My Husband, My Life, My Love, My Family, My Cancer
Comments
-
Good evening all. My book club started doing light exercise a 1/2 hour after meeting. It’s fun I mainly stretch. Most exciting thing my brother called me for a sunset jet ski ride! I said yes before my brain could react.
Holmes it’s so good to hear from you and that you’re doing well.
Mae thanks for sharing your update on xleoda. I’m glad the nausea meds are working.Mara I admire your tenacity. Even with one foot in front of the other as encouragement you push past and trudge on and on. What you accomplish is encouragement and I always look forward to your outdoor adventures.
Here’s my adventure and all I had to do was hold on.
0 -
Oh, what a wonderful brother and a wonderful way to get some water time. Never have done a jet ski before and it must be amazing. You look very happy and the scenery is beautiful. That is great.
Tanya, I decided to start pushing myself hard because there is nobody who really expects much from me. DB and SIL love me but would also do just about anything I wanted them to do if I could. It was enough that they packed up my condo, got it sold, found this wee apartment in a nice neighbourhood in the midst of their own grief. I decided since I am on my own, I need to hold myself accountable. I will also have to train as winter comes on so I can get used to walking in snow as all bus stop require it and I don't take UBER or taxis anymore. I just am stubborn now I guess. If it is of interest or help to you, that makes me feel really happy. I love what you post too.
0 -
Thank you all for the support. I am humbled and grateful.
0 -
Tanya,
You little crazy lady. You look so cute getting your life vest on. I hope you had a fantastic time. I am also hoping you and I can get together for lunch again soon. The weather is perfect, so we can sit outside and do the distance thing. I’ll be in touch.
Big hugs,
Laurie
0 -
Tanya, that looks like a super fun day at the beach.
Got a new tattoo, it’s a traditional Hungarian embroidery pattern.
0 -
Mae, beautiful tattoo!
0 -
Rest In Peace My Sweet Boy
Huey Lewis
December 8, 2005 - October 23, 2020
0 -
BooBoo~ My heart aches for you. I just went through it. I’m so very sorry. My heart is heavy, I’m sorry my friend. So very sorry. Sending hugs.
0 -
Mae ~that’s beautiful the colors are so beautiful and vibrant! Nice choice.
0 -
Thanks Mel. It was so hard, but I know we did what was best for him. I’m in shock though. It all happens so fast. But maybe that’s best.
0 -
Booboo so sorry for your loss. I was thinking of you yesterday bc I was in an area I'm unfamiliar with and saw a lot of nice restaurants. We will God willing go for lunch after the holidays or before if you like. There are many outdoor restaurants that are empty especially during the week and day time.
Mae I never heard of Hungarian embroidery. Thanks for teaching me something new.
I drove myself to the beach and met him there to avoid contact and the rest is the "yes" that I decided to say when he asked me and then I was questioning my sanity. I was so excited I wore house slippers lol.
Tanya
0 -
Tanya,
Wow, that pic with your brother was terrific. I'm glad you got to have such a fun time!
BooBoo, so sorry for your sadness over your little doggie. He was adorable. You can hold his memory in your heart -- dogs are the best!
0 -
BooBoo
I’m sending virtual hugs to you for the loss of that adorable puppers. May you find peace in the coming days....🐾
0 -
BooBoo
I'm sending virtual hugs to you for the loss of that adorable puppers. May you find peace in the coming days....🐾
0 -
Mae
Love, love, love your new tattoo. Beautiful colors!
0 -
Booboo, Huey Lewis was such a handsome boy, and I’m sure he was much loved. So sorry for your loss.
Tanya, The jet skiing picture was great, and hopefully was a special activity with your brother.
Mae, Awesome tattoo!
Mara, I’m inspired by your dedication to walking and pedaling too.
As for me, I’ve been sorting through boxes of old photos that have been stored in the basement. I’m making piles for my sister, brother, and each of my two sons, and keeping some for myself too. I was the keeper of both of my parents’ photo albums after they passed away, so some pictures are old enough that I don’t know some of the people. Looking through old pictures sure makes you realize how much time has gone by. My kids will be getting more pictures than they ever wanted, but I hope someday they’ll appreciate having them to look at.
Hello to everyone!
0 -
Oh booboo, I’m so sorry, such a sweet face 💗
Tanya, yes, it’s very common among the folk people and quite beautiful.
Thanks everyone, it’s a pretty little nod to my hungarian side.
0 -
BooBoo1– so sorry for your loss. Losing a pet is so hard. Sending you virtual hugs.
0 -
Tanya- Good pic and glad you had fun.
Mae- Love the tattoo. I always wanted a small one. But never took the plunge. Now, with the low WBC's and Covid, guess I missed my chance.
Boo- He is in Heaven now. Waiting for you.
Well today I went to the mastectomy fitter. Me and her were the only ones there. Both of us wore masks. I actually had 2 on-- surgical mask and one of Mel's over it. Thanks Mel. The fitter also wore gloves. I got a new prosthesis and some bras. Glad I did it. Done with that for a year. Got home and had one of those exhausted spells. Mara I admire you and all your walking. I could not do that. I just felt so weak today. Like zapped of all energy. Didn't nap, just sat down for a while with my cat on my lap.
This weekend doing Dollar store shopping in am (early hours). Church online services on Sunday. Zoom gaming. And lots of sitting and reading.
0 -
booboo, I am so sorry about your handsome Huey Lewis. Never easy when our furry family has to leave us.
I did walk today to pick up a package that was not delivered and I had lost my bus pass. Candy, I am really no stronger than you but I understand the weakness happening all at once. I just make myself do it because someday I will be unable to. The only thing that bugs me is my sweating. Glad you got your prosthesis. Really makes a difference for me.
Rosie, thank you for what you said.
0 -
Candy, blood counts and the ability to heal well are very important but any good tattoo shop is likely very sterile, especially now. Honestly, my guys shop is cleaner than the grocery store and my own home, even.
0 -
I don't have any plans for the weekend. Might walk up to the mall for something to do on Saturday morning if it is not too rainy. I like that it will be cooler out. May get a couple of light items from Walmart since it is, nothing too heavy and stop for lunch on the way home. Would be a 7 mile walk as I have done twice before. Nothing else I really need to do. Just hoping I sleep better tonight. Kept waking up last night and with the 4 hours before post infusion, am pretty exhausted.
0 -
I am currently on Xeloda. Tumor markers have jumped but no scan yet, but I understand next options are all IV chemo. I wondered if anyone had retried a previous treatment? I have limited cancer in my body but struggle with brai nmets and not sure I can do the IV chemo ☹ I live alone iwth one son who lives out of state and my few friends are all working and busy with their lives. It's been a toubh job mostly alone.
0 -
Booboo, I'm so sorry for your loss. That's three of us this year that had to make that difficult decision. Hugs to you.
Mae, love the tattoo.
dorimak, I’m so sorry you’re dealing with this alone. I know there are others who are as well. It makes me sad.
0 -
Dorimak- Sorry I cannot give any advise about revisiting a treatment. I know some meds can cross the blood/brain barrier and some cannot. Since you have brain mets, you need to read up on something you would like to try (revisit). And have trust in your MO. I empathize with you as I am alone too. I worry a lot about the day when I go to IV chemo and need more help.
Well shopping done early today and now the day stretches out before me. I thought about reaching out by phone to a couple of friends, but since it is Saturday they will all probably be busy. They do not hibernate in the house like I do. They are out and about, have family things, etc. Tonight my church is having a bonfire/weiner roast. Would love to go sit by the fire and roast a marshmallow or hot dog. But... cannot. There will not be masking or social distancing as they think it is silly. Actually, our area is under restrictions of limiting gatherings to less than 25, but they won't adhere to that either. Sigh....
0 -
Dorimak, I can empathize with being alone when dealing with brain mets alone myself. I have not had to repeat my treatment myself but have heard of it being done. I recommend that you make sure your team is fully aware you have no help. If you need chemo, they need to offer a visiting nurse to help you at home. If not, ask about palliative care options to help make any treatment easier to deal with. Good luck
0 -
Today's weather is much calmer and cooler today. Have done some surveys and also housework and laundry. Bored as heck. Decided to plan a 10 k or 6.2 mile walk roundtrip to have my favourite snack burger meal and pick up extras from home. I want to train my legs as much as possible to get ready for winter walking in the snow. Other than that, nothing else planned for when I get home.
I did sleep better last night despite neighbours out back of the building talking loudly. I listen to rain meditation and a white fan app besides my own fans going so it drowned them out and kept me from shouting SHUT UP which is really not helpful.
I am still thinking of you Booboo and your family today about your furry family member, hugs going out to you. I don't think any of you can imagine how much I would love to hug everyone here in person, but virtually is the way it must be.
0 -
cool here today. I have often thought how great it would be if we could all have A meet up. I know people don’t travel (myself included). But I would love to meet all you strong wonderful ladies.
Daniel?? Leslie?? How are you?
0 -
Well the hot dog roast my church is having tonight is postponed till next Saturday (due to cool weather today--highs in the 40's and cloudy). And the piano player has contracted Covid. She is doing ok so far. She is in her 70's. But, I think she was at church last Sunday and she is a no-masker, so I wonder if she spread it to others. That is why I am not going to church (or anywhere) right now.
0 -
Moth, I'm so onboard with massage therapy. I was never one for spa massages, but 2 friends gave me gift certificates for massage therapy. The therapist was the sweetest person, and boy, did she have magic hands! I felt so good after seeing her. She's a bit far from me, so I need to find a RMT closer to home, but I agree that should be a part of standard care for us.
Mae, glad you've found a med that relieves your nausea from Xeloda. I only needed nausea meds once or twice with it, but boy, am I needing them now with Piqray, so I understand. Worst gastro issues I've ever had are with this therapy. Btw, nice tatoo!
Tanya, glad you got to enjoy that fun experience with your brother.
Fires getting so much worse here. My BFF called Wed. night to say she had to evacuate her home in Grand Lake. That night the forest fire was at 19,000+ acres, but winds overnight exploded the fire another 105,000+ acres. Her home is in town, but very worried for her home as the fire continues its approach. The burn area is now over 188,000 acres. They're calling for a foot of snow over the next two days. I've never wished for snow this much ever!
0
