My Husband, My Life, My Love, My Family, My Cancer
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mara, great that you can access the support -- they sound like a good place!
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Philly, I also love my medical marijuana as well. I just placed my order a few seconds ago for tomorrow. I'm so pleased Pennsylvania did as well as they did implementing the entire thing. Hats off to them. I'm glad yours help you as well. For me I don't mind the THC. It relaxes me. Cbd works for sure helps me with side effects. You sound like my kind of person. I'd like to visit with each other when. You visit your cousins.
Mara~ Edibles period does. Nothing for me. Nada. I tried them. I am thinking I have a pretty big tolerance to some things. That's why I work with someone at the dispensary, to help me feel the benefits of every aspect I can. I even used cream last week, it was heavenly. I love gummy bears so I wish they did help me too. How often do you end up taking them.? For myself sleep alludes me at night. I guess I nap too long. Oh well, don't spend money sleeping. Goodnight lovelies. Parry.... we miss you so much. MJH. I'm so worried about where ya been. We miss you too. And your wonderful energy. A hoot hoot to Lynnwood and her kick ass Xeloda NEAD! Hell yeah!
Much love always. ~M~
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Divine, sending good vibes for DH to get the new job!!
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Divine, sending good vibes for DH to get the new job!!
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Mel, I don't need them often as sleep usually comes easy. When I could not sleep, I took one a couple of times in a week. For pain, I would take one with an advil.
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Candy, I can sympathize with you on the retirement situation. I left work to use my sick leave a year ago now and it’s been great and terrible. The first few weeks were wonderful, I slept in and watched 19 seasons of midsomer murders on Netflix but after a few months I grew increasingly restless and frustrated. I’m a doer by nature and doing nothing drove me nuts! A turning point came when I decided to make self care and being more active my “new job”. I began using my extra time to prepare healthy and attractive meals, I watch a mystery show each morning, then hit the gym. I also travel often as many of you know and now I can’t imagine having a full time job again. Hopefully a new routine will help 🙂
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My most embarrassing moment was in 7th grade. I tried out for cheerleader in front of a huge auditorium filled with all the 7th and 8th grade students and teachers. Not a fan of being on stage, I was scared to death. But, I had good acrobatic skills and really wanted to be a cheerleader. So, I did my whole cheer and my cartwheel into splits was perfect. Everyone clapped and I was pretty happy. Until, my best friend told me I for got to yell. What?!?! Yep I never said any of the words to my cheer and was completely unaware. Needless to say, I didn't get picked to be a cheerleader.
I got to see my grandchildren on Sunday and Monday. Always fun.
My incision for my new port got infected. My IR called in antibiotics. Then, yesterday he had me come by his hospital so he could see it. He also snipped two pieces of suture that were sticking out. They were not supposed to stick out, supposed to dissolve. Always something. Now I have to text him a pic every day. Yes, he gives his patients his cell. Can you believe that? He's become a huge part of my team. From y90's to liver BX to port. 💞
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They should have taken you anyway Grannax with the good acrobatic skills. Anyone can learn and practice the voice portion when dealing with stage fright. Their loss.
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I agree. They should have seen you were a natural.
Soooo sorry on the port issue. I mean geeze can anything be easy for us? I am still battling my fall wound. One sore on my shin, just will not heal, it's all scar tissue but man it's taking a month already!
Bloodwork for me and XGeva shot!to Not my favorite place! I hope my port isn't persnickety. Sometimes I have to break out in a aerobic performance to get it to work.
Mae~ I miss the gym. So jealous. I love the idea of self care... maybe if I had done some of that along the way earlier, maybe I wouldn't have gotten cancer. But I guess it was just my card.
I was at the dispensary today, and I had what I call a “spell". Where I get my worst hot flash possible. I forgot my sweat rag! Doesn't that sound sexy? Lol not. Everyone stopped in their tracks and were like omg Are you ok? Do you need water? If This happened at home, I'd be lucky if my son would even notice. My DD is more the Care taker, sometimes, I miss her being home here with me. We always watched every show together. I adore her so much. Off to nap soon. Hugs lovelies.
Hello Mara!!!
Waving hello to Santa !!!!!
Runor~ ♾
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Hi Mel, so sorry to hear about the hot flash. Those are brutal for those who get the sweat along with for sure. I know you did not have it with you to wipe up this time but have you tried those evaporative towels that can be worn around neck or wrist for example that keep cool. You just wet it and keep snapping it. Keeps cool for a long time. Those things are great.
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Mara~Thanks for the suggestion. I'll try anything. I'm going to look at amazon. Thanks so much for telling me about it. The neck would be heavenly. 🥰🌹 hope you're having a good day!!! Hugs ~M now if I can figure out what to search when I’m there lol
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Mel heck yeah for a visit! Let’s make it happen my friend :-) I would love to meet your cute doggy too! I am a dog fanatic but not allowed to have pets at my building. My therapist said she’d happily write a letter so I could get an emotional support doggy but I’d have to go through some hoops with the building I am in, that plus I am imagining the doggy needing to go to the bathroom in the middle of the night and here I am on the 22nd floor and we would have to wait not only for the elevator but also for the guard to wake up and let us out! It would be a whole thing that I don’t really know that I am up for
I have thought about a smaller doggy that I could use those pee/poop pads for...still trying to consider this idea. Also the possibility of a cat maybe?? I am, though, truly a dog person!
Mel I am curious about how the folks at your MM dispensary work with you? And you get it delivered? I haven’t had this kind of offering. I am lucky to be able to walk to mine which is about 7 blocks away. They are very nice there. I am not so sure that the new pharmacist knows exactly what she’s talking about though.
I have those insane industrial hot flashes too! They are the worst with the heat and humidity it seems. It’s so muggy outside...if I have been running around and then come inside into the a/c, my body’s thermoregulation goes haywire and I am dripping with sweat. So annoying!
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Thanks all for being there.
Micmel- I too love to read books so I will definitely be doing a lot of that in retirement. I do need to " be good to myself". I worked for 35 years of my 48 years of life and now I should be allowed to chill.
Hot flash issue--- Oh Yes I know those- sweat all over, dripping, hair wet. And my face gets red. Fun Fun.
Mara- I have a treadmill also so I need to get in the routine of walking daily. I don't like the outdoor walking either.
Pots- Yes permission to retire. And "what gives me meaning"-- I am trying to figure that out now. The organizations idea is a good one. I wonder if American Cancer Society could help with coupons or vouchers for helping with the cost of lessons or classes I would want to take.
illimae- I never have been a traveler. I am a home body. Glad you can do what you enjoy!!!!
I am still mulling it all in my head. Maybe just be thankful for the small things. A good book. A lunch out with a friend. A special church service or activity. Not necessarily thinking about a BIG retirement project. I just don't know yet.
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Well, apparently here in Ontario, if I simply drop perjeta and take herceptin and progress I move on to straight chemo which I don't want to take anymore. My MO suggested trying out taking Herceptin sessions and then Herceptin/Perjeta on the next making the 2 drugs every 6 weeks versus every 3. May take less out of me. Happily I won't need a loading dose when I go back. All scans still clear luckily, improved heart function. I credit the treadmill. Won't have Herceptin until sometime next week. We'll see what happens then.
candy, if I don't do the treadmill at the start of my day or at least walk to the store, I am guaranteed a depressive day. Still having to sort out being mostly on my own after Mom's death. If I have walked some, I can regulate mood and frustration more easily and avoid a day of crying. Stupid crying not necessarily directly resulting from my Mom. I don't have anyone but myself to kick me in the butt. I do have my older brother and wife but they got my old condo packed up, helped me find my apartment, got my condo ready for sale, got the agent. Did everything that I don't want to be calling when I am down in the dumps. I have to make it for myself and only ask for help if desperate. That's why I was fortunate to have enough money to buy the treadmill. Helps me alot. I usually just do 5 or up to 15 mins several times throughout the day and get off the couch every hour. I also like free weights, squats, stepping on my bench or just marching yoga mat. Obsessed with it as a mood booster and trying to get ready when I do resume treatment.
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Mara~ you go girl! That is great that you do all that. It’s also great, did I read your scans were still clear ??? And improved heart function? 🥰😀🍭🥂🌹💙 that’s wonderful sweetheart. I agree with you about the cardio all the way. You should really be proud of yourself. That is what I call self care. I need some of that. Thank you for inspiring me! (I am Sorry about your mom, I just lost my dad, I get it). Much love sweet friend. Marching place even sounds good. Wonder what my dogs would think. ? ❤️❤️
Philly. When are you available for a visit ? I’ve never met someone and actually had them understand how I feel. How happy I am you’re around. 💞 my dog Deeohgee is crazy but loveable. Lol Tag is a sweet old man who sleeps a lot. Hey kinda like me! Except I’m not a man ! Lol I’m really excited !
Candy~ we have a little family here. If even one day you read something here and you smile and come back and smile again? It’s good! We care about you and want you on disability, if it will calm you and maybe you could find some hobbies or walk through town. I’m think maybe a little walk is in my future too ( I just don’t know how long lol). I hate the heat ! Arrrgggggh. !
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It's incredibly nice to march on a half inch yoga mat. I still start with the treadmill, but I have bad balance issues so have to hang on to it. The marching gets my arms moving too. Only way that I feel less easily frustrated and depressive. Thanks Micmel and I am also sorry to hear of your father as well. I lost my father almost 30 years ago as a teenager so it wasn't quite the same as it was with mom. I had never moved out as I did not want to get married or kids and it worked for us when we shared the rent. We got a nicer place. I put the downpayment on our condo and paid the mortgage part of our bills. She paid the rest. We were a good team. When the house sold, I paid off debt and committed to a more frugal way of life. My new place does not have enough room to fill it with crap. I am happy that my scans were clear. Even my brain which was the problem child for me has behaved itself for a good while. Those treatments were rough but I got through them. Want to keep being strong. Got to consume less sugar though. I have developed a wicked sweet tooth. If I was sedentary, I would puff out like I did on all the steroids. I may go to my gym to check out their strength training equipment. Cardio is covered but extra muscle is always welcome.
Part of the reason I do it all is because I am very much a homebody, always have been. I don't work anymore so need to have stuff to do. I am happy that I was ut in pretty hot weather and kept up with my sister in law walking in the hot sun. She was worried about getting me getting too hot but I was not overly hot, even in a wig. That is progress.
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Hi my dear sisters! I have Good news! Today I got the PET results. I had stinking in two of my bone lessons ! I have been on Ibrance about 21 months and lately on Joe protocol- Fenbendazole . I don’t know , to “ blame” Ibrance or the Fenben for this good news.😀 Maybe both!
Sorry for not posting very often, but I am reading at least a few times the week!
Love, hugs and prayers for healing for all of us.
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Blueshine great news and nice to meet you.
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Hi Mara! There are so many of us .... it makes me sad, but in a way good, because I am not alone... Nice to meet you 😀
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Blueshine~ I am thrilled to hear your good news!!!!! I will fall asleep happily being thankful for your good news. We all need to share in all the good news...I’m always so glad to see you. I’m glad to hear you’re always around reading. Then you see when I ask about you! 😀. Congrats congrats !
Waving hello to Mara!
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Hello Mel!
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off to bed. I hope it’s not another insomnia night! Counting sheep has lost its charms.
Hope everyone is well tonight !
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Good morning all! MicMel you’re so sweet 😀 Yes, I often see you looking for your friends here 😂. It’s so cute... I am a lazy writer. I hope you got some sleep tonight.
I have to go to my sunshine babe. He is almost 2 years old and he doesn’t let me go nowhere without him😂
Love and hugs
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Blueshine,
Congrats! I agree with Mel and Mara. Good news is so uplifting! I wish you continued success with whatever drug is doing the shrinking!
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Good morning Beauties~ I woke up a little earlier than I usually do, and I turned on the television. There was this documentary on about Fred Rodgers. “Mr Rodgers, Neighborhood." I was riveted to the screen because I felt like I was a small child sitting in my living room where I grew Up hearing the Train whistle Choo choo! Everything about him and the show were kind. All focused on Love and being honest and your own one Of akind special. It was soothing and I didn't feel anxious then. Now look at what these kids watch. Shooting. Cartoons filled with the earth blowing up and machine guns and every type of weapon created on the video games. Mr.Rodgers used freaking puppets and real people. That is what stuck with me in my
Heart and head every year I grew. Watching him And this documentary, it just showed me without a doubt that this countries better times are behind us. Everyone has something to say, but the problem I see is, what they are saying is mean. Degrading and divisive everywhere you look. It's depressing. Such a good man, like that generation it seems. Where they understand family, devotion of country, honesty, integrity and deep understanding of the fact that everyone isn't the same. I wish we could go back to those days again. I miss those times. I would watch my show, and go outside to play. Oh sigh. I miss my life.
Have a great day lovelies. Each and everyone of you. !
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Morning all.
Woohoo Blueshine for the good PET report.
Micmel- I too grew up with Mr Rodgers Neighborhood. And Sesame Street. Yes better times. I grew up living in a small town, still do. When we were kids - say 12-13 years old - we would walk around town with our friends during summer vacation. Go to each others houses. A kid cannot do that now-- walk around town by themselves. They would be kidnapped, raped, murdered. Our world is sure in a mess right now.
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Those of you with fond memories of Mr. Rogers will no doubt love the new movie about him coming out this November starring Tom Hanks as Mr. Rogers called “A Beautiful Day in the Neighborhood." Since I live so close to Pittsburgh where he's from, I'm hearing a lot of buzz about it and looks to be fantastic. Plus, the most beloved actor of our time playing the lead, well, it doesn't get better than that. A little side note, the brother of ds's girlfriend is a young graduate of film school and got to work on the set of the movie.
I'm not one to believe the best times of our country, our world, are behind us. I feel that because we are exposed to so much news nowadays via 24 hours news coverage and the internet, we hear too much of the bad stuff. But there is still quite a bit of good. It's easy to romanticize the past, but there was a lot of injustice and wrong doing back then, too. Plus the oppression of women was astounding. Today we have women on the Supreme Court and on the boards of Fortune 500 companies. Advances in medicines are helping many of us live longer. Genealogical dna is helping solve decades old cold case rapes and murders; no one could have foreseen that even ten years ago. And so much more.
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Good points Divine. When I talked about walking around town back in my childhood, there was still crime. It just seemed less in-your-face verses now. We did have a kid raped and murdered in a neighboring town and everyone was horrified. But you didn't think it would happen to you. And my parents and the parents of my friends still let us wander.
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Even in Canada, the best times are also behind us. We have a lot of crime including hate crime increases here as well. The cultural shift to allowing abuse of people whether in the US, Canada or the rest of the world has been normalized which is sad. Technology also makes it feel so much closer and supremasists are gaining larger audiences through online help.
Toronto is having shootings pretty much everyday, my own city has swarms of teenagers wandering around beating people up.
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This is un-PC, but I attribute the worsening of society to less and less parenting. Kids need parenting. Not sitters, not centers. Time and attention and unstructured chilling out with their Moms and Dads. I would guess that children today get 1/5 or 1/10 of the attention kids got in the 1960s and 1970's when I grew up with a SAHM.
I imagine being a tiny baby who is made to wait 12 hours till mom picks me up from the sitter... Babies are wired for contact I do not think we are humane to babies anymore, and it shows up in the larger numbers of angry, erratic grownups....
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