CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Kathy,
No my mom wasn't an actress she was likes actress,and my very first writing job in my early 20's was on Maude
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Well, to be fair, all us womenfolk are raised to be actresses to a certain extent. No?
🎪🎪
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Katy. Hmm..Yes we do have to be actresses occasionally .. I know I've "faked it " a couple of times 😃😱😄
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My fellow crazies, I'd like to nominate myself to be the Official Lurker for Crazy Town. Seems to be a perfect fit for me since I have a hard time keeping up my end of the conversations here. Says silently - Love you gals. Jan
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Official lurker--I love it!
After lunch, I ate the most delicious plum, the kind that's deep purple-red and so slurpy I finished it standing over the sink. An hour ago, I looked down and saw spatters of blood on my white shirt. Oh no, shirt cancer!
It couldn't have been plum juice, could it?
Crazy Town. I swear.
p.s. Spellcheck does not like slurpy.
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Oh Rainny- you make me laugh. I totally got the smell and taste-o-rama from that standing over the sink slurping moment. Now THAT is living.
While you were slurping, I was picking these.
Anyone wanna come for dinner?
Jan- Yes on the lurker status! you have a nomination. I'm glad you just let us know you are there now and again. makes me feel better
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Hi Crazies
First a big thanks to the fine, wise women of CT
Katy, Pennsy ( good to see you), Slow , PTS- Yes I think I will split the baby in half and take toward when I am going to sleep- as a start. I'm not afraid of becoming dependent;it's not a thought I hold. I think it's more of a surrender thang. I took it slow the rest of the day, but did a few errands to get food supplies for my gig and picked up some books to take on the MV trip.
Katy I went for Prodigal Summer. I also couldn't resist 'On Immunity- An Innoculation' by Eula Biss. I may, or may not, cart the Emperor of Maladies with me, but I fear it may be confiscated. Perhaps I need to consider something lighter like a new version of Chelsea Handler's, 'My Horizontal Life'.
Sula, I second the inquiry on preventing brain mets in HER2 patients. But more importantly what success are they having with Herceptin only for stage IV. Oh and I loved Maude!
Katy - back to you from earlier today. The guidelines for being bounced RULE and let's add Octo and Rainny's amendments.
Rose that was one hell of a trip to get BC to the back burner. Glad you are finding this thread 'lightening'. I am in the eye of the storm with BC and this is my favorite thread. I feel badly but the the threads that pertain more specifically to my situation are, well, a little scary and tend to bring my mojo quotient down….
Rain sending you lots of 'high vibes'. And I look forward to getting our local chapter meeting up and running.
Octo you are definitely qualified to be the CT bouncer. Def post pics of Gabe. And I am sorry your incision has been stubborn to heal. Is there any time of the day you could let it be open and just wear a loose tee shirt?And Mommy you are the official 'hugger'
Ok Ladies I'm going to braise some kale. Really pushing for fall in my mind and heart.0 -
Christine- delighted you're going to give Prodigal Summer a try. It just popped up into my head that it is a readable version of Rainny's standing over the sink slurping a ripe plum. The prose is that lush. To me, anyway. I hope I haven't oversold it.
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Just scrolled back again
Rain: Ingmar
Ducky the ginger comment LMAO
Katy following that with the ribbon and the finger- that's for real. and how was that lamb?
TBC
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hey crazies...
Guess where I am???
I will hopefully get some answers from the doc,. That's something I'd like to know about too.. Plus I know they're really interested in herceptin only type stuff too. Sometimes his English isn't too great but if he can't understand I can always write it out that generally seems to work most of the time.
Waiting for my friend Evelyn to join me here on Herceptin island .. She's one of the early stage IV herceptin patients..? Nearly ten years later still kicking ass . I bought her a Cancer Card. You guys have all seemed to have kept yourself busy today.
I like the shirt cancer , I just had port cancer wiped off me as the bright red cheap ass bra I wear to herceptin , bled onto my port and skin and turned it pink cause some of the lidocaine I rub on myself before I apply the Saran Wrap ( beauty tip) got on it and caused a stain which turned stuff pink until one of the oncology nurses cleaned me up
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oh Sula. You hussy!
Christine- this was a 24 hour marinating deal. Will be firing up the grill soon. I'll let you know via smell-o-gram and taste-o-gram. Looking for something to do with a yellow squash to compliment it. Maybe I'll just slice long with sea salt and grill with s little cold pressed. Whaddya think
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Sula- has Evelyn been on H for 10 years? I'd be curious to hear more of her story. Is she on BCO?
(Sorry for your recent port cancer)
and yes the short cancer was good Rain- yum yum plum
Katy I take responsibility for what I choose to read; and I trust my sources.
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Katy we crossed- maximize the grill and yes keep the squash simple so you can relish the varied flavors of the lamb!
If I had to choose one meat it would be lamb. In fact I'm braising a top round this weekend for our early week meals.
Ok back to my kale....
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Katy how do you do that? I mean keep from eating the cherry tomatoes long enough to take their picture. I assume they're long gone by now.
I'm thinking tomato, eggplant, pepper, corn over polenta. Maybe some of that Vermont cheddar on top. Arugula salad with cranberry, walnut. Or maybe that for lunch tomorrow. (Me to self: Stop drooling on the keyboard, you ninny. And maybe you could have the occasional thought that's not about food? Self to me: Nah. Shut up. Get on with that polenta.)
Christine, I read as far as "I will split that baby in half" and my thoughts immediately went to King Solomon, not pain pill. Sorry you need painkillers, but I hope you can get ahead of the pain and go on with things, like that upcoming gig.
Sula, that's why we love chemo nurses. Because they'll clean up messes even when they originated with our bras.
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oh yum
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Rainny stop!
Arugula- top 5 veg
Polenta- top 5 anything
Yes cherries are gone. The pic only showed half of what I picked anyway. Like candy!
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Gaia,
Yes she has. She did chemo and herceptin together when she started as she was originally diagnosed Stage IV immediately. Now just herceptin. We were all out to dinner together s few weeks back , both of us and our husbands and they were saying back then not knowing what herceptin would do they gave her about two yrs and told her to get her affairs in order, of course the herceptin knocked it all out and then her MO said wow, I don't think you're going anywhere.
I think she may also get Perjeta also but not sure. She gets a prolia injection for her bones, as do I.
Any time something flares up somewhere ( and it has on a few occasions) they seem to get stuff under control . She works everyday and her kids are now in college, she's not on BC.o as far as I know. I'll ask her. She should be showing up any time now,, and my ass is still in the chair
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King Solomon -excellent
Rain I'm confused if i do need it. I actually do think what Slow mentioned about a muscle relaxant might be more on target.
... anyway for now I'm chill.0 -
Rainny- you are truly on a roll today. Just re-read the King Solomon and your comment to Sula about bra responsibility. Laughed out loud. So loud a little lol just wouldn't cover it. My dog lifted his head lazily snd looked at me like he knew it was about food.
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awwwwwww it just ate my post...grrrrrr
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Crazy Town is busy, busy, busy!
I never really took medication until breast cancer. My criteria for taking pain meds: Is the pain I'm in keeping me from doing the things that I NEED to do. Such as speak kindly to my DH and kids and be able to interact with them. Some of the meds made me dizzy and loopy, but others didn't. I found one that cut the pain but didn't make me feel weird, just human.
Slow, What is the process for evaluating your thyroid nodules? Here's mine: Physical exam where the endocrinologist squeezed my neck hard (as if he were trying to strangle me) while I swallowed small sips of water. Based on earlier blood tests, he started me on a low does of thyroid replacement hormone. US yesterday, no info was given to me about my test. Next week I go in for a blood test to check my thyroid hormone levels since I've been on the meds. The following week, I have an appt with the doc again. At this appt I will get the US and blood test results. He anticipates that my thyroid meds will need to be increased and that the nodules are nothing to be worried about. Just the mention of biopsy sends me to CT!
Did you know that California may have a pink license plate?
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pink license plate, interesting. My favorite color has always been pink, fuchsia to be exact. I've been thinking about the pink thing and outside of big corporations using it for profit, I am okay with it for ordinary people. Woman I work with lost her mom to breast cancer, she does the annual walk for a cure, 7 days I think or something. She said she could give a rats ass about the foundations, she does it to honor her mother in one of the few ways she can. My sons surfer friends wear bracelets because they want to acknowledge the suffering a woman goes through because of breast cancer. I know, because I asked a few what it means to them. So for pink, I'm okay with clothing, accessories, etc., and for individuals using it to honor the suffering women go through, if that makes sense. A lot of people really don't know any other way to show their support.
Met a guy bike riding, he wears a pink ribbon said his mom was diagnosed when he was sixteen and he watched her suffer through treatment, and said she is still here 35 years later. So to him I think it is a reminder that he still has his mom. And I'm okay with that too, and glad he got to keep his mom
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Sorry wonderful ladies, circling the drain again. Ran out of healthy coping strategies and am going down the list of unhealthy ones available to a bald, boobless woman of 35. Biopsy of nodule on prophylactic side on Monday because surgeon said he was 95 percent sure it wasn't cancer and that wasn't q good enough for me. Fear is my world right now...I wonder how you lovley ladies manage to stay so Damn funny! Count me in as a lurker...I'm intimidated by your savoir faire!
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You can count me in the pink haters, but in all fairness I must say that a portion of the funds from the license plates, if they get at least 7500 orders, will go to Every Woman Counts, a California program to provide free screening to low income and underserved women who don't qualify for insurance or federal programs: http://www.dhcs.ca.gov/services/Cancer/ewc/Pages/d...
That isn't enough to get me to order one but it sounds like a good program. (Every Woman Counts, not necessarily pink license plates).
personally, my bc charitable dollars go to to the California Breast Cancer Research Program: http://www.cbcrp.org (and note you can check it off your taxes if you live in California). Doing some very interesting research, might raise a question or two of interest to your friend from Japan, Sula.
Octogirl
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I got home today and collapsed on the couch. Breast is hurting around the suture that has issues and also my node incision. Afraid I was a bit cranky with hubby when he asked me what I'd like for dinner. Sigh. Oh well, Gabe to the rescue. And here he is, eat your hearts out ladies:
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Octo- sorry about the pain. Gabe is Adorbs. Hope tomorrow is better.
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Littleblue, so sorry you're circling the drain. Here's my explanation: Due to upcoming bmx (spellcheck doesn't like that one either), the fact is I have been a cranky little ball of stress all week (if they knew I was posting this, DH would be nodding smugly and DS would be giving that know-it-all adolescent snicker.). Went for a very long walk today, like three hours of getting ready for surgery/DS's birthday type errands. Had an ice cream cone on the way home; I've been avoiding ice cream all summer due to chemo but today, I enjoyed every single calorie.
By the time I got home, I was tired, completely relaxed, and yeah, maybe funny. But I've been in C-Town this week like you wouldn't believe. And humor is one way to cope. Which is to say that it stinks that you're having a hard time. Fear is always there to some degree, I suspect for all of us. On good days one lives in the moment, hence the food porn, and plans for the future. On bad, well, we all know how that goes. I hope your surgeon was right and your nodule is clean. You are always welcome in Crazytown.
Italy, you are completely right that for many, pink is a valid and lovely personal statement. Doesn't mean I don't hate how it has been co-opted by big financial interests. But your work colleague and your son's friends are doing something right. Now that license plate, on the other hand....
Sula, my onc has a patient who's been on Herceptin for a decade. Gives one hope.
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hubby is making spaghetti and meatballs and staying out of my way. He is glad that Gabe has no opposable thumbs and can't cook.
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Octogirl.. Gabe is very cute , and has a very knowing and understanding smile.. I can see how he could easily become a BFF :-)
Slow.. I love your story about your sick bear. . So much meaning, love and caring shown with it.. I bet it was very comforting for you and your Dad just having it brought into your hospital rooms.. makes me smile thinking about it!
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omg, now I want spaghetti and meatballs. Big, Sicilian, fat greasy ones with tons of fresh tomato sauce! And half a carton of Parmesan cheese. And some coarse Italian bread to sop up the juice. And a glass of chianti. And an Averna. And some limoncello. And panna cotta con fragola. And a bitter espresso. Then I could explode in pleasure.
I need to go back to Sicily. Then all this breast cancer crap wouldn't matter, I could just eat and drink myself to death! And die happy in the sun somewhere under an olive tree.
Ooh, olives.....
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