January 2017 Surgery Group
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Good Morning Ladies! Wow, so much to read today. I've been on a rollercoaster of emotions just reading through all your posts!
It's wonderful to see the other side of our stories - we have gotten so accustomed to sharing our BS stories (gotta love that ironic acronym!) that it's easy to forget that we are so much more than that. We are daughters, sisters, mothers and friends to so many; I love knowing that now I have all of you to add to my list of friends.
I don't know if any of you have seen this video; it sums up my feelings:
Hugs to all!
Angie
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Ah Yes Docmama, I have seen this vid on FB and loved it too! Thanks for sharing it here . Everyone enjoy your day and step away from your BC thoughts every once in a while . I know, easier said than done. Especially coming from me , who over thinks everything.
Love and hugs to you all
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hey Vargadoll - prob can't wear a bra depending on where the wire is aiming. Mine was at the outer / upper side of my boob, angled towards the armpit. I kept pulling at my gown cuz I was worried about it moving out of place, but she said that once it's positioned properly, there's a little hook piece on the inside that stops it moving. You wouldn't want to jar it, cuz that would hurt. They taped a large syringe tube over it so the actual bit was covered up. You'll need to be careful driving. They numbed my boob before inserting it and it stayed numb all the way till surg (about an hour). So I'd make sure they give you a big dose of numbing meds...you don't want it wearing off on the way there. I found the mammo part for this worse (maybe still sore from biopsy?).....took 2 of them to position me and adjust the compression pedal. The one gal positioning my boob told the other gal to try to see her hand to know when to stop compressing.....l was like , or you could just watch my face!! Basically they are using a grid system to make sure they are as close to the titanium marker as possible. Best of luck to you!
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So much to catch up on just since I went to sleep last night and I didn't think it was possible to be in anymore awe of you ladies but I am. I'm inspired this morning and beyond grateful for this group. It is terrible the reason we are all here for sure but to have "met" all of you ladies and take this journey together and see the bonding and friendship unfold all through a keyboard and screen is just incredible. , I would have never thought it possible to feel how I do and to genuinely care about so many people I've never met. Something so special in the middle of this craziness!
Annoyingboob, LOVE the pics! I laughed out loud at the nipplepops!!
Happy birthday to bdagal! Your post was hilarious! Glad you are doing well and best wishes for continued recovery!
GT, congrats on the clear nodes!!! Waiting for "the plan" is tough and should chemo be necessary for any of us at least we have some amazing ladies to help us along the way. Hugs to you!
win-chimed, big hugs to you too. It must be so frustrating. Keep pushing and keep asking to until you are comfortable...well, I know it's probably hard to be comfortable with chemo at all but I can tell you are strong and you are a fighter and we will be there for you. You gotta kick the shit out of that cancer girl! Keep us posted.
Grande, welcome to our group...so glad you found us and shared your story. The surgery decision is a tough one to make but I hope you are relieved to have that made and now ready to go and get that cancer out! This is a great group of ladies and we'd love to be there for you along the way.
DCISinAZ, there are 3 of us in the Phx area now! It's sort of funny...the day you were originally supposed to have surgery, I was at the same center or near for radiologist appt and I've been in touch with LisbethS who is going to be right near where I work today for a doctor appt.
I don't see any surgeries listed today but someone posted good luck to a few so just in case...best of luck to any ladies going in today. You are in my thoughts.
TGIF!!! I expect it will be somewhat quiet in my office today as the boss is out of town. I'm thankful because I don't have much brain power left and I'm incredibly exhausted. I'm actually getting a little worried about my memory issues...I mean it has to be that there is just so much on my brain right now, right? I am having the worst time recalling the simplest things...don't let the above posting fool you...I scrolled up and down and thousand times to be able to post to individuals!
I'm starting to make mistakes at work and it's scary. Yesterday, I almost gave a blank check to someone. I had put his name on it and signed my bosses name at the bottom but when I went to put it into the envelope I realized I did not put an amount in. Can you imagine if I sent that out? My husband has started giving me words when I'm stuck and he even asked me if I should be cooking the other night! Then last night on our way to dinner with friends, there was a car in front of us and he HAD to be drunk. Swerving...almost witnessed him collide with another car...driving on the shoulder etc...my husband had me call 911 and we got his lic plate and car info. I was shaking so badly for a good 30 minutes after that. I could not calm myself down. I have been trying to use the lorazepam sparingly but that makes me think I might need to just be on it daily. On a good note...we did have a very nice dinner with a very funny waiter and it was nice to be out until about 8:30 when I felt like I needed toothpicks to hold my eyes open. Still trying to kick this cold I picked up at work so my eyes were just trying to shut right there at the dinner table. Anyways, sorry for the book here. I hope you all have a great day!
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Docmama, I hadn't seen that video but thank you...I thoroughly enjoyed it and right back at you my sister.
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I'm home and not very happy. The masctomy went well, but no reconstruction. 2 nodes looked suspicious. Should get the final pathology report next Friday. Then to see oncology. Didn't sleep well last night, stressed.
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Ok I changed my avatar to include a not-so-great pic 🙄 but for a reason - that's the only pic of me since my dx wearing "the pearls". When I "came out" on FB, I told the story of wearing 2 strands of pearls now, symbolizing my 2x around with BC. I believe we are seen by God as pearls of great price, and since he knew me from the beginning and already knows my future, I put my trust In that, I wear them as often as possible as a physical and visual reminder that I have HOPE, I am beautiful and I am LOVED. We all are!
Just my view, just sharing a symbolism that I can put my hands on when I need a little comfort...
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@lisabekind - that has to be one of the most frustrating things to happen!! I am terrified that they will find something in my lymph nodes that would prevent the reconstruction. Grrrr. I'll be 'not very happy' along with you. Hope you get some sleep.
@3bears - where in Pennsylvania are you? I'm about 30 minutes north of Pittsburgh.
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lisabekind - I am so sorry you didn't get to move to the next step! Oh the waiting! This is the group that gets it more than most and we are here to keep holding you up. Much love to you
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Break from surgeries today, so just a time for everyone to heal and relax and pamper yourself over the weekend!
Bugchaser - so glad that you were stubborn enough to keep pushing! Makes you want to go tell the original radiologist where to go!
1214Survivor - Welcome and keep up the good work! Sounds like you are happy with the girls!
PugsMama - Still praying for the "No chemo" plan until you get a definitive word.
DCISinAZ - I am not on Tamoxifen
Wow! More than 1/2 my post disappeared :-(
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Lisabekind, I'm so bummed to hear that! Waiting for those results can be tough, but we're all here with you. One step at a time, and there will be a plan for each step you take in your treatment, I'm sure.
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Bdagal- my husband will drive me but the thought of being without my bra for that length of time is not going to be comfortable. I love wearing my bra. I have an amazing VS collection and I love them all. BREAST CANCER SUCKS! So I will ride to a cancer center in yoga pants and some sort of a button up top, no make up, no nalish polish no jewelry and then leave with no bra. I also always have on a camisole. I am always cold and a cami keeps me warm. So I guess I will leave that at home to. The weather here (NC) is back to cold again and it looks like it is staying for a while this go round. I feel like cancer is trying to strip me layer by layer. It will not win!
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Vargadoll, you and I are opposites on that! I HATE bras! I think they are just cruel and I relish the moment each day when I can get home and get mine off!
Oh and further proof of what a hot mess I am...realized a few minutes ago I put on one earring today. Where is my brain??
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Hi,
Lisabekind .. so sorry , hopefully , all will be good and everything will work out . Although , the last thing we need during any part of this process is a let down . Praying for good outcomes for all .
Vargadoll , I am like Fightingirl, hate the bras . Mainly because , They are so confining . My back is wider as I grow older and I think the constriction of the band around the back and underwire area just make me feel trapped . Getting it off is heavenly to me. But since all of this went down , I have to have the compression and support or it hurts!
Best wishes to everyone . Love and Hugs
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Lisabekind- I am sorry that you are playing the waiting game for node results. Sending prayers for healing and strength your way.
Elem- glad to hear from you! Hang in there, sis! The first few days are the roughest, but it does get better.
Vargadoll- it's totally ok to have days like that. Hugs!
I love the humor and the strength in this group.
My phrase has been that breast cancer is like the Exorcist- there's only room for one of us in this body, so this b#$@* has to go!!!!0 -
win-chimed, did your dr prescribe an antibiotic?
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You girls know that feeling your hair gets when you take it down from a tight pony tail? That's have my boobs feel when I take my bra off. Air hurts hahaha! My DH says oh their are sensitive and trys to flip them... (TMI) I am a heavy DD and when I take my bra off I feel like I'm going to make them a DDL L standing for long.
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Yes Varga that would make a huge difference. I think I am 36c and one of them is a little smaller to begin with and after the lumpectomy , probably a little lighter.
I have had a few sressed moments worrying about the reports but whats the point. Why ruin a good weekend with worrying ! Makes no good sense at all !
💗💪🏻Power to all my sisters !
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Vargadoll - Hurray for the big girls! Of course it wreaked havoc with my desire for a BMX, but once I get rid of the seroma I should have my girls back to normal! Until radiation, that is! Then tender boobs! I am a staunch believer in bras, but when you are "large-breasted", you need to be! They support me so that I can support others! :-)
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Fightingirl: I hate bras too! It has been very annoying having a bra on 24/7 for over 3 weeks now! Looking forward to being bra-free when the recon is finished! May even stay nipple-free so I can be bra-free even in a white tee!
LisbethS: I will be praying for clean nodes for you. A week seems like a long time to have to wait! If you don't have a prescription to help you sleep, try Tylenol pm, the "pm" is just allergy medicine that makes you sleepy.
Bevmomduck: love the picture & the symbolism if the pearls!
Docmama: loved the video! I feel that way too!
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hi all! Emerging from the fog today... have been sleeping non stop. Feeling pretty good today, but worried that one of my drains is leaking and I feel a buildup of fluid on that side. Call into the Dr made this afternoon, so hoping to hear back. Anyone else have that experience?
Boy these TEs are annoying! Not comfortable at all... I hope I get used to that quickly. Am also ready to get out of bed... made it down the stairs today, but felt light headed afterwards, so back to bed for me.
How is everyone else
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Hi Vargadoll - I love my bras when I'm going out but really love whipping em off at the end of the day!😂. I actually was able to wear my bra after my surgery. Depending on the position of your wire you may be able to keep your bra on. It's wearing a shirt over it that may be more tricky. I was in the hospital robe so had lots of space, would not have been able to wear my button up shirt. Maybe one of your hubby's shirts would be roomier? I'd take one just in case
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Joyfaith: My surgery was on the 17th, and I still have that terrible pinch in the back of my arm. I found that just squeezing that part of my arm makes it feels better! Ibuprofen definitely helps me more than Tylenol, and I'm taking it 2x per day. I still have one drain in which isn't going to get pulled until next Friday. My doctor also said it's a normal part of the healing process, but that it could take awhile to go away - hang in there!!
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Dcbc: it might be that you have a clot stuck in the tubing - ask them to show you how to "milk" it. I do that once a day, and it's kept my drains flowing - good luck!
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Shelleybeans - thanks for sharing! I feel like we have a bit in common. Our son is not special needs, but we went to incredible great lengths to have him (fertility issues, IVF (failure) and eventually donor egg) so I feel especially protective of him....he is my world. Everything I do is for him - literally. There was no way I was going to let this shit slow me down or impact my family long term - not an option...he needs me. He's my miracle baby...and it makes me incredibly sad that my mother died of this effing disease before he was born. He would have surely been her world.
Lizabekind - what a let down! Take comfort in knowing the decisions made are for your benefit and well-being...in the end that is most important.
All this bra talk makes me laugh...I guess being small has its advantages. In a baggy shirt or sweater you can't even tell I've had a MX! I did get my knitted knocker in the mail today (not having reconstruction til later). For anyone also waiting for reconstruction, look them up...they will send you a free knitted knocker to hold you over...apparently lighter and more comfortable than a prosthetic.
https://www.knittedknockers.org/
So I got some good news for the weekend...clear margins and clear nodes - yeah! Still waiting on receptor status. In addition, it was smaller than first thought...1.5 cms instead of 2+ and grade 1 - so slow. The surgeon was quite pleased...he said if the receptors are negative there is a "chance" I will not need chemo. I won't get my hopes up, but obviously that would be great. Well, I'll enjoy the first bit of good news for now...as a matter of fact I'm having a beer!
Enjoy your Friday night! I'll try and upload a pic since all the cool kids are doing it lol.
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DSmom: you made my day! So happy to hear your good news!
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There...uploaded. It's a goofy pic but it's a great memory. I was in Venice with my sister in law...I was waiting for her to get ready so we could hit the streets...I was just goofing around. It was about 5 yrs ago.
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My bra plan when all is said and done and I'm fully reconstructed is to wear those soft comfortable bralettes. No more underwires for me! No more 2 inch padding trying to look bigger! Right now all I'm wearing is the post surgery camisoles. With temporary foobs. I can't imagine wearing any kind of bra for a long time.
Here's my question of the night. Did any of you get a lymphedema sleeve yet? Here in my town there was one ugly choice. I want to go online to lympheDivas. They have many pretty colors and patterns.
Dsmom-- that is great news! I'm so happy for your clear nodes!
Lizabekind--I am in the same boat. I was supposed to have immediate reconstruction but am now flat and having to wait to heal before we do another surgery to place the expanders. It sucks but I've already ticked off almost 3 weeks of my waiting time. I can't believe it.
I feel like if I did meet you all, I would just start crying. It's like we were in a war together.
Annoyingboob- you make me laugh!
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Also Docmama// thanks for that video! That song always makes me cry. Something about the Toy Story movies --ALL of them , make me cry. Babies grow up too fast, don't they? Mine are 14 and 16 now. A boy and a girl .They are my whole entire world!!
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I am not getting any posts . It is like my feed shut off . Or is no one posting tonight No new messages since this morning ? Is something wrong?
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