My Husband, My Life, My Love, My Family, My Cancer

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  • tanya_djamila
    tanya_djamila Member Posts: 1,539

    Mara happy belated birthday 🎂

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  • tanya_djamila
    tanya_djamila Member Posts: 1,539

    Mae wonderful stable results. Do a happy dance and empty your pockets.

    Mara I like the soft towels from the dryer. I’ve had the scratchy ones in the summer bc the grandkids and the pool I just wash and hang them. Saves on electric bill.

    DH was depressed yesterday so I just made dinner vacuumed a bit and waited to see what was bumming him out and he never shared. So I got my mm and a funny show with popcorn.

    Today we’ll go see a movie and have lunch outside.

    Sondra f I’m happy your home. I remember coming home from a hospital stay over 30 years ago and I cried. House was a mess and I had a new baby 🍼 postpartum and four older kids. Wawawa. Once I got the clothes folded and put away I felt a bit better. My mom took care of the groceries. It’s hard for me to relax in a mess. Everyone still loves you they just don’t know how to clean the way you do.

    Mel take it easy today.

    Next week Booboo and I meet!!!!! Looking forward so much to do this.

    Tanya

  • booboo1
    booboo1 Member Posts: 1,196

    Mae,

    Yahoooooooooooo! I’m so happy for you!!!!

    ThumbsUp


  • booboo1
    booboo1 Member Posts: 1,196

    Hi Mel, All,

    I am feeling SO much better. Man, the back to back illnesses (stomach virus, upper respitory infection) did a job on my head. I was ready to throw in the towel. I finally woke up with no cough and stomach feels much better. Don’t care to see soup for awhile!

    I started PIQRAY last Friday, and so far, so good. Nothing big to report yet. Hoping it stays that way!

    Sondra, so glad you are at home. I hope you continue to improve each day.

    Tanya and I are looking forward to our lunch together next Wed. Can’t wait. We’ll take a picture and post it. I’m so excited. Can’t wait to see you, girl.

    Love to all

  • illimae
    illimae Member Posts: 5,730

    thanks all 😁

    I celebrated with a Belgian waffle topped with syrup, banana slices and pecans. Yummy!

  • santabarbarian
    santabarbarian Member Posts: 2,311

    Yay for good scans!!

    I have been in the midst of a shit show w my elderly parents so not posting too much. My 86 year old mom broke her leg. My dad is 92 and rather helpless/ walker etc. Both of them are basically nice, but nuts and have no ability to be efficient or problem solve. Both are terrified to spend money-- though they have money-- so even obvious, easy solutions elude them.

    Busy solving their problems w my sister.... But we are powering through it.

    xx SB

  • mara51506
    mara51506 Member Posts: 6,483

    Mae that is great to hear that you are stable!

    I have gone to Amazon and purchased heel strap on cleats so I can start walking outdoors to the grocery store and bus stop. Don't want to have a fall and even though my footwear has good treads, I do worry. I want to be able to feel secure in them. My old ones were not easy to remove, new ones are velcro straps so can remove at the store or wherever I am.

  • Moomala
    Moomala Member Posts: 397

    Mae!!!!! That's wonderful news!!!!! Hurray! And now are you scan-free until after the holidays? WooHooooo!

    Mel, yes I'm teaching a few students every day. Like 3-4 each day Monday through Saturday. It's such an easy schedule and I love it. I have an interview with a new student this week but I'm really not feeling taking anyone new at the moment. I don't know why I said yes to the interview. Ugh!

    Mara the cleats are an excellent idea! I have a pair of Trackerz from the days when I used to be able to run. I ran each morning al winter long. Those were the days. This morning was icy, I had to clean the snow off the car and I was indeed a little nervous about falling.

    Can't wait to see pics of Booboo and Tanya!


  • booboo1
    booboo1 Member Posts: 1,196

    Moomala,

    I hope our pics are as good as yours. You and your sister remind me of me and mine. We are both nuts, but get us together and you never know what will happen. I wouldn’t trade her for anything

  • candy-678
    candy-678 Member Posts: 4,170

    Cross post:

    Update: Well my MO called me this afternoon. She said PET showed no uptake in liver or bones. To continue Ibrance/Letrozole. Appointment already with her Nov 25 and she said she would see me then. Processing and seeing what questions I have for her for the 25th.

  • micmel
    micmel Member Posts: 10,055

    congrats candy! Atta girl. The pocket duty patrol keeps on going Yeah baby! (In my best Austin powers voice).

  • illimae
    illimae Member Posts: 5,730

    Candy, no uptake sounds good, right? Congrats!

  • micmel
    micmel Member Posts: 10,055

    >>>>>>Is envious of BooBoo and Tanya!!!!!!! Have a blast please. Laurie is lovely. Such a lovely lovely woman. Tanya my OG girl whom I adore. I would gladly meet any of you... Philly is my closest hope!

  • Moomala
    Moomala Member Posts: 397

    Hurray Candy!!!! i know it's disconcerting to have the back pain and and good scans. Just go with it . I/L has been working for you all this time. I'm guessing it's not bony pain your having but maybe like mine - I idon'thave any bone pain at all but my back sure hurts like hell.

  • candy-678
    candy-678 Member Posts: 4,170

    Thanks ladies.

    I have also posted on the Ibrance Thread and the Liver Met Thread (you can read those posts for more of my ramblings). I am happy that things look good. I just have mixed feelings. Like I am scared to let my guard down. And also because I don't feel well so much of the time. Cancer doing good, but then why don't I feel good? I guess the meds that are keeping the cancer good, are making me feel bad. And then the "when are things going to go south" constant fear. And I posted on the Liver Met Thread--- what if people think that I have beaten this. If so, "why are you not working?" "Why don't you feel like doing more things if your cancer is doing good?" And what if my MO lets her guard down too and then we miss something--"Candy is doing good, let's scan less often".

    Does anyone else have these thoughts? This cancer sure messes with your mind. I want to be stable, NED, NEAD. I don't want to progress. I want to be on Ibrance/ Letrozole for a long time. But.... I do still have Stage 4, right. I am still fighting cancer. The " you look healthy" thing and now the scans look "good". It is like I am lying and I don't really have cancer.

    Sorry for the rambling.

  • micmel
    micmel Member Posts: 10,055

    candy~ same thing for me. I only Scan every nine months. Blood work more often. So I understand completely what you’re thinking and feeling Just carry in your pocket the knowledge that right now your medicine is working. Don’t think outside of that thought. Take it in blocks. Yes we are still fighting cancer, but it’s dormant right now and stable is a lovely word to hear. Just let your feelings be what they are. There is no blue print to go through this. I think you should feel confident as well. They do this everyday and I don’t think they would take chances with a stage four patient. Give yourself a break. I have. There is nothing we can do but often to our bodies. Yes it’s the medicine that makes you feel so lousy. I have the same issue for sure.

  • micmel
    micmel Member Posts: 10,055

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  • MuddlingThrough
    MuddlingThrough Member Posts: 655

    Hello everyone. This is MuddlingThrough's son. I'm logging in here at her behest to let you all know that she passed away due to her cancer on the morning of Monday, November 11th. Like her screenname says, our family are now the ones muddling through, but just like we were for her, we're all here for each other for support. I truly appreciate that she was able to discuss her situation with everyone here in this forum over the last few years, and I know it brought her comfort to know she was not alone in her fight. I wish all of you the best for your continued battles with this awful affliction.

  • illimae
    illimae Member Posts: 5,730

    Muddlings son, thank you so much for letting us know, we really do care and worry about each other. I know she didn’t want us to be sad but it still is and losing friends is hard.

    Heart

  • Minnie31
    Minnie31 Member Posts: 494

    Muddlings son, thanks for letting us know. Our thoughts are with you all now. Xx

  • micmel
    micmel Member Posts: 10,055

    🥺~I am so sorry to wake up to this.... we always thought about her daily. She was apart of this family , and please know we love her. Mae is right we do really care and even though she is no longer fighting this beast, we will miss her words and witty posts. My heart literally hurts. I am so very sorry for your family's loss. What An amazing woman. Hugs to you And your entire family. One day at time is all one can do.

  • micmel
    micmel Member Posts: 10,055

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  • dutchiris
    dutchiris Member Posts: 783

    Muddling's son,

    I also want thank you for letting us know. I am so sorry you and your family are dealing with the loss of your mother. May time and love help heal you and let happier times live in your memories.

  • Rosie24
    Rosie24 Member Posts: 1,026

    Dear Muddling ‘s Son, Thank you for letting us know your mom is at peace now. Wishing comfort and good memories to you and your family. 💕

  • Moomala
    Moomala Member Posts: 397

    Sending love and warm feelings to Muddling's family. She was a big help to me when I first got here and I will miss her. Big hug everyone.

  • booboo1
    booboo1 Member Posts: 1,196

    Dear “Muddlings” Family,

    My heart is heavy to learn of your sweet Mother’s passing. May God surround you all with comfort and love in the coming days as you celebrate her life. She was a special lady who we all loved and admired. God bless

  • 50sgirl
    50sgirl Member Posts: 2,071

    Thank you to Muddling’s son for taking time to notify us during this difficult time. Your mother was a special person. She had a wonderful sense of humor, a positive attitude, and a supportive nature. She was the first person to reach out to me when I started on Taxol. Her hints and suggestions were appreciated and invaluable. She was always willing to answer questions. Her love of family came through in her posts. She enjoyed her time with you and mentioned to me that you traveled 250 miles each way to see her. I am sure you cherished your visits as much as she did. We will all miss your mom, but our loss cannot compared with the pain you and your father are going trough. I pray for peace and comfort for your family and friends.

    Hugs and prayers from, Lynne


  • LoveFromPhilly
    LoveFromPhilly Member Posts: 1,019

    dear muddling son and family,

    My deepest condolences for your loss. We all loved muddlingthrough. Her screen name touched my heart the moment I first saw it, because it made so much sense to me. MBC is a bizarro journey and what else can we do but muddle through it and do the best we can? Your mom was one of the first people to respond to me on these boards and she brought comfort and the feeling of being heard and understood into my heart during a very difficult time. I know she loved her family and husband very very much and appreciated to no end the love and support you provided her with.

    May she Rest In Peace 💛 💛

  • tanya_djamila
    tanya_djamila Member Posts: 1,539

    Muddling through some and family my prayers are with you. Thank you so much for taking the time during this grieving process to let us know. She was here for so many of us with assistance and shares.

    Tanya

  • tanya_djamila
    tanya_djamila Member Posts: 1,539

    Candy great news! I feel the exact same way like every pain is cancer even though the scans say otherwise. Keep pushing on baby this is life now until there is a cure or a happy adderall pill.

    Take care all.

    Missing muddling

    Tanya