CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Octo ..so the tub is in ? Yes ..moving is definitely overwhelming...no matter how much you're looking forward to it ..! Hope all goes well with your new MO ...maybe you could say you are more than happy just having the tests your previous MO ordered ..??? You have to make sure your new MO knows you are in charge from the beginning 😜🤣 Seriously though , I know exactly how you feel ..I HATE extra tests !!!!
Iris ..how nice to catch up with old friends !
Jo..hope you can sort the insurance issues out on Monday ..glad you had a good day !
Hugs to all
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TwelveString: sorry for the belated welcome (I got sucked into catching up with homework--perhaps a sign that there can be life after cancer treatment). Sweet Deity--the 'wait for test results' craziness, yes. My father, who's been through his own cycle of cancer diagnoses (plural deliberate), tests and treatment, murmured to me at the beginning of my voyage, "Waiting's the worst part."
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Hello crazies. ducky if you are reading I am waving madly at you
12 string and anyone else I missed, welcome! Lucy, your poor DGS! How is he doing? Octo good luck with the move and the new MO. iris, glad you got a grant to cover the meds. How are you feeling? M0mmy, hello if you are reading. Jo, hi! Hi to QMC and anyone else I missed. Grief is dragging me down my friends. It will be 6 months this coming Friday since I had to say goodbye to my precious Wyatt. I am not in a good place right now. On top of that I am way behind in paperwork and my FSA for last year has to be spent by 3/15. Since Wyatt hit his copay max really early last year I am in a tizzy getting everything spent or accounted for. Last minute figured out that the diapers I bought OOP for him QUALIFY because he is an adult! Anyway, while digging through paperwork, checking patient portals for receipts etc I came across the CT scan I had done after my second UMX when I had a hematoma rupture. They never gave me any information and in the portal was the report. The good news. No clogged arteries. No sign of any cancer! The bad news (which I think someone should have mentioned) is I have radiation fibrosis in the left lung behind my breast implant. I think I will ask my PCP to refer me to a pulmonologist to see what they think. That could explain the fact that I keep developing bronchial coughs without being sick. Cancer...that gift that keeps on giving...
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Hey Molly!
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Hey Molly- nice to hear from you again. You've been in my thoughts. The last time you posted, you mentioned the possibility of attending a support group. Were you able to attend? If so how's it going? I don't have children but I can't imagine any greater loss. Always remember, if you need to vent come on over to Crazy Town. We're here for you
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Oh, Molly--you have been through so much heartache and stress this year, and now lung damage? Oy. You know the old adage "God never gives us more than we can handle?" Well, He must think you're Superwoman...but doesn't realize He's giving you Kryptonite. May things turn a corner soon...for the better. If anyone deserves a break, it's you. Hugs.
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Molly ..so good to hear from you ..we miss you ! Hard to believe that 6 months has passed ..I don't have any words of wisdom..but I do think it's true that time is the best healer ..My mum passed when I was 20 ..and for a long time I cried every time I thought of her ...then one day I realised I was smiling when I thought of her ...so hard to loose a child ...
Hugs
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jo, yes we have been to two meetings so far. They are once per month. You are right, losing a child is losing a piece of yourself and leaves this constant ache. I miss him so much. Sandy, I know it's crazy to think now I have lung damage on top of everything else. My daughter has been worried about my cough. I guess it's the nurse in her. Lucy, thank you. I know time will take some of the edge off but this is pain like I have never known before. Love you all.
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molly, i Remember my grandmother greiving after my mom passed. She though it unfair but so glad you found a group, and you will always have us crazies here!
Got mo appt today, so far this new drug really is not showing to many side effects, lets hope it is working. It is what they call a pdk inhibiter and advertised on tv, verzenio.
Molly, hope you find a pulminary doc, coughing is not fun
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After a week of vacation from chemo because of an infection and compromised immune system, I get a blood test today to see if I have recovered and can get chemo scheduled for Monday. Also, today I get an echocardiogram to make sure that the Herceptin has not damaged my heart. If it has, it might be a while before I could resume the every three week schedule of Herceptin.
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iris- so glad to hear you're tolerating the verzenio.
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i am back from onc visit, she said my blood work up was good, yeah! Course i had my first little episode of diarrhea just as i was getting ready to head out out the door, crazy. Only need to head for chechups every 4 weeks, that is for the bone density shots
But this med is definitely tolerable
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Mary ..sorry things haven't gone smoothly..hope you're blood and echo results are good !
Iris .yay ! That's great news !!!!
Hugs to all
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Fantastic, Iris! Glad the Verzenio is tolerable. (There’s always Always Discreet undies anyway)
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iris, our babies are always our babies no matter the age. Many parents in our grief group lost adult children. It must have been very hard for your mom. Glad you are tolerating the new med. Mary, sorry about your challenges. I thought this fit well in CT.
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On top of it all, I went off my clonazepam because I was tired and sleeping so much. And ended up. a mess after no significant sleep for48 hours. Now much better. Never thought I would have a temper tantrum at a pharmacy.
Bloodwork looks good, and echo tech didn't look concerned. Visit with onco in the morning. Then an ophthalmologist will go exploring in my left year duct in the afternoon. If that resolved the problem, good. Otherwise I radio be heading to cataract surgery.
My biggest hope is that I will be cleared to taxol #12 on Monday.
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Molly- I can still remember 24 hours of hot flashes. Your cartoon brought a smile to my face.
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Mary ..fingers crossed you get the green light to go ahead with your treatment !
Molly ..HaHa ..that concoction sounds good to me :-)
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Hi all: I am traveling for work this week but a quick check in to say hi and especially to send you my hugs and love Molly! Having to do all that paperwork in the middle of grief, and finding out about lung damage: it really is too much. Please check in often, we really have missed you!
Iris, glad you are tolerating the med.
Hugs to all!!!!
Octogirl0 -
After all the meds the last couple years, this verzenio seems the most tolerable so lets hope it does its job and keeps the nasty cells in gear. Do like that it is a pill. I go in every 4 weeks for shots in my butt but love the no transfusions
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Upon spending hours on the phone with my insurance company and Mount Sinai Medical Center, both agreed I can receive Continued Care at the Cancer Center. My insurance won't cover my primary physician or any other Physicians and treatment not related to my cancer diagnosis. I am just relieved I won't have to change cancer centers or my oncologist. Now I have to look for another primary physician. Yay yay
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jo, that's mixed news isn't it? Great that you can continue with the cancer center and your oncologist but oh the pain of finding and getting to know a new PCP! Here's hoping that goes well for you.
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beaverntx- I hate losing my PCP. I've only seen him twice but he was a very caring and thorough physician. My last visit with him was on Election Day. What stood out in my mind was hearing him telling all of the staff in his office if they did not vote in the a.m. he would allow them to leave work early with pay to vote. He said voting was a privilege. He proudly wore his I voted sticker. The country he came from citizens were not allowed to vote I was impressed.
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Jo, You have the right attitude! Octogirl, New Mexico, warm beautiful. I hope you are liking it.
I'm new to site but I read a lot about everyone. Sometime it feels like I'm nosey.. (hehe)
After many different tests with different results, the onco type dx test came in. it's a 30. I get a port Friday and cancel the tooth implant. ( Window of opportunity said the oncologist ) Funny, its a front tooth so I have plastic braces with a painted tooth where the was once a tooth. Works out pretty well. My surgeon called and told me results so I expect the oncologist will call today to make an appt? The wait is over. The plan is coming. It just keeps changing. Today I am going to get expandersfilled but I don't know if they still do that. I am assuming between 4 to 6 months of chemo? Im guessing from reading everyone medical bios. I don know how to do that so I pasted this below from my surgeon. Thank you all for listening, caring and showing your lives. Its very hard and wonderful all at the same time... very mixed up. If it wasn't for this site, I would not have the best attiude. thank you all. I don't know where the next forum is to go to but good vibes and thoughts to everyone.
Dorene
Who's very grateful for life, and that a disease was caught early. Chemo coming up then Diep Flap (abdomen hopefully) after,and then 5 years of exemestane. I think that is the plan. I was a huge exerciser and outdoorsy wood chopping hiker, dogs. Music person! so I still am! Just a bit slower for a monment in time...….
Jo, you are awesome.
Multifocal Left breast cancer, Anatomic Stage Ia: pT1cN0M0
2:00- IDC (1.5 cm), Grade 2; Biomarkers pending; DCIS, nuclear grade 2/3, comedo/solid; biomarkers are pending
3:00- No residual carcinoma; DCIS, comedo/solid
SLN (0/4)
Margins- negative
High risk family hx of breast cancer-(6 Members) Genetic testing with no pathological mutation; VUS of NF1
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dorene-hang in there. Soon you will have a plan in place. I am totally ignorant about expanders.
Today was my last day at Mount Sinai Medical Cancer Center. My insurance refused to renew the contract with my cancer center so now I have to find another facility. Unfortunately the other facilities listed or a poor quality and not associated with any cancer research centers. This is my reality so I will deal with it. I wanted to pay my doctors out of pocket for the rest of the year and then switch to an insurance company that would cover Mount Sinai. Mount Sinai said emphatically no, we can not accept self-pay if you have insurance. As soon as you're able to switch your insurance we will be glad to have you back. Rainy day in Miami so I need to get back to work. I'm going for a nice long run tonight.
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Dorene ..finally...now the ball can start rolling ! Find another forum that relates to where you're at with your treatment, but stay with us too !!! You're one of the gang now !!!
Jo...How annoying with the insurance !!! I know "it is what it is "..but I wouldn't be happy either !
Iris ..How are you ?
Octo ..moving AND away for work !!! Sounds stressful...unless hubby has the house all set up for you while you're away ??
We've been gardening ..making a dry creek ..it's hard work ..due to the slope of the land ..but fun ! It's still in the making ..Here's a pic ..we need the rain to come and wash the stones clean now !
Hugs to all
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lucy- what is a Dry Creek? I was unable to run tonight because of heavy rains. I think I'm going to workout with the exercise ball.
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Jo..Dry creeks are often made in gardens to look like a natural way of guiding the flow of the water when it does rain ( which is what we're doing ) , or just to look pretty and frame the rest of the garden ..we have lots of work to finish ours off yet ...adding the smaller pebbles that are naturally on a river bank ..then mulch and plant along the sides ..shame about the rain spoiling your run !
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Lucy- your Dry Creek looks very pretty. I imagine it took many hours of hard labor. Post a pic when it's finished. Every time I try to build a rock garden, the rocks end up sinking into the ground.
I love running when there is a light rain. But in a real heavy rain I'm hesitant because of diminished visibility. With this time change I'm running in the dark most evenings.
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Jo .if you lay some mulch plastic under your rocks it allows the water to go through , but prevents the rocks from sinking ..Do you run by yourself, or with a friend ?
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