My Husband, My Life, My Love, My Family, My Cancer
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Sondra~ thinking of you. And your shark buddy How adorable Is that? 🦈. My thing is elephants. I love them. I am sending you all my Positive thoughts and vibes. I hope you're comfortable at least. Thank god you're in a hospital to treat your pain. Hugging you softly.
Philly~I eat what I want when I want. Moderately of course as with anything I believe. I am enjoying my dates with mister Adderall, it was my missing link. I can't rave enough over the difference I feel. Can't wait till we get a chance to visit!!!
Please ladies If you have fatigue and are in relatively low pain ,ask for it. It changed the game for me Honestly. I didn't nap today and I still feel great. I am so thankful .
Soo jealous of Tanya and BooBoo! BooBoo is my buddy Have had several conversations and she's an angel. Please Tanya. Huh her tight for me I never got the chance. She moved away! 😞😞!
Love to everyone else ! ~M~
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I just got handed 8mg of dexamethasone to go with my ibuprofen and morphine. Honestly don't need the morphine but anything that can get my back to deflate would be awesome!
No idea what the plan is yet but perhaps they want to see if this works to take the pressure off and if not then another approach. There is an older lady in here who starts some new chemo tomorrow and is stuck until Tuesday at least.
Hope they come turn off the lights soon.. I've never had to stay over in a hospital before!
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Sondra F, get someone to bring you a sleep mask. The times I spent in hospital, the lights were always on. Yes an overhead light was shut out but there was still light anyway. A sleep mask would be helpful. If you can stand to listen to gentle sleep music and your hospital has wifi. Pull up sleep music on youtube. Was the only way I got some rest when there.
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Sondra~I hope you're able to get some rest with your medicine. I agree four beds is not ideal by any means. It's stressful. To hear others not feeling well. I am hoping your back pain flare calms down really soon. Sending you hugs dear friend. I asked for a sound machine and listened to the rain. I agree about the eye mask and maybe ear plugs wouldn’t hurt.
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I did manage sleep last night, I have an ocean sounds file on my phone I listen to when I feel like I need to check out from other people's noise. This feels like a never ending economy flight
I did have other half bring eye shade as well so I was definitely prepared!The big time doctor showed up this morning along with the radiologist. Second spine scan showed no changes from the first, no impingement or compression. and now they want to run a second ct next week or so. They are so scan happy here, I wanted to say hey look, how about someone push around on my hip and pelvis for a bit, save everyone a lot of hassle?
Someone is going to do another neuro leg test on me this afternoon and then I think I'll be released. Monday I call my chiro if he is happy to still treat if I can get my scans, even if its modified. I was getting better rapidly under him, so I think that with the anti inflammatories will fix it to where I can start getting back into the pool and build on the strength. Sitting in bed isn't gonna fix anything.
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That's just my kind of thinking too Sondra. Give me a physical therapist any day over all this. They're so focused on a path of getting your body stabilized again and then slowly working you back into exercise. I really swear by it. I've got a bit more complicated situation because of arthritis, degenerative disc disease, osteoporosis and apparently the acetabular of my pelvis is a fracture risk due to mets, but I have found that on the days I keep moving my back and hip are better. I have an hour of PT I do every day and the doc cleared me for walking, water walking and stationary biking. The PT was completely irritated by this directive. She knows my body can do a little more than that.
Chiro helped my back and overall health for many years but I'm terrified to go back now after all the pain it caused. But it did lead me to discover I had mets. I don't think I'll ever go back with everything I've discovered in that back now. I would though, love a great massage. I'me even afraid to do that.
Glad you're feeling well enough to want to get outta there!
Mel I keep forgetting to say that I am thrilled you are getting energy and getting back out into your life on this new medication. That is wonderful!!!!! I've begun week three of my new treatment and I think the SE's are pretty much like Ibrance honestly. It felt a little different than Ibrance i the the first two weeks, but not in a bad way. I have manageable fatigue, a little GI stuff here and there and that is about it. I got my labs back yesterday and numbers were good, including my neutrophils which were 4.1!!!! What the....I guess those will go down after a few weeks but that was weird!
My mother is here for the weekend. I haven't seen her in about 18 monhts. She came specifically to see me this trip, but she seems so old and fragile - I think she is coming to see all of us kids and her sister for the last time. She said she never imagined that sh'ed live to be 91, but has no aspiration to be 100 and is very ready to go. My gradndaughters are very excited to see her today! I'll get a generations photo today.
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Forgot to add...My sister bought me a a headband with speakers inside that i wear to bed at night. It really helps drown out the world.
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Moomala,
I hope you enjoy your visit with your Mom. I think it’s wonderful that your granddaughters are excited to see her too. These are precious moments, so cherish them. What I wouldn’t give to spend one more day with my Mom....I miss her so much
I have never heard of a headband with speakers. Would love to have something like that too. When you get a chance, can you tell me the brand? Thanks!
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Moomala, enjoy visiting with your mom. May it bring you and your daughters happiness this weekend.
I do agree about physical therapists putting the need of getting someone mobile at the top of their list.
Sondra, hope you are out on Monday and hope that your chiro is back on board to get you moving again. Glad you got some sleep last night too.
Nothing much on my radar this weekend. I imagine I will be going over to DB and SIL for mexican food and carrot cake this weekend sometime as my birthday Monday. Looking forward to his cooking.
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Yep we have some of those too! Boo they are called Sleep Phones, they are made in the USA. They don't block everything out but its enough to deliver soothing sounds of you lie on your side. They aren't cheap but definitely worth it. Sadly my pair broke and my partners are just a bit too big for my head!
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Just checking in. Pots let you know last week that we were getting together in Vancouver and we did. It was wonderful to meet up and have an interrupted couple of hours together. I wish her well for her pottery sale this weekend. She has so much talent. I have been super exhausted post cerebrospinal leak last month plus back on 3 week cycles of Gemcitabine. However the embedded intrathecal pain pump has been a miracle and I have almost no pain and am only taking a small amount of methadone as I wean off it completely. I read some of your posts and it is good to see all of you.
Marian
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I know you've been spending your time taking care of yourself. Still I can't help but worry when I don't see you post for a long spell. It's very good to see you. So wonderful that the pain pump is working so well.
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Hello Ladies~. Hope you’re having a good weekend. My back isn’t happy today. Yuck. To much activity I suppose..
Mariannelizabeth~😁♥️ So wonderful to see you posting. We often worry about you but understand posting a lot can be cumbersome. We just care very much. So glad you spent time with pots..... I want so much to meet a fellow sister. It’s a special thing. Also glad to hear the pain pump is working for you... that’s amazing And you deserve no pain. 🌹 you’re such a sweet woman Welcome back....
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Moomala~Thank you for your kind words about me doing more. I would Do even more, if my lower spine would cooperate with me longer term better. I need a day off when I don’t. Nap, for a few days in a row. It takes a toll after a while. But I love the energy I feel those days. I am hoping your back can behave also. Enough for us all with our freaking back pain.
Where is Mae??? 😜
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Hi all. Well I had my PET this morning so now the waiting for the results. I went by my old workplace and saw a couple of my old co-workers. One gal is just starting her career, while I am ending mine (official retirement Dec 2 for me). Kind of bittersweet. Circle of Life and all that. I pray my PET results are good, but I got to thinking today. I have had a good life. 26 years in my profession. Good friends thru the years. Just feeling kind of melancholy.
Mel- Sorry about your back pain. I too have chronic back pain (even before the bone mets). Fun, isn't it.
Marian- Good to see you post.
Mara- HAPPY BIRTHDAY for Monday !!!!!
Moomala- Wow neutrophils 4.1. Way to go. Enjoy the family time.
Sondra- Hope you get back home to your bed soon.
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Thanks Candy!!!
So I did nothing but laundry and had movie theatre popcorn. It was good of course. Getting better at making it. Probably going to bed earlier tonight and will spend tomorrow walking in preparation of DB and SIL birthday dinner. Looking forward to seeing them all tomorrow. It will be nice.
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micmel, just got back from the MDA Boot Walk, currently, crashed in the recliner.
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Chiris~Welcome back again. I agree seeing Mariannelizabeth warms my heart as well. Always love to keep my peeps in my heart.
Leslie and Daniel~ worried...... Parry.... worried worried! Muddling~ if you’re reading. Loving you too!
Mae~ looks like a huge event. Wow. You must be in that recliner. I wish we would all be able to meet at an event like that and be together, then after, we would be cured. Yeah my medical marijuana is working really well tonight.
Bad back day. Tomorrow should be better. DH is here is I get a nice break. He’s so amazing the way he just makes it ok. My sister bought us a ring, for our doorbell, so no one bothers me, and I can see who’s at my door before I get all the way out of bed. It will cut down on soliciting also. It comes with a microphone and they may not come back. Once I inform them. Not too. I’m sleeping and they ring the bell. We have a no solicitation sign on our neighborhood, so like NO! We are obsessed with a show called Letter Kenny, it’s a Canadian show, so chime in fellow sisters l, if you know more about this show. I am loving watching it.... really entertaining and clever! Can’t get enough! Lol
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I've never seen it myself but certainly have heard of it. It comes on a streaming channel called crave and is fairly popular here. There is even a LetterKenny Live show here in London Mar 5 2020 at Centennial Hall. Glad to hear you are entertained.
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Still here tonight in hospital, about to get ready for bed. No news, so I guess tomorrow morning when they do rounds. I did get an awesome shower with the shower chair so that made me feel so much better, but I was really tired by the time I got back to bed, even with partner around to help. My right hip is much less swollen and I can put more weight on, but it's just the tiredness and then feeling kinda ill. I'm not very hungry either and haven't been for a few weeks now. Swear it's the illipsoas though and I finally strained it to a breaking point last week. I bet if i check the exercises for that contraindicate what the July PT gave me for sij...which made me completely unable to walk and more or less feel like I do now.
Partner did the home viewings alone today and told me the second one is pretty much perfect (and with exactly the shower I want, two of them even!), so I will make a serious inquiry with the agency on Monday about terms and timeline and maybe get this wrapped up next week with an aim to move mid January.
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Marianelizabeth, good to know you are ok. Glad the pain pump is doing the job it's supposed to. All well with me in Spain, no changes, feeling fine, and enjoying life xx
My thoughts and love to everyone else always xx
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Good afternoon everyone. Very nice to see those we have not seen recently posting. Even if I don't know everyone as well as Micmel, I do enjoy hearing from everybody. Brings my own heart joy every day. Lending support to anybody who needs it for pain, mental state or anything.
I am having a good day. Started with laundry, then made lunch. Discovered I can microwave my precooked beef patties, made sure temperature was correct all over and ground it up. Then topped with queso and shredded nacho cheese. So yummy. I am just walking to random songs til about 230 then will get dressed. Tonight is dinner with DB and SIL and whatever family shows up. Happy to be going out for dinner and see my brother's dog Samson. Though his drool yucky to me, he is a beautiful and friendly Pyrenees. He was molting last time I saw him so he looked so tiny, hopefully more furry today.
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Sondra,
Sending positive thoughts and prayers your way today. Hoping you get out of there soon so you can see what your new place might look like. How exciting to move into something that will make your life easier (I hope)!
Mara, I hope you enjoy your day too! Have a good dinner with your DB and SIL. Wonderful to have family nearby. I miss mine a lot since I moved to FL. But I don’t miss the cold
Happy Sunday all
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I'm still here for another night but they are ordering my ct scans from six weeks ago to have a look at the hip now for fracture risk. Neuro test tonight in that department and I'm ok, getting more strength and walking more with the crutches. I'll be out tomorrow but sounds like they are gonna do demunosab inject tomorrow since I'm here and got dentist ok.
Will be happy to go home...it was a quiet morning on the ward but it's gotten real this evening. A little too real.
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Sondra,
I can never understand why hospitals allow that kind of noise. Someone said if you want a good night’s rest, go home. You sure won’t get it in there. But one more night....you can do that. I am praying for you, my friend.
Waving hi to Mel, Mae, Tanya, Candy, Minnie, Mara, MarianEliz, and all the rest. Love toyou ladies!
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Hello beauties,
Busy weekend with DH, my back is giving me the blues today so I'm calling it a bad weekend. Which sucks for him because he works all week and then I am useless. I do have some really good days. Tomorrow I'm supposed to get my shot and bloodwork, well I ran out of Claritin and I don't think I want to chance that!! Bone pain. No thanks. I know I can change it, so I think I'm going to first thing in the am. I'm not taking the chances. It's not like I visit my oncologist until March anyway. He gave me a nine month break this time. If it weren't for my back location of my mets, and with this added adderall, I don't even feel sick at times. It's amazing. But the back rears it's ugly head and it's a reminder. I'm here...... don't forget me.... I'll never leave. Damn moron. Leave me alone. Watching nurse Jackie, very good series. Cruising along again. I finally finished dexter. After almost a year of putting it off, and Orange is the new black. I hate final show endings.... gives me nothing else to watch. I also get Invested in the characters. I'm such a sap.
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Hi booboo and everyone. Just hanging around the house with DH today. Not fully caught up yet and sleepy today as I didn’t sleep well last night between the time change and the light from DH using his phone/iPad in bed ☹️
Best wishes to all waiting for scans and results.
These are lined with cookies and pretzels 😁
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Mae, those are the best pockets.
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Mae those pockets are better than the last big set you posted. I’m jumping in with nuts and chocolate.
Hi Minnie nice to read your share.
Marianelizabeth I’m glad you’re posting ready.
Booboo hope you’re enjoying these Florida days.
SondraF I hate hospital stays. Sounds like they’re doing a really good work up while holding you hostage.
Mara sounds like a nice family evening.
Mel it’s my. BAck too. That’s the deal breaker that’s the grind to a halt pain. Hope it feels better soon.
Candy hope you had a good Sunday.
Tanya
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Booboo, I really did enjoy myself at my brother's house. The mexican food was awesome, just the way I like it. I was able to eat quite a bit as well thanks to digestive enzymes. Those are little miracle workers. It was good. They gave me a gift certificate to a restaurant I like to go to, some Ferrero Rocher, and a thermal knapsack to bring groceries home in. Will be filling with about 10lbs of weight and using on treadmill tomorrow. Unfortunately, everyone except my DB was kind of sick but they still came and celebrated. I did ask for no singing as I did not need it, just blew out candles and made my wish. Hope it comes true. Nice to have family that still looks after special occasions. It is very much appreciated.
Sondra, glad to hear they wll be discharging you tomorrow. You'll sleep so much better in your own bed I am sure. Glad you are able to move with the crutches as well.
Mel, I hope your back took it easier on you today. Glad you have something that does let you tell people to go away. Nothing worse than having to get up when not feeling well. I have controlled entry and certainly have not missed solicitors since I moved away from my condo.
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