My Husband, My Life, My Love, My Family, My Cancer
Comments
-
Mae your beach trip looks amazing...I so miss the seaside - we’re only an hour away from the sea, but with lockdown we’re not allowed to travel outside our local authority area and then only for essential purposes. Soon maybe....
Candy I hope your long day is tolerable - get some good music on in the car!
0 -
SeeQ,
Yes, things are getting better every day. Sometimes when you come that close to losing it all, it’s a wake up call. It was for him....and me too. We are slowly starting to communicate better, and for me that part is huge. Most women need verbal acceptance...men not so much. So we’ve set aside time every day to talk. Anyway, thanks for thinking of us.
I had my first vaccine on Saturday, and I almost lost it afterwards. I said to the nice man who gave me the shot “That’s it”? and he said yup. I guess I thought it would be a long shot with some pain involved. After all of the hype, I was expecting something more to happen. Nope. Anyway, glad it’s done. One more to go, and I’ll be SO glad to get my life back!
Mae, you have some incredible wildlife near you. I love the pictures.
Mel, I hope the reduction is what you need to feel better. I want good things for you, my friend.
Candy, reporting for pocket duty. Think good thoughts.
0 -
Candy - pocket duty today. House is empty of anything fun to eat 😝but I’m there in support!.
Mae - trip sounds so peaceful.
0 -
pocket duty time. Let’s do this candy! Hug hug.
0 -
I’m in for pocket duty too. Heading out for my Herceptin soon, so my contribution today is celery/carrots chemo snacks.
0 -
nice healthy eating choices. Mae. If were all riding together I call shot gun! In your new ride.
0 -
Pocket duty for Candy!
0 -
I made an eye doctors appointment for April. I have to go to that doctor and the dentist. YUCK. super yuck at that. I hate the dentist. So eye doctor first. His eye exam costs $20 that’s reasonable. I need new glasses and I want to ask about bifocals in contacts. I’m sure they aren’t cheap. But I’m still interested. Anyone know anything about this. I’m sick of my glasses. I love my make up. But I just cover it up with my glasses.
0 -
Mae love the pelican beach pics thanks for sharing. I’m in your pocket for treatment today too. I won’t mess up your carrot celery snacks with my junk food. I do have some cheesy zucchini bites to bring.
Booboo congrats on the shots. I felt the same way after the first shot/compared to the 3 inch faslodex monthly injections and port infusion stabbings it was lightweight.
Weather is nice so I’ll try to plant some kitchen herbs.
Candy hope your day is going well
Take care all
Tanya
0 -
Micmel,
I switched to monovision contacts. At first I was very skeptical but the eye doctor at Costco suggested I try them out. My right eye does my reading and my left eye does my distance sight. It works really well for me. I put my contacts in first thing and haven't used reading glasses in probably 15 years. I tried bifocal contacts but found that the monovision worked better for me. Good luck!
0 -
Mel, I tried bifocal contacts & just couldn't get used to them (& I'd worn contact since my teens when I tried them). They're thicker and I just always felt them.
Then I tried monovision contacts - when you make 1 eye your reading eye & 1 eye your distance eye. One of my vets uses that & he swears by it but again, I just couldn't get used to it lol. In the end just resigned myself to wearing glasses almost 100% of the time & went from wearing contacts almost 100% to glasses 100%. I would wear regular contacts & put reading glasses in my bag for special outings but now I don't even do that... my eyes are very sore from a year of chemo. I can see how fragile my skin is, I suspect the eyes took the same amount of damage..
I had a good weekend. Today is the first day of no steroids. I've been a bit anxious about having to monitor my breathing as it's so subjective... am I short of breath? Am I puffing more than normal going up this hill? Am I coughing more than normal? And yet what I report will decide my treatment.. it just seems a lot of responsibility kwim? Coming off the steroids means I'm just more tired of everything. Even needed a nap yesterday but not surprising since that was weekend after chemo. I feel like my mood is crashing along with my energy levels as I come off the steroids. bleh
in your pocket Candy - hope the scan day is going smoothly
0 -
Mae, those beach pictures looked awesome.
Still in Candy's pocket as well.
0 -
I don't know if I'm too late but I'm in your pocket Candy, got an Aussie favourite, vegemite on toast for the adventurous to try.
0 -
Moth,
I am down to 20 mgs of Prednisone. How quickly did you come down? I was told 5 mgs. every 3 days. Does that sound right to you? I’m not looking forward to going back to life before steroids. I feel almost normal (pre-chemo) when I take them. But MO is really not happy with me on Abraxane and Prednisone, so off them I will come.
0 -
Booboo, I came down from 40 to 30 for 2 weeks then 20 for a week then 10 then dropped to 5 then 2,5 and now 1, all for 1 week and I'm still, feeling the loss even though its been so slow I feel like absolute rubbish, so I really can commiserate .
I've got my next round of chemo on Wednesday, but I'm up for pocket duty for anyone who needs it for any reason this week.
Hi to everyone I hope you all have a good week.
0 -
re prednisone taper, my original rx was to taper by 10mg every 5 days (& the last taper was by from 10mg to 5mg) but my MO accelerated to down 10mg every 3 days, then stay 5 days at 5mg. Then zero. Today is day 1 of no steroids. The tapering itself is mostly ok...just not sure that my pneumonitis is resolved enough
They had no problem with my abraxane and this pulse of steroids but I have had to hold immunotherapy which is normally every 2 weeks. I've missed 2 doses so far & tomorrow is kind of up in the air. I'm worried about that. otoh, the immunotherapy itself can trigger pneunominitis & it turns out everyone needs working lungs lol. I just feel like so much of oncology is juggling with fire while spinning plates while riding on a unicycle being chased by someone with a chainsaw. Ugh, wish things could be simple for a while.
on a different note, I reached out on fb to an old friend from high school. She was a witness at my wedding so we used to be really close but we grew apart - moves & just different lives - & we weren't even fb friends anymore. But then I thought wow, it would be weird if she didn't even know about me having a terminal cancer. And we've had a nice chat on messenger so that was a good thing that happened.
0 -
Moth,
I got a good chuckle out of your description of oncology. And I really don’t think you’re too far off. I hope your lung issue resolves itself soon. I had pneumonitis when I was on Piqray. It’s hard to fix once those pesky lungs get involved. Oh, and good stuff about your (old) high school friend. It’s always good to reconnect. Take care.
0 -
Moth, your description of oncology is spot on I think.
Laurie, I am glad you found your friend. I found my best childhood friend on there as well, had not seen her for 40 years and did some digging.
0 -
Hi Mara,
It was Moth whofound her friend on Facebook. I removed myself from FB several years ago and have never looked back. It was causing me so much anxiety. Once I deleted my account (and it wasn't easy to do that), I was much more calm. I also don't have children or grandchildren to follow, so I can certainly understand those who use FB for that reason. It just wasn't for me.
How about you? Is FB big in Canada
0 -
Laurie, a lot of family and friends are on facebook. I generally use it for a group that does surveys and offers to make money online. I also follow Star Wars and Stephen King groups as well for the most part. I stay away from political comments, racist comments etc due to I think some people make those comments to start arguments and I don't have time for that. Other than that I do updates about once or twice a year about my cancer scans. I also have few friends which are real family and friends of mine. Keeps the spam off mine. If someone does make nasty comments, I stay out of it and just report it to the admins of the pages.
I also like some of the funny posts and cat posts as well. It can be a decent place to be provided a person does not follow places that get political or talk about other hot button issues. Lots of craft and fun groups as well. Can't say I blame you if your newsfeed was full of objectionable things.
0 -
I don’t use Facebook. People don’t like to see others happy. They can be mean. Bullying is common. I think anyone who is in my life I speak to daily. If I wanted to speak to them they’d be in my life. I just find it poisoning to healthy relationships. But as BooBoo said, for family reasons it’s wonderful to keep up. I think for that reason. It’s a great way to make sure the family stays closer, when they live far away.0
-
As far as I'm concerned, Facebook should be about puppies and grandkids but with how many nut jobs are out there, I'm not so sure about grandkids. I think I follow more dog pages than I have friends on FB😜.
0 -
that’s what I do on Instagram. Good reels make me laugh. I love dogs.
0 -
I stick with the funny cat stuff, funny puns, sayings and my core groups that don't devolve into stupidity and if something shows up on my feed and I can tell it is trouble, just scroll by.
Startled myself this morning, for the first time in over a year, I tripped on a sidewalk paver gap. Did that last year and landed on my knees and promptly fainted. I lift both feet very high now so was surprised it happened. This time though I did not fall but instead caught myself on the right leg. I cried for a moment feeling unhappy about this. I pulled myself together and decided just need to pay attention to the gaps more and lift the right leg even more. Not going to stop walking because I think the walking allowed me to react faster, just not happy it happened at all. Sheesh.
0 -
Ok guys I think I have had small progression. I posted on the Liver Met Thread and the Ibrance Thread already. My brain is just kind of numb right now. I had blood drawn for Guardant 360 testing and MO is to talk to liver tumor board. We are to get back together in 4 weeks to discuss options. I am to continue same treatment until then. I just am trying to get my head around this and get advise from here and read research. Make lists of questions. I was awake from 2:30am on with my thoughts.
0 -
Oh Candy, I am very sorry to hear about this progression,never want to hear that word for sure. Hopefully the liver thread or people here can give experience or next steps when it comes to the next line of treatment. Again, thinking of you and am hugging you as well.
0 -
Candy~I am sorry about this possibility. I had initially presented with a liver and breast tumor and they went in and got it out. Full liver resection. They have ablation procedures with RO's please remember I came from liver involvement to remission for four years. Take a deep breath and await to see your MO and go from there. We are here to lean on. We care so much.
Mara~I'm sorry you took a fall. I know what that is like. Thank goodness you weren't hurt. I know I get frustrated when I fall. Tears of pain become tears of frustrations. When you know you can do something. It's kinda a let down. Sending both of you hugs.Waving hi to Tanya and BooBoo and Kitty. Moth, Goldens, eMac, Lee, Karen, anyone I've missed I'll be back.
0 -
I’m finding more and more people are moving away from FB and using other ways to connect with family. Mel, because of some of the bullying that went on with FB, we had two teens in our old neighborhood who committed suicide. That is why I am so apprehensive about social media. Of course, there is always good with the bad, but overall, I miss the days of seeing kids play outside. My Mom could barely get us in the house after dark because we were always doing something outside.
Anyway, Goldens and Mara, you guys have the right idea....dogs, cats and other critters!
Mara, hope you are ok, my dear.
0 -
Candy - so sorry about your news but I love Mel’s optimistic spin. Please don’t jump to conclusions. We are here to help you through this. Whatever you are feeling.....whenever you are feeling it......come to this living room and sit a spell. HUGS
0 -
Candy, I am sorry to hear that you have progression. It doesn’t matter how small it is, the news of progression is always a shock and is upsetting. Iam glad that your MO is taking action quickly by doing the liquid biopsy and taking your case to the tumor board as well as looking into local treatment options. It sounds like you are in good hands. We are all here to support you. You are in my prayers.
Hugs and prayers from, Lynne
0
