My Husband, My Life, My Love, My Family, My Cancer
Comments
-
Philly~I can’t wait until October now. Meeting you will be my pleasure. You’ll strut your stuff and you can tell me all about it. That’s exciting. Pics galore please ?
Mae~ you’re always doing. Cool shit loving the pics and hoping your resting in between and taking time to drink fluids!! What fluids. You’ll have to tell us ! 😜
Candy~I am the youngest of four. I got dumped on my entire life by my one brother. He was mean. And still is. Narcissistic behaviors run in our family. Does back a few generations. Luckily I was aware enough as a child to see what I didn’t want to be like. It’s a lonely life being right all of the time. (Or thinking you are anyway) just be your loving self and you have family here now as well!!!
Tanya~The word scan sends me into my PTSD trigger. I collapse with worry and shake when the phone rings. It’s torture for us. Let’s all allow our oncologists a ride in the mri tunnel and make them wait a few days or more and see how their fingernails look when they are done. With their worries. Conveyor belt feeling for sure I get. Sometimes. Cancer. Again. Cellular assholes !
BooBoo~Love you back. I always smile seeing your precious name. My dad always called me boo! So your name is special to me as well as the woman behind our talks. ♥️
Moomala~I can smell the fall in the air also. I got my wen conditioner for the season and it’s fused pumpkins with spice. Smells heavenly. I love love it. It’s almost exciting to smell the smells see the beautiful leaves 🍁 changing guard. It’s magnificent. For sure !
Minnie~ saw some flooding and some bath weather in Spain. I am more than hoping you’re far away from all of that !!! It looked bad!
0 -
Daniel~~Leslie ~😄💖 I am so happy to see you. I always worry about the people who have made a mark in my world here and you guys with your precious Gabriel turning 8 and sharing the LEGOs underfoot while walking to the kitchen in bare feet! I am hoping it's not progression. That just simply not allowed. No sir. Please give that beautiful wife of yours our love and affections. We care deeply. You know I do!
Much love to you both !
Happy Birthday sweet child ! 🌈🛴♥️😘 🎁.
0 -
Minnie~ everyone always knows someone who died from cancer. So I have been choosing to end the topic like you did. Well done. Sometimes people are clueless. Parkinson’s disease is brutal also. But it’s not about them usually. The good old complainers always find something to bitch about.
Glad you’re safe! Beautiful
0 -
So I just booked a hotel room near the Mahaffey Theatre in St. Petersburg, FL so we don’t have to drive far to see the Doobie Brothers. I love them. Saw them many years ago in Delaware. Mae, you are inspiring me with all of your concert pics! Figure this old broad can still enjoy some rock and roll!
Hope you are all enjoying your Sunday afternoon. I LOVE that football is back
0 -
Thanks for the kind words everyone. For my second batch of taxol, I ha e one treatment down and ?? more to go. He won't even guess how many this time. My first time last Jan. 2018, was twelve weeks, one a week.
Booboo, if you join me here we'll back each other up. I will miss my hair since it took so long to re-appear after last time and I have felt like I look normal to go places. It's just me but I will not go anywhere except the doctor in my cancer hats.
Mara, how awful about the evidence and a court case. It's bad to be involved even indirectly. I hope you're not too uncomfortable and they get it right for the victim's family.
Tanya, I was thinking of you all day. Your bell-ringing story reminds me that on the first day I ever had chemo, my first time in that clinic, a lady got to ring the bell on her way out. I was happy for her, but I cried (hopefully quietly) to know that day wouldn't ever come for me.
0 -
Grannax, your bathroom looks great. I really like the painted cabinet!
Candy, I hope your day today is going better. I have several friends who live alone and I know they are mostly content but that they get lonely sometimes. As far as family, mine are all aware of my MBC but one son, 30, seems to be uncomfortable/ not interested (?) in talking about it when we meet for dinner. (His girlfriend is lovely but she never asks either.). Maybe they think it will bring me down? He's very friendly and always available to get together but has never asked how I'm doing.
Mara, how was your court day? Did you have to testify? I hope it wasn't too stressful.
Minnie, I loved your line, “always in each other's pockets". That's how I feel here too. Hope your visitors are almost ready to go. I'm sure you'll be happy to have your space to yourself again. My mom used to say “fish and visitors smell after three days". Lol.
Daniel, Congrats on your son's 8th birthday! That's a fun age I think. I too hope Leslie is not going to hear about progression.
Tanya, Hello! Glad your mri (?) is finally complete. Please let us know what you hear.
My next scans are on Weds. Of course I'm hoping for a good report but I have no idea what I'll hear. I'm hoping to get a quick call from the nurse like last time but will have to wait till the following week for real details. Ugh.
Hello to everyone reading. I wish you a good day or evening. 💟
0 -
Hi all.
Rosie- Better day today. But I posted on the Thread How Many Stage 4 Girls Get Social Security Disability about something that happened today about my receiving Disability. You can visit that Thread and read my post if you want. I don't want to have to retype the story. But Yes a better day today. My sister called me this afternoon and we visited. Her family is down with colds. Then I watched part of The Shining movie. Seen it so many times I have it memorized but still enjoy it. Needs to be a cold and snowy day though to watch it. Today is sunny and hot here. Pocket duty Wed for your scans.
0 -
Happy birthday Daniel!! I love Lego
Candy, you are so right. We don't know about other illnesses and their effects so I suppose we have to be open when we can. I did ask all about Parkinson's tonight but it seems complicated
0 -
Go BooBoo~ you take that trip. You can report in like Mae with packing tips and photo ops!
Rosie~Hello darling. I’m so happy you feel cared for here. It’s important to me. Just like our phrase of our thread. “In your pocket”. It’s soothing in a sister way! Because we do get it.
Candy~ I am seriously hoping for good news On the SS disability. It better be a good thing for you!
Mara~I am thinking of you. I also want you to not have to be put through all of that. But good for you for helping make something right that wasn’t. I think you’re wonderful. I wish more people would stand up for what’s good and right.
Muddling~I hope you had a chance to have a good day today. The sun came out here and it was a nice day.
My woes always continue to move along with. You all. Instead of a UTI, I have been gifted with a kidney stone. I haven’t had one one years but it’s tearing me apart. Painful to say the least. Almost like labor pains. Ugh pain swelling. More pain. It’s a shitty thing to deal with. Hope all is well!
Gum doctor~ hope you’re ok.
Marianelizabeth~ thinking of you.
Blueshine~. Hello
Runor~crickets ?????
GP~Missing you
MJH~♥️ OG crew!
Love to all ! ~M
0 -
On no, micmel . A kidney stone is so painful. I know you know what to do, but you still have to get it through you! Can you have lithotripsy ? sp? 🙏
0 -
Muddling~it’s moving,, that's for sure. I can feel it. Drinking water which I love..... causes such pain. I almost fell off the potty in such pain. My poor DH. Maybe somedays he feels like he should have chosen another model, or wishes he could trade in. 😘🥺
Sick of being in pain.
0 -
So sorry to hear about the dang kidney stone Mel. Thinking of you and in your pocket, if you want, that is.
0 -
Rosie~thank you sweetheart.... if it was a bear it would roar up a storm. But I have had them before. I just hope when it passes I’m not alone and fall off the John!!!
Thanks for caring you sweet sisters. !
0 -
Checking in for roll call. Life has been hectic lately and I have not hardly had a spare moment to sit down at the computer and do much reading. Micmel that is not happy news about the stone! As the saying goes, this too shall pass. At least we hope it does! Or gets blown up with a teeny, tiny stick of dynamite. Hugs to all who are dealing with progressions and tests and bad weather.
0 -
Muddling,
I will be happy to be your backup. In your pocket, girl. I am pretty sure my next treatment will be Taxol or something just as bad. We'll commiserate together our hair loss. I don't think I'm going to shave my head this time. I want to see if I can hang onto a little bit of hair. I wear it short anyway, so we'll see. But chin up! We will get through it together....and remember, it will kick those lesion monkeys and we will be better for it. Let me know if you ever need an ear. I'm here and ready to support you
0 -
Morning all. Tired of this hot weather. Weatherman says another hot and humid week. Woohoo. Sigh.
Thinking of the ones with progression and praying for gentle treatments. And heart races a little when thinking "when is my progression".
Micmel- OOOHHHH sorry for the kidney stone. I have had 2 episodes. Not fun.
I did get approved for Social Security Disability. First payment in January. And my job is recording that I am retiring as of Dec. 2. I was there 26 years so I qualify to be labeled "retired". I am not currently working as I am on Long Term Disability with the company.
Runor- Good to hear from you, girl. Good that you are busy living your life. Glad you came to visit with us.
0 -
Candy, when I talk about tired to a non cancer patient, I use the term exhaustion to describe it. I find tired just sounds like I only stay up too late. I don't get the I'm tired too nearly so much that way.
0 -
Runor~ glad to see you. You know how I get when I dong see my peeps. But if you're out living life. I can't complain one bit about that. Always glad to see you my sweet. But you're not yourself. Can't put my finger on it.Just hoping you're okay! I just finished half of my second bathroom to clean today. I figure this stone better get out! I'll work it out darn it. Yowl! I'm sick of seeing this around me dirty. I want to be in charge again.
Candy ~ hello and good morning dear friend. Hope you slept well and and double ugh to the hot weather. (Sorry Tanya who loves the heat😜😘) I need like the 50s and 60s and I'm golden. I have one more half bath to clean and a shower to scrub. Then all three bathrooms will be cleaned! Hallelujah! Hard work for this lame body. Pushing through things is all we do I feel. It sucks. This stone sucks. Speaking of sucking..... LOL. My sister brought me a wonderful present. A Dyson Absolute light weight vacuum stick. The thing is amazing. I love to vacuum now, my hairy ass dogs present a problem with getting all the hair up. Not with this power stick. Like wow 😲! So thoughtful. I'm sooooooo lucky to have her. Not just because of that of course.
My mother has been giving me her precious gems to store and keep and preserve. They have been estranged for years and years and I don't even know how long. But I had a strong need to share the jewelry with her. I gave her some flawless pieces and she wears them every time I see her. I gave her six rings. And earrings. And a diamond tennis bracelet. All of her baby pictures and ones of her family. It's important to me to stop this chronic estrangement in my family. It just seems to easy anymore for people to just forget where they came from. So I felt the need to share these things with her. And I did. It makes me proud. She is her child also. Her daughter. She should have things as well. They should not be all mine. That isn't right it's playing favorites like she always had. I am putting and end to that crap. I don't work like that. You'd have to cut my head off before I could pick a favorite child. So I feel good within myself for that decision....
have a good day beauties. (And Daniel)
0 -
Mara ~ good morning darling we need a new name. Fatigue and tired don’t cut. Paralyzed exhaustion?
0 -
muddling~ it truly is annoying. I hate the feeling of cramping and the jagged pains when I move!!! Ugh enough crap already!
0 -
Good morning all. Thinking of everyone with ailments, scans and treatment changes. I have not quite caught up reading posts from the trip, but closing in. Tomorrow I meet my new oncologist. Such stress.
Just craziness here trying to re-integrate the family after almost 10 years of being scattered. Far more challenging than I expected and hurt feelings everywhere. Ugh. But its good to be back with the pets. Both kiddos have lovely pooches and we are included in the pack, so that is simply living joy. Our new kitty has not had a chance to know us, so that is a work in progress. Artemis is back home in her lovely cedar box, and the grief from her passing remains a pall over all of us. Too many changes.
Thinking of you all.
0 -
Mel,
I am very proud of you. It all starts with one person who says “no more”. It means someone has to humble themselves and decide that family is important, more important then holding on to a grudge. I’m so sorry your Mother doesn’t see it. But you see how wonderful it is to have a sister who loves and supports you. And to share the jewelry with her is so precious. You are such a sweet, kind person. I pray that many blessings will come your way as a result of your generosity
0 -
I agree with booboo. "Be the change you want to see." Bravo!!
0 -
Movingsoccermom- In your pocket tomorrow for the appt with the new onc. Prayers that all will go well and you will form a lasting bond with your MO. So important.
0 -
Santa~Thank you so much for saying this to me. I ve been trying really hard to see the differences she had to bare, she has never had a beautiful ring, nor a bracelet,. Basically everything. It was never fair. Never. It always bothered me. I tried to always compensate. Then we became estranged ourselves. I’m done with that crap! Hope you’re well and I am very glad to see you here. Please give us an update on how your life is!!!!! 🌹🌹0 -
MicMel...regarding Runor...she hasn’t posted a gut splitting essay regarding some event in her life. It has been awhile since I have ROFL from her post.
I hope all is well with you Runor! Missing your humor!
Bella
0 -
Mel, I agree about how good it is to have a sister who loves and supports. I have an older brother that does that for me and it is so appreciated. He will never know how much I appreciate him and his family.
The biggest gift I CAN give him is to give him a rest. Look after my own shopping house etc.
To that end I bought a portable washer I can use in the tub and a manatee portable drying rack. I can do my own laundry and it is cheaper than a laundromat. Older brother and his wife wanted to take my laundry out for me and do it at their house. They already did enough so I declined that and that spurred me to find my own solution. The only thing I cannot do are huge blankets but bedsheets, towels and all can be washed and dried properly, usually totally dry in an hour, maybe two. I also wash every day so it does not pile up on me.
0 -
Checking back in after a long “cancer vacation.”
First Mel, let me offer my deepest sympathies on the loss of your father. I hope that you can take comfort from knowing that you did so much for him, and so much to bring the family back together. It takes a strong, compassionate, loving person to accomplish all of that.
My MO made a plan for me in the spring, knowing that I was planning on doing a lot of traveling during the summer months. She put me on four rounds of A/C (it was hell!) hoping that the liver tumors would shrink significantly. Then I could have the summer off from any treatment and really enjoy myself. Well, it worked, and after the last treatment on 5/30, I left cancer behind for 3 months. I felt so, so good, like cancer was not even in the picture. Took a four week trip to the east coast and to the beautiful lake where my family has been vacationing for 56 years, and saw all the siblings as well as my 92 year old father. Ten days after returning to CA, my DD and I loaded her car and drove cross country to Pittsburgh where she is doing a year long internship at the VA hospital. It was such good mother daughter time and I felt blessed to have it with her.
All good things come to an end, and I am now back in the saddle. Started Halaven at the end of August, so back in the land of SEs and total inertia.
Bless all of you who have had progression, and high fives to those kicking butt!
Donna
0 -
Donna~WELL Hello sweetheart!! So nice to hear from you after this long while. I feel relieved to know you're doing well... I have had AC four rounds. So I know exactly what you're talking about. I didn't even make any sense when I had my infusion the very first time. It felt like my brain was melting. I'm hoping you did not have those side effects and awesome!!!! That it worked. It is bad ass stuff for sure. Maybe that's why they arrive in a freaking hazmat suit to administer it to the patient. I am sending you a big hug and am soooo very glad to see you here. 🌹🌹
0 -
Hello All -
Have been a bit busy...but then who isn't crazy busy in this group?
Thought you might like to see my newest project...note cards tied to my Facebook blog...
This is the first one...blank on the inside...a note on the back says "Female praying mantis is known for her fierceness...".
Thinking about making up 5-6 different cards for a "cancer care card" pack for people to send their loved ones...empowering...encouraging...positive...the opposite of pink ribbon pink-washing...
Gumdoctor
PS - Yes I took this picture...she lives on my pink oleander out front...
0
