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My Husband, My Life, My Love, My Family, My Cancer

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Comments

  • micmel
    micmel Member Posts: 10,054

    very good way to put it.... Mara. Ty


    reporting for pocket duty, hope it’s the big pocket sweater. Thanks for all you guys offering your help and opinions. I also need to think we will see our beloved pets and passed people in our lives. I just know some stinkers that have passed , if they could they would come back to haunt. Which sometimes I wish I would be able to feel my father. Or get a sign or something. This world is big and I am a speck in it. But I’d like to think each of us is special. Which means if there is a heaven , we should have no problems getting in.

  • kbl
    kbl Member Posts: 2,965

    Thinking of all who have tests coming up. Hugs.

  • seeq
    seeq Member Posts: 1,167

    Mara and Mae ‐ in your pocket for scan/procedure tomorrow

  • tanya_djamila
    tanya_djamila Member Posts: 1,537

    welcome seeQ.

    I'll meet you all in the pocket tomorrows.

    Waving a sunny hello from Florida.

    Tanya

  • karenfizedbo15
    karenfizedbo15 Member Posts: 719

    Yip pockets all round..

  • moth
    moth Member Posts: 3,293

    i'm in all needed pockets!

    speaking of pockets, dd & I got our order from svaha which makes 'sciency' clothing for lack of a better word... and everything has pockets. I got an ultraviolet dress (the dye is a real ultraviolet shade) and a cardigan with DNA on it. The DNA cardi cracks me up. I will wear it to some cancer appointments since cancer is an error of dna replication...

    Dd got a skirt which has all the rings of Saturn on it. And it has pockets. Everything has pockets!

  • ShetlandPony
    ShetlandPony Member Posts: 3,063

    When you said the cardi had DNA on it, my first thought was actual DNA, like from the people who sewed it, packed it, etc. lol Now is that dress going to confuse the butterflies?

  • micmel
    micmel Member Posts: 10,054

    Hello Ladies~I hope Today was a half decent day for you. Insomnia is finding its way my way again tonight and that stinks.
    Hello Tanya..... lucky to have the sun you are!

    Hello Shetland ~hope you’re settling in for bedtime soon. Sleep well.

    Hello Moth and Karen. Rosie, Dodgersgirl, Mara,Candy where are you my friend ? Mae, seeq , BooBoo, KBL. JFL,JKL, Runor, Sondra,Sunshine,Stillivin, pots, Marie, anyone else I forgot I’ll be back for sure.

  • ShetlandPony
    ShetlandPony Member Posts: 3,063

    Hello, dear Mel. Wishing you some good sleep yet.

  • santabarbarian
    santabarbarian Member Posts: 2,311

    Mel I just hav to point out that you are a good thing to happen! You spread a lot of good feeling. I think of you every day when I mask up! SB

  • seeq
    seeq Member Posts: 1,167

    moth - your sciency clothes sound cool - and pockets! Yes, please and thank you. I hate when I don't have (functional) pockets. Pictures? AND, I've been wantint to ask you - awhile back you mentioned you listen to true crime podcasts - which ones?

    Mel - I hope you get some sleep soon. And I love your 'roll call' at the end of your post

  • runor
    runor Member Posts: 1,615

    Hey Mel and everyone. Hope you're all withstanding the lunacy that is our planet at this moment in history. For the record, I made cinnamon buns today. AWESOME!

  • moth
    moth Member Posts: 3,293

    SeeQ - the clothes are from Svaha Apparel https://svahausa.com/ I think everything I mentioned is still on the site.

    I mostly listen to My Favorite Murder & True Crime Obsessed. Both TCO & MFM I discovered quite late so I had a lot of back episodes to go through. I'm all caught up now (except for their live shows. Turns out I don't like live shows lol)

    Criminal sometimes but I'm like the only person in the world who doesn't like Phoebe Judge so it has to be a special story.

    First season of Accused (from Cincinnati Inquirer; didn't really like the next season).

    Crime Junkie is one I'm iffy on. I don't really like the hosts much but if it's a case I'm interested in, I'll listen.

    BBC Intrigue does great work. Season 1 was about politics and crime in China. I'm now listening to their latest which is about the death of the founder of the White Helmets (humanitarian group in Syria).

    Cold - the Susan Powell casefiles. Ok, this one was super creepy and i binged it when I had to make a long commute to a hospital in the dark both ways. Excellent but troubling.

    Serial. I liked the Adnan Syed and Bowe Bergdahl seasons.

    Dr Death (from Wondery)

    Dirty John (Wondery)

    CBC Uncover did one on Escaping NXIVM (the cult) which was fascinating

    I've tried a few episodes of Casefile but don't really love the presentation style

    For a change of pace Deadly Manners is a podcast/audio play. Locked room mystery type thing. Not true crime - just a fun diversion.


  • booboo1
    booboo1 Member Posts: 1,196

    Runor,

    You are speaking my language. I’ve been craving cinnamon buns for days now. Mara has a craving too. Are they hard to make? I’ve never tried, but I love to bake so I’m going to look for a recipe, unless you have one.


  • kbl
    kbl Member Posts: 2,965

    Hi back, Mel. I took some Zquill last night. It knocked me totally out. I do notice on days I’m more active I sleep better and don’t use the Zquill.

  • candy-678
    candy-678 Member Posts: 4,168

    Mel- Thanks for the roll call. I am here. I am ok.

    Yesterday (Thursday) was one of those days where I felt kind of icky. I normally have hot flashes all the time. And I wear short sleeve t shirts around the house. Yesterday I couldn't get warm. No hot flashes and had a sweater draped over me. Last night after supper I felt kinda nauseous. Then BAM a hot flash and back to normal. I have done this before. The meds? Cancer present in the body? Who knows, but not "normal" anymore.

  • micmel
    micmel Member Posts: 10,054

    Hi Candy~ good morning. I’m sorry yesterday was a down day. I have those for sure. Sending you a cyber hug. Days like those suck. Hugs hugs hugs

  • micmel
    micmel Member Posts: 10,054

    KBL~I haven’t tried that maybe I should give it a whirl!!! I sometimes really just can’t fall asleep. Boggles me. I also agree it has to do with activity levels. Nap or no nap. Some days though when I don’t nap, I have more energy at night. It’s so odd. I hate cancer. Plain and simple.

  • kbl
    kbl Member Posts: 2,965

    Mel, I would give it a try. It’s awesome for me and works within the hour.

    I just got a phone call from my older brother. He is the second born, I’m the baby of five. He let me know he has been diagnosed with cancer and has hospice. He was going to have a lung biopsy, but he had a CT and has a big mass on his kidney. He had a pleural effusion and is having a lot of trouble breathing. He probably is going to go rather quickly and does not want treatment. It has spread too many places.

    I cried for him and with him. Which is better, being diagnosed and going quickly or being diagnosed and thinking every day is this the day things go to hell?

    I’m so fortunate to have my family and will continue this fight as long as I’m supposed to be here. I think every day, but I don’t dwell. I want to live. I want to enjoy what time I have while I feel relatively decent. He has given me the courage to keep fighting.

    He told me he is okay if I do or don’t go see him. He is an hour and a half from me. I don’t know what to do. My sister-in-law and husband say no. I am perfectly fine if my family doesn’t come see me when it’s the end. I have mixed feelings.

  • moth
    moth Member Posts: 3,293

    oh KBL, I'm sorry about your brother. So hard for everyone. Maybe facetiming might be good? It is different than a phone call, I find. Reminisce over some good memories.

  • moth
    moth Member Posts: 3,293

    cinnamon buns are easy if you're familiar with yeast dough. I'm lazy now and let the machine make the dough but it's an easy dough to make by hand. Just needs time to rise

    I sleep when i take zopiclone and listen to the sleep with me podcast all night. If I try to change that, I don't sleep well so now I don't mess with it

    Hugs everyone

  • sunshine99
    sunshine99 Member Posts: 2,723

    KBL, I'm so sorry about your brother! Life is just so dang hard sometimes!

    Hugs and big box of Kleenex to you...

  • booboo1
    booboo1 Member Posts: 1,196

    KBL,

    I, too, am so sorry to hear about your brother. I got a similar call from my oldest sister, and they found something on her mammogram. She is having an ultrasound next week, and then a biopsy if it looks like cancer. I hate that word. It’s an ugly word. Anyway, you and your family will be in my thoughts and prayers.


  • candy-678
    candy-678 Member Posts: 4,168

    KBL- Oh my. So sorry about your brother. Life is so hard.

  • micmel
    micmel Member Posts: 10,054

    KBL~I am so sorry that cancer is even something anyone has to deal with. You’re on. My mind and so is your family. Life is so hard already. ☹️💔.

  • mara51506
    mara51506 Member Posts: 6,469

    Well, made it back from my port access/deaccess MRI appointment. Wore traction cleats on the icier parts of the route, but had to change out of the boots into sneakers I brought along. Very hard walking there as I was tired, too early, short on sleep. Everything went smoothly at the hospital and very quick in and out for me which was nice. I wore my sneaks on the way home since sidewalk was clear 90 percent of the way.

    Cinnabons sound so good to me. I have sometimes thought about getting some and baking them, freezing uniced ones afterword so that I would not be tempted to eat them all up.

    Not planning on too much else, I will let you know when I get the results, no app't yet. I imagine if it is still stable, I will get a call about that which is fine by me. I feel fine, but not going to completely assume anything until I hear. Not going to worry either unless something changes.

  • mara51506
    mara51506 Member Posts: 6,469

    KBL, I am so sorry about your brother, I can totally empathize wanting to see him as well as him not wanting treatment is too many mets. I hope you two can facetime each other often and talk to each other, helps so much for you and the other person. I am hugging you and thinking of you and your family. As far as is it better to go quickly, depends on the situation, personal wishes and qol altogether. Myself, I would want to go quickly if I was not able to stay stable or had horrid SE since I am not interested in dealing with that for myself, nor do I wish DB and SIL to feel compelled to look after me. We all did that with my Mom almost two years ago. It was awful, she did go fairly quickly as it was too far gone for treatment. Others might want to fight as long as possible no matter the SE and such to hang on. So individual.


  • tanya_djamila
    tanya_djamila Member Posts: 1,537

    KBL sorry to hear about your brother. Whatever decision you make we will all support it. I like the idea about a facetime call. Hugs.

    Booboo I pray your sister doesn't have anything but if so that it's mild and not our type. Sending you hugs too.

    I hope everyones tests and appts. go well.

    Runor cinnamon buns sound like a great add for Mels living room.

    SeeQ I'm glad you requested pictures of the pocket clothes. I'll be checking out the website.

    Candy sorry about the cold and hot flashes. All of these side effects are awful. I hope you feel better today.

    Mel thanks for calling us all out. I'm sorry about your sleep. I use high dose indica at night. I use the pills nowadays. I also take 5mg ambien but I find that I can still stay awake sometimes just depends on if I nap, stress, mind swirling, etc. Get some rest when you can or maybe try Nyquil as suggested.

    Tanya

  • illimae
    illimae Member Posts: 5,724

    All went well with gamma knife today and still only the one met to zap. Plus I got a couple great photos while waiting for DH to pick me up.

    image

    image

  • BevJen
    BevJen Member Posts: 2,341

    Terrific news, Mae, and such beautiful pictures! Thanks for sharing.