My Husband, My Life, My Love, My Family, My Cancer
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Mae~ been meaning to ask you what you think about this seasons America horror story 1984? I come back and forth liking it and not. Seeing more older Characters coming slowly back into the fold. Am hoping for more. They brought in Dylan Mcdermitt briefly this week. Just wondered what you had thought! I'll watch it anyway. But just wondered if you were enjoying it ? hope your doctors appointment went well! I have some Blood work and my XGeva shot coming up this coming Monday sooo. We are supposed to have red lobster lunch after 🦞! My favorite. But we shall see! Hope I feel ok Enough to go! Have you seen the joker?
moomala and booboo! How are you guys feeling ? hi sondra!! Welcome to the thread Maggie. Always nice to see you!! 👋0 -
Ive been watching AHS1984 and while I think I got lost it the plot the first half of the season, its starting to all come together now and Im really enjoying it. Sure, its no Murder House or Hotel or Asylum, but its better than whatever Apocalypse was trying to be last year. And I love love love the opening credits - what fun!
Can't wait to see the Joker once I can leave the house - saw the trailer when I saw Once Upon a Time in Hollywood and thought it looked amazing - and I dont DO comic movies. I have been disappointed to see that the new Terminator has crap reviews. I mean i didn't expect much but just you know Linda Hamilton! but now it seems I may as well wait for it to come up as a movie on the plane or something.
In a lot of pain here at the moment with the back - had to call the chemo hotline nurse this morning for some guidance cause this is some. tumor. flare. y'all. Ugh, hate taking pills and now I have to take pills to take care of side effects of pills to treat and incurable disease. Someone please tell me that this evens out eventually and I find some sort of rhythm in life again. I was way way low on my water intake yesterday though, so really hitting the bottle this morning. Nothing like having urine that feels like its the viscosity of maple syrup. Interestingly, since the diagnosis I dont crave alcohol, juice, soda or anything other than just plain water. Guess thats helpful?
Grannax - waiting for your news and Mic - those sound like good Xgeva date plans
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Hi Mel, All,
I’ve been fighting an upper respiratory infection...along with a stomach virus (that was first). Went to Urgent Care, and they told me it was good I came in. Pneumonia was my next issue if they didn’t get the infection under control. So I’m on antibiotics....am starting to feel much better. I have labs this week and Xgeva shot. Still have not started PIQRAY. They will wait until I am healthy to start that.
We had out of town guests last weekend...they left on Monday (yesterday). I felt bad that I couldn’t do much entertaining, but they had a car, so we gave them lots of options for things to do. They were just happy to enjoy the sun.
I have an appt. next week at the Palliative care group that my onc referred me to. Looking forward to seeing what they can do to help with pain. I refuse to take opioids again. Messed me up!
Hope everyone is doing well
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My dreaded MO appointment went surprisingly well. After some discussion, we decided on y90s and Faslodex. After my recovery, in about 3 months, we'll talk about another chemo,
Now that we have a plan, I can focus on my gown alterations for the Show. It's only a few days away. I'll be walking with about ten other Survivor models at the Dallas SMGlobal Catwalk on Saturday. 💞
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Grannax, so glad your appt went well. I know worry can really get at us and we certainly don’t need more to worry about. Best wishes for the runway show, hope to see pics again!
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So my MO has offered to put me on the aggressive treatment route. (I was diagnosed de novo and have only had I/L for treatment.). At first she said surgery is not proven to be beneficial for stage 4, so systemic treatment was basically the plan. But now that the I/L have shrunk primary tumor and liver mets to almost nothing, things have changed. I saw the breast surgeon yesterday and will have a lumpectomy and possible lymph node dissection next month, and I have a consult about a liver procedure of some kind next week. I know there are no guarantees but I feel good about giving this a try.
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Grannax, I echo the sentiments above. I am glad that the worry was not needed and that you had a good talk with your MO. I am also glad you are getting the treatment plan you really wanted.
Rosie, glad you too are feeling good about your treatment plan.
I am having another quiet day waiting for Amazon. I got a portable dryer and am waiting for that delivery so I can set it up. I should be able to wash just about everything at home now except for maybe really large fluffy blankets. I also am using mesh bags for everything as they minimize lint and damage. I use them for everything, not just delicates and will use them in the dryer too. In the future, I will get a bigger Panda spin dryer for the huge blankets. I like doing it at home not just because it is convenient, but I also know it is clean. Never liked the idea of sharing laundry facilities with other people.
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rosie, this is what I hope for too, so I am thrilled you get the go ahead to give it a shot. How exciting!
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Hi all. Waiting on plumber today---- leaking tub/shower faucet. So didn't go to the church to do the secretary thing today. Wish I could do some home repairs myself, but never learned to do those things. So... pay the bucks out of pocket to hire things done.
Phone call from MO office this morning----PET scan scheduled for this Saturday.
Rosie- Wishing you the best. So confusing how MBC is treated. If your liver met has shrunk with systemic treatment, then why a surgical procedure? My onc has never mentioned surgery to me for my liver met. So confusing.
Grannax- Glad the appt went well and you have a plan. When is Y90? And the start of Faslodex? Cannot wait to see your pics !!!! Have fun.
Boo- Bless you for being so sick. Not fun. And when you had company !!!!
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Candy, thanks for the good wishes. I’m not very informed on aggressive treatments either. The BS I met with yesterday said that MBC patients who have the primary tumor removed tend to do better overall than those without removal. But, she said the bias is that those who have surgery tend to be doing better already, as far as response to treatments. I’m not sure what type of procedure the radiologist will suggest, if any. I assume it will be radiation, not surgery, since that’s her expertise. My take is the thinking is removing or “zapping” cancer sites may prevent or slow their regrowth? This would not affect new sites showing up, so that’s a reason to be skeptical.
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So it looks like I am back to fecal incontinence again. Guess the second drug was not the cause of it. I did make it to the toilet this time, looks like something else must be the issue. No idea what though. I am depressed and disappointed over this development. I don't feel sick, it does not happen with any particular food. Guess this will be my lot in life to put up with insecurity. I have bought reusable menstrual pads to pick up any leak and will take immodium with every meal until under control. More walking too as I think stress can be a trigger and make me overblow things in my mind. I am sitting here crying over it and I know crying is not going to help. Need to fortify my mind against getting emotional about and just deal with it more practically. Just annoys the heck out of me.
I know that people live with much worse than I am dealing with right now, it is just hard keeping my chin up when I can't seem to get a chance for things to run smoothly. Not know what the trigger is also bothers me as well. It is not painful, just leaks out here and there. No rhyme or reason. Since I do not believe it is an emergency, I'll inform my MO about this when I have my appointment next week.
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if your body can handle the surgery do it. I had surgery aggressively in the very beginning and I have been NEAD for three years and 10 months.. it’s because of that I have limited disease and non measurable disease. If they want to think outside the box and you’re comfortable with their plan and advisements. They knew what they were doing for me ! Just my experience I wanted to share. I also had a liver procedure (resection)...
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Hello Micmel and all you lovely people,
I dropped by to see if Muddling was posting.
You are all in my thoughts and prayers.
I am not on the boards as much. I am working many hours to pay for tuitions of my two DDs.
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Mae I hope your appt went well today.
Rosie your new treatment plan sounds good nice and aggressive.
Sondra f I hope you get the same treatment as Rosie and that it gives you both NEAD!
Grannax did you have the faslodex shots before? I get them they make your butt sore but are tolerable. Can’t wait to see you hit the runway.
Mel yes I tell everyone about your surgeries. It was very aggressive but that’s what cancer needs.
Mara my daughter had a small dryer for the apt. Now she has a big one it’s supposed to not have to have a vent but when I recently visited her the repairman was cleaning out like a half garbage bag of lint.
Mominator I haven’t heard from Muddling.
Candy sorry you couldn’t do the secretary volunteer job. I like to volunteer but can’t be consistent so I just do what I can when I can.
Booboo sorry to hear you were so sick and haven’t started piqray yet. Nice to hear you’re on the mend now.
Philly hope you had a nice night out. I had a philly cheese steak Saturday it was good but nothing compares to the ones you get in philly.
Today Jennifer my new favorite nurse got blood 🩸 from my port. Woo hoo. Got a flu shot and faslodex and out the door. I went to target bought a blouse and some under garments and then went to get my MM. cooked dinner early BBQ chicken Mac and cheese and salad. I’ll be in the bed for the rest of the day.
Mel sometimes I wonder if you have different strains and products at your dispensary. I’ve been to three different stores and they all have different brands and when I went to Vegas they had a jackpot amount of different things but of course no way to get it home. How’s your doggy?Tanya
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Tanya- Leaky faucet fixed now. Woohoo. Back to church secretary volunteer job tomorrow morning.
Your supper sounds delish---- BBQ, mac and cheese, and salad. Can I come over??
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Well, got the dryer set up. Was very difficult and getting rid of the box and packaging will probably take days. Completely worn out. Just going to get the stuff cleared off my bed for tonight and save garbage and box breakdown over next few days. It did not help that I was already upset with my digestion and not feeling great but ALL my packages came at the same time. I know I will appreciate the dryer but for now, took a big toll on me. Does not help that I cry at the least little bit of frustration and then beat myself up for crying. So annoying. Should have asked brother for help but too late now. I will just take some time to figure my bedroom out with this dryer.
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Micmel, AHS 1984 is a little average but I still like it, in fact I totally agree with Sondra’s take on it.
DH flys home tomorrow, no immediate plans, just hanging out.
Scans next Monday 😬
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Its Bonfire Night here and someone in my neighborhood is lighting off one hell of a firecracker every five minutes. Sounds like a miniature cannon. The local authority fireworks we watched from our office window while having dinner earlier (also my current bedroom). But kinda over this now as it's late. On the plus side the painkiller regimes they sorted me out with this morning is working
Mara, glad you got that dryer finally! And I know how tough it can be to feel so frustrated for an easy task to be painful or exhausting. Let it out by crying if needed, then enjoy those fluffy sheets
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Mominator~Muddling posted last week, she said she was watching along and getting her needed rest. I am thrilled to see you here sweet woman. I find it an honor actually. You and I always had a shared love of our Patty... you’re such a. Wonderful woman and friend. Welcome to my second home.
Mae~ and Sondra~I do agree with you as well about AHS 1984, I did find I liked this past week the most. One of the coven is actually the Jokers mother in the movie. Francis mcdormand I believe her name is. Fabulous actress looong red hair. It is starting to take shape a little better. I still get the crystal lake feel from Jason and Friday the 13th movies. I will be in your pocket for scan!!!! As usual making noise!
Mara~you go girl sleep like the angel
You are. You did it!
Rosie~Hello sweetheart always nice to see you here, I know they confuse us. I stand by my surgery and why I am doing so well today... (Adderall completely helps not gonna lie). Removing the cells to me seems to make Sense if we have the chance to have it gone from our bodies, why wouldn’t we take that chance? I had a mastectomy and liver resection and 35 nodes removed. So glad today that gyno onc looked at me and said hold on here!!! Let’s try this! So if they offer and you feel you can. Do it! It’s
amazing how our bodies respond.
Candy~Ok now I’m hungry.
Grannax~ beautiful pics are awaited?!!!! You go gorgeous! So awesome and that dress! Ahhhhhh!
Tanya~ hi sweet woman! When you see BooBoo, please hug her tight for me and tell her I adore her. I never got that chance when she lived near me. I wish I had that chance.
BooBoo~ hug Tanya for me like crazy please. Part of my OG crew she is and I value her friendship so much. (Mae also). Feel better sweet lady.. 🌹💗
I think I saw Maggie sneak in here. Welcome to the thread Maggie. Hope to see you again here in our little pub! Hugs to all!
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I have not gone to sleep yet but will definitely be hitting the sheets earlier tonight. Tomorrow is another day. The first thing I will do is exercise on the treadmill. That will give me an advantage over the anxiety of the mess. I will start with garbage before tackling furniture placement or deciding what I will keep. That was my mistake today. I also need to stop freaking out every time my digestion doesn't do what I want. There are worse problems and I put myself at a disadvantage when I get hysterically upset over a minor thing. I refuse to involve my brother and SIL in that situation. Will just throw away stuff I do not need and decide how best my laundry can function. I have plenty of time for that. I have managed not to keep going back in to arrange stuff now. Going to sit on the couch and veg out then go to bed. Need to find a meditation tonight that tells me to smarten up and just get things done.
I will say though, for as upset and hysterical, I actually did set something up myself. I know once everything is arranged, I will enjoy having a little laundry. Not going to do any yet. Clean out boxes and garbage first, then worry about final furniture placement later.
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I can’t wait to go to sleep. It’s chilly
Outside and my covers are waiting. I’m sorry Mara that you had such a hard time today. But yes you did it!
Waving to Philly 👋 Simone 👋 BevJen👋 Moomala👋 Chicagoan👋 Lynnwood👋0 -
I am snuggled in my bed too. Just wanted to say goodnight Mel and everyone else. Could not do it without you all.
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I am eternally grateful for each and every one of you!! Thank you for helping me not feel so alone and isolated!!! 💜💜💜💜💜💜💜💜 goodnight sleep tight!!
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Goodnight everyone! I'm headed to bed after election results and thinking about all the snow coming our way in just a few days! Sleep well!
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Had a good night's sleep last night. Today looks very different than yesterday. Not so chaotic. Doing my first load of laundry that will use the dryer. Only other thing on agenda is putting out garbage bit by bit. Going to give myself three days as the packaging is unreal. With fresh eyes my room with the dryer looks pretty good considering it is a tiny room and the dryer fits in well after having moved furniture around last night. Treadmill is also on the agenda. Need to balance mood more.
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Thanks for the roll call Micmel! I’m here, reading every day. Wrote a long post the other day and it somehow got lost. Really struggling right now with horrific sciatic pain. The pain starts in my back, goes across my butt, into my hip then all the way down to my ankle. It is absolutely the worst pain I ever felt. MRI shows 5 herniated discs in my lumbar spine. Of course I have cancer there too but pain management doctor and onc agreed that this is not cancer related. On 2 Vicodin every 8 hours which only dull the pain for a couple of hours. Will be having a steroid/anesthesia/ anti inflammatory injection on Friday to the area. Literally cannot bear any weight, can’t lay sit or stand without severe pain. Talk about a funk. Then I found out that a friend that I met on this website passed away. We met online on these discussion boards then met up in person. We talked every day. It was unexpected so that makes it harder. I don’t want to release her name because her family has not made anything public yet but she did not post on this thread. I’ve been cheering you all on, praying for all of us and am always in everyone’s pockets even though I’m not much of a poster.
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Lynnwood ~I am sorry honey that you have that dreaded pain. I have air at times also, but that sounds severe. I am sending all of my good vibes your way! Glad to see you. Thank you for letting us know how you are. I wonder about my peeps! I'm sooo very sorry for your loss. So very sorry. That pain runs deep. Hugs to you friend..
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RUNOR~🙈🎤🎙☎️📞🛎📩📣📣📢📢🔊?where are you my friend. Missing your laughter and humor. ♥️!
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Lynnwood, I am so sorry for the loss of your good friend and for the pain you are in. Healing thoughts coming your way.
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lynnewood I am so sorry your are in so much pain and for the loss of your friend
double whammy Do you have a heating pad that you can lay or sit on? Is there any position that you can find comfort in? Pillows piled high under the knees or if you are laying on your side pillows between your knees and thighs?
Pain can make us so cranky. It sucks!
My molars are feeling funny and one of them was bleeding a lot when I was brushing this morning. Time for a dental X-rays. Won’t lie - I am anxious about ONJ because of the xgeva.
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