patty
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Patty - take advantage of the aides! They will help you as well as the boys. Right now, the boys need to spend time with you. And they don't give a rat's behind what you look like! All they see is their mom.
Hope you continue to feel okay and the itching stops.
We are right there with you.
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Patty~ Hi precious.... I’m just stopping by before bed to see how the pain is. I hope you’ll be able To sleep tonight. I know that just makes everything more fragile. Not sleeping for me would send me to the loony bin. I am sending you thoughts of sleeping. Much love.
Two words :: love rules
~M~
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Hi Patty,
From experience I know that boys bickering is just brothers, mine do it and as annoying as it is they are just expressing themselves. If the bickering gets bad, send them outside...that's what my therapist tells me to do with the twins and as soon as I mention it they stop.
Do take advantage of any help given/offered, it will make things easier for all of you and give you more time to spend with one another and not have to worry about the other stuff.
I hope you found some itch relief and were able to catch a few hours of sleep.
In my thoughts,
{HUGS}
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Sending love and prayers your way, Patty.
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Sending you flowers...
My hibiscus is very full this year
L
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The lily pond at Denver's Botanic Garden.
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beautiful pics. Thanks
I got home from hospice house today. Actually friend took me to run errands and get groceries afterwards whichvworr me out but glad to have a full stick kitchen again. It was just he timevand effort to do it. I even rode the cart at Walmart which is so unlike me. Hate looking young and people staring at me in it. Oh well if they only knew my physical condition I am sure they wouldn’t judge. Sometimes pain is worse then pride but I am still dealing with it. I just want to look normal but I look like on my death bed instead. Dss came over and jumped in to help like ghost busters. Lots of apologies from them on lack of help for me. Hope the changes changesticks but am still going they thru an aides 4 hours per day twice a week to start. i am Entitled to 8 hours 5 days a eek but for now it’s not needed I can see a time well it eill be needed but not today. oh pride is such s harD thing to laY Down.
Gotten several hour nap since returning home. Had only gotten like 10-11 hours sleep since Friday am. Nothing like sleeping uninterrupted at home.
Night all. Thanks for the support
Hugs
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Morning Miss Peppermint! You know.... We all believe in miracles ! And you are our most favorite one yet! So happy those boys were all there to help out! Wish we were all there to take turns and just be there with you, driving you crazy.... Hah! You know what you are doing...…. And we know that you'll ask for more help when you feel like it....
Just make sure you get your rest, and sleep when you can...….. And don't you worry none about what people think, or you think they think! Or whatever I just said...….. Sometimes I feel funny parking in the handicap spot, even with my placard... I can walk okay, mostly, but it's just nice to park close, then hold onto a buggy when I'm shopping.
You can come over, and we'll fool around in my gardens! Then take breaks and sit in the shade and drink chocolate cokes... or Harvey Wall bangers or something similar... Hah! Love you girl! xoxo
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stopping by for a visit. Love to hear you’re gettin out. I did some shopping also. Then felt like a train hit me. Slept like a baby last night hooray for me. Hooray for you for getting some sleep. Love you lovely woman
Two words :sister bond. Love ~M~
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Had chemo yesterday (with the 8 mgs of steroids pre-med), so naturally, I only slept about 2-3 hrs. I'll take a nap if I need one.
Making chili verde with my leftover homemade green tomatillo salsa I have left from making lengua tacos the other day. Gotta do it today while I still have the steroids in my system ;>) vroom, vroom! Want DH and DD to have meals since I'll probably be totally crashed out tomorrow and Friday when the SEs of chemo really start kicking in. Boo! Chili verde is REALLY easy to make. DH is cutting up the meat cuz I just don't trust myself cutting raw meat anymore. With my brain mets, sometimes I just DROP stuff unexpectedly or stuff just slips. Don't want any bleeding accidents when my platelets are low.
Patty, I've had to ride one of those carts in the store from time to time. Don't bother about what people think. For heaven's sake, people have ALL KINDS of stuff these days where they absolutely NEED to use a cart: Degenerative spinal arthritis, multiple sclerosis, Parkinson's, diabetic neuropathy, spinal compression from cancer (ME!) etc., and they may look okay on the outside, but fell like crap on the inside.
They measured and weighed me yesterday b4 chemo, and sadly, I've shrunk ANOTHER inch. That brings the total to three full inches in two years. VERY DEPRESSING. I look like an old grandmother now for sure, especially since I have to wear support hose for my swollen ankles and legs (thank you, chemo!). I'm retaining water from the chemo, but it's not bad enuf for lasix yet. Just gotta keep an eye on the weight gain, and yes, it is causing weight gain...but at least my pants still fit. I really shouldn't be concerned about this at all, I mean, geez, I'm St IV terminal metastatic, but it's a pride thing.
If anybody gives you a dirty look while riding on the cart, Patty, give 'em the evil eye. BTW, you can go to stupidcancer.org and get "Stupid Cancer" buttons. I wear those all the time on my caps, kerchiefs, and tops, and if anyone gives me a look, I just point to the button. They also sell caps and tops with "Stupid Cancer" on them, too.
http://stupidcancerstore.org/ (here's the link to their product line)
L
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Oh Patty don't you worry about what people think! Embrace using the electric cart (too bad they don't go faster, you could have a race with your boys). You need Tim Taylor to "fix" one up for you. hehe. I have a friend with Scleroderma and I tell her all the time I don't care if shes in one, but I want a ride when I get tired. haha Lita is right, there are many, many reasons why people use them and sometimes people look because they are curious and other times it's because they are bleep bleeps.
You do what you have to do to get things done in as little pain as possible! I know it hurts the pride, find the positive if you can. I wish to God I could help you, Lita, my friend with the Scleroderma and all the others suffering with some stupid, painful disease. Big, non painful HUGS my cyber friend.Lita - I am so sorry you are shrinking, is that the cancer or the chemo? We will have to get you some platform shoes, a few pairs in different colours! HUGS beautiful.
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lita. Never heard of stinking cancer buttons. Gotta check them out
Thanks for the support all. My aide came today and stayed 1 1/2 hours light housecleaning and laundry. Was great. Got a good nap but up all night now. That’s ok. No pain med breakthru for me today. Just the am amdbpm extended release. Woohoo.
Doing well
Thanks all
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Patty - happy to see you were happy with the aid and the time she was there. Finding a good aid can be a challenge sometimes. Sorry that you didn't sleep but thankful to see pain was under control! Have a peaceful day!
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Patty, sounds like you are feeling better and having better pain relief!! Very happy to hear!! Glad the aide was a help to you!!! Less little crap for you to have to deal with.0
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My heart jumps for joy when I hear u r doing well! Keep that chin up & rest easy
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Patty, I'm so glad you're home and your kitchen is stocked.
I hope that you and DSs have some special time together.
Hi Lita, so nice to see you visiting over here.
HUGS, Madelyn
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felt so good today dss's and I went swimming I be exdh pool. He was at work. Was wonderful time talking and just hanging out.
I think I took the breakthru pain meds twice today. Used to be every hour and still yet little to no help
Yea
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woot woot! That is awesome! Sounds like a super fun day! Keep on keepin on! ❤️❤️❤️
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always glad to see u kjones
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It's so fun to wake up and see that you posted miss P! And that you got to hang with your Sons and just forgot everything else in your world!
It has been so DANG hot here... Like 110 on our back patio... Can't even go for an after dinner walk, but supposed to cool off a little this week-end... Like down to the high 80's low 90's... I swear, I'll never complain about the cold and snow again...Hah!
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That's fantastic news Patty abut the pain and what a wonderful day spent with DS's.
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Yeah Patty, sounds like a wonderful day!
Pain mostly under control and a relaxing day with the boys.
Hoping for many more wonderful days.
Love, Madelyn
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Floating in the pool is the best! Thankful you had a good day with the DSs!
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LOVE spending the day at the pool! So glad that you got to enjoy it with minimal pain.
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Patty - so good to hear you had such a good day! Hope you have many more!
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Yea for swimming with boys and no XDH. I bet you sleep good tonight.
Platforms may come back in style with the new Mama Mia movie.
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yeah Patty swimming. I am so happy for you and jealous! That’s so nice. Way to go ! Bet it felt heavenly. Love you. Two words. Precious memories
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Patty,
I'm so happy that they got the pain meds worked out and that you finally got some relief! What a difference it must make! I'm glad you had a chance to visit with family - wish they had worked out the pain meds before the trip, but it was nice to be with them, I'm sure. The swimming sounds like fun - I'm so glad you are feeling well enough to enjoy your time with your boys. Use the electric cart at the store, use the aides, do whatever you need to, to make life easier for you and allow you to enjoy time with your boys. That's all that matters right now. I'm glad the aide worked out well, too! I hope you continue to feel better, and that you have peaceful days, for yourself and with your boys. Sending lots of love and prayers.
Love and hugs, Amy
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Hi Patty :-) Each time I post, I begin with, “I’m not on here often...” but I do think, wonder, hope & pray for all and so...I was happy to see you had pool time with your darlings! I think I remember seeing a picture of your boys in the pool during summer....maybe 2 years ago??? You have been through the very worst of this awful crap...yet your joy always makes me feel lifted. I’m thinking about you & hoping for sweet moments that make you smile...cause you do that for me. XOX
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