CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Oh, I'm sooo behind! I can't catch up or keep up with all of the Crazy Town happenings!
Happy Birthday, Tomboy! Sorry I missed the celebration. You have been a blessing to me with all of your help and support here on the board. I'm so glad I got to spend some time with you in real life, too! (I'm a Virgo, too!)
Last week I visited the endocrinologist to discuss the nodes on my thyroid. I wasn't scared until I started wondering whether he would want to poke a needle in me.... He actually asked me why I waited so long to come and see him, since my CT scan that showed the nodes was a year old. I told him I was too busy trying to survive the treatment (surgery, chemo and rads) for the cancer I knew I had, to worry about nodes. He got very nice after that. I have an US scheduled for the nodes and am now starting meds for my underactive thyroid. What happened to the person who never took any medication???? She was thin and was smart, too. I miss her.
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Rats: I don't know if it's going to let me post the Brooklyn link. If not, google "P.S. 10 Flash Mob 6-19-12"
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hahaha Ducky. I ALWAYS thought I would win the lottery in my lifetime!! I don't think my heart cancer could keep up with YOUR poolboy!! haha
Sula, Your kitchen is gorgeous!!! My DH would be envious!! He loves to cook and I always thought he deserved a chef's kitchen. Maybe when we hit the lottery!! haha It's no wonder you turn out such tasty looking creations!! I am glad you have the distraction of a new project.
Kathy, I am almost ready to post my tutorial on posting pictures!! Just a few more screen shots to go. I will finish it up tonight. I hope it makes sense....I do have that brain cancer to contend with daily. haha
Katy, That menu sounds wonderful!! Who needs the Food Network when we have such wonderful chef's in Crazy Town???
Rain, I can't help with surgery advice (had an lx), but I did put your date down on my spreadsheet!! We will have one big party when you're back home and feeling good!! In the meantime, we will be right there in your pocket.
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Rain that video is cool. I attempted to cut/paste here for you and had no luck. Maybe someone more techie than me can do it. If not your link pasted into browser worked fine.
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Poppy, We cross posted. You and I are thyroid twins. I missed a call from my facility to schedule an US. I will do my fasting blood work tomorrow. I hope we both have good outcomes. Let me say this....I met you in person and you are gorgeous!! Not to mention smart as a whip!! So there....you got my unsolicited opinion!! Let us know the date of your US. We will all send our collective good thoughts your way.
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Nice to see you LMG!! Your request is below. Hope it works.
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Yupper that's it. Why weren't our parents that cool? And I see some dads in there too.
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Does it count as a brush with CrazyTown if my RO arranges a meeting with the system social worker....three months after my diagnosis? (I do appreciate that he did, because it's a valuable service for a lot of people. Just that it would have been a lot more valuable for me two months and three weeks ago. And the nurse navigator did a bangup job.)
Still wondering how to explain to members of the 'positivity' camp that "uncomfortable and irritated" is pretty much the best possible outcome I'd expected for rads.
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You are positively done with rads Queenie. Let them digest that. I remember vividly the irritated and uncomfortable state. Hoping positively that will improve. Who better than David Niven to toast to that.
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just a quick drop in to say Hi. We are going to my daughters house for the day.. Looking forward to spending the day with her and her two little ones..
Slow I love your doggie pics! Sorry you have been feeling unwell.. especially with a house full of people to enjoy.. Sounds as if your lovely family stepped up and took care of the chores.. My hubby loves to cook too.. not so much meals..But he loves to bake.. Makes all sorts of beautiful cakes, slices and desserts.. Also he enjoys making shushi, crepes, waffles and omelettes..HaHa.. When we go places I always volenteer to bring the dessert, because I know he'll do it..!! Funny though.. The typical Aussies male just loves to Bar-B-Que, and have a beer,.. but he doesn't like to do either! ! What sort of food does yours like to cook..? Good luck with your blood test tomorrow.
Sula.. Your kitchen looks lovely.. I'm also envious of you having a housekeeper.. Can you loan her to me.. Just one day a week.. Please.!
Poppy.. So good to see you here again! Good luck with the ultrasound.
Hi to everyone!
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Well, I will positively be done with rads on the 25th, if there aren't any involuntary 'days off' along the way. But until then, David Niven most definitely helps. Off to watch Murder by Death. With some Jammin' Lemon Ginger tea.
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LMG, I know right??? What a great video!!
queen, Sounds like they are closing the barn door after the horse is already out!! Better late than never, I guess. You don't have to explain anything to anyone. If the "positive camp" doesn't like it, they can kiss your a$$-paragus!! It took me a long time to recover from rads. Not physically....emotionally. I went straight to Crazy Town right at the end of rads, and I didn't even have any physical symptoms other than being exhausted. Be kind to yourself.
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Hi to Slow and Queenmomcat.. We all posted at the same time.. Great minds think alike?
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That's what I was figuring too: they're taking a 'better late than never' position. Everything I've heard about the RO leaves me thinking that he's a very thorough and conscientious medical professional, so I'm not surprised that he did. Doesn't help that it was the social worker who seemed mildly surprised about my "But uncomfortable and irritated is the best possible result of rads."
Emotional response was the worst for me--second surgery threw me for a loop though I walked away with most of my parts intact and plastic surgery a genuinely optional decision. (It's always optional, though sometimes more optional than others.) But I think falling apart at the end of the Extremely Interventionist stage of treatment is common?
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Ducky.. I can't help you win the lottery, but I can give you your very own money tree if that helps? :-)
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Lucy, He loves to cook everything - stews, soups, he does it all. He also bakes a lot of homemade bread and pies!! We make a good team because I don't mind the cleaning. I must say though, he does use almost every dish in the house when he cooks. But, how can I complain??? I bet our husband's would get along great!!
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queen, For me, and I think many of us, we focus so much on over coming the SE's of treatment, we don't really process all of the emotional stuff until we reach the end of treatment. It hit me like a ton of bricks my last week of rads and beyond. I think I'm still dealing with the emotional fallout...but, it is getting better. Then throw in the curve-ball of an unexpected surgery on top of it all....it's a lot to process. Be kind to yourself and let your mind catch up. Take comfort in knowing you're not alone in all of this non-sense.
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Is kiss my a$-paragus the new "kiss my grits" lol. Sorry Queenie. Thought you were done with rads. No involuntary days off allowed, get er done. I went straight thru, no equipment breakdowns, no holidays, nuttin.
My MO who others have heard I don't much care for never offered anything to me. I passed the social worker's office daily during rads. Hmm..
SDB and Lucy - great cooking guys. Mine makes eggs, bacon, toast, coffee. Occas. BBQ or hamburgers. I think a mixer would intimidate him but give him a chainsaw, mower, trimmer - vavoom. Cannot picture him making a cake lol.
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(waves hello to Lucy)
Slow: Makes sense about the not processing the emotions completely until all the physical treatment's done. I'll keep that in mind....and definitely glad to know I'm not alone in this.
Luvs: dunno, but I'll take "Kiss my a**paragus". Don't worry about misremembering the end of my rads dates; three months from beginning of surgery to end of rads isn't an unreasonable length of time, as long as chemo doesn't intervene. (It didn't for me.)
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LMG, Mine is also good with tools too!
Actually, his learning to cook came out of necessity. I got very ill 12-years ago and was home in a hospital bed for over a year. There were two kids to feed, so he started cooking. He found that he really liked to cook and started throwing different ingredients together. His flavors are unbelieavable. Then we got him a KitchenAid stand mixer, and he went to town on pies and bread!! He discovered this talent late in life. The kids and I totally encouraged his cooking!!! haha
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Beppy, thanks so much for converting the P.S. 10 video to something people could see!
Queen, I'd be grateful for the chance to chat with the social worker. Mine has been super helpful and very straightforward. Met her on the first day of chemo, and she won my heart by saying, "This is an institution like any other. Let me know if you need help navigating it." Agree it would have been nice for you to have had the consultation in the beginning, when everything is SO hard.
Along those lines, I'm going to a seminar next week that the hospital's chief of psychiatry is sponsoring about communication between doctors and patients. I've posted here about being frustrated at various points about the gaps between what should happen (in my humble opinion) and what does. Plan to speak up as it has been a real issue for me with the MO and the BS, both of whom have good intentions, I think, but who don't always follow through. Will report back if I get useful information.
Here's to husbands who cook! Mine does when he has a chance, but he is often working around the dinner hour, and in the interest of keeping things moving for all of us, I'm usually the cook. My DH will block out a few days when I have surgery, and I do have friends who have offered to fill in the gap. My DH also pointed out something I'd missed: The last time I was in the hospital was when DS was born--on Yom Kippur. And the bmx is also scheduled for Yom Kippur. Guess I'll be fasting whether I want to or not!
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RainNYC: true 'nuff. The social worker here was lovely, mind. I will firmly recommend that anyone dx'd after me talk to theirs in the beginning. But I am glad my PCP's office hooked me up with the nurse navigators' office on the day of my diagnosis; guessing now that they'd notified the NNs they had a newly diagnosed patient coming in that morning, so *please be there for her!*
And also willing to consider the possibility of being firm with the local medical community about what to do with newly diagnosed cancer patients of any ilk. Thank you for mentioning it. I have no significant complaints about any of my contacts so far, but there's always something more to do.
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Slow the only SE I got from Rads was the same as you...............so tired, but not till 2 weeks after it was over....but Mark....my adorable, blue eyed, young enough to be my grandson tech told me that was going to happen........
One day when I feel up to it I will have to tell you about my first day with Mark................LOL.......
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Lucy...........thanks for the money tree.....LOL
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Rain I had my BMX in mid Dec. a month later we went to Fla for a week. I was tired but felt good to get in a swimming pool and get my arms moving. Went for long walks and felt good. Not enough strength in arms to work, but then my job is very physical. Actually the BMX was th easiest part of al my treatment. The drains are a drag but that doesn't last long. Only needed tylenol for a day
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https://www.tlcdirect.org/Post-Surgery-Mastectomy-Camisole-Bra-American-Cancer-Society-TLC-Directrainny,
Just telling a friend in a private message, I've done this twice ... Once young in 1990 ( my 30's) land again last year. I could not believe how easy it was. The first time it was ok too but I had a lot of pain for the first overnight because back then they always took like 18 nodes and my surgeon at the time, (we're still friends) told me last year before my MX that that was what caused most of the discomfort. He was right... Literally I have had dental procedures that made me more uncomfortable. The first time I was in Cedars Sinai in LA for a week and they removed the drain before I left. The second time at UCSF I went home the next morning with a drain (not thrilled by that) but it was still not uncomfortable I just get grossed out by fluids. Scars are no problem... Fluids not so much. Other than that I could not believe how easy it was!! They removed only two or three nodes just sentinel stuff so yeah they gave me pain mess but I only took them in the evening before bed and that was so I'd sleep soundly and not roll over on my drain. The next morning I was at coffee at my usual hang out . I recommend washing your hair before surgery as you can't get stuff wet for a few days. I didn't have any problem hiding the drain as I got this cami thing in the hospital gift shop that had pockets for a drain my insurance reimbursed me for it. I'll hunt up a picture.....back in a sec
Here's the link up above, and a picture
Mine didn't look exactly like this but you get the general idea. It really worked well under my clothes for about 10 days or so.
That's my two cents... Hope it helps
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Slow,
What a great story!!! Glad he found his inner Julia Child. I heard a hysterical story from my oncologist who told me about a patient who was in the hospital after mastectomy or something, when her husband showed up at 10 o'clock at night to tell her there was no food in the house!!!! He said he'd never seen anything like that ... Like ever. What was she supposed to do trying to relax after surgery late at night? Go shopping? Call and order a pizza for the guy???? So glad your husband turned into a kitchen whiz!!! My husband also can shift for himself, even though I do all the cooking... When I can't... He gets hot dogs.. Which he never gets from me... The junkier the better and he's so happy.
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thanks for all your good wishes about my recent test Crazies, just got a letter in the mail telling me my VaJayJay is in good working order. Whew!! I was worried because it had been a yr and a half since my last check up because of all this bc stuff.
Queenie,
Congrats for being done with rads. I never them cause of MX, but they don't sound like any picnic! Here's some celebratory fireworks!
Ducky, Hope you are soon doing the money dance!!
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Good Evening Crazies-
Saying without needing to, this thread moves fast and I wanted to check in to the CT mansion for a moment. I know I will miss some of you lovelies; please forgive.
Katy Before/After? Beautiful inside out. And yes it is curious that the references have toggled between big top/red tent in CT.
Slow Love the pic of the dogs at attention. I was really 'Hit' by what you suggested to Queen. In the truest of ways we can't digest our experience while we are 'eating it' ; neither the load/fullness/weight/lightness or whatever becomes apparent until some time after.... And yes I start H next Monday. Tamox is ok as of today; 10+ days in
Ducky- we need a crazies retreat house so maybe we can all start a fantasy fund; you know like fantasy football. and yes, I know way less about FF than gifs and memes. Most importantly, I think this house is where all the pillow cases and socks are congregating.
Sula- I love you from afar and I covet your kitchen.... I am booking tickets soon.
Rain welcome back and I have never been able o resist the potential of a new season... Lamb awaiting cool weather; yum. I am also hyper interested in the seminar re interface between doctors and patients. Very. Re your upcoming surgery, I'm thinking of you and maybe we can speak/meet before then. If I can I would be happy to support you post surgery!On the surgery note, Pennsygal- Thinking of you and sorry if I missed it, but have you made a decision on which path to take?
Octo- I know you are starting tomorrow. I am thinking of you strongly; my hand is squeezing yours.For me I'm distracted (barely) from my own next rx of herceptin while I'm prepping food for a group of ladies for 3 days. Day one down
Night for now crazies
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Sula we crossed and there needs to be a VaJayJay celebration for sure!
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