CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Oh WOW....you've all been CRAZY busy!!
First things first. We have two newbies to our thread to welcome!! You each get a Crazy Town kit which includes a mirror, magnifying glass and flashlight. Use it wisely!! Can't be used for recreational use!! haha
Welcome, Positive_Spirit!! Love your name. Please pull up a chair and get your crazy on!! You'll love the ladies here. They are AWESOME!!
Welcome, momwriter!! Crossing all fingers and toes for a B9 result for you!! So happy you joined us here. Please let us know how it goes when you can!!!
Had the US today. Thank you so much for all the good wishes!! Every day I'm so grateful for all of you. Now it's time to wait. I feel NO anxiety. My new mantra of WHATEVER is working well. In fact, I'd rather now even know the results!! How is that for improvement??? Or, how's this....when they call me, I won't answer!!!!!! heh heh
Gaia, Thank you so much for the very kind words. I hope all went well for you today at your infusion. Were you able to tell them about your pain?? I hope there is something they can do for you. It is my hope that the Herceptin is doing its job and that is what you are feeling. I think it is far worse for someone that has been healthy and strong all of their lives to suddenly have to deal with all of this non-sense. I just can't even imagine what you must be going through. I am also claustrophobic and know just how terrifying the scan can be. Have you asked about an open MRI? That is what I did last time, and I didn't need to take an Ativan. We will all be in your pocket tomorrow whispering in your ear during your test.
Rose, You've been through so much. Being a caregiver is a difficult job that not everyone can do. What a wonderful person you are to care for him. So very sorry for your loss. Very happy to hear you don't need rads!! A big happy dance for that one.
Katy, You and Minus at the retreat....how fun!! I bet the two of you would have a blast!! I love your garden. I wish so much I could have one. It is fun to live vicariously through yours though. That strawberry jam looks amazing!! Toast and jam for all!! Thanks for sharing the pictures! Loved the crazy, cocktail porch sign!! We ALL live in the mayors mansion together. Each room has a different crazy theme. The porch is our party place and we have a big bonfire in the backyard!! Oh yeah....and we also have someone that cleans up after us daily. I'm so happy to hear it's a bit better for you today!!
M0mmy, Hope that pain in your neck is almost gone. Put that husband to work!! haha
Lucy, Thank you!! You're such a good grandma!! I bet your grand babies love looking at your pictures. When my nephews come to visit, they always like to look at family pictures. You're so fortunate to live so close to the beach!! Thanks for sharing your picture. I can picture you relaxing in a lounge chair, cocktail in hand, your husband fanning you with a palm leaf.
Octo, My condolences to you and the Giants on their loss!! I remember last year when the Patriots beat the Seahawks in the Super Bowl....it was heartbreaking. I'm thinking the residents of Crazy Town should always engage in magical thinking!! I'm glad you had Gabe to comfort you!! I second Katy's sentiments....I'm so glad you're here with us!! I'm sorry you were so upset. It's good to get it out though. I found myself so emotional while going through treatment. It was so unlike me.
shorfi, You are no nuttier than the rest of us!! haha
I'm glad you have a patient husband. I'm fortunate to have one too. Poor, dear man!! I know I must drive him batty.
Littleblue, You cute little lurker you!! It's always good to see you post. I'm doing one big happy dance for your good news!!!!
Sula, You're like an energizer bunny. Where in the world do you get all that energy for all those dinner parties??? Just thinking about all those dishes gives me anxiety!! haha Just getting eggplant on the plate was an accomplishment for me!! hahaha Wouldn't it be nice to ring a little bell and have all those dishes magically disappear?? More magical thinking. You're table was beautiful and inviting, as always. Thanks for sharing the pictures!! So much fun to have a small glimpse into one of your evenings. Great info for the stage 4 gals. You rock!!
Rain, I hope you're resting well and aren't in too much pain without the opiods. I hate drains!! I was fortunate to get away with having them for my lumpectomy. When I had one of many surgeries in '03, I had a big long drain that went from my knee up to the top of the inside of my thigh. Oh man was that weird when they pulled it out!! I hope you're able to get them out quickly!
No, unfortunately, UCLA was not an option for me.Sleepy time for me. I hope you're all sleeping restfully and dreaming of Sula's delicious Indian food and Katy's strawberry jam.
Love to all!! ツ
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Thank you for the awesome welcome kit, Slowdeepbreaths! That put a smile on my face. I wish you B9 on your US, and thanks for the same. I am going to try to hold the whatever attitude.
Gaia- Good luck in the tube. I'm also claustrophobic- can't sit in the back seat of a 2 door vehicle. Next time I'm using ativan or some aid like that. This time, I kept my eyes tightly shut which worked well for most of it- I felt like I was floating. But at the end I felt a bit ragged and I started counting backwards from 100 but I almost asked to come out and would have if it hadn't ended right then. So don't be afraid to ask to come out if you need to.
Thanks to all of you in Crazytown!
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Gaia: hoping you've finished the MRI by now, but my sympathies!
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OK, so I am drooling over that strawberry jam, goodness but the store bought stuff is just not gonna satisfy me now!
welcome to the knew folks, so good to be able to turn on the puter in the morning and read all the postings.
I got messed up on my medicare thing for my physical therapy for my back. Seems I have hit my yearly max and need to get a new script from the spine doc to continue on with the PT. Dang it all, so confusing for this beginner retired person. So got an apt on the 6th for that but it means no PT till after that. Gonna miss my PT guys but they gave me all sorts of exercises to do on my own so hoping it keeps me out of pain. Got pain in my groin and trying to decide if hot or cold~~
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Gaia, thinking of you in the MRI. I'm sure you are done by now. Sending light, love,prayers, and magic spells your way!
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Ladies and lurkers of CT
Thank you all for your spirit, mojo and magic spells. I did indeed have an open MRI so was not as intense as a regular tube. I am not sure if my MO will get results today or Monday, but I will surely keep you posted.
Welcome to CT positive spirit and momwriter! Slow's welcome kit is awesome!
Slow I am sending positive vibes that you get an all clear on the US. I too hope all of these mythic aches and jolts are the meds doing their thing! And i love that dancing woman!
Katy how is that jam..... when I return from Martha's Vineyard I am going to re-start my 'mother' for bread baking and we can have a toast and jam party. I loved the porch sign... in fact it's 5 o'clock on my couch right now.
PTS sorry the PT is going to be delayed, but keeping up the exercises on your own is important!
Rose great news on no rads!
Sula, once again a luscious feast and thank you for that info on MBC- I will look into the study and probably reach out to the contacts you provided.
Octo are you feeling better today?
Rainny, how is day 2 post-op treating you? Do you have an appetite? Wishing you an easeful recovery.
I think that is as much as I can back track for the moment. A small nap is calling me. And then packing for our MV trip. My man and I have been together just under 3 years ( though we actually worked together 20 years ago) and this is our first true vacation together. Much needed for both of us.
More later you crazy, inspired and inspiring women.
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ok, that bread looks incredible! and with that strawberry jam? sounds like dinner to me, and lunch and midnight snack!
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Hi all-
Again- thanks for all the positive thoughts!
Just wanted to give a quick update. Per usual I do have a call back. On my breast MRI something unusual lit up near a pec muscle on opposite side from my BC side- but didn't look like a tumor enough to go after it now. So 3 month follow up chest MRI. This has been the story of my imaging life since diagnosis- always a different weird thing. I am thrilled that so far all have been B9- but it's always something unexpected that I hadn't anticipated- and it does put me through the ringer. So I'll be in crazy town in December again. Gaia- they don't seem to have open MRI where I am (and it's a major cancer center) but I will look further into it and otherwise may ask for a xanax for that day and have DH go with me.
Meanwhile, I'll enjoy the cheerful attitude you all have here. Gaia and others wishing you all good results. PTS- hope you can figure out your PT. Gaia = that bread looks amazing!
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Gaia,
Hope you are doing well and thinking of you!
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Hello, crazies. Greetings from stir-crazy town. Feeling better though achy. In the spirit of Indian food, gorgeous strawberry jam, and homemade bread, I thought I'd post what someone gave me:
This is a pound of cacao beans that came from a friend who spends her winters on a farm in Costa Rica. And this is what I'm going to do with some of it: http://www.thehungrymouse.com/2008/12/14/how-to-ma... We are also having deep visions of mole sauce.
Meanwhile, for Katy, a.k.a. Jamgirl, this is what I used to read to my DS when he was little, and before that, when I used to do children's story hours in a bookstore:
One berry, two berry, pick me a blueberry/Hatberry, shoe berry, in my canoe berry/Under the bridge and over the dam/Looking for berries, berries for jam.....Strawberry ponies, strawberry lambs, dancing in meadows of strawberry jam.....Raspberry, jazz berry, razzamatazzberry/Berryband, merry band, jamming in Berryland/Mountains and fountains rain down on me/Buried in berries, what a jam jamboree!
Happy Friday to all and please feel free to have a gin & tonic for me, since I suspect I shouldn't be doing that yet.
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Rain---isn't it nice when folks give you funky things? enjoy the cacoa beans and let us know how the mole sauce comes out
love your little song!
gonna have to settle for some red wine as no gin in the house~~
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Been watching our Pope for the past several days......what an inspiration he is.............such a holy man.............he is all over the east coast ..............D.C., NY, and tomorrow to our city........Phila..........
You don't have to be Catholic to love the man...........he surely is the People's Pope.............
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I agree Ducky, keeping my TV on and my lap top open
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yes Ducky, I agree. A wonderful man- a holy man. I was raised Catholic and fell away years ago. Might not have if this one had been around instead of the hierarchy protecting bad/abusive priests.
Rainny, thank you for reading to me. I'm in that kind of mood (still, unfortunately) that it was quite a comfort to me. The drinking chocolate sounds amazing and I ADORE mole.
Christine- glad you got through it. Now we all wait together. The bread looks like a perfect pairing with homemade jam and a proper tea, in a pot, with loose leaves and strainers. Sitting on the CTown mansion porch of course. 🎪🎪🎪
I am struggling again today. Have exercised, taken Jack (ironically) to the hospital psych ward, and other tricks that sometimes work but I'm still quite down. I am not free-falling, but I'm way down there.
I looked up just now and saw Tutti up high in the window with her glorious tail hanging down. Had to share.
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Rainnyc: a sip or two of champagne will be dedicated to you tonight--finished rads today and set the champagne to cool
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QMC-CONGRATS ON FINISHING RADS TODAY!!!!!🎉🎉🎉🎉🎉🎉🎓🎓🎓🎉🎉🎉🎈🎈🎈🎈🎈💫💫💫✨✨✨. I might just have some champs in YOUR HONOR!
Probably not the best idea in my current state, but fuck it.
🎪🎪🎪
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Aw, hell: champagne all around. On the porch that's always sunny here, shaded there, and just breezy enough to be cool and keep the mosquitoes at bay. No more stripping to the waist and lying alone on a cold hard bed with mediocre '80s synthpop.
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Queen, congratulations! I have a new definition of Crazypants: when you're well enough to want a drink and not well enough to have one.
Ducky, I quite agree about the Pope. I really enjoyed his speeches and love his activist, humanitarian point of view.
Gaia, where is MV? Or what? Or did I miss it while in an anesthesia fog? (I admit to some very cursory reading for a few days.
Katy, what can we do for you? Looks as if Tutti is reaching out to you and saying, "come back up!" Do you know about the Evil Butler of Downton Abbey? I tried to post it but it's not showing up here; google "the evil butler strikes back."
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You totally made my day! Let me know what date you are going to Harmony Hill and maybe I can go that same weekend... if not I can at least treat you to a meal out at Alderbrook Resort. That's just so wonderful that you can do that. I always love having things to look forward to . . .
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Eggroll- will keep you posted on dates. They haven't released 2016 dates yet but my application is in and they are saying maybe next January.
Rainny- the evil butler...funny. I hadn't heard of it. He's such a devil, that Darth Barrow. But they never let you hate him completely! Brendan Coyle was in that progeam I watched the other day with John Hannah called Amnesia. I like him too. Hope you are recovering well. Thinking of you.
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hey crazies,
Queenmom,
Good going on being done with rads!!! Passing around a frosty cool drink in your honor!
Gaia,
Hope you were ok in the tube. I'm not claustrophobic and do those MRIs have not bothered me, at least being jammed in a small space is not a problem for me, in fact it's just the opposite. I have heard that herceptin can cause some duscomfort as it gobbles up any bad stuff .
Rainn,
Hope you're on the mend. Feeling any better today? That's some big bag of coca there, never. Seen them on the hoof like that!
Ducky,
I've been watching the pope too even though I haven't been to mass since my parents died two yrs ago. He seems to really be on the right track reaching out to people. I was educated post Vatican 2 by nuns who were big into Liberation Theology and it really stuck with me and formed my political thinking so it's good to hear that message again.
Slow,
How are things with you, I hate tests get some good rest tonight. I just made a deal this week to consult for a new restaurant opening here in Sonoma. I'll be developing recipes and showing their chefs how to do them so it won't take too much time from my writing , it's something I can do in my free time. They wanted a 1 yr contract , I asked for 6 mo and so we settled on 9 mo. My husband negotiated with them as I'm terrible dealing with that kind of stuff as our agent always handles stuff with the studios for us... So my husband was my agent with the restaurant people.
Jack,
With Gaias' bread your jam and some tasty homemade ricotta from me we'd all be in business. Your jam and her bread should defitely be on the menu in the Crazy Town Diner.... We do have a diner, don't we???!
Momwriter,
Welcome to Crazy Town now that you're an official citizen hope you enjoy yourself here, we're a pretty fun bunch and we never let anybody spin too far out if control.
Well,
I'm starting to wind down tonight... I'm going to be doing some cooking and planting over the weekend and wandering the streets of Crazy Town, this is the yr anniversary of my diagnosis, at least the core needle biopsy where they knew something was not good. The details came later. Anyhoo... G'nite all
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For all newbies and those needing hugs today
(((((((((((((((((((((((((((((((((hugs))))))))))))))))))))))))))))))))))
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Good morning ladies. Hope we all have a pleasant day on purpose.
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Gonna try
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Ladies of CT
another quick dip as we are packing up and getting on the road for much wanted/needed trip to Martha's Vineyard. we rented a house 'up island' near one of my favorite beaches in Aquinnah- Gay head beach.
MO called yesterday and basically the MRI simply shows what the PET showed- the bitch in the pelvic bones and L3/4 and sacrum. So no new news, and most, importantly, no fractures, which is what my fear was..... so I will continue to beieve the nagging and sometimes intractably uncomfortable jolts of nerve pain is the tx doing it's thing.
Katy, I am sorry that you are still feeling 'under it'. Please let us know how we can be your support sisters. Wishing Scotty could beam us on over to you for tea/jam/ Sula's ricotta and bread with a champs chaser.
Rain when I had my myomectomy 10 years ago i ditched the pain meds and went to wine- yeah, I'm a little out there...
Ok I gotta finish packing and I know this is brief, but I am holding you all close!
More from the island!
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Gaia, Martha's Vineyard!! Oh, have a wonderful time. Lovely time of year, too. So glad the MRI showed no progression. Let me know when you're back, and let's hope I'll be enough up and about to have that Brooklyn Crazies meeting. Or soon, at any rate.
Sula, I'm wearing the camisole you suggested. An unspeakable improvement over the surgery bra. Thank you! Hope the anniversary weekend isn't too fraught with Crazy. And very cool about the restaurant consulting gig.
Katy, thanks for the recommendation of Amnesia. Came at just the right time--I plan to watch it in the next few days. Hope you are eating jam by the spoonful and have found an even keel.
Proud, hope the pain has abated while you're waiting for the PT.
Today is the first of several evenings when DH (who has been stepping up nobly on the cooking front) has to work, so a friend has organized several others who've offered to bring dinner through Wednesday--there's even an online calendar for who is bringing what and when. So I have visitors as well as something to feed the boy without having to worry about lifting our cast-iron stoveware. Yes indeed, the boy can cook basics, but we can't have scrambled eggs every night, plus he has three AP classes and is taking the SAT in a week, so he has plenty to do. It's driving me nuts to have all the CSA produce and not cook, but realistically I need to wait. Though I might pull apart that romanesca cauliflower and roast it. How hard is that?
Happy Saturday, crazies!
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Sula: totally on board with the CrazyTown Diner. Off to dream of what else might be on the menu. And how it might be staffed.
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Gaia, so glad the MRI concurs with the PET - nothing new is good. Have a wonderful trip - Martha's Vineyard is beautiful - love it there.
Katy - Tutti is so pretty - long haired cats are the best - she's a calico? I am making this my new mantra, thanks to you: Probably not the best idea in my current state, but fuck it.
I had a brief foray into CT last night. I've been getting anxious about the surgery next week, so I took a Xanax to help quiet things down. However, I had a paradoxical reaction, and it made me restless, hot, tossing and turning, mind racing more, etc. Up til 2. DH slept through the whole episode.
Have a lovely Saturday, all. The weather here in central PA is sunny and I hope it's nice where you are.
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The Pope is in Philly right now saying Mass at our Cathedral.................I can't say enough about this man..........I must say NY and D.C..........certainly did welcome him,and it was amazing his pure love for the children..........such a Holy man..............
Having a disabled great-grandaughter I know the heartbreaking feeling when your told....she will probably never walk by herself.......but she keeps trying, and through prayer and hard work......maybe one day she will.........
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Morning crazies...got my coffee and curled up to read the updates on my favorite sisters!..
duckyb...she is gorgeous and whether she walks or not, the spirit that keeps her trying will take her far in life, I predict!
Gaia: so glad that there were no surprises, and HAVE FUN at MV! I've never been there, but have this image in my mind of endless beaches, salt air, good things to eat. Enjoy.
Sula: OF COURSE there is a diner. Aren't you head cook? :-) Seems like a no-brainer to me. Have you been to the Fremont Diner just outside Sonoma? Ours is like that, only even better....
Katy: hope the weekend finds you feeling well.
Queenmomcat: CONGRATS! Hope the champagne was wonderful!!!
and hugs to everyone here in CT!
So, magical thinking isn't preventing the Giants from just keeping on losing. Post season dream basically gone. And it didn't/hasn't prevented my hair from starting serious shedding yesterday and last night. So, hubby and I always have date night on the 25th of the month, a tradition we started because we were both born on the 25th day of different months. Last night was not one of the two birthdays, but we did manage to get out to dinner and a movie. I really wanted date night since Round Two of chemo is Monday. The only drag was that I was shedding so much that hair got into the popcorn at the movies, and we were sharing! Poor hubby....he always wants more than his share of the popcorn but not last night. :-(
The movie was "A Walk in the Woods." I am a hiker and former backpacker and have admired through hikers of both the Appalachian and the John Muir Trial...so it interested me from that perspective, although as it turns out the movie is even less about hiking than Wild was (and by the way, I did enjoy it more than I liked Wild). Nick Nolte was FANTASTIC and the movie is worth seeing just for his performance. Robert Redford was sort of meh but I am not a Redford fan. For that matter, I am not a huge Bill Bryson fan (though I have read most of his books, including a Walk in the Woods.). For a writer in a similar vein to Bryson but much less whiny and self involved (in my personal opinion) I recommend Tony Horowitz. I loved Blue Latitudes and a Voyage Long and Strange. (are you listening Katy? These might be up your alley...)
But I digress with movie reviews, sorry about that. Point of my post: please send all the CT magical thinking you can my way in the hopes that the hair doesn't progress from shedding to falling out in clumps, so I can meet my goal of proving MO wrong that it would all be gone by Monday! I know it is silly, but Gabe agrees with me that I should try!
Hugs to all of you. I know it is supposed to be CT, but you all are keeping me sane.
xoxox
Octogirl
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