I get rashes occasionally, especially early on. But the more regular my exercise routine, the less the side effects. My theory is that it moves the crud (metabolites of the drugs) through the system.
And I get randomly exhausted all the time. I'll be powering through a day and then suddenly find myself unable to move but committed to doing 10 things. Happened Thursday. I tried to get it all done, screwed it all up. Spent Friday cleaning up the mess. I am not myself, but still doing pretty well. And quite happy, so who cares.
An hour of hiking is great! Chill with some tea and something you enjoy. Well deserved.
Apg, great job on the hiking. I have a rash, too, but it is on my radiation field and comes and goes. In general our meds tend to dry us out. I treat rashes aggresively with coconut oil, an aloe vera cream, a cream with cortisone, if necessary, and something called Linola Fett. My onc also says I can take up to 4 Zyrtec antihistamine tablets a day. One is enough to tire me out, so I haven't done that high a dosage. A few days ago I saw my breast specialist and she said to stop wearing black, which may be irritating my skin. I've been invading my daughter's closet since.
Oh, and my BS gave me the all clear on my breast ultrasounds.
Still recovering from a milonga (tango dance party) last night. I will do the gob squats, yoga poses and pushups later..
Can't wait for the dive or beach pics from Mexico, Iwrite.
Heidi - congrats on the clear breast ultrasounds and the rapid recovery from the milonga.
I will definitely try the coconut oil. That really helped with my mouth being irritated. My rash has spread a little on the inner thighs and my hip area. It isn't bad though. Thanks for the tip
I haven't posted much, but continue to follow this thread and have been motivated and inspired by everyone here. Today I did my first 2.5 mile walk -- a hilly route that used to be half of my daily walk/jog, but one I haven't even attempted since my femur/hip surgery, Ibrance-induced lack of energy, too hot, too cold, yada, yada, yada. My step count three weeks ago was nothing short of dismal, but a real eye opener. Today, I think I will actually do over 10,000 steps for the first time since I got my FitBit. Z, your gentle advice not to worry about not being able to do what we previously did finally resonated with me! So, thank you!
On the rashes... Calendula Cream can also be very helpful and healing.
Kathryn, your scuba trip sounds wonderful! Good for you! Can't wait to see photos!
And adding my congrats to your daughter, Z, on her Spelling Bee competition!
Just got back from another walk/hike and getting ready to do yoga with my instructor friend. I do yoga stretches every night but she gets me in challenging positions and makes me sweat! I do it at home just to help keep me from being sore and stiff. I really need to get a Fitbit. I have no idea how many steps I get in.
Deanna - you are welcome. That's a darn good workout. Your post is a "gentle" reminder to myself to get out there, do the best I can and respect it.
I got to 10,000 steps today skiing, doing housework and chasing children. Very alert and active for having just completed my 3rd week of ibrance. Starting that week off ... yay. Feels good to not deal with the drug SEs for a couple of weeks.
Great job Deanna. I did 20 mins of stepper then housework. Made supper for brothers and their families. Lots of dishes loaded and unloaded from dishwasher. Was fun.
Z, enjoy the skiing and the week off Ibrance. I have Herceptin/Perjeta infusion Tues but now that I do not have the taxol, I have virtually no side effects. Yay, hope this keeps me NED below the head for a long time. Still tired from almost two years active treatment but grateful where I am at now.
Heidi, of course I am glad your ultrasounds were clear. Always good news.
Good job everyone. Enjoy your trip Kathryn!
Deanna, congrats on the first 10,000 in a while and even more for deciding to take the plunge with us. Keep us posted!
Z, double yay for the week off. I'm forecasting an explosion of steps...
Mara, wow, if I had to make dinner for so many people, I'd be too exhausted to go on a stepper. You have come a really long way. Speaking of dinner, DH is having his friends over for Jass, a Swiss card game, so I'm making dinner for the cardplayers mid-week. I'll be loading and unloading the dishwasher as exercise, too.
Just got a text message that the gym is closed. Wah! Have to think what I'll be doing today. Yesterday, I did 3 sets of 15: 1) gob squats with a 2.5K kettlebell, 2) pushups from a chair (which is lower than a sink), 3) a tricep exercise using the bathtub and 4) jumping jacks in between 1-3. Ended with yoga poses.
DG- Diving is Cozumel is the best but snorkeling is also beautiful, faster, easier and much less expensive. If you love it scuba is definitely Worth it. Being in Illinois means quarry diving to see sunfish and catfish in the summers...not the same thing. I'll be there March 6-10.
I use a 10 or 15 lb kettle bell and do sets of 10. You are wise to increase gradually:) I learned that the hard way. My DH got me the Fitbit flex because I like to swim. Not sure it is synced up correctly.
Started back on the Ibrance tonight after half mile swim and an hour of Pilates. It will be hard to catch up to you Z!
Geez. It's hard to imagine swimming a half mile. That is good for the lymphatic system,.
I appear to have been in the cardio zone for 50 minutes today. boo yeah. little jog around the hood.
I did The Yoga Sequence with ab work between poses.
Sledding is fun but leaves me stiff and sore. The yoga and jogging routine leaves me refreshed. Feeling much better.
Second day off ibrance, and I feel the crap going away.
Keep moving ladies.
Well done everyone! You can feel the energy buzzing off the screen.
Gob squats sound damn hard (as do half mile swims!)
I ran 9km this morn (with a few rest stops) and felt really good. Added in some push ups (just on my knees at this stage) and some planking (not much!)
I admire you all...I can't run to save myself! Great workouts!
Ok, would like to get more active this year. I've been kind of following along with you all and you are so inspiring!!! I have a few questions if you don't mind? Ok, I have cancer in my left hip and left femur. So right now the onc said he thinks I'm probably stable but is doing a PET scan in two months to confirm that. My concern is this, that hip hurts like the dickens. If I really want it to stop, I use Lortab. Otherwise, I can live with it, but it just hurts constantly. Am I going to hurt that hip by walking on it all the time? I've got to lose some weight and since I've never really been athletic in any way, walking seems like a good fit. Can I break that hip bone by just walking, even walking while it hurts? I told the onc when I went in last week that he was just really hurting and he never said a word about it. I think he's looking at the bone scan and not concerned? Any suggestions would be really helpful and greatly appreciated.
Gracie, is it possible to do an aquafit class so you can use the hip and get it moving. That will help your hip get motion without worry until you get the all clear on walking. A stationary bike or stepper, elliptical also have little to no impact and provide movement too. I don't have bone mets but I am sure some of these ladies can help you about if the leg will break by walking. Moving the hip will help with the pain, even with low impact moving. Welcome, we are happy to see you here.
Infusion day for me. No exercise today but rest is good as needed.
Gracie- I have extensive bone mets including spin and hips and swimming does not irritate them as much as walking. I've taken Xgeva for 15 months so have been less worried about fractures so I do Pilates and some light weights too.
Good luck! I have felt much better with the exercise!
Thanks I will look into aquacise classes, just didn't think of that!
Gracie, I think they can often tell/guess from the scans how weak a bone might be. I'd try upper body exercises on the water or with an arm bike (assuming you don't have problems with lymphedema) at least until you get the pain under control or get a green light from your onc.
My gym is closed all week due to a water pipe break. I probably will be walking outside more as running in the cold is not my thing. Or I may try out other gyms. Will do bodyweight exercises at home and go to tango tonight,
((Mara)) - Have a restful day at the clinic.
Thought I'd let you all know. My oncologist called back and said walking and activity similar would be ok for me to do. Take ibuprofen or tylenol if it gets to hurting and if it just increases alot, call him back. Yea!!! Excited to get busy!!!!
Thank you everyone for answering. Now I can set some goals too!
Gracie - Great! Look forward to hearing about your exploits.
Did two of my Air Climber videos. Those run approx 20 mins each and a 20 min stationary bike, light resistance and some free weights today. Feeling good post infusion.
Gracie, glad to hear the doc has given the go ahead to walk. We all look forward to hearing goals, be they 1 min, 5 min or longer, anything is awesome.
Heidi, enjoy the tango.
Lazy day for me. Resting. Thinking about maybe a trip to the gym and some yoga. Certainly no running.
Gracie- glad you are A-OK for the walking! I feel so much better when I get exercise, and the walking helps keep the bones stronger too.
Mara- nice workout! I usually feel OK post Herceptin/Perjeta, but sometimes a bit tired for a couple days after. Glad you are feeling good afterwards.
I didn't do too much today but did get in about 35 minutes of dance/cardio/kickbox and then did some gob squats, kettle-bell swings, and some chest presses with the kettle-bell. Yesterday I wasn't able to get in a workout, but still managed to get in about 6,000 steps and some sun salutations. I kicked it hard on Sunday with over 14,000 steps and did over 10,000 on Monday too, so i had a little bit of cushion and felt justified in taking it a little easy for a couple days!
I walked 24 minutes today!!! Not sure how far, didn't measure, but it felt so good thinking I was doing something to help fight this cancer!!!!! You are all so inspiring
Wonderful job Gracie. You will also feel better doing it. Even 5 mins is something to be celebrated.
Gracie. Nice. You stuck it to the cancer on many different levels.
Gracie, way to accelerate after the green light!
Mara, great post-infusion workout! DG, great workout for not doing much. Do take a rest. You, too, Z.
Cooked 3 courses for the cardplayers, tidied up, gave instructions to DH for reheating and presentation (roasted pumpkin and garlic soup, cold marinated fish salad, veal lasagne) and went off to tango. But first had a sip of the wine. Heaven.
Great job ladies! Some days five minutes is a huge accomplishment! Yesterday I didn't want to do anything except eat potato chips. Not good :-/
Today i swam a half mile, am covering some gray hair so folks can continue to tell me I don't look sick, and will try to get some volunteer paperwork done. I went to a used DVD store on the way home from the gym. There were a number of people who looked like they knew how to use an Xbox. Found some used Yoga and Pilates tapes for times when I'd rather work out at home. $6 rather than $58 for a class...that is a bargain.
Have a great day!