January 2017 Surgery Group
Comments
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Elem, there have been messages...did you get this one
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It said I have no favorite topics and I just added this . This is a disaster. I feel isloated . I am not getting email notifications either ! I just added myself to this favorite topic , but not sure whatvhappened here!
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Howvdo I get email notifications back ?
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Elem: I only get notifications on email for direct pms... posts on this thread don't generate a notification email (at least not for me). If you mark it as one of your favorites, the dashboard will tell you when new posts have been made.
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Elem: Also please don't feel alone! We are all in this together. How can we help
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I was getting dozens of email notifications for the latest threads , but it stopped at around 12:30 today . I just now received one . So i don't know what happened. I meant I felt alone because I could not find the latest group happenings. It was like I got kicked out!
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elem - can you see all of the days' posts now?
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Hi girls, well that fairy b&^ch followed me around all afternoon. Went to Pilates and was fine, just a little migraine aura after bc my period started, but popped a Tylenol and was ok. then off to MO appt and heartrate soared to 130!!!!! Resting for me is about 55. I felt so ill, and that was just in the waiting room!
So I met mo and he was nice and smart and all. He recommends the 5yr tamoxifen plan after xrt. I knew this. I expected this. But somehow I'm angry that he didn't let me off the hook. Maybe I expected to bat my eyes and be charming and he would say, 'oh, ok. You are fine. Just go home and get back to your life'. But no, it didn't happen that way. So I feel like now I'm back to where I started at the very beginning of the month and maybe I should just have a bmx and be done. Truly done. No xrt. No 5 years of meds. No nothing.
I like my newly reduced little boobs, but I think I might be ok staying flat with a nipple sparing mx. After a lifetime of dd++, little boobs are so fun and I finally get the no bra thing. As a big breasted gal, you need a little daily hoist, but not anymore. I bought some cute little bralettes and it's heaven. Most of lingerie used to be off limits bc you would need a crane to pick these girls up, but now I can look at the little triangle no underwire bras and the entire lingerie section has opened to me!!! Watch out, la perla, here I come!!
So I dunno. I could just do xrt and get more frequent mammos, knowing I haven't reduced my risk as much as possible , I could try the tamoxifen and see how I go, or I could do the bmx.
Now I'm home, exhausted. I feel totally depleted, but at least my heart rate is back to normal. Gah. Back to square one. Someone please take this fairy OUT!!!!
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dsmom, congrats on your results, I'm very happy for you!
dcbc, did you get any help on your drains? I had a little leakage at the top but not much. Here is what they told me about stripping them: basically grasp right at the top of the drain tube, fairly near your skin and pinch firmly to hold. Keep holding on there so as not to put any pull against where the drain comes out of your skin. Then use two fingers of the other hand to compress and strip the drain fluid downward into the drain bulb. I bet you must know this but I'm a little worried cuz it's Friday night and you're having a problem. So ignore me if you don't need this advice. My doctor made me strip mine out a minimum of three times a day. One of my tubes would always refill immediately and have to be re-stripped once, the other would clear the first time. Hope this helps. Disclaimer: I am not any kind of medical person, just passing on how they told me I had to do it with mine.
lisabekind and 3bears, it sucks that you're having to be patient about recon, but you will get thru it and have results worth the wait. Hang in there.
elem: Hope you can hear us, we hear you!
Does anybody have a link for nice mastectomy camisoles? Not the immediate post surgery ones, but cute ones for later? Let me know, I was hunting around tonight and it was all rather medical-looking.
Also, one other question, does anybody have sore, like bruised painful sore, shoulder blades, of all things? It just seems weird. Pressing on my shoulder blades hurts, pressing on my chest hardly hurts at all.
Take care all!
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I havent gotten messages about post. I get emails about personal messages. Sometimes I hve to refresh my feed a few times also to get the thread to upate. Elem, all for one in this group! Hope you get the glitch figured out!
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yes somehow I fixed it . Whew , I was in a panic over losing you all on here! Thank goodness all has been restored.
Annoyingb , sounds like you had an eventful day . Glad you got in some exercise. I know the gamut of emotion takes over whenever we have yet more to cope with on this seemingly never ending ride! But actually , this was initially what my breast surgeon said would be my treatment before my surgery based on size of the DCIS. Tumor /estrogen + from my stereotactic biopsy. . He said a chemo pill for 5yrs and maybe radiation but probably not . I was pretty happy . But then......after surgery ...oh there is an invasive component, we should check SLN's The tumor 3mm was not just dcis anymore. So now I await the results of these 3 sentinels! Ugh! Square one again!
I wish I could have that dx instead ! Hope you all have a fantastic weekend . Love and hugs to everyone .
Today I pooped .. one day after surgery... not bad! Last time it was a while!
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elem, I finally pooped today too! Four days after surgery. Hurray for the little things. Stopped pain meds yesterday, need to seriously get these drugs out of my system. Only feel a little pain, mostly sore in my armpit. My boob is tingling and itchy though! It's driving me crazy.
Annoyingboob, did you have a lumpectomy? In both? Wondering what made your boobs smaller? I would like that too. Big boobs are...well...annoying. Lo
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hi dani, I had bilateral lumpectomies, and just decided while they were there to do a reduction/lift. I wanted to get path back before deciding on mx. Since my preop boobs were huge, the reduction propped the nipples up to a more reasonable location, so that a nipple sparing mx is more possible in future. My ps says Nsbmx has poor outcome if droopy boob and nipple. I may have posted an article about 10 pages back, I don't recall. But anyway, I like being smaller. It's much more appropriate for my frame. And going braless? Priceless.
Path came back high grade dcis with necrosis on rt, with just some benign nonsense on lt. I think I was just in meltdown mode earlier. I'll do the xrt and tamoxifen. And if I get a recurrence or new ca, then I'll do mx. I'm just in denial and fighting every step of the way bc I want my easy breezy life back. Like everyone, I have plans and goals that don't include this detour. I feel derailed - like when you follow a car navigation system and it drops you in the middle of nowhere and says 'you have arrived'. No. no.no. This is not where I'm supposed to be!!! But it is what it is. My life is otherwise pretty charmed, so I'll do what I need to do to get back on track and go forward.
Let's power through this together ladies!!
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Running the Lady Track Shack 5k this morning. It was my first 5K in 2008 - who knew 9 years later I would be running just days before my BMX. This 5K is for breast cancer awareness and helps fund mammograms for uninsured or low income women in the Central Florida area. I registered as a survivor since technically I am still surviving! Very proud to hit the pavement today on behalf of alll survivors! I'll think of each of you beautiful ladies this morning!! 🏃🏼♀️🏅💗0 -
Well done! Shellybeans.
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Shellybeans: That's awesome, and you are a survivor!! Run proud - we'll all be cheering you!
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annoyingboob, laughing out loud over your "you have arrived" comment. I travel a lot for work with my GPS guiding me. I agree we have definitely all not arrived where we thought we were going. The only thing I can say is at least the company on this road has been great.
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Way to go Shellybeans! We are all survivors the moment we are diagnosed, so no shame in registering as one. I was diagnosed in September and in October our family did several 5k's (which were walks for me because of chemo, lol). We are and alway will be survivors!!
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Annoyingboob,
Im so loving the fairy meme you posted!
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RUN SHELLYBEANS RUN! You will feel the power when you cross that finfinish line! I have donea few 5Ks my first one was for the Hope Cancer Center for Women. That is were I am a patient now. WOW..I will run it this year. It is usually in March and I will be there!
Annoyingboob, that shit fairy bitch shows up at such random times! I'm ready to use my ninja skills on her now! I have to agree with you about hoist for the girls. I have found one style bra that works and I have it in 20 different colors! Most bras the girls popped out every time I bent over. It was "annoying" ;o)
Elem, glad you fixed the problem and yay for poop!
DaniCalifornia, tingling and itchy sounds miserable but good at the same time!
All you ladies have a beautiful day. I plan on taking it easy today. Just started a big pot of hamburger noodle soup and have jumped in the recliner for little feet in the aair time.
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Team Shellybeans! Way to go lady! You get double shuga from me! Lol
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Thanks so much guys! I finished in 35:51 and considering I've not been running at all (and it was cold for FL - like 40's) I'm so proud! There were so many survivors there. It was inspiring to see them running - many faster than me for sure! I got a lot of information on local support groups and even a dragon rowing club that's only BC survivors. So cool! They said it's great exercise forte arms and chest wall - which makes sense - and lymphadema. Just happy to have so much available.
Anyway - have a great weekend! Facial today, massage tomorrow, BMX Monday.
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Great going, Shellybeans!! You're running for all of us!! We're surgery twins. I'll be thinking of you on Monday too.
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Awesome job Shelleybeans. How exhilarating that must feel and to be around others who are survivors like us!
💪🏻🏅🏆
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Shelleybeans! What an inspiration you are! So proud of you!! Sending positive thoughts & prayers to you, Vicwytch, & goingon75, our Jan 30 gals! We'll be in the cabana waiting for you! Can't believe Jan. is almost over...what a month!
Elem: glad you're back & congrats to you & Dani for the poop! A post-surgery milestone!
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Shelly, Vic, goingon75,
Ajb, lray, mombyriver
You are the last of the January girls, and this ones for you!!
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awesome Shellybeans!!! What a wonderful way start the day and let cancer know you are a survivor! We are survivors and I'm inspired again this morning by you and the love and support from the other ladies! You all freaking rock!!
I'm still down from the cold that has gripped my workplace the past couple weeks and still have no voice so glad to use my fingers for cheering!! I had wanted to accomplish so much today in preparation for upcoming radiation treatments but am giving in where I'd normally push...my body says rest so I'm going to listen to it today.
Lumpectomy sisters, or I suppose even anyone who had nodes removed...how is your armpit and arm doing? Mine seemed to be getting better and today it's giving me bad pulling almost burning pains on inside of my arm. Putting on shirts over my head hurts. Touching down the inside of my arm is even painful. Is this normal? I can tell I still have the seroma in the armpit so will start back up with the heating pad today which seemed to help before
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might be having the same issue Elam had last night...or has nobody posted in over 7 hours
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Fighngirl - i took it easy after this morning - but it has been a quiet day here. Maybe we are all taking a break from the BCBS...
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Hi Fightingirl and Shellybeans,
I was windering the same thing , but then I got two notifications . So maybe Shellybeans is right , maybe the ladies are on a break and just enjoying lifecwithout BC for the day. I do miss them when there are no new feeds though! I panic if I feel the group is not available . This group is special and I feel very connected to all of you . Have an awesome night ! 🌸🌸
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