My Husband, My Life, My Love, My Family, My Cancer
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Before the water damage my floor was wood look laminate. I loved it but it turns to mush when it gets flooded. I also had 80’s wood cabinets under my countertop. Those had to be replaced too. My friend had the antique piece in her garage. Someone had thrown it in her alley. It is replacing two wood cabinets that were where this one is now. It had to be repaired in several places and the glass replaced. And painted white. The guy that works for me on my remodeling has also worked refinishing/ repairing antiques. Lucky for me.
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Tanya thanks for sharing bigB upd
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Beautiful, Grannax! I’ve always loved painted furniture.Floors and cabinets look great, too.
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Grannax, it looks so nice and comfortable. Really nicely decorated.
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Loving all the colors so much. I love the flooring. I would pick that myself. It would make me not want to go outside of the house. Love love it. So happy for you!
Moomala~Hi there darling. I just woke up and it’s 5:00 I could just put sleep down as my profession. I had a nice visit with my sister today. I am so pleased to have her back in. My life. Happy Friday !
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Muddling,
I have a feeling I may be back on Taxol with you. It’s the only drug that has really worked for me. Hair loss? Sure, but who needs hair? I think I may shave my head and get a tattoo. What do you think? Want to join me?
Ladies, the best part of this disease is getting to mix with all of you. I know it stinks, but I like when we mix in humor (the look alike dogs, etc.) and can lighten our load. It’s not easy, especially when the news is scary. But to have each other through it means everything!
Love to all
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Grannax,
That looks beautiful! They really did a nice job.
Booboo,
I totally agree with you. It's so nice we all have each other.
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Oh...meant to mention Grannax’s updates. Wow. That’s all I can say....love the floors, love the cabinetry, pretty much love your taste! I hope you enjoy it. You deserve a nice place to call home
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Mel,
I am so glad you are at a good place with your sister. It’s important to keep your family close, even though sometimes it’s hard. My sister who just left is so annoying at times, but I try to think of her good qualities, and let the rest go. As we age, it’s so easy to stand our ground and express our views. But I also realize how special it is to have someone who loves me the way my family does. As I’ve said before, there is nothing quite like family. That’s why this blog is so special. I feel like you are all my family
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Tanya, I hope everything gets sorted for you. I love reading your posts, you keep up to date! I can manage a brief posting usually because I'm tired by the time I've read everything. I like summer weather too, spring and autumn here in Spain are ok too, and I can cope with our short 3 month winter, where we never get ice or snow!! However last night we had the worst storm in our 16 years of living here. We are a small village, but many houses flooded, cars wrecked, everything such a mess. I guess a lot of you ladies know what it's like.
Visitors only have 3 more days, praise the Lord. Lovely people, but just need our own space again.
Love to everyone, thinking of you all daily xx
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Hi all.
Simone- In your pocket Monday for your PET scan
BigBhome- How did your scan go??
Grannax- LOVE the pics. You have such great taste in decorating.
Minnie- Oh my on the storm you experienced. Glad you made it through.
I am kind of down today. I had appt with my neuro doc today. He thinks I am having small TIA's. We are waiting for lab tests due next week to see about possible blood clotting syndrome and then may have to see another neuro doc for a second opinion. If that wasn't bad enough, I just feel kind of lonely. You see, I talked with my sister on the phone yesterday and mentioned my upcoming doc appt due today. Then today I called her again about something else and she never even asked about the appt. I think she forgot. I am glad we ask each other about our scans and started the pocket duty thing. I am glad I can vent on here.
Hugs.
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Hi Candy,
I hope things turn out for you. It does hurt when close friends and family forget about something so important.
I see you are from Illinois. We lived in Silvis IL last year until July. It's around the Quad Cities. Do you know where that is at?
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Candy,
So sorry you are having issues. Please forgive my ignorance, but what does a TIA feel like? I am not sure if I have ever experienced a TIA, but want to understand. This could be med related, so that’s why I am asking. Thank you
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Grannax, the floors, cabinet and entire room look lovely. One would never know that bathroom recently underwent a flooding issue. I think of a commercial for a company that cleans up water and fire damage that has the motto "Like It Never Even Happened".
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Thanks ladies. Glad you like my new bathroom. Soon all three rooms will look " Like it never even happened".
Today I get to go to my first cross country meet to watch my granddaughter. I'm really not sure I know how you watch a CC racer. Then she has a Volleyball tournament. It's going to be a long, fun day. It always lifts me up to be with my grandchildren.💞
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good morning lovelies. I hope everyone will have a decent day worry free for once. I hope everyone feels half decent and can do something they enjoy.
Parry, Blaine jenifer. Still worrying.
Marianelizabeth~. Holding your hand darling thinking of you.
Minnie, hello my dear beautiful sister
Grannax,fantastic renovations. I could totally hang with that.!!
candy sorry you're down. I feel it too. Everyday it's like the plague !
Simone ~ hello lovely 🌹
Divine~Still thinking about that porch! Hope you're reading a book snuggled out there.
Mara~♥️👋 hello sweetheart hugs to you!
Much love ladies !
BooBoo! I love you!
Mae~you know how I feel
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hi candy just coming in to give you a squeeze. Makes sense to feel down about your sister not remembering. I have an older brother and sister and they both have their heads in the clouds sometimes with their busy lives.
I’ve always been the youngest (and the shortest!) so my traditionally characteristic behavior has always felt like I am the little one jumping up and down saying, “hey guys! What about me???” And having to shout to be heard.
This journey is such a roller coaster mentally at times. One day I’m in the dumps and the next I feel like the energizer bunny running on low batteries.
I’m in pockets! Tanya! Simone!
Grannax beautiful renovation! Must feel so good!! Enjoy :-)
Love and hugs,
Philly
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Hey all, just a quick check in before heading out.
Yesterday was day 1 of Riot Fest, BFF and I had a great time seeing The Descendents, today we go back for The Selector (80’s Ska band) and tomorrow is packed full, gonna be a good but long day. I hope everyone is doing well 🙂
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Morning all.
Simone- I have never heard of Silvis. So I looked it up. You are Northern Illinois. I am Southern Illinois. So separate ends of State.
Booboo- So these "TIA" episodes for me come on sudden. Left face feels like goosebumps and a drawing up sensation. No other symptoms--- no visual issues, no headache, does not affect any other body part. Lasts maybe 15-30 minutes then gone. This week had 1 on Sunday morning and then another Tuesday morning then nothing since. I am keeping a log now, but this started in May and maybe 5 or so episodes before this weeks' episodes. I was thinking maybe neuropathy from Ibrance.???? But neuro doc thinks if neuropathy it would be more constant. Plus he is leaning toward TIA since I tested positive for a blood clotting issue - Antiphospholipid Syndrome - 3 months ago and we are to retest next week. If 2 positive results 12 weeks apart then positive for the Syndrome. And TIA's can result from this Syndrome.
Philly- Thanks for the Hug. I needed it. I am not the youngest, I am a middle child. But I have always been "the strong one" and so my family tends to think that I will be "ok". They don't want to face that I may need help or support sometime. I am supposed to be GIVING the support not RECEIVING it.
Hope all have a good day and good weekend.
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Hi ladies
Finished the mri thanks for the support.
Grannax your bathroom is beautiful. I love the antique. Bright and pretty. Enjoy your grands. I don’t know how you watch CC. Let me know.
I have to pack for my quick jaunt to see my daughter and grandkids. I won’t get my results until I get back. I’ll probably call. Wish I could just not worry but I’m not set up like that.
Candy try to do something special or get out today. Interesting how close family forgets appts and important things in our lives but friends remember.
Boo boo are you saying you may change treatment again? Did you do the radiation yet? I hope you’re enjoying the heat today.
Minnie that storm sounds terrible. I laughed about your guests time coming to an end. I know the feeling.
Mae sounds like you’re having a great time.
Tanya
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Hi Tanya,
Yes, I have stopped taking Madam X, and will move on to another treatment once my bloodwork comes back. Hope you have fun with your family.
Mel, love you back!
Candy, thanks for the explanation. Now I’ll be aware if one of these drugs does the same to me. Take care!
Mae, looks like you are having some BIG fun. Enjoy yourself
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Pretty bathroom Grannax! I love the flooring!
Having a quiet weekend. I went back to work this week and it was just a little tiring. I'm part-time now but teachers have to be "on" all the time and that's not easy. My back is still hurting from last weekend. PT helps a little but some days I just feel like this back is never going to get better. Then other days I feel fine. One thing is for certain - I have to be way more careful about activity. Last weekend just really was over the top with all the partying. Having to take it easy all the time is really hard for me and mentally I'm still refusing to let my back keep me down - to my own detriment. Ugh.
I can smell fall in the air. There are sunflowers galore at the farmers markets. Peaches are just about done for the season and we're seeing apples and squash. My husband is a pasta maker so no matter what time of year there are always people who love to eat pasta. I am not a pasta fan myself and both of our children have celiac disease. We all think this is funny.
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Candy I nearly forgot I was going to say something to you about siblings. There are seven of us kids and I am the middle child. In my family I was always the one who needed the most help and attention. I had anxiety. I was too skinny. I had fears. I cried a lot. It was a bit of a dysfunctional family so there was a lot to cry about. Some of the siblings came out of that really really strong and I notice that they are often forgotten. My strong sister had melanoma a few years ago and lots of people have forgotten about that. For me here I'm noticing six months into this that I'm feeling lonely and realizing that people aren't as open to listneing to me about fear as before. How I wish you had a local support group you could visit.
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Moomala- Thank you for understanding. I too have a dysfunctional family. I guess we all do to some degree. I have always been independent and strong and I just get tired of always being looked at in that light. I just want someone to understand that this is hard for me and someone to be there to cry on their shoulder once in a while. And yes as this goes on--and I want to be stable for many years-- people tend to just accept the tests, doc visits, etc and don't think to ask me how it is going or how I am doing mentally with all the tests and crap we go thru. You and this site are my support group. There is not a local group for me ( I have asked my onc office many times ).
I am sorry you had a tough childhood and now having to face all this. Are your siblings supportive of you? And I can empathize your strong sister going thru melanoma and being forgotten. How is she now?
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Candy, I think a lot of us have part of the family that is dysfunctional. I had to cut off a sibling and his family due to issues, not going to go into them. While it was hard at first, it gradually has become easier to deal with and I can at leas ;say I am no longer angry at him nor his wife. I don't trust them, but I don't feel sad about what I had to do. He did try to get info on me through this site, but has not bothered with me nor tried to contact me since. I can say I only wish him the best in his own life and hope his family, son and grandson are fulfilling for him and that he is OK about my mother's passing this past January.
Having said that, it is never easy dealing with difficult people who let us down, especially in our own families. I live alone and without many friends but my older brother, SIL and family do look in on me regularly and I have learned to rely on myself more. I am capable and have been through a lot of things and changes but it has all made me stronger. I see life as more challenging now and welcome the challenge. We'll see what life brings going forward.
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Candy, always in each other's pockets in this group. We all know,what it's like, a life of scans, MRI, bloods, appointments. We get it in a way that no one ever does. So, we are always here to talk to, to complain to, to cry to, to vent anger!!
Well, my visitors go home early Tuesday. Sadly the weather has not been up to standard, so I've had a very unhappy face (her, not him). Her husband has Parkinson's, still very capable, bit slow getting up but with a bit of patience and prompting he can do it, but she sighs and rolls her eyes. Oh dear, how we can see different sides of people. Please sun, shine today and tomorrow and give me a break lol !! She sort of asked me when she arrived, what type of cancer have you, I replied MBC, short explanation. She said, well at least it's not bone cancer, because I know someone who died of that, relief sigh - now let me tell you about my terrible life! Rant over!
Have a lovely Sunday everyone, if there are scans, I will be there in your pocket. Love to all xx
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Hey Mel and everybody else! Still trying to catch up with y'all even though it's quite impossible hehe. These last months have been kinda hard (I know y'all get me) for Leslie and our family between scans, increasing pain and the suspect of progression. Highlight though, Gabriel turned 8 last week so we had a breather from all things cancer and now the house is full of LEGO sets.
Sending everyone lots of positive thoughts and prayers
Daniel
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Mara- I understand being independent. I have been independent for a long time. I wonder how things will go when I get worse with the cancer or God forbid have a stroke. My family is so used to me doing for myself that I fear they will not take up the slack. And sometimes I just wish I had someone in my life that could handle stuff when I just don't feel like doing it. Or even someone to lean on for a small pity party before dusting myself off and continuing on. Know what I mean? I enjoy living alone for the most part, just wonder how it will all play out.
Minnie- Hoping the sun is shining for you and your visitors today. Yeah, I will tell a friend about a busy day I have had and how tired I am at the end of the day and they will say "Oh, I am so tired too". They don't understand that with the cancer and the meds we tire so easily and it is different from the "normal" tired. But I guess I didn't truly understand either before I got this cancer. But I do wish people would think about what they say before they say it.
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