My Husband, My Life, My Love, My Family, My Cancer
Comments
-
sf-cakes - I got my first infusion of Enhertu on the 9th so I am almost due for the second. So far so good, I have not noticed any major SEs.
SondraF - I think it's great that you put them back in their place. After spending so much time in the hospital and various doctors offices the last month and a half I am about fed up with the medical field. A friend of mine got me a pregnancy pillow which looks like a huge 'U' shape. I like being able to hug it to me and support my legs.
Irish - I so hope that pain goes away and I'm glad you don't have to bring your plants in struggling with that.
The sun is out here today too. I am just trying to soak it all in. It's so nice to see something other than gray skies! For the record I agree, pizza and pajamas are amazing!
1 -
My family cannot catch a break. My sisters daughter has had addiction problems for a long time and has been in and out of rehab for years. She got out again last Friday and disappeared for days. My sister got a phone call from the coroner that they found her dead of an overdose. She was 34 years old. My poor sister is in total shock and so is the family. She had a daughter herself that is 14. I can’t seem to get out of this sadness rut. Life is really difficult sometimes
2 -
Words don't seem to be enough when you have such sadness in so short a time. Know that you have support from members of this forum and good thoughts and virtual hugs are being sent to you and your family.
2 -
micmel: I have been plodding away on Word hoping to catch up with posts but I had to reply immediately to your last post. What a series of losses. Your heart must be so broken. Addiction is a terrible affliction and it affects so many other people than just the addict. What will become of her teenage daughter? Being a teenage girl is hard enough without this. I am just so sorry for all of oyu
0 -
Mallemiss~ thank you so very much. I think I’m still in shock over my mother and then this happens with my niece. I’m actually speechless ..
0 -
Elenora~ everyone is floored. The poor young girl is a wreck and I am sure my sister will have the child with her. Hearing those words out of her mouth didn’t seem real. Nothing makes sense all of a sudden. Thank you for your kind response. My mind is numb
0 -
Micmel-So sorry about your niece. Peace to her daughter and all who loved her.
0 -
Mel I am so saddened for you and your family by the loss of your niece. I have no appropriate words of comfort in all of this. Life can be so difficult and sad at times. Sending love and strength to all🧡
1 -
Mel - Just very sad to hear about your niece. Yes, you and your family have just been hit with way too much and it's not right/ fair. I have no words, but can only send my sincere sympathies to you and yours, and wish you all peace and comfort. A hug for you too!
0 -
Mel, I can’t even imagine how you’re feeling right now. I wish I had the right words to say…
0 -
Emac, I’m glad Enhertu is not giving you too much trouble.
micmel, I’m so sorry for your family. My brother is an addict and honestly I feel like it’s 2nd to dementia in the cruelest issues to have.
Thinking of you all :)
0 -
Oh Mel, I cant imagine the grief you and your family are going through. I hope you are close to your sister. Wish I could ease your pain.
1 -
Mel, I am so sorry to hear about your niece passing away, especially with an addiction issue. I am sending you and your family my deepest condolences and for your sister and your niece's daughter especially at this time.
0 -
What sad news. It's so common for an addict to get sober in treatment, get out, and resume using their previous dose which is now too much. Sending condolences and hugs to all involved, especially the 14yo girl.
1 -
@emac877 So good to heart Enhertu is starting to work. I hope this medication is kind to you and gives you many years of improvement.
@micmel That is just too much sadness for one family to have to deal with. My heart and prayers are with you and your family. We are so sorry for the loss of your niece.
Another difficult day. Sick, shaky and in a lot of pain. Appt. with MD tomorrow. Still do not have a MO hired at the clinic.. Video call with an MO out of St. Augustine feb. 29th. DH's MO is moving from Daytona to Ormond Beach soon. Perhaps I can change offices, depends on Humana. I'll give it a some more time, but honestly I feel like I am not receiving the care I should be receiving. IMHO.
1 -
Dear Mel
So sorry to hear about your niece. My heart aches for you, your sister, your grandniece and the rest of the family.
Eleanora
0 -
Mel- I'm so sorry for your Ioss. What a terrible thing for your grand niece to experience. It's good for her to have her grandmother and you for support. Love and prayers for your family.
Mara - I'm so glad you and your DB patched things up; family is so important. But I'm also glad that you have other resources and connections to support you. DB's wife should not be screaming at you.
Emac, I can only imagine how awful it is to be unable to breathe. I sounds like you have options, moving forward, for dealing with he pleural effusion. I hope the Enhertu kicks butt and has you feeling better pronto.
Sondraf, You go girl! It sounds like "the other" MO needed a wake-up call that he's dealing with real people with real problems. Pizza and matching PJs sounds perfect. I hope your new pillow gets you more comfortable for sleeping. It's so hard to rest when you're hurting.
Sunshine, I'm amazed at how quickly you're recovering. I'm glad your mom was there for you and that you were able to enjoy her company, as well as her much-needed assistance.
I read here every day; don't often have more to add that hasn't already been said.
Nothing new going on here. Just plugging along and waiting for scans next week. Same old, same old.
Waving to everyone.
0 -
Mel - what a blow to your family coming so soon after the loss of your mother. Im so sorry you have to deal with this heartache too on top of that. I hope you can find some peace at points amongst all the madness/confusion of this situation while you are still recovering from Covid too.
@emac877 Ain't that the truth. At some point you want people to stop poking you or taking obs or checking another damn box on the ipad and just LISTEN to what you are saying about what is actually going on. I hope you get a break soon too! Good luck on the Enhertu!
Insurance cleared sports med hip specialist so I will book that appointment this morning, hopefully for early next week. Pain management didn't have much to say beyond 'lets move the oxy up to 15 in the background' which is about what I expected. I took some Tylenol this morning when I was hurting and I think that may have worked better. Overall Im actually fairly cheery despite lack of sleep and pain, I think its the feeling of getting some control back.
0 -
@micmel I normally don't follow this thread, but was looking at my notifications and noticed a lot of activity here. I am so very sorry for your losses. I can't imagine what losing two family members in such a short period would be like, not to mention having to deal with a bad case of Covid in between.
Losing one's Mom is always very difficult but I find some comfort in knowing she is always there, looking down on me.
Sending condolences and prayers to you and your family during these difficult times.
0 -
Dearest Mel - I wish I could be there to give you a hug…..life has thrown so much at your family. So very sorry that there is more loss. Addiction is the devil, always nipping at one’s heels. I pray the family will be able to help the young daughter through the devastating loss of her mother.
0 -
Sondra F, in your pocket for the appointment with the sports med specialist and glad Tylenol is helping a bit.
Emac, so glad that Enhertu is treating you well so far and you are feeling better.
Seeq, DB and I are fine, they are in Florida visiting friends currently, hoping SIL comes back refreshed. I apologized on her messages, I did not realize she left a couple days ahead. I am sure it will be fine but know that my healthcare and what I do can be private for some things. They would not like that the entire laundry set up is in the bathtub now but not bothering to mention that I almost fell getting off shower chair and I was holding on to the grab bar. No problem wiping down while sitting and moisturing after before dressing.
I slept almost 10 hours after going to bed earlier, feels good, thinking about some mall walking. I did test myself lowering and lifting treadmill, felt like I would not be able to do it but was successful so if mall does not happen, will do some walking on that as it is flat much like the mall floor. It is raining today so might be a good day to reorganize my recycling etc, tidy it up a bit.
Laundry will be a couple of cycles, have some clothes from the hamper needing washing as well as some microfibre cloths.
Going to fix some beefless ground with steak and taco seasoning and fry up a bit, add a couple of eggs. Later might make crispy wee pancakes to eat like toast as the mini griddle is good. Cook a thinner amount of pancake mix, pour into the griddle, do two to three minutes and flip it so the top gets crispy as well. I am getting rid of the maple syrup at some point or just add into beans or something but not much, just to give a hint of maple in a recipe. I just can't take the whole pouring on full size pancakes. Another thought I had was getting cool whip and adding a tiny amount of syrup and using that on pancakes, I don't find the cool whip too sweet. It is to bad I have an aversion to actual fruit instead as that would be healthier. Another option may be sticking frozen fruit in the magic bullet and using MIO water flavour to make it taste good… We will see.
0 -
Oh Mel, I'm so very sorry to hear about your niece. Loss on top of loss. Life feels so painful at these times. I hope you are able to rest and that you have good hugs available to you.
Emac, on to your second Enhertu treatment! I may have said this before, I know a few women from my local support group who've had a very good response to this medication, hoping for the same for you.
Sondraf, really hoping that sports med specialist will have some great suggestions and actually help.
Irish, in your pocket for your MD appointment, want them to help you feel better.
Mara, 10 hours of sleep sounds heavenly...
Was able to walk for 15 minutes yesterday without needing to stop and sit down, this is progress - first few days after surgery it was only 2 minutes before my back said, Enough! It's literally one step at a time in my life right now.
0 -
SF cakes, good walking. I have not been on my treadmill in months. In digging for the key, found some stretchy resistance bands that may come in handy to strengthen my hips while standing at the sink, I forgot bridge pose this morning but did 3 sessions of pulling my bodyweight up to sitting. Still need more push ups.
Felt nervous on the treadmill initially, started at slow speed, found myself doing almost as fast as usual. Initally going to maybe do 5 mins at a time, get water and do another 5 minsor call it a day. I will see, running shoes feel weird to me as I don't wear these ones outside.
Finished out at 10 mins on the treadmill, going to move on to Paul Eugene or leslie sansone,,using a folding chair for them I think, heart rate will come up seated as well. Now that the snow is disappearing in favour of warmer weather most of the time, could also start walking around the block, shorter as I was not doing this much at all and the flu left me weaker. Start small and maybe always do shorter things. I am happy with the 2 five minute sessions on the treadmill so far.
0 -
Good job on the treadmill, Mara!
0 -
Thank you ladies. My head is spinning. I appreciate all the support you’ve shown.
going2beathis~ nice to see you here. We always welcome anyone to the living room. These women have become my sounding board and friends. I hope all is well in your world. Come back again!
0 -
Waving hello to everyone. I hope you all had a good day and quiet pain free evening. It's Day 3 of being in pain and mostly bed. I believe it's post mastectomy syndrome and truncal lymphadema mixed together. I couldn't see the MD today. He was out for family emergency. The office would not reschedule. I don't like the sounds of that for him and for his family and for his patients.
Thinking of you all and in pockets for scans and life's general needs.
1 -
Irish Sorry to hear you are still in pain! Hope you get in to see your doctor soon, fingers crossed. Ugh always something.
Mel Sending love and hugs❤️
mara Reintroducing treadmill slowly is a good idea. I much prefer a nice outside walk too, hope your almost finished with the snow.
sfcakes Sound to me like progress is progress, slow and steady wins the race. I'm happy to hear you are making progress each day..keep on going!
Thinking of all here and praying for peace and strength today.
0 -
Irish, I am also hoping you get to see your doctor soon as well, in your pocket for that to happen.
Mel, always in your pocket sending my love to you and your niece as well.
It looks to be nice and sunny today. Planning some chair workouts, bridge pose already done and pulling myself up with the bed ladder 3 times, think of pulling yourself up with a rope and that is what that is like. I am a heavy weight so it is good for pull strength. Also planning several short walks outside as well, get used to walking to the bus stop when I need to.
I am doing laundry as we speak, bathtub area looks crowded but I don't mind. The hospital baths feel much safer and just as clean, just sit on the commode, do the top half, need something to scrub down my back and bidet for lower half. Wash face and head in sink and moisturize everything.
Cooking changed as I wanted a quick meal, took 1/3 cup lentils and some canned turkey. Put them on a regular plate I sprayed with cooking oil. Added in some shredded cheese, seasoned with dash of salt, tsp each of steak, chicken broth powder and multiple veggie seasoning. Heated in microwave covered with a lig for 2min30 seconds
I hope everyone has a good day and in pockets for all needing me, in my own pocket to accomplish household and workout goals. It is nice and sunny here. Let it cool and added a small amount of mayo, mised all together, filling and good. Realized that could make ground turkey texture by chopping up with croutons, same as the beans. Going to try that tonight I think and add to a fried egg riff.
0 -
Thank you Mara…heavy hearts today. Realization settling in. Very hard to take… so young and the sweetest young girl no words really. For such loss. Ty for caring.
love to all!
1 -
Mel, Some of the people I've known over the years, from my high school days on, who've had problems with or even died from addiction related causes, have been some of the nicest and most sensitive people I've ever known, and I've often wondered if there isn't a connection, i.e. that the world and life's ups and downs can't just become too much for them, because of their seemingly innate sensitivity to the world and those around them, and they turn to drugs/alcohol to calm it all down. Tragically they just wind up with another problem that is too hard to handle. When you mentioned what a sweet girl your niece was, it struck me again how this seems to happen to some of the most caring and thoughtful people there are. Peace and hugs.
0
