CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Euphoria . . . I have a partial diagnosis, and results of the MRI as well. I updated my profile, so hopefully the specifics show below. There was NOTHING new suspicious on the MRI, so I am over the moon with delight. I can go on a planned trip for three weeks. When I get back, assuming the BRCA test comes back negative as I expect it will, all I will need is sentinel lymph node biopsy, since they got clear margins on the surgical excision. Super super super! My sister was BRCA- and my mom smoked for 70 years and died of lung cancer at 78, so I'm feeling pretty confident. After nodes, likely radiation and Tamoxifen. I don't even have to take time off work if I don't want to. Wow, most of the uncertainty is just GONE and I got some good news ta-boot. It's a great day! Thanks everyone. This was the perfect place for me and I'll stick around and see if I can't be a boost for other folks freaking out as I was. God bless you all, I know so many are going through so much worse. Hang in there.
(Ok I don't see my DX posting? So it's IDC, 7mm, Grade 2, ER+, PR+ still waiting on nodes and staging.
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Slow.. HaHa. I love Everyone Loves Raymond.. It was my favourite show for years.. Everyone in the show was so good.. I could never choose who I liked best. Makes me sad now to think one of the twins committed suicide :-(
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Eggroll.. That's great.. So glad you received good results from the MR...I'm doing the happy dance for you.. . Your stats are the same as mine.
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Great news eggroll!!!!'🎉🎉🎉🎉🎈💃🏿💃🏿💃🏿💃🏿💃🏿💃🏿🎉🎉🎉🎉
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Happy Dancing for you. Eggroll! The Eggroll dance. Ha Ha
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SO great eggroll! Where are you going on your trip? Happy for you!
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YAY!! Eggroll. Doing the happy eggroll dance!!
Lucy, It was one of my favorite shows. We watched those twin grow up on screen. It was awful to hear that news.
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Ok Crazies
I'm home and parked on the couch. The Mothership is off and heading toward other adventures in her world. It was a great visit and interesting to observe, through the fiasco of her car being towed, that I am definitely responding to things a much lower decibel of panic. I guess knowing to some degree what I may perish from puts things like a towed car and the antics surrounding retrieving the car in perspective. That said we actually still never know how we will leave this current embodiment- maybe it's a broader thing I am beginning to understand. We really can't control much of anything…well ok we could have read the street signs better, but 'whateves', that's done.
Slow, sorry to hear the damp weather is aggravating the RA and I can totally understand wanting to push pause on the blood tests for the moment. Breathing with you!Tomboy, are you still enjoying the ocean breeze? I can't wait to be on the vineyard and sinking my feet in the sand, refreshing my senses and my shell/driftwood collection.
Katy when did you live in Peru, you goddess of all things mysterious? See you are the town Shaman. I travelled to Peru once. A very magical place, and I would definitely like to experience it again
Poppy, So happy the person who invaded the shelter was picked up. I can imagine the woman who left her pup to be spayed being so heartbroken.
Ducky, What more can be said of your stories and your newly appointed post. The CT Clown of the highest order and very deep wisdom.
Sula, I love all the eggplant posts. As I said before, it is one of my favorite fruit-vegetables in its native season. The raccoon posts made me laugh- definitely not as scary as the possum posts.
Rain- you've been quiet. Thinking of you and hope the meeting with the BS went wellOcto would love to hear your 'mothership' stories.
Ok Now i'm starting at my feet and wishing I ad that pedicure- I never color the nails, just buff. Maybe that's a plan for tomorrow as well as organizing my food prep schedule for next week.
More later crazies
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OK, maybe this is the thread to ask this on, maybe not, but I don't know where else and who to ask or talk about this. Have you noticed that on most threads, the people who post have been diagnosed and/or in treatment during the past year or two? Some three or four. But, where are the others? I have trouble not going to dark places in my mind. I find do all of this really scary! Am I the only one?
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Christine- I definitely think there are, shall we say, opportunities, for putting things in perspective. You put it very well. I stop short of calling this "situation" a blessing. Well short.
I was married once upon a time to the nephew of a real Peruvian curandero. I never met him (the curandero, not my husband-I saw him all the time), but did meet other curanderos. Some lean towards the dark arts and some are more towards naturopathy in its naivest and most beautiful form. Knowing my husband, and receiving his awareness was probably among the first earth shattering revelations I ever received that if it comes in a bottle from the pharmacist, or the OTC section of the supermarket, it's NOT by definition safe. He taught me so much about herbs, roots, flowers, and ways of thinking. Before him, I thought the FDA was there to protect me. Didn't realize it was a golden parachute for Monsanto executives.
I'd tell you more, but then I'd have to kill you
Suffice it to say that I have traveled far from my start as a privelaged white female American. I have checked my privelage, questioned my assumptions, shed my bank account, (but that was mostly due to a bipolar meltdown)- but retained my love of good wine, rich food, Western European culture and norms, while embracing new and not so new ideas from other people, places and things. I don't know what to call myself. I'd like to think "open" and "flowing" but those words describe my aspiration more than my achievements. But they are targets, within my peripheral vision, at all times. Almost at all times
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sunshine, many of them are out living their lives. They come here when they are going through treatment, once they are finished, they go about their business. Only the truly CRAZY stick around!! hahaha
Actually there are many ladies that have been here for years and years. The exercise thread ladies get together every year and take a vacation together. The last two years, they came here to CA and we all got together. I think they've been doing their get togethers for five years now.
No, you're not the only one. I think we all get scared. The trick is not letting that scared feeling takeover your life. I think that is why we all congregate here on the border of Crazy Town. When we have those feelings, there is always someone around to help you through. Plus, our families and friends can't always understand the challenges we face. Most everyone on BCO gets it.
You can ask any question here. Even some that may feel uncomfortable to ask.
Edited to add: Also, some of us stick around to help the new groups that come along - paying it forward.
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sunshine, I am 6 years out and continue to post on these threads, it helps me to think I at times can help others? or maybe just saying I am here!
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This thread is cracking me up today! Love the posts and photos.
Had the US of my thyroid. The entire time my phone is buzzing with texts from my middle son who was sick and wanted me to come pick him up from school. I must be dependable and responsive because his last text said "So does this mean you aren't coming to get me?"
I'm known as the raccoon lady at my house. Let me tell you one of the things that happened when I was all messed up on my chemo drugs. My DH, the boys and I were all together in the car. Out of the blue I said "I wish there were more raccoons in the world." Total silence in the car; they thought I had completely lost my mind.
Mysunshine, I think most people don't spend much time on the board once they get passed active treatment. Most people get busy with their lives and stop dropping in. Many, many of the threads are designed for active treatment support. It seems to me that the people who stick around are the ones who need continued support, or who truly make friends with the people they meet on the board.
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Eggroll, Fantastic News!
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Poppy................I think the latter....................I have made wonderful friends here, and some have met with.......some have raised me up.........some have adivsed me............but more then that........many have loved me..................and one I have adopted..............I'm an old lady compared to most of you..................I have children your age..................and great-grandchildren while some of you are still working on grandchildren...........
I would say I am probably the oldest one on BCO..........at least every thread I have joined at one time or the other ......I have been the oldest.....
You all are my morning coffee, and my midnight snack......love you all.0 -
BCO has become quite obsessive for me.. I mostly just pop on here to see what all ypu Crazy's are up too.. But at times when I'm scared I know there is someone to.hold my hand.. I can also understand why some people stop coming after active treatment.. So they can escape from being so.involved with BC on a daily basis.. I've wondered if it's healthy emotionally to stay as well.... But I'm a well renowned Crazy.. So will be here forever I guess.!!
PTS.. You help others here on these boards every day.. Never doubt it!
Poppy.. HaHa.. I love your son's text. :-)
Katy.. I think open and flowing describe you perfectly 😃
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Slow, Lucy,
both my parents were Italian so I totally get that!!! My mom was Bea Arthur in the Golden Girls, very dry wit and snarky. I did get my sense of humor and timing from here which has served me very well career wise but she was not the easiest person to get along with (if you were family) with everyone else she was just sooooo sweet.here she is in all her glory..of course she was talking trash about someone to me when my husband took that picture
Gaia,
it's so great that you can spend time with your mom like that, she looks and sounds like she'd be a good one to party with. Also, that rolling supply wagon she's got, kind of reminds me of my father in law who drove down from his ranch in Idaho to see us in LA like he was pepping to be in The Road, stocked with guns and venison sausage. Hope you guys have a great visit.
Lucy,
haha!! hey, here's how we do jowl cancer checks in Crazy Town. Wonder if I can hire that raccoon?
Ducky if your grandson keeps leaving food out for those little guys this is what you'll see..
Jack,
that's a great crown for Ducky!!!
Hope Tom and Octo, are doing well today. Tomorrow is herceptin for me so no writing....
I'll be checking in later to see what's what.
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OMG Sula that pic of your mother. "of course she was talking trash about someone' Amazing. I am a through and through Italian heritage as well, but second and third generation. My Dad's 'rents came from the 'homeland' and my mom's grandparents came over.
And Ducky my eyes are full of sweet tears at your last statement: "You all are my morning coffee, and my midnight snack". I love you to pieces.
Ok braising some kale.
EDITED to say Katy I need/want to address what you shared when I am more rested. That was amazing and powerful ( I have no idea why I'm saying that, but I think you get it)
And Edited to say-this is a magical bunch of women here. I thank each of you daily.
Later Crazies
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Christine- I must warn you I'm at least 50% whack job. That's how I got in this joint. Plus Sula gave me this to show the bouncer at the city limits: (note to committee: we need to elect a bouncer)
Anywhere here's how I got in here:
And once here got the nerve to try something like this! It's for tomorrow. Indian yoghurt spicy marinade lamb loin chops.
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the aforementioned bouncer will be in charge of the positivity police and the department of stupid comments. In addition to their regular duties.
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Gaia
your mom sounds like a trip - must b a good situation comedy in all your interactions. keep the stories coming.
Ducky
I am going to have to refer you to PETA!
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Sula- that photo if your mom looks like a curated art piece! Very dignified.mvery beautiful. Maybe a little scary. I bet she could dish the trash talk!
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Sula.. I love the pic of your mum... and just loved the Golden Girls.. HaHa..
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jackie.l........................is that body thing laying on the table Ginger......it looks like a woman's body with no head, and her legs cut off at the knees........LMAO.0
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Why yes Ducky, how perceptive! It's actually a little voodoo doll representing the pinktober crowd that annoys me so much. I was just about to give her a jab with my best knife!
And then this:
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Mysunshine: I too would bet that a lot of women (and a few men) simply disappear into the night once they're done with treatment. They come with questions, panic, fears....and once they're settled, they get on with their lives.
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Hi--
Love all the mom pix! And the raccoon pix! And, yum, eggplant.
Poppy, so glad they caught the animal shelter guy. What an appalling crime. And your son sounds so perfectly middle school; I love the way he gets to what really matters. Mine would have done exactly the same thing.
Katy, you become more exotic with every moment.
Gaia, your mom sounds/looks fabulous. Meant to ask: by Bergman, do you mean Ingrid or Ingmar?
I've been full-on C-Town, with surgery next Tuesday. They're saying a one night stay, and in fact I must go home Wednesday or will be caught up in Pope traffic and have to stay in the hospital until he's off on the next leg of his journey. Met with the BS yesterday (Thank you, Toradol thread!) as well as nurse, did pre-op testing. So it's all moving quickly and I will be very glad when it's done and I'm back home (since I still haven't figured out a way to get the insurance to pay for 2 days in a 4-star hotel all by myself). DH suggested we could go home on the subway. Ha ha ha ha ha ha ha ha!!!
Meanwhile DS turns 16 on Sunday, so no matter what happens, I must bake...
G'Night, crazies!
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The above is a favorite I haven't heard in a long time.... But reminded me of all of us. Have a good night my Crazies!
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Rainny- thanks you for checking in. I have you in my calendar and have started the pharmaceutical grade mojo drip to keep you calm.
Your sisters are around you now, and there we still will be when you check in, when you change into your hospital gown, as they wheel you in. You will feel our hum and our warmth and our protection in a circle all around you. And we will stay with you and will be there when you wake up. You will feel no pain, only love. They will take great care of you. W won't leave your side.
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Katy...I am proud to let you all know that I was the first female security guard ever hired at the Monterey Jazz Festival....yes, that was a long, long time ago. I wasn't so much hired to bounce people (although we did camp on the grounds and patrol the perimeter at night. but if anything really happened, which it never seemed to in those days, we were supposed to call the police). We were asked to make sure people who didn't have tickets didn't get in by offering the ticket takers $100 dollar bills or illegal drugs instead of tickets. Fun times, lots of free jazz and a chance to meet a performer or two. Of course we were all crazy and I will deny we ever tried any of the drugs people tried to palm into our hands...but in any case: if that qualifies me to be bouncer, I'll volunteer.
Only one problem: we are all so crazy...not sure I could ever bounce anyone. Big Pharma maybe?
xoxox to all the crazies.
Octogirl
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