Starting Chemo in February 2016?
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not sure if I posted here or January. Here is my eye makeup tutorial. Ignore chemobrain induced mixing up of words!!
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hi ladies, happy anniversary Myra, Beautiful couple! So sorry that you were in the hospital. Nola, I too have the horrid bloody, dried nose everyday since chemo. I have grown used to it. Has anyone had vision problems? Mine is starting to go? I am told that will correct itself once chemo is done? I can't see my laptop anymore. Makes it hard to work.
Love the t-shirts!
In your pockets ladies.
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took my mom with me today. I miss her so. Hard to believe on April 26, a day after her birthday, it will be a year. 😢 my matchy match self kicked #4. !!
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Reflect....#2 was bad with me as well but #3 was much better....so don't worry.
Is anyone taking weekly taxol???my regimen will be transferred from taxotere to taxol...and I want to know if anyone is having the weekly taxol..
Thank you
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OK! Back at home safe and sound. That was no fun.
YES to the sore nose. I've had ongoing sores since the beginning of chemo too..no let up.
Jill, loved you tutorial. You make it look so easy! My eyebrows are hanging in there for now.
My hand rash now extends all the way up my arms. Benadryl cream lessons the itch some but just for a little while. Can you OD on Benadryl cream?
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Hi Mama3m. I'm on weekly Taxol. I have #8 this Thursday. I have lost very little hair. Only SEs have been a little nausea, some diarrhea, fatigue and a little soreness in joints and a little numbness. Hope it goes well for you.
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Hey Fab ladies, and so sorry to hear about your anniversary emergency Myra. Glad you are OK. All's fine with me. Today was day 5 after switching to my first T after 3 x CEF and so far the SE's have been OK, just slightly achy. I did worry about my temperature going over 39 at one point this evening and went to the hospital but by the time I got there it had gone down to 35.5 and they checked me over and then said I was fine. Felt like a complete time waster. Children on holiday this week so I want to stay well so that we can do fun stuff together. Have taken the decision to stop working for a couple of weeks so that I have fewer things to think about, and might extend that until chemo is finished. I was getting a bit a stressed about deadlines. Frances my eyesight is going too, Ithink I need to get some specs. Loads of love to every one of you. We are getting there. Just a few more weeks and this will be behind us, thank goodness! XX
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Hi Hausfrau. I hope No. 4 of AC continues to go better. See "Weekly Taxol Group" in this chemotherapy, before and after etc. section at page 198, long post by Angiesgo and some following. (about third post from top). Sorry I do not know how to link. I had first Taxol today so I will let you know how it goes. Fine now. Good luck.
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Frances....I'm already blind as a bat and it messes with my vision too. The first 4 or 5 days I have to have the tv pushed up to the end of my bed so I can see! It's scary when you ALREADY have bad eyesight!
I had my radiation therapy consult today. I guess I'm going to be doing 5 weeks. They said I have to wait until at the very least 2 weeks after my final round of chemo because "chemo skin" is not "good" skin. Don't want to start with my skin already compromised so my chances of having skin issues jump up. Really concerned about the skin issues too. Anyway...I have 10 more days til my last chemo and because I went to the ER last week and got those fluids, my "upswing" started earlier than normal and I'm going to enjoy everyday. I have some D issues and cramping, but it's minute compared to what I normally have.
Hope everyone is doing well!
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glad you alll like the video! I want to do another one, hopefully I can get a bit better at taping myself!
Scotbird I went to the ER and left a few weeks ago, I had a fever at home but by the time I got to triage the fever was gone so I left! Don't feel bad! I hope you start feeling better and better and enjoy your weekend. Taxetore is very hard on me, day 3-4-5 are the worst. By 6 I'm perking up. Today was 38 and I was just fine except sitting a bit more than I normally would! Can actually tell my bad days by looking at my fit bit, I got back up to my step goal on day seven!
I returned to my position at work yesterday, because I was doing a six-month contract. Even though everybody at my department has seen me and knows about cancer, I decided to try wearing a wig. I've never worn one much but I thought it might be nice since it is a time of change for me, it's not so much to hide because everybody knows what's going on anyway, just to like how I look in the mirror a bit more. I've worn it for two days now and I'm definitely getting more comfortable!
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LTF you look gorgeous! I loved your brow video too, you are inspirational. Now that I'm not working I'm definitely making more effort with my appearance. Ha my priorities are changing. I've only worn my wig once and I felt as though I was an undercover detective looking for leads. Think I just need to wear it a bit more often and get used to it! X
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ELiz1973- I had the hand itch like crazy my first infusion....blistered, thickened skin and it stopped right at my wrists. I thought I would shred my skin off. It lasted about 10 days.
Here is the secret to stop it (from Taxotere)...ice your hands during that infusion! Use bags of frozen peas, icing gloves, whatever you can find! Also, avoid really hot water on your hands for the first five days after infusion. Finally, add vitamin E and B6 to your set of pills a few days before chemo and for the week after. I went from misery to not even a tickle of an itch following this "recipe".
Here is why it works...the itch is caused by tiny bits of chemo leaking from your capillaries in your hands due to their fast dividing cell rate and the rype of cells in hands..mit just makes them more vulnerable. Chilling capillaries closes them down and reduces chemo flowing through them...it is like cold capping for your hands. Keeping out of hot water reduces the circulation of what chemo remains "full strength" going through for the same reason. Vit E and B6 help with the skin cells. It is better to think chemical burn in how you respond to it than allergy itch. Keep hands cool, use non petroluem based moisturizers, and ride out the round if you already have the itch going. Prepare for next time.
This is me in anti hand itch mode during Taxotere infusion.
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Nice to see you HausFrau! LTF you look gorgeous and you too chambo!
#4 AC done and I brought my mom. I miss her. Can't believe it will be a year April 26, one day after her birthday.
Neuropathy wasn't as bad.
I'm sure I won't get a virus this time.
Thinking of you all
Pip
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nice to see you HausFrau! LTF looks so great and natural! Glad you are home Myra. ❤️
Here is my t shirt with date to be added. If we got fighting or fab at top, Febs at bottom, we could have the pink ribbon on Fab and a fighting arm or just pink ribbon in middle. And names on back. I will need a PM buddy. I can pay and have them delivered to Toronto or U.S. With money exchange they are 18 to 20 dollars USD. I can buy some. I just wanted you too see mine for an idea . Real names on back?
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Ltf you look fantastic! Piper, love your shirt and thankful that your creating one for the group. open to whatever. Let me know where to send the money! Happy to assist.
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Is anyone else finding that their chemo has attacked their sinuses?
- weeping eye
- sinus pressure
- bleeding nose
- clear (sometimes coloured) drainage from nose
- sore throat
- pressure in ears
For some reason these symptoms are surprising when I talk about them at the hospital so I wonder if anyone else is experiencing this?0 -
LTF- happy to see that you're feeling better and that wig looks great!
Valtism- you're absolutely correct… I'm tired but it's a good tired;)
Chambo- i've completely stayed away from manicures and pedicures even a polish change… With the AC my nails of held up really fine and I can't believe how strong they are actually. I just don't want to chance and risk an infection even though the place that I go to is superclean you just never know. I can't wait to get my feet in a tub and get my cuticles cut and be pampered!
Myra- happy anniversary! I'm so sorry to see that you ended up in the hospital. Keep up with those fluids so you don't get back in there OK ?
Kona- I also have the ringing ears side effect. In fact they're running right now and I totally forgot about it until I just read your post LOL!
Piper- I love the T-shirt idea and anything that you design would be absolutely fabulous! I agree the real names but maybe put a.k.a. And our screen names...? It's all we really know each other by and it's kind of cute. The a.k.a. screen names would make a great conversation piece too LOL! I'm so happy you have before they see you behind you mine is on the 19th. I just can't wait to get this crap out of my system.
Haus- congrats on your 4th AC!!
Suzted- I have my rads consult next Thursday . I'll start 3 to 4 weeks after my next and last AC treatment which should be at the beginning or middle of May. And they said most likely it will be six weeks daily treatment and my oncologist said definitely whole breast.
I had a very busy but very for filling weekend. Got to see my daughter play lacrosse on Friday and Saturday and she tied a school record;) Then we drove from New York up through Vermont to New Hampshire parked it for a night and then went over and visited my sons school that he just got accepted to in Maine. I'm so happy for him that he's going to be in a place that's not just less stress for him through all of this but great academic support.
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#3/6 underway. I am hoping and praying for mild SEs this time. Overall my spirits are good. I am wishing you all well this week.
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Great pics!
CCLYYZ - After my 2nd AC, I had a little of the weeping eye, but I don't know if it's from chemo or allergies. I haven't had any of the other problems you listed. I know others on this thread have had them.
chambo - Glad you figured out a way to avoid itchies. Will keep it in mind.
So, I took off my Buff and found some incredible hair growth that made me so happy. I even asked my husband to trim a little around my ears.
Then I woke up with a extra scarf on my head since I felt cold.
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CC- I have a lot of those symptoms and my mo isn't phased at all by them. The nose has dried up and drops help my eyes, especially from outside and it's windier sunny. But is long as I keep my fluids up I do better with those side effects .
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serenity- hair growth already...?
I still have little shards of hair that I haven't shaved off because I'm too afraid of nickingmy skin and getting infection. When should we start to see hair growth after our last AC?
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MLP3 - Sadly, it was a dream. I think about a month after your last chemo, you should expect hair growth.
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thanks everybody! I have started growing hair on my head again, even as I am losing eyelashes and eyebrows. I shaved my head when I started taxatore, because there was still some stubble left, and now there is much longer stubble, as if I hadn't shaved my legs in about three weeks, except on my head! Looks ridiculous but I am letting it grow, and hoping it turns into a real hair
I get runny bloody nose and and leaky eyes. MO said its normal SE.
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I get the runny nose all the time. The last few days when I wake up my eyes feel a little crusty. I think my eye lashes are starting to go.
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My nurse practitioner told me today that no one should be in the bed an entire day while on chemo. If you find it hard to get up and eat, drink, and walk for one day please call your MO so you can get hydrated the very next day.
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Well....I was chastised today by 3 different people. 2 nurses and one Dr. I had noticed a pain right under my right jawline close to my ear. I would press on it and it really hurt. Last night I had a fever of 100.4. You are given a sheet of paper at the end of each treatment which states: if you have a fever of 100.5 you have to go to the dr/er right away. Well...mine was 100.4 so I just decided to take a Tylenol and sweat it out. Which worked. Didn't have a fever all day today but I called them concerned about my neck and that I thought I must have an infection or something. Went in...they pressed all around...even on the spot which hurt and said they couldn't feel anything. I just don't understand that but ok. Lol. They said either it's my salivary gland or an "aggrevated lymph node." Course I freaked when lymph node was mentioned but he said the ones in the neck are different. Whatever. So diagnosis....not really sure but take an 800 mg of Motrin. Alrighty then...lol. Boy were they mad at me though about not going in!😁
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Suzted hope all is going better miss scolded.
imani looking good ... My MO told me the same. I'm calling tomorrow. The dexa gives me the worst headaches. I have strong anti nauseants and that should be enough. I can't sleep without help.
Chambo you are the cutest eva!
LTF I need you to make me over
So, I went shopping today after Dr.'s appointment. I am on hydromorphone for pain moving to slow release. I need a scope for esophagus swelling and my stomach. The worry is back! So... I bought an outfit. The Marilyn scarf is a memory of my time on stage in a Vegas like gala run when I played her.
Thinking of you all!!
Xo
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Wow Piper you are definitely feeling better. Great to see!
Suzted I had same issue with slightly raised temperature a couple of days ago although didn't have any pain anywhere. I knew I was OK but went into hospital anyway because my DH insisted, I knew it was a waste of time and was a bit annoyed.
Doctor told me that a raised temp can be a sign of a hidden infection and if that is the case and you have low white cells they need to start intravenous antibiotics otherwise you can develop sepsis and could be dead in 24 hours. This really happens, albeit rarely. So they did various checks and by the time I had got there my temp was down again anyway. But thought I would share the info. Better safe than sorry.... My chemo nurses said their biggest issue with chemo patients is people letting problems go on too long before coming in to be checked, so go in for the tiniest thing just in case!
Hope everyone doing well today. It's glorious sunny weather here in Scotland, a rather rare occurence! Love and hugs to all. XX
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Hello Fab Febs, Can't respond to everyone personally it's been too long! Thanks for #3 support, I go in at 1:00 today. My vision has gotten blurry and I have watery eyes. Other than that and more quickly fatigued I'm OK. Good info about getting on the fevers right away, yikes. And not staying in bed a whole day--really?? Sure I've done that a few times. Here we go, Red Devil!
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