My Husband, My Life, My Love, My Family, My Cancer
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Thank you ladies for the suggestions. I see him next Friday. I’ll have my paper in hand with questions.
Tanya and Philly. Do you find your side effects are getting tougher and not entirely going away on the weeks off? It just seems lately I’m more fatigued than usual. I’m stating to think they are accumulative. I’m going to ask what he thinks about a dose reduction. Couldn’t hurt (I hope)! Goodnight ladies. Sleep well I hope.
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Hello Everyone, I've been reading as much as I could but haven't had much to add lately. DH and I arrived in CA after passing through 8 states and 3 time zones. We've been staying in an adorable “little yellow house" my daughter (DSD) and son in law built as an Air BnB and seeing the sights in nearby San Francisco together today. Great weather and tons of walking and man do my feet hurt now.
Candy, I think you'll get used to a slower paced life as time goes on. I retired about 2 years ago, (before I knew anything about my BC) and I love the freedom to do things like shop on weekdays and not get dressed and out of the house by 8 am. I do question whether I could keep up at my old job now with less energy and my sloppy memory.
Micmel, So glad you're here and keeping this thread a supportive place. You're doing so much for so many of us.
This is the house, all 600 square feet of it.
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Rosie what an adorable little place! Have a wonderful time in CA!
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Micmel-I'm on cycle 37 of Ibrance and swear by the Greek yoghurt for mouthsores. I was eating it every day then slacked off. I got one last month in the back of my mouth-after a couple of days back on the Greek yoghurt it was gone. As long as I eat it a couple of times per week it seems to keep them at bay. I'm at 125 too.
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I adore that little yellow house. I could live it that cottage if it were here at home in Texas and be a very happy little old lady.
So THIS happened yesterday. My toilet overflowed and flooded my newly renovated master bath, bedroom and living room carpet. All this happened while I was out in my my garden. I was unaware and so the water stayed on my wood floors for an hour. 😨
I walked in and stepped in two inches of water. Since I live alone and I'm an insurance adjuster's widow, I knew what had to be be done. Step by step I worked for two hours cleaning up all the water. I got it done, believe it or not..
On Monday, I will file a claim with my insurance company. The plumbing will not be covered but all the damage will be. Just another day in the life of a homeowner who is currently on chemo trying to extend her life. Lots of questions to ask God, when I get get to Heaven. The timing of this flood was bad to say the least. I just had my second infusion of Gem/Carb on Wednesday. So, three days out I'm using the wet vac to vacuum up my flooded floors. What?!?!
But, today I'm going to my happy place, grandchildren land. Twenty four hours with my favorite people. Thank God for my granddaughter and grandson and that I live less than an hour away from them. 💞
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Rosie~ That is so freaking cute!! I could totally live in that bad boy. That is what we need to do. I honestly love it. I also am so glad to see you back again. Happy Sunday! It’s another sunny day outside !
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Grannax~🤢🤢🤢🤢 noooooooooo not the renovation. Oh dear. That happened to us a few years back when my daughter didn’t mercy flush, it was everywhere! Thought our ceiling would collapse! It was upstairs. Ugh I am Sorry you had to do all that alone !!! Egads. I might have started bawling. Happy grand child time. Hugs strong woman!
Chicagoan.~I’ll try to get some and gag it down. I also have zero appetite, nada none. Nil! Last night my DH made tortolini for dinner last night and it was heaven. My mouth was happy. Soft. Heaven! Thank you so much for the idea! Glad you’re back! Love !
Moomala~ I could definitely agree, that home is adorable. I would be very happy as well in something like that! I always watch all kinds of home Shows. Now they are even introducing shipping container homes. It’s wild!
Much love you wonderful peeps!
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Hi Micmel, just popping to give you support on your Ibrance questions. I am two months behind you, so starting month 33 in a few days. (100mg except the first two months at 125 mg.)
I have not noticed accumulative side effects with Ibrance
My main SE is increasd fatigue around day 26 and lasts about 4 days..like a bowling ball strapped to my legs. So fatigue varies in intensity. My stamina/endurance has also been effected. If I am busy with a full day of cleaning. hiking, gardening, shopping, I will need to rest 1-3 days afterward. For example, I was in NYC to see a Broadway show and with all that walking, I was in the bed resting for two days afterwards. I cannot climb stairs without stopping and resting, but can walk horizontally with no problem. So I guess I am 60% of who I used to be, but have accepted the reality and happy with a new me.
Letrozole is starting to hurt my knee joints, plus caused an urethral caruncle which reduces urine flow. Fun. That is another story. Only estrogen can fix that.
I do have mouth sores periodically, not often. I use Magic Mouthwash Rx. and for the herpes blisters inside my mouth, I take Valtrex Rx.
The minor SE which I think caused by Ibrance is the random eruption of tiny singular red bumps in my skin. They go away..just used to it.
It wouldn't hurt to ask for reduction to 100mg, but first maybe explore other reasons to cause your constant fatigue. That doesn't sound like the usual Ibrance SE.
Could your body still be adjusting to your lung issues? Are you depressed and not realize it? You seem so supportive of everyone, I just would like to see you get out of this fatigue rut and have some fun.
Like you, I have been NEAD. For me, since Oct 2017..nine months after starting IBrance/letrozole.
I was diagnosed with widespread and diffuse liver mets in both lobes. The bitch tumor cells traveled to my lung arterioles and tried to shut me down. There was a healing sclerotic T12, but I have chosen to believe it was from osteoporosis, not a bone met.
I am IDC, ER+,PR-, HER-. So almost 3 years out from mets dx. What a mind trip.
S
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Rosie: gorgeous yellow house! Your comment that its 600 square feet made me think of my parents' house. They raised 7 children in an 894 square foot house! Three bedrooms: four girls in two sets of bunkbeds in one, the boys all in a full sized bed in another and parents in third. One tiny bathroom so small there wasn't even room to change your mind in it! Lol. Mom had zero kitchen counter space yet she whipped up dinner every night including homemade spaghetti & pizza and canned countless tomatoes. Kick myself for any unkind word I ever spoke to her.
Micmel, I've only been on Ibrance since end of March. But I have always used toothpaste for sensitive teeth and of course soft bristle toothbrush. They even make extra soft ones. And consider Biotene toothpaste and Biotene mouthwash. My ds used it for years during the time he wore braces and will occasionally even use it now now if he gets sores.
Recently I was made aware that Ibrance can cause anemia, low red blood cell count. I didn't know this because so much emphasis is placed on the low white blood cells. But anemia can cause fatigue. Other symptoms of anemia include weakness, anxiety, shortness of breath and rapid heartbeat, which I was having.
So yesterday I started adding foods to my diet to hopefully help with the rbc count, such as nuts, fortified cereal and bread, dried fruit, tuna, and more. The list can be googled.
I wanted to mention it because I don't recall seeing any discussion about anemia caused by Ibrance.
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Hi DivineMrs, good for you exploring food choices to boost your hemoglobin/rbcs.
Unless, bloodwork proves otherwise (like low iron levels) our fatigue is from reduced hemoglobin- but not from being iron deficient.
My MO explained to me that red and white blood cells, plus platelets are in suspended animation from the Ibrance. On our week off, they then continue to mature normally, but the cancer cells die. So I would think anything to increase red blood cells would not hurt!
Sorry Micmel..I will log off now, I know it is not the Ibrance thread!! Forgive me!
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Sandi~Hello darling!!! It's always nice to see you here. It's so weird how sometimes each medicine reacts differently with each of us. I do really well until like around 3:00 pm. Then Bam until I feel foggy in my head, achey, drowsy, like the flu everywhere. Then after I eat dinner I'm great. I could stay up until way past midnight. To be honest it's so peaceful and quiet then. It's now become my favorite time to be alone. I seem stronger at night. Odd... it used to be the opposite. That's why I wondered if it had changed for any of you. Thanks for all the suggestions. I love you guys. You're always so much help!
Okay so today is the day my sisters we have reached 10k postings like wow. I had NEVER imagined it would even take off. I was just needing a place to belong. Even if that meant talking to myself, or creating a journal of my heart that my family could have to go back to if I go. Or if it could help anyone at all, even just one. I would be happy. So I'm thanking you for the love and support all along the way.
🥂. Mae!!? Divine 🥂 my first posters.
To everyone new, or not. This is our home. I adore each and everyone of you for who you are. Please Join me for the next 10k!!!
💜💙💚❤️🧡💜💙💚❤️🧡💜💙💚❤️🧡💜
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Sandi~Honey... we talk about everything and anything. I asked the question. No worries my friend 🥰. Hugs
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Grannax-- Oh my, my friend. That is the joys of living alone. Something happens and we have to take care of it ourselves. I wish I could have been there to help you though. 3 days after chemo, good grief. Now more headaches to redo some things?? Hugs from here.
Rosie- Precious B&B !!!! Have fun.
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I'm not here too often, but wow, this thread moves so fast. Congrats on 10,000+ posts, Micmel, and no wonder so much catching up to do!
Thanks for posting a bit back that Chelle is just busy with life; I've been wondering how she's doing.
Too much to comment on, so I'll just wish you all a good Sunday and love to all.
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Bliss~Hello darling. I will let Chelle you asked about her. I just spoke to her on the phone for over an hour. Bigbhome and her DH are traveling to see her and her DH this coming weekend!! I'm soooo jealous! Mshes handing in there just like we have been! Just no time for posting. Which Is good! Much love~M~
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Hi, Marianelizabeth hope they can do the surgery to ease your pain. I know what it's like. I will see my surgeon again in October about the possibility of hip/pelvis surgery. My daughter might visit in the new year, and we plan to go back to Victoria next year, all being welll
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Hi All,
Thanks Divine. We are looking forward to a peaceful, relaxing time in the mountains of GA.
Giddyup, you sound like my kind of girl! I love to meet people who live and let live....just as you are. I don’t believe in trying to change people....I’m more interested in their stories and where they’ve been on this journey called LIFE! Anyhoo, hope you keep posting here. I will share a few “Goober” stories if I can get up the courage. My nickname is very apt for me!
My very best to all of my MBC sisters
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Minnie~lovely Minnie, October will be here before you know it, I can’t believe we are already half way through August almost. Time truly is fleeting. My Dad always used to tell me that! It’s so truthful. I am trying to enjoy everyday living. And smelling those flowers before fall sets in and the cinnamon smells and pumpkins take over. I love the fall. Do you have calendar fall like we do ? I always wondered. I would love to visit Spain for sure.! Hugs to you. It’s nice you see your sister every year. It’s so important. I see that now that I have mine back after a long estrangement. I hated every moment of that! Sleep tight lovely.
BooBoo! Hello special lady. I was just telling DH today about you and how I wished you didn’t move from here. I’m Hoping to get together with Philly at some point soon. I would have been honored to spend time with you. I miss our talks a lot. Honestly. I do. Love you special sister ! 🌹0 -
okay ladies.....I feel like I owe you all an explanation of some events that took place on a thread, one of the only other threads I really follow. Without going into too much specifics. I saw some insulting and rude comments being thrown out to people, then somehow. It started to come over here. Saturday morning when I woke up I didn't have coffee, I made a joke on this thread and that other thread about how it was a horrible crisis for me that i didn't have coffee. I wanted to lighten the moment on the other thread to try to show, the obviously silly comparison from coffee to what the main discussion was which was suicide.
Someone posted a phone number for prevention and some found that offensive, I believe when there is a specific thread called “a place for talking about deaths and dying issues". That should be discussed there. Then someone who isn't stage four came into our thread and simply stated that stage four women should have their own steam room. Suggesting that stage four women shouldn't post there. I asked the mods to have it removed from our thread because I didn’t want you all to see that. I was broken hearted seeing such a thing. I have never felt like a stage here on BCo until today. Stages never mattered to me, until this weekend.
Runor, who obviously is my friend and shares my dark same humor, came here and made a joke between her and I that had nothing to do with this certain non stage four poster that insulted the entire stage four women group here. Runor, however isn't stage four but had a personal invitation. As do many non stage four people whom I love.
Hinting we may be too fragile to handle our condition and maybe suicidial and shouldn't be in a regular platformed thread. I found that terribly hateful. I am hurt and really shocked. Big deals were made about attacking the original poster who posted the. Suicide number. Never once would I pile on anyone, insult anyone, be intentionally mean to anyone ever. But I will not sit by and watch double standards occur. If I have to leave BCO to make the mods see what occurred here with this. Then so be it. I do believe there is a function to remove entire threads at the creators request. I come here to love my sisters and give support and laugh and cry and find good friends. Not see people be bullied just because they write well and speak their minds better than others. And rude people who can't even own their own mistakes and apologize when it's clearly obvious who was poking the bear. Bringing up names again the next day after being warned. Pretty much done with being insulted because i am stage four.
I love you ladies very much.
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There are so many beautiful people here, demonstrating unselfish kindness. The support and friendships are real, and wonderful. And many have even apologized after hurtful comments were tossed around, and have moved forward remembering we're all here working to live the best lives possible and support one another. We hope that we can all move past this hurt back into the spirit of the supportive forums. We send many hugs to all
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Micmel, I feel the same way as you do about what happened on that other thread. I felt more than one person was being bullied by the poster you are referring to. The idea of separating the thread is silly and I would not want that to happen.
I also enjoy runor as well as I have read many of her posts. The person in general needs to let it all go now. The topic should be buried by now.
I deleted my own posts as well seeing as how I don't want to contribute to it anymore. I will use the thread as intended and will also help anyone I can. I know I don't post here much but I do read and follow you here.
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Micmel, thanks for explaining, although you didn’t need to. I’ll admit, I was confused yesterday about the spillover here, so I went back to the steam room to catch up. I didn’t take much offense either way to the original discussion, however, I laugh in the face of anyone who might think we are too fragile with our conditions. I find staring mortality in the face daily really toughens a girl up!
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Mara~Honey you're more than welcome anytime. I am sorry that you were upset as well. It really wasn't very sisterly at all. I'm glad to see you here. Please remember you're always welcome. Thank you for letting me
Know how you feel, especially right now.
Had to admit though was loving Mae's popcorn pic. That's exactly what needed to happen. ☺️
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I was roaring with laughter because illimae's post is so true when you think of it.
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that’s our Mae!!! That is the kind of humor I am used to. I am no weak buttercup!!! 🥰🥰.
Mara again welcome. Personally !!!
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In the middle of that tennis match Illimae appeared with her cartoon and was hilarious ...🤣🤣🤣
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totally agreed! Loving that for sure ! 🙇♀️ 🙇♀️ To our Mae.
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I honestly love that kind of humour too. I have a very warped sense of humour by times. That post from illimae was also a nice break from different people going back and forth on a topic that should have been done a while ago.
Edited to add, thanks for the warm welcome Micmel.
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or perhaps even a stretch to think that that talk would have even been done on the “place to talk death and dying issues" thread. Uh maybe. Not the steam room, where you're supposed to rant and rave without repercussion of any kind. The entire thing was odd. It personally gave me a headache. Like I said. I don't like insults. It felt wrong to me. I think cancer is enough insult for us all. 🤦♀️
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Agreed. The steam room is meant for ranting and raving about stress in your own life or something affecting someone else. God knows I had a lot of stress to spew there. I also agree that death and dying issues thread would definitely have been more appropriate for the death with dignity UNLESS someone was ranting to relieve stress about it. Cancer is most definitely the biggest insult I received in my life personally beyond everything else that happened this past year.
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