My Husband, My Life, My Love, My Family, My Cancer
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I write~ so happy to hear nead. Congrats 🎉🎊🎈🍾!!! That’s what I want to keep hearing. Some days, ibrance doesn’t suck the energy (although rare )and ill have a great day and I’ll feel really good , like I’m not sick. Someone mentioned a passing of someone who had done well on Ibrance, then it stopped. How could that happen. If you were getting regular medical checks. They would know something was off. This medical stuff is for the birds.
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Candy, Great news on the 900 ANC. I hope it continues for you on the 5/2 routine. My new MO thinks getting close to 1,000 is ok for restart too. Will you be going back to labs every 4 weeks soon? About insurance, I never thought to check on authorization either, until you mentioned it. I've received a couple authorization letters in the mail after I've already had the tests, strange.
I think it's a sign of the times that people have such different beliefs about Covid precautions. It would be a shame if that came between you and your friend. I'd like to think she wasn't purposely minimizing your concerns for your risk, but if she was then that's very uncaring.
My son and his wife have both been having some mild Covid symptoms. She tested positive, he was negative, with very similar symptoms. She's a nurse and will be off for 10 days (I think) and he's waiting for directions from his HR department.
Mel, glad your DH was there to make sure you were ok after the fall. Re the sex topic, with no estrogen due to my age and Letrozole, the Sahara dryness is a problem for sure. I even have a prescribed med but it's not doing the trick. So poor DH here too.
Tanya, Sorry to hear the grandsons were sent back to school against family wishes. (Unless I misunderstood.) It's such a hard situation for many families to manage school at home. In my area schools are getting close to reopening but there are still parents who feel it's too soon, others think it's not soon enough.
IWrite, Congrats on NEAD again! You're spreading the positivity, thanks for letting us know you're coming up on 5 years. And yes to sea salt caramels, but nothing coming up for me so maybe I can sneak one for the next pocket duty.
Edit: Mara, Congrats on your 5 years too. That’s very good news (for us all).
Hello to everyone. 😊
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Iwrite- Congrats on the NEAD and year 5. I too am in Illinois, though not a college town. My town is at the junction of 2 Interstates so we get travelers from all over, esp to our restaurants. I am one of those that is hunkered down with the Covid in the area and my low white counts from the Ibrance. I wish Covid was done. I want to be able to go to church services again, to go out to shop, and just not be fearful that anyone/everyone is a possible hazzard.
Rosie- We are going to continue to do CBC every 2 weeks for now. This time it was mid cycle and 900. Next CBC will be end of cycle/beginning of next cycle. So we will see what that number is. MAYBE do every 2 weeks for following cycle too--- I do not really know yet. I have been having some sinus/allergy symptoms this week-- runny nose, watery eye. And there was a comment on the CBC about "dohle bodies". Never saw that before. Message into MO office. Wonder if with the low counts and I have an infection that my body is more stressed. Scary thought.
I did ask MO office about insurance pre-cert for scan. They said they schedule scans then get insurance approval. If they do not get insurance ok before scan, then they cancel scan and reschedule.
I think a lot of people in my area, my church friends/family, all feel "oh well, if I get it I get it". Not many are too stressed or concerned it seems. They just go on with things. Some wear masks and some do not. Just "whatever" attitudes.
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I think a lot of people think. Since it’s not going anywhere , that once they get it they are good to go. Apparently you can get it again.
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Mae, I am sorry I missed your voluntary treatment change to Herceptin, Tuksya and Xeloda. I do know there will be some of that crossing the BBB and don't blame you for wanting that. Good luck on it. Please post SE etc as well. I will follow that here or on the brain mets thread since I am HER2 positive as well. Would be something for me to ask about if I progress vs just surgery. Knowing possible SE in the real world besides what is listed on the drug pages is very helpful.
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back from oncology appointment. He surprised me and said no scanning for six more months. I thought for sure three months. I haven’t scanned since March. Now I’m up to yearly scans. That made me so happy. He said he was thrilled. Elbow pumped me and said I was his best stage four patient. To keep it up! It was nice. I gave away like 27 masks which I love to do. I have a favorite nurse there. I gave her five alone. I’m thrilled with being able to go through the holidays with not thinking about cancer. That is such a. Blessing.
But with the good comes the bad. We are realizing it’s time. To put tag down. DH is calling tonight to make arrangements for Monday. Or even weekend if she will. I’m not happy about that at all. So upset. I love my pal.
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Micmel -
What great news! You are an inspiration to all of us in this journey. But I know the heartbreak you face with Tag. With great love comes great grief. Peace along this road with your beloved pet. HUGS.
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Mel, congratulations on the great news. That’s so awesome.
I’m sorry about Tag. It’s been a little over a week since I put my boy down, and I came to my other property yesterday and was so sad because he used to love it here. He’d lay in the sun and I’d give him puppy ice cream. We’d take a mile walk off leash because it’s in the country. He had a horse on his walk he would greet every time. It’s just yuck. I am allowing myself to cry. I looked back at pictures from last year, and I didn’t realize how he lost so much weight in the last eight months. He went from healthy to skin and bones.
Please know I’m thinking of you and your family and know exactly what you’re going through. Hugs!
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Mel- Happy for the good MO report for you. Wow, yearly scans. The most time I think I have read on here is 6 months between scans. So you are on Arimidex and Ibrance? How often do you do labs?
So sorry about your dog. So sad. They are family. Hug.
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labs every 3 months along with xgeva. Now scanning yearly. I am very happy to go through the holidays without worrying about any testing. He said I was so stable he felt confident. I’m starting number 48 cycle of ibrance. He liked that as well 125mg. I’ll monitor myself as well. Something don’t feel right , I’ll be on it
Looks like Sunday morning is going to be the day. My DH called the vet. Maybe even. Tomorrow, if she gets an opening. Sucks.
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Mel, first the good stuff, so glad that your scans are so good and MO says your his best stage IV patient. It really is a boost to the confidence when you hear that. I am happy for you. I want to go to scans once a year too. Scanning is the only thing I do not enjoy. Don't mind chemo since I see my nurse friends.
As far as this decision with Tag, I am so very sorry to hear that it is time for him. You and your family have loved him so much and you are being loving to him now. He will know how much you all love him too. Once the sadness hangs back in time, you will have really nice memories of your time with him being part of your life. My thoughts are going out to you, your family and friends who knew him. He is lucky to have you all.
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Just got back from a small shop and dollartree with a picikup of takeout burgers from the usual place. Took the bus since I did not want to 100 percent walk. Walking to and from the bus takes probably 30 to 40 mins anyway so that is not bad. Groceries were heavier than I intented. It was nice paying for the bus because I can get rid of change. Stores don't like cash anymore, and I am happy not to touch it. Got home, after putting stuff away had a nice snack of one pirate cookie and chocolate milk. Delicious. I also baked up washing soda for the laundry out of some baking soda and the oven did not even stink anymore. All that blasting with the steamer and wiping out has helped a lot.
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Mel,
Wonderful news on the scans and on your stability. Not so great news about Tag, but as those of us who have pets know, they bring much joy but when it's time, it is so very sad. One of the tougher things in life.
Mara,
Glad that your oven issues are over. Guess the steamer really was effective!
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Mel,
Will be thinking of you, dear friend, over the weekend as you say goodbye to your buddy. I am going to have to face the very same thing soon with my Huey Lewis. He has gained so much weight lately and is drinking water like he’s been in the desert. His breathing is not right either, so time for a vet appt. I’ll be saying prayers for you and DH. Take care.
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Mel, great news on your scan. So glad your doing so well. Sorry to hear about tag. We don't have any pets but I know pets become part of the family. It's hard when they pass. Sending you hugs.
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Booboo, I had a different doxie who ended up going blind overnight, but he also drank water like a fish and gained a ton of weight at the same time. It was cushing's disease. We gave him medication for that that kept him going two more years. The going blind didn't bother him. He was awesome.
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Micmel, congrats on your scans 🎉 And thank you for the masks, they're great! DH already claimed the navy blue one for himself, lol. I love the variety and really appreciate it 😁
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Mae~I am so glad that they finally arrived. I’m glad you like them. I had a feeling DH may take a liking to that one. It’s very soft. I’m glad you like what I chose. I’m thrilled to do it. I have to mail Santa’s tomorrow! All boxed and ready to go. I took 30 to my oncologist office today and they loved them. 27 or 30 I loose count with all the masks I make. Everytime you wear them you’ll think of me. ! Yay. Thanks for the wishes. Always take stable. Always.0 -
Mel sorry about Tag. I’ll be thinking of you guys doing that today or tomorrow. That’s uplifting about your scans though. An entire year without scanxiety. My anxiety would have anxiety but I guess I could get very used to not going into clanky machines or having radioactive ☢️ tracing shot in my veins Twice a year as opposed to once!
Mae your masks are beautiful. It was so nice to receive my mask gifts from Mel. Seeing the picture of yours reminded me of the kindness that exists in the midst of all this turmoil.
Booboo I hope whatever Huey Lewis has is treatable and you have your pal for much longer.
Mara that’s good that the oven doesn’t smell after all of your steaming and scrubbing.
Rainy hot and humid here. Having pain from all the ablation stuff. They said up to 2 weeks. Yuk oh well.
Waving hello to all
Tanya
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Tanya, sorry to hear about the ablation pain, hope it subsides sooner than opposed to later. You are right, the steaming and scrubbing got the rest of the stuff out and it just needed to burn in.
Mel, still thinking of you this weekend as well. Hugs to you and your family.
Not doing much today, a couple of treadmill walks for 30 mins after meals, beyond that nothing planned. I did steamclean and toss blankets in the dryer and it went so much quick than washing. Planning to wash them less since I am the only one here. Beyond that, a nap is in the near future I think. Walking does make me sleepy.
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Mel, yes I forgot to add in a previous post congrats on the annual scans. And will be thinking of you this weekend as you say the difficult goodbye to Tag.
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Thank you Ladies. Today is our last day with him. I’m having waves of sadness. It’s time and I know this. Even DH is having a hard time This dog is a good dog Never a problem ever. I would have another dog like him five times over. He is hairy though lol. I have a headache. From crying. It sucks. Death sucks
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Mel, the waiting is so hard. I am thinking of you and have been watching here for news. Did you say how old Tag is? It’s sad the bigger dogs don’t usually make it as long as the little dogs. Death does suck, and I am so sorry.
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we think he is 14. He was a rescue so he could be older.
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That is a beautiful picture moth, enough to bring tears to my eyes thinking of my own pet family that way. My hugs going out to you and Tag and the family as well Mel.
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Aw, he has lived a good life, although that does not bring comfort now. I know tomorrow is going to be extremely tough, and you will be on my mind.
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😭😢 that looks like him. Oh the tears are a flowing.
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