My Husband, My Life, My Love, My Family, My Cancer
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Happy Mother’s Day ....to all the mothers!! 🥰💪👵🌹🌻🌻🌹
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Happy Mother's Day to you, too!! 🍾🤗0 -
Happy Mother's Day to all mothers out there and grandmothers too.
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Happy Mothers Day! I have been in bed for two days with a stomach bug. This is all I needed after all the Afinitor weight loss. Good grief I am becoming a sack of bones. Still my kids stopped over and left surprises and the grandkids did a driveby and left me a gift. That brightened up my day. This is the first time I've been sick since my dx and boy did it knock me on my butt. At first I thought I was sick from all the contrast material I had on Thursday but it's gone on too long to be that. Plus I had a little fever/chills Friday night. I sometimes get fevers/chills from Afinitor but now I think I'm just sick. Ugh. My friend has the exact same thing and we are keeping tabs on how we're doing.
Oh well, a weekend in bed is not a horrible thing. My back and hips are very stiff and sore from being in bed so much but I got quite a bit of rest.
I hope you all had a nice day today!
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Moomala, glad you got some rest but sorry to hear you are not feeling well. Glad to hear kids and grandkids left some gifts. That can help lift spirits. Keep resting and take care of yourself..
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Happy Mother’s Day to all of the hard working, (likely under-appreciated) mothers out there! I don’t post much here often but do try to continue to follow along when possible.
Has been a busy year for me. Recently sold our home, bought a new home and moved to the new place. Just slipped into the new place when the lockdown started, before we would have been prevented from moving. We weren’t looking for a furnished place but this one happened to be furnished and looked fabulous. Ended up working out so well. Otherwise, we would probably still be living in a half-furnished, barely decorated home, unable to have delivery persons bringing in and installing furniture. I was very nervous about selling our place and buying a new one due to the stress and it’s impact on my BC. However, staying in our old place was not working and not making us happy. Too small and not enough storage. We outgrew it when we had a child. After trying to sell our home for 3 years, we received an offer when it was off the market and we didn’t need to do any fixing up or showing the place. With our new home, we found it the second day we started looking. Our last home took us a year to find. I was shocked we found this one so quickly. The whole process probably worked out as well I could hope for and much better than expected. Definitely stressful but could have been a lot worse. Someone was looking out for me on that one.
Miss you all and hope you are all well.
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JFL,
I always think that when things work out like this did, it was just meant to be. I think we've all had those moments in life where this kind of thing has happened, so I'm sure you are in the right place at the right time now. And how fortunate that you were able to move right before everything hit the fan!
Happy Mother's Day to you and to all of the mothers on this thread!
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JFL, glad you got into your newplace and that it will suit your purposes as well.
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Moomala, just fyi, covid 19 can present as stomach bug. I read in some people it's the only sign, in others respiratory symptoms appear later. If it were me, I'd let the Dr know tomorrow in case they want to run a test.
Around here diarrhea is one of the screening questions now.
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Mel, I know that tomorrow is a sad anniversary for you so I just wanted to let you know that I'll be thinking about you and sending you lots of healing thoughts. You took such good care of your dad and made him feel so comfortable and loved during his last months. You were an amazing daughter and it must have given him such pride to see the wonderful, loving person that you had become. A year is no time at all to grieve for someone so important to you. Allow yourself to feel sad but don't forget the happy times. You are always so busy worrying about everyone else, let others take care of you today. You will get through this and we are all here to help you. Hope your Mother's Day was a happy one. And Happy Mother's Day to everyone here in Mel's living room!
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Stillivin~love to see your name. Makes my heart smile. Hope you’re well.
Moomala~You poor thing. Stomach bugs are no fun whatsoever!! Yuck. I had a little something something myself this weekend. Head cold. Aches sleeping all day. Headache in my eyes. Whenever I moved I felt aches. It was a great weekend. Poor hubby. I wonder when he will. Want to trade in. This model for another?☹️ Please feel better!
Waving to Mara~ glad you got out. It was breezy here. Sunny. It cold. I thought Of making queso this weekend, until I got sick. Maybe this week. I’m all ready.
Insomnia checking in!
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JFL~ it’s been too long my friend.. I think of you and JKL often. I’m so happy your house Soto was such a an easy one. For once something actually came out easy for one of us!! Yay you! I’m sure your new home is lovely. I’m so happy it was furnished. Often for me. Getting the correct furniture is tricky! Sounds like you did good. Sending a toast to you congratulations 🍾. Home sweet home!
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JKL~ I am speechless that you would remember! It’s probably why I’m wide awake Right now with a lump in my throat. Thank you for your kinds words about how I tried to take care of him. I would have been devastated had this been this covid year and wouldn’t have been. To get to him would have been sheer hell. I know it’s go king to be hard to get through the day. We were going to go back to the home and grill some steaks in his honor. He wanted us to picnic had he lived longer into the summer. But that never came to be. But now we can’t even gather. She better be parsing out some ashes. I feel my heart would want some. So he can be with wherever I am. It I want you to know your remembering touched me. Sister. Thank you. Much love ~M~. Hope all is well with you. Been too long. Miss seeing you!0 -
Micmel, hello to you!!
Thinking of you with the anniversary of your father. So true about how much harder your experience would have been this year with all of the COVID issues on top of everything else, where people don’t have the chance to be with loved ones. That quality time you were able to spend with him meant a lot to you and I am sure it meant even more to him.
The last few days have been a bit rough after my last round of Gemzar on Friday. Not sure if I am having a strong reaction to the infusion or whether I have some sort of bug. I have been having some asthma since my infusion and find myself paranoid about COVID. Those thoughts raise anxiety and then I can’t tell whether my issues are from asthma or anxiety. I had asthma after chemo infusions before but it has been a while. My DH listened to my lungs and said they sounded pretty good. It seems to get worse after I eat and get better when I stop worrying which is a good indicator weighing in favor of chemoasthma/anxiety rather than something worse.
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Micmel—. Sending you hugs today. May you be able to recall happy memories and find comfort knowing how much you were able to do for your dad last year.
💐🌸🌷🌹
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Mel I remember last year at this time. You were a wonderful daughter to your dad and I remember wondering how you did it being mbc. At the time I was thinking I could barely take care of my own emotional needs much less go through the death of a parent. I was amazed with your strength. Anniversaries like this one are hard so please take care of yourself and here's a big hug from me.
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Mel,
Thinking of you today. Hope you are thinking good thoughts of your dad and that will get you through the day.
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JFL,
Hope you are feeling better as the day goes on -- I know for a fact that anxiety can provoke breathing type difficulties. When I was on my original chemo in 2004, I ended up in the hospital because I worked myself up so much. Then had to endure cardio testing to rule out anything having to do with the heart. Just wanted to go home -- the annoyance of being in the hospital somehow offset the anxiety, and I felt 100% better. The joys of BC.
Thinking of you.
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I am also thinking of you with remembering your dad. Hugs my friend. I can empathize how hard it is losing a father.
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Mel, I’m joining in with sending you a hug today. It was so heartwarming (last year) to read how you reconnected with your dad and became so close again. You definitely made up for lost time. 💕
I was just wondering how everyone is handling social distancing with your families and friends. I have two sons, one lives out of state and one about an hour away. I also have a brother who lives 5 min away from me. Yesterday for Mother’s Day we had no visitors (didn’t plan anything) but both kids did call to say hello and I was happy to hear from them. It felt very strange though. My DH and I are pretty serious about limiting contact due to our health statuses, but I noticed many in my neighborhood had driveways full of cars, so obviously still having gatherings. I do know some neighbors are not seeing much of their families and maybe just having quick drop offs of food, etc in their driveways. I know we each need to make our own decisions.
Hello to everyone reading here! 😊
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Mel, sending you a hug today, and a nod of understanding. I lost my father in 2018. He was home on hospice for a week after a terrible stroke. My family and I miss him so much.
Rosie, I confess it startles me whenever I hear neighbors socializing like they were yesterday. My world is so small right now and I am so afraid of someone in my household getting sick, or of us carrying something to my mom who is also high risk. So we did not visit her on Mother’s Day, but had a large family FaceTime. When I realize people are out and about, I hardly know how I feel. Am I sad for myself? Happy for them? Angry at them for not doing their part better? It is just another instance of feeling like an alien from another planet, being stage iv while the people around carry on in their normal world.
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You are on my mind, Mel girl.
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Shetland,
Thanks for responding. I agree with having mixed feelings when I see people gathering. Mostly, I know I'm in the “vulnerable" group (and my DH is also at risk because he has asthma). We made the choice to avoid people, even family, for our own good. I figure those gathering freely must not be worried. Lucky them.
But sometimes I feel like maybe it's time to get back to being with people too, maybe outside when our weather warms up. I'm in a pretty good place medically right now, just lowered immunity due to meds, but who knows how soon things will change? My logical side usually takes over and says don't take chances.
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Hi Rosie24 and ShetlandPony. Yes, everyone has to set their own contact limitations but I will not let anything stand between me and my kids. If I can go to the grocery store with at least 100 other people (strangers) 6 ft. from me I want my kids to be able to be 6 ft. from me. I know they have my best interests at heart and they are very careful about limiting their contacts (they are all working from their homes). So yes all 4 of my kids and one adult GD were here yesterday. They brought me beautiful plants for my deck and we had a wonderful day. I didn't think about the virus at all, I only thought if this is my last Mother's Day, I enjoyed the heck out of it. There were no hugs or kisses, but I sure felt the love!
God bless all of the ladies on this thread. I don't post often but I read here every day and try to keep up with what's going on.
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Thank you ladies. It was a rough day. My heart was heavy in between tears. Thought of him all day. Just natural. Wished he knew how happy setting things straight has made me. So hard to let go.
Lee~ welcome to our living room. It's so nice to know that people read everyday. That's quite nice to know because , then we feel like we are sharing and feeling like we are apart of a living room where people come and go. Good days or bad. Thanks for sharing I also agree about my children. I have already passed the I can't see me kids stage. My ddcame in today all masked up. I'll be so glad when this is done with. If it ever is. That is. Welcome to the thread. Nice to see you !
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Mel,
I said prayers of peace for you, and am hoping for abundant smiles when you remember your Dad and the good days you had with him. Tears will one day turn in smiles of remembrance, my friend.
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Morning everyone,
I ended up calling MO yesterday in tears because I was still feeling so gross with the D and inability to eat anything and just an overall feeling of wanting to give up. She finally returned my call last night and took me off Afinitor. She said that although my scans were relatively stable, I did have some spots of progression. Normally she would keep me on the Afinitor, but given the D I have been having most of the time since November/December and the weight loss/lack of appetite she is taking me off. I will get a few weeks break from Afinitor and take Aromasin only, then switch over to Fulvestrant alone for a little while. Eventually she will start me on lowest dose Piqray and we'll layer up from there if it's going okay.She's a little concerned that my ramped up D over the weekend could be symptom of Covid so I will not be seeing her in person this week, rather we will have a Zoom visit and go over scans in detail. MO is immunocompromised with a lung condition so she's being prudent I think. It has been five days and I have no fever or respiratory symptoms. Fingers crossed but I'm sending PCP a message today.
The D is slowly getting better but I am zonked. I did clear liquids all day yesterday and it seems to have made a bit of difference today although I am very very tired and not bouncing back as quickly as I'd like. Quiet day on the couch today. Couple of online piano students later and that'll be my day.
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Moomala, Sorry that you’ve been dealing with D for quite a while now. Your energy and overall strength must to be zapped. I hope the changes your MO is making are helpful to your well being and to maintaining your being stable. You certainly are a trooper in going on with piano lessons
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Moomala, have to agree with Rosie, continuing your piano lessons while you are feeling so lousy is amazing. Amazing how strong you ladies are. I cannot imagine being able to work through those symptoms.
I had an OK day, sat around doing surveys and laundry this morning. The surveys were for some extra money. It was really beautiful and sunny so decided to walk to a further away grocery store to see if they had wheat bran. No luck on the wheat bran, found a large piece of chocolate instead for dessert. Nice walk, made sure I had half a granola bar before the walk and half a granola bar after to avoid any blood sugar dips.
I just now realized that today is May 12 and I did not remember to tell my Dad Happy Birthday. He died long ago of colon cancer, I was 19 when he died.
Happy Birthday Dad, I love you to the moon and back. Take care of Mom wherever you guys are.
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