Light from around the world for LongTermSurvivor/Stephanie
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from Ireland
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baby dinosaurs
You can really see the evolutionary lineage.0 -
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This is really near my house, I just passed it out walking tonight. The sycamore leaves are beginning to yellow now. This was taken in the verdant summer.
Had taken the family to a Bee-friendly planting organised by our Tidy Towns committee. We planted borage.
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That is beautiful. Looks like a post card!
Thinking of you Stephanie.
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yes, feelingfeline, love that picture of the boat!
Stephanie - you are in my thoughts every day. Hoping you are as pain free as possible.
Cathy
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Hi Cathy,
Thank you for your kindness.
Am continuing to work on pain relief daily. Oddly, what is more troublesome and annoying now are weakness, sleep disturbance, cotton-mouth, cachexia, spaciness, low blood pressure, a failing drain, growing belly from cancer & ascites, and the ever present and troubling SOB - shortness of breath, not the other type of SOB.
Oxygen generator just arrived this morning. Will see how long it takes for me to turn it on. And likely longer to insert the nasal cannula. Ah, medical PTSD - that's its own nasty beast.
Dying is a lot more work than I imagined.
Great gratitude for everyone, Stephanie
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I am so grateful for all you have shared with us,Stephanie, all your words and writings and things you have taken notice of and shown us are a treasure to be dipped into, again and and again, forever. Thanks for all you've done, and how tremendously it matters.
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Stephanie this is a community Art Project - 30 people each painting 1 part of a picture. DS and I took part.
Here is the finished piece!
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This was the sky on the walk home - a bigger canvas than the ones we had just worked on.
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Hello Stephanie - from my porch in Roseburg, OR
[note: I just now saw this topic]
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I continue to be in awe of your grace and courage. I'm overwhelmed with emotion and wish you didn't have to endure such pain. Sending gentle hugs and love.
Cathy
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I feel the flickering of your light and hear the pain in your voice. I am sorry you are needing oxygen. I hope it helps and you can rest easier. Dying is work it seems. Amazing how long it takes. I want you to vote and I wish you pain free days and peaceful nights. Lots of love.
rosevalley
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Stephanie I so am sending you warm thoughts. You are so brave.. Here is another picture - my favorite one. I call it above the clouds.
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Stephanie, i am sorry for your SOB . I wish pain free days and hope you are breathing easier tonight. You are in my thoughts and prayers.
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Stephanie, sending some early morning light. Thank you for your writing; it has helped me.
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A late afternoon walk.
Stephanie, I hope you are resting easier with the oxygen.
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Stephanie, wrapping you in my warmest thoughts as well.
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Stephanie, I wanted you to know that I am so grateful for all that you have shared about your journey. What a privilege for all of us to see your strength, your character and your openness. I am praying for easier breathing and no pain. Bless you.
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Oh sweet friends, thank you for all your love & beauty and en-couragement.
Thanks too for the laughs....I should have explained that having an O2 concentrator under my desk in no way means I'm actually using it!
I just wanted to have it here if needed and to detox/outgas the nasal cannula, since I'm chemically sensitive and plastic smells aggravate the ever present nausea.
I'm the sort of person who when she fills a prescription may still wait a year or two to take it.
And I've had one prescription that I've carried around for over 30 years...it's a good one though that I've fulfilled thousands of times, "Take up more space daily, do this with malice aforethought and pleasure.
I really enjoyed the prescribing physician, Coyote Medicine doctor Lewis Mehl-Madrona. They broke the mold when they made him.
We're all unique and I'm one of a kind too.
love, Stephanie, who's huffing and puffing, but relying on fans and rest instead of concentrated oxygen and toxic tubing.
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The gifts of photos and images never stop amazing me! So beautiful. It's a meditation to look at them.
I hope you take the tubing out into the sunshine and let the air circulate and maybe it will get rid of that plastic smell. The oxygen might make you feel better but I totally understand about that smell. I wish you peaceful days and little nausea. Are you using CBD oil? I find 8 drops under the tongue and zofran to be a winning combo in bringing relief. Praying for your comfort and peace. Hugs to you. love rosevalley
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Last night's sunset for you Stephanie.
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Stephanie,
I am relatively new to BCO, but I just have to tell you how inspiring your posts have been for me thus far.
I am trying each day to apply the wisdom that you have shared so freely.
Last night, I read this poem, and immediately I said, "This describes Stephanie perfectly!"
I think many others will agree.
Thank you for always speaking in "that sweet moon language."
Louis
WITH THAT MOON LANGUAGE
Admit something:
Everyone you see, you say to them,
"Love me."
Of course you do not do this out loud;
Otherwise,
Someone would call the cops.
Still though, think about this,
This great pull in us
To connect.
Why not become the one
Who lives with a full moon in each eye
That is always saying,
With that sweet moon
Language,
What every other eye in this world
Is dying to
Hear.
- Hafiz
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