My Husband, My Life, My Love, My Family, My Cancer

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  • mara51506
    mara51506 Member Posts: 6,504

    Candy, I mentioned the loss of the volunteer to my cancer centre today and there may be a different service I can access. The nurse brought in someone from the CCAC (care access) and they will send a referral for a different service for a home visitor. Just someone to talk to periodically. I am good with that. I did not feel badly today, I seem to be able to bounce back more than I used to emotionally. I will consider your other suggestions though for sure. Only thing I have decided I do not need is a grief counselor. I feel I am in a pretty good place dealing with my feelings about Mom. She is no longer suffering and that was all that was important to me. She also no longer has to worry for me. My brother and SIL are also quite supportive and SIL came with me today It was nice to have the company. I get my drugs tomorrow.

    I am sorry for everyone dealing with progression treatment. I am in your pocket to become stable again.

    Movingsoccermom, I am sorry about beautiful Artemis.


  • booboo1
    booboo1 Member Posts: 1,196

    Tanya,

    I moved to Tarpon Springs, so I am going to the New Port Richey office. I will have chemo there, and also radiation. I am not at all worried. My progression is just another bump in the road. I know the rads will kick butt on the femoral lesion, and I am still blessed to have mets only in the bones. The only thing I hate going through again is hair loss, but that, too, will pass. It’s the Lord’s way of keeping me humble!

    I will be SO in your pocket on Friday. If you ever need me, I’ll come to Tampa and hold your hand through it. Nothing like another MBC sister who truly understands the crap we go through!

    I’ll be praying for an easy day for you tomorrow, my dear

  • micmel
    micmel Member Posts: 10,055

    reporting for any needed pocket duty. BooBoo I love your attitude.

    Tanya~ your posts are always so witty! I am with you sweet friend!

  • booboo1
    booboo1 Member Posts: 1,196

    Thanks Mel. It’s really the way I manage through this disease. I refuse to let it take my joy out of life.

    My sister is here visiting this week, and we have had so much fun. Several times I’ve had to stop and sit for a bit, but she is good with that. I probably push myself too hard sometimes, but it’s worth it in the end.

  • Grannax2
    Grannax2 Member Posts: 2,387

    Gosh girls, there's so much going on. Progression is the pits. But, it's easier when you finally have a plan and get into the routine. At least it has been for me. I start cycle three of Gem/Carb next week. My sister is going to be here for a week. That will be fun. That is if my SE cooperative.

    My house. Two rooms are almost complete. I'm most excited about my bathroom. It has been transformed. I'm so pleased. My bedroom floor will be done during my off week the first week in October. Then, hopefully, I will have my home back. No workers everyday, no stuff in disarray, no money flying out of my pocket everyday. I'll send pics of my unique bathroom when I get all my decor back in place.💞

  • chicagoan
    chicagoan Member Posts: 1,057

    Tanya,

    I'll be thinking of you tomorrow and hoping things go very smoothly. Loved the image of your husband patiently sitting there holding your foot. That looks like love to me.

  • mara51506
    mara51506 Member Posts: 6,504

    Grannax, that is good news about your house. Cannot wait to see pictures.

  • micmel
    micmel Member Posts: 10,055

    BooBoo~Also love your name, my nick name was Boo from my dad. It’s dear to me. Just like you ! I am trying to just accept the things that I can’t change. That’s a hard thing to do and you do it with such grace. 💗. Love that and you....

    Mara~I also cannot wait to see Grannax’s photos. She always has such a great eye for design.
    Grannax~ also waiting for those pics.
    Philly~. Our runway star 🌟 number two! Go rock it beautiful! So thoughtful to have said Grannax inspired you! Indeed she does!

    Waving hello to Chicagoan 🥰 good to see you!
    Tanya better have huge pockets. Like that pic Mae posted. The jacket sweater type with killer big pockets. We should make it the team FU cancer (Parry?💔?) scan sweater. 💜 lots of room in that-bad boy!
    Hugs to all!

  • booboo1
    booboo1 Member Posts: 1,196

    All,

    Thank you so much for your support. It means everything to know there are wonderful people in this world who get it and care.

    Muddling, I’m right there with you, so know thatyou’ll be on my heart.

    Tanya, I am bringing the choc. cheesecake. Hopefully your pockets don’t get too messy!

  • candy-678
    candy-678 Member Posts: 4,171

    All---- Please check out this Thread ASAP

    https://community.breastcancer.org/forum/8/topics/...

  • micmel
    micmel Member Posts: 10,055

    what a sweet idea, I remember last time it was lovely. The time differences got a little tricky. But I hope it goes off without a hitch !! 💕

  • MuddlingThrough
    MuddlingThrough Member Posts: 655

    Tanya, I will have taxol once a week for foreseeable future. When I did it last year it was for twelve straight weeks. I am feeling very down. I'm on pocket duty with you and with boo boo. I'll bring some chips and maybe cookies.



  • micmel
    micmel Member Posts: 10,055

    muddling~I am sending you a strong as virtual hug. One day at a time. It’s all we sometimes can physically do, and mentally can handle. I remember taxol kicks some good cellular ass! ♥️

  • micmel
    micmel Member Posts: 10,055

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  • simone60
    simone60 Member Posts: 952

    Tonya I'm in your pocket too. I hope I didn't miss anyone. There is so much going on in this thread.

    My PET is scheduled for Monday. I am starting to get scananxiety already. Tanya let me borrow the big pocket dress after you're done tomorrow.

  • tanya_djamila
    tanya_djamila Member Posts: 1,540

    Simone you got the dress/jacket thing. I may have to wash it. I’ll pass it on like the traveling jeans.

    BigB good luck on your scans tomorrow.

    Muddling I was thinking when I was in the infusion room and a patient got to ring that bell. MBC means treatment after treatment. I pray The taxol dose is manageable for you while it obliterates your C

    Booboo tarpon springs is beautiful! Enjoy your sister time.

    Thanks all

    Tanya

  • micmel
    micmel Member Posts: 10,055

    Simone ~ I will also be pocket jumping. We sure do need the big pocket dress. I know it’s hard to keep some things straight. I think it’s good exercise for My mind to keep it sharp to. Not to mention you all mean very much to me. This place keeps me grounded and bound to my sisters, who are the only ones who really really get it.

    Hugs sister 💗~M~

  • micmel
    micmel Member Posts: 10,055

    Tanya~ it does need a good washing and vacuuming from all the crumbs. I am still so annoyed that they messed up the first time. I mean with appointments galore. It’s a big deal for us to be there and ready not only mentally but physically and not sleep the entire night before. It’s a shit storm honestly. I noticed you mentioned Bigb having to scan. I don’t see where you saw that. I was concerned about her and hoping she was well! Hugs to you my sweet sister. I had to giggle when you said you loved the heat...... and hear i am, praying for fall. You’re a trip. Sweet dreams ladies!
    Waving hello to Candy! 👋🍬
  • mara51506
    mara51506 Member Posts: 6,504

    Had an OK day today. Got both my infusion drugs today and very tired. I am trying to avoid exhaustion so I actually walked alot throughout today. To the bus, on treadmill, around cancer centre to help with energy. Shocked at my steps. I hope I will not wake up feeling like a garbage truck hit me. Have an echo tomorrow then a week off appointments before a murder trial I have to testify for. Stupid person stabbed a poor soul and dumped their bloody clothes in my backyard. Little bit nervous about that.

    image

  • micmel
    micmel Member Posts: 10,055

    murder trial what??? My goodness that is unreal wow. I got called for jury duty, which I won’t be going to. I can’t be sitting in a standby room in hard chairs. I’m so sorry that you have to deal with something like that. My goodness I’m speechless. You my dear are something else. 🌹🌹🧡
  • mara51506
    mara51506 Member Posts: 6,504

    Mel, yeah, could have done without but hope that evidence brings justice to the victim and family. I am just a small cog in this story.

  • micmel
    micmel Member Posts: 10,055

    Mara~I am sorry sweetheart..... you are way bigger than just some cog in a broken justice machine. You're wonderful and special! don’t ever forget that ever!

    Reporting for pocket duty....

  • micmel
    micmel Member Posts: 10,055

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  • Moomala
    Moomala Member Posts: 397

    Wow Mara! That's so scary and I'm sad that you have to be part of it. Hopefully they won't keep you for too long and I hope the system takes care of closure for the victim's family.

    Mel did you already get out of the jury duty? I just got that first thing they send you so I'm expecting to be called in any time now. I was going through treatment last time I got called up for jury duty. I didn't even have to go in - I just called them up and said I was on chemo for bc and they took me off the list - until now. I can't see myself sitting in the chairs all day either.

  • Grannax2
    Grannax2 Member Posts: 2,387

    Tanya. Did Big B post an update? I guess I missed it. You are in the scanner as we speak I hope. I'm sure we will all do the happy dance for you when this one is OVER.

    This modeling thing is spreading. Can't wait to see pictures. My next one will be Nov. 9 in Dallas, I just got invited yesterday. It's hard to believe that it was less than a year ago that I was in my first one, so scared my legs were shaking. Now, I know the drill, it's a lot less scary. Say Yes to Hope has brought a lot of good friends my way. Their Retreat from Cancer and a trip to NYC.

    Philly Who is sponsoring your runway show? The designer for the ones I have been in is Samina Mogul. No, we don't get to wear her designs but she has allowed the survivor models to share her spotlight in the SMGlobal Catwalk events. Different designers donate their gowns to us. It's really fun to get all dolled up with hair, make up and jewelry in a designer gown for an evening. My favorite is all the pictures we get to keep. Also, that my kids just love to come and cheer me on.

    I promise you I will send pics of my new bathroom to this thread first!💞

  • tanya_djamila
    tanya_djamila Member Posts: 1,540

    Grannax and Mel Candy 678 posted a link to big B’s post about lighting a candle and I read that she posted about a test or treatment today. The link is still above.

    Mara get some rest. Treatments are tough I was shocked to hear that a murderer was in your backyard. I’m glad you’re standing up for the victim. May peace and comfort find its way to you today and always.

    Muddling these treatments have a cumulative effect on us. When I wake up and move around that’s when I find out how I’m gonna feel that day. It’s all quite unnerving. I hope the down feeling will subside soon. There’s some stupid jingle in a McDonald’s commercial that’s stuck in my head. “ we’re gonna have a good day and ain’t nobody gonna cry today save that junk for another day”. I think about it and feel a bit upbeat. Kids are singing it. Doesn’t make me want McDonald’s but I like the kids!

    Have a good day all. My MRI is at 4:00.

    Tanya

  • micmel
    micmel Member Posts: 10,055

    there is that wit I speak of ! Lol another adorable post lol 😜

  • tanya_djamila
    tanya_djamila Member Posts: 1,540

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  • mara51506
    mara51506 Member Posts: 6,504

    I am doing OK. On my way home from a routine echo. Not tired so much as hungry. Will have a small snack.

    Mel and Tanya, thanks for caring. SIL will come with me to courthouse for company. I should not be there a lot since I am just one piece of evidence and there many other pieces I am sure.

  • Grannax2
    Grannax2 Member Posts: 2,387

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