barricaded a work area with large, heavy boxes of books so he could build our beautiful, floor-to-ceiling bookshelves. They were finished when DS was about 15 months old, and we unpacked the book boxes at last. Then we found that DS had quietly chewed holes in the corners of a couple of boxes and dropped all sorts of little things into the holes: small parts of toys, pencils, crayons, kitchen things. Quite a surprise! (No socks, though disappearing baby socks are a whole other category.)
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Thought I would tell you ladies about my first day of Rad treatment.......long but amusing..
My oldest son took me (he insisted even though I was capable..only a 10 minute drive i you make all green lights........
When we got there we sat in the waiting room..I was not too nervous, just wondering what was going to happen................
Well this absolutely adorable, blue eyed, young, handsome guy comes out and says "Genevieve"....I said to my son....."OMG, I hope he is just the person taking me back to the room"...........he was as young as one of my grandsons...............my son, like any man said "relax Mom, already your starting".........
So back we go, and now "I'm friggin nervous"...................he sends me to an area, hands me a very lovely pink and white striped gown, and says "Genevieve, put this on, and sit and someone will come get you"............................my thought....."Thank God he is just the "messenger".............
NOT.........a couple minutes later he comes back to the area and says "Ok Genevieve, come with me"......again thought......."he will show me to the room they want me in, and then leave"...............
NOT........in this room there are me, him, and 2 other women..........I could hear my sons voice ringing in my ear saying "Relax Mom".............and I did............until the 2 women left, and it was just "Mark and me"................
I am standing there in front of this long narrow table looking at this machine that is enormous thinking "ok when is "Mark" leaving, and the 2 ladies coming back.................
Well how does "never sound to you"................after about 5 minutes............the 2 ladies re-appear......................"Mark" is still standing there right nrxt to me.......................all I hear is "Ok Genevieve, you can remove your robe........and it is Mark talking...................
I looked at him, looked at the 2 ladies (also techs), and said
"OK MARK, IF YOU CAN HANDLE WHAT YOUR ABOUT TO SEE...........SO CAN I.................
Three of them burst out in laughter............so did I................and the ice was broken....................thank God for humor...................I looked at Mark as said "Honey, I have underwear older then you..................
We became "best friends".......told him I loved his eyes, and would he like me to adopt him...................
I saw him everyday..........for 38 treatments..............0 -
duckyb: what a lucky ducky you were! The male techs I got were nice but very ordinary looking. Just facy faces.
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Ducky you are amazing! what a great story to be able to carry away from this crazy experience we ladies here all share.
More later crazies. Back to blending for me.
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Rainny,
I am one year last week from my double mastectomy.
For me, I can say, not painful. To be totally honest, the first few months, I went right from mastectomy to chemo, so did not think about physical pain, just apprehension of drugs in body. For me physical pain has always been a sign of positive, you know when you work out it hurts, but that means you are building muscles.
I am not sure if this helps...
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hello all,
trying to catch up on all but only just back from my visit to my sister and seeing my nephews. My sister is finally past a very long and messy divorce, she is doing well but the boys are still trying to learn to deal. One is doing well and the other, not so well. The good news is that she looks great (lost weight, got new pals and such) and it seems her Ex who is now living with a young chickie, looks like crap!
great to see them all and I do so love my nephews. They even came for dinner 2 nights in a row! there had been no promises but they did. I hope the older one gets is act in gear as he is terribly depressed in a scarey mode. But he is getting treatment and sure praying for him.
So I have seen all that has been going on but frankly, heading to an early bed! tomorrow guys
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Ducky.. HaHaHa.. What a great story !! :-)
Gaia.. Lovely photo.!! You look beautiful!
maybe we all need to invest in masks..and we could put out our own breast cancer fund raising calender? You know., like the firemen do?? 😃
Slow.. Yes.. I think our hubby's would get along great too..My hubby, who was 56, took extended leave from work when I was dx last year , and extended leave has sort of rolled along into early retirement... If we run out of dough, he will have to roll out of retirement, and back into the work force. 😱He took the time because I wasn't coping emotionally, and didn't want me home by myself ..during this time he has spent lots of time in the kitchen.
Kathy..We must of had our surgeries about the same time. I.had UMX on August 26 last year.. I hated the drains.. Took ages to get full arm movement back.. I started to worry that despite all the physio it wasn't going to come back.. But it did.
Hi to everyone.
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PTS.. Glad you enjoyed your time with your family, and your sister is coping well.. HaHa.. also pleased her ex isn't looking so good :-) Saying a prayer for your nephew. life can be hard to cope with at times :-(
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Kathy, thank you. It actually does help. I'm also not afraid of physical pain; surgical pain has a clear arc. This is just something I've know for a while is coming, so it will be a relief to get the show on the road and was a huge relief to have the clear PET scan last month.
Was emailing with a friend this afternoon, and we agreed the ideal scenario would be to be discharged from the hospital to a 4-star hotel, covered by insurance, including round-the-clock room service. One could stay there for a couple of days with netflix, amazon prime, and reading material and leave only when ready to engage with the rest of the world. Let me know if anyone has insurance that covers something like this, and perhaps I'll consider a switch.
PTS, glad you had a good visit with your sister and she's doing well, even if your nephews are still coming to terms. It's a process...
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Rain: I likes your way of thinking. A four-star hotel has got to be cheaper than a hospital, and at that a post-surgical patient couldn't possibly be as bad as some of the customers. Leaking bodily fluids, possibly a contraindication, but otherwise perfect.
I had an ovary removed last year on an outpatient basis...and we spent two days in a lovely B&B near the hospital. Up front with the innkeepers about why we were there, and what we would do IF I did start oozing. They were very understanding! The husband/chef even made a special breakfast for me our first morning after I woozily expressed regret upon arrival that they were no longer offering it. Only about $200 a night.
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well. So long as it included breakfast QMC!
Rainny - if you find that insurance consider me pre signed up. Of course they probably wouldn't have me. I guess I might have to buy the first lottery ticket of my life!
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Queenie, a B&B would do as well! Especially if they're willing to cook your every whim.
Katy, I assume ALL the inhabitants of Crazy Town would be signed up for that insurance. We deserve it, right? Yes, breakfast. That first morning after surgery, a steaming cup of tea, toast points, and a lovely little poached egg (served without shell, of course, to minimize upper body motion). And maybe a bit of fruit compote for the fiber. Come to think, that would be good for the second morning after surgery. And the third...
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Katie: Yes, breakfast was included. Also lovely quiet rooms; it's in an old Robber Baron mansion in Kalamazoo with walls plastered so thick that very little noise came through from other rooms. (I'd mention it, but not sure what BC's policy is on business information; not a paid advert here, just a happy customer.)
Rain: close enough to my breakfast! poached eggs over corned beef with a smidge of salsa, a doll-sized fruit cup, doll-sized muffin. That's kind of become our mantra for surgery recovery for me: present me with small servings of tasty things, and chances are I'll eat enough to get by until the anesthesia's cleared my system.
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Need to rant a bit ladies. I'm 5 months PFC and get a daily sudden onset of exhaustion. I can be doing something I love and boom I feel like my batteries fell out. It was easy to get understanding when I was pale and bald. Now I have these bouncy curls and look fine. Not looking for sympathy, but some understanding The novelty if there was any is gone My DH is upset that he tripped over a box I left in the middle of the floor. Just got tired in the middle of putting the stuff away (and I was proud I had gotten the job 1/2 done ). If I can't do this I don't know if I will ever be able to go to work again The new normal isn't pretty
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because we live about 70 minutes drive from the hospital, hubby and I spent the nights before and after my Lx surgery in a hotel less than two miles from the hospital. Best decision ever. Ate at a nearby favorite restaurant we don't get very often (because of distance) the evening before, did take out that hubby got from the same restaurant the day of sx in the evening (almost as good as room service :-)) and I discovered a great new TV show I'd never heard of on their cable (Doc Martin. It's a British show. Highly recommended!..and they were running a marathon of the series on the day after my surgery. and perfect for post sx recovery: the main character is a renowned doctor who moves to a small town and has a BIG secret, namely that he has an intense fear of blood :-)) The hotel was an all suite place, so hubby could work in the other room while I watched TV and napped. Oh, and they had a beautiful pool so I could swim the night before (bs has banned swimming and hot tubs until after chemo. Miss it SOO much!)
There are no four star hotels near that particular hospital, but yeah, that would work for me!
Octogirl
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PS. from previous post. Well I really do live in Crazytown. Forgot I went grocery shopping and had a box of stuff I left by the door Should have gone in the refrigerator 3 hours ago. DH just shook his head. Guess he does understand after all.
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rainnyc.. You will be fine.. The waiting to have the surgery is far, far worse than having it.. I was dx on Thursday and had my surgery the following Monday.. and even that seemed like a long time to worry about it..!! I suffer anxiety.. Have been a compulsive worrier for years.!! Afterwards I went to counselling at the Cancer council... It did help me put things into perspective.. to allow myself to think ( google) about BC for only a set period of time.. then force myself to go do something else.. (Hugs)
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